Understanding Adult Participant and Parent Empowerment Prior to Evaluation in the Undiagnosed Diseases Network

The burden of living with an undiagnosed condition is high and includes physical and emotional suffering, frustrations, and uncertainty. For patients and families experiencing these stressors, higher levels of empowerment may be associated with better outcomes. Thus, it is important to understand the experiences of patients with undiagnosed conditions and their families affected by undiagnosed conditions in order to identify strategies for fostering empowerment. In this study, we used the Genetic Counseling Outcome Scale (GCOS-24) to assess levels of empowerment and support group participation in 35 adult participants and 67 parents of child participants in the Undiagnosed Diseases Network (UDN) prior to their UDN in-person evaluation. Our results revealed significantly lower empowerment scores on the GCOS-24 in adult participants compared to parents of child participants [t(100)?=???3.01, p?=?0.003, average difference?=???11.12, 95% CI (??3.78, ??18.46)] and no significant association between support group participation and empowerment scores. The majority of participants (84.3%, 86/102) are not currently participating in any support groups, and participation rates were not significantly different for adult participants and parents of child participants (11.4 vs. 19.7%, respectively, FE p?=?0.40). Open-ended responses provided additional insight into support group participation, the challenges of living with undiagnosed conditions, and positive coping strategies. Future research will evaluate the extent to which empowerment scores change as participation in the UDN unfolds.     

Mothers' Ideal Positive Affect Predicts their Socialization of Children's Positive Affect

Parents generally want their children to be happy, but little is known about particular types of positive affect (PA) that parents want their children to experience. Tsai's (2007) affect valuation theory offers a useful framework to understand how parents' emotional goals may shape the socialization of particular types of PA (e.g., excitement vs. relaxation). Participants were 96 mothers and their 7- to 12-year-old children. Results indicated that mothers endorsed similar levels of ideal PA (IPA) for low-, moderate-, and high-arousal PA for both themselves and for their child, suggesting that mothers desire the same type of PA for their children as they want for themselves. In support of the study's main hypothesis, mothers' IPA for their children predicted specific socialization responses that would encourage that type of PA (e.g., mothers' high-arousal IPA predicted greater encouragement of their child to celebrate, whereas mothers' low-arousal IPA predicted encouragement of affection). The findings extend affect valuation theory and emotion socialization research by indicating that parents' emotional goals (i.e., IPA) for their children may contribute to their socialization of children's PA.     

Site Distance, Gender, and Knowledge of Geographic Sites

The primary purpose of the experiments presented in this report was to study systematically the geographic site-name, associative memory of male and female college students (predominantly White and middle class) for locations that varied in distance: local, national, and international sites. In the first experiment, participants were to match listed names of campus buildings and local cities with their marked locations on maps. In the second experiment, under a site-name memory, a site-name/map-aid memory, and a map-aid/name-aid memory (site-name associative memory) condition, participants were to recall or match as many of the 50 US states and the 25 largest US cities as they could. In the third experiment, the participants were to match a listed grouping of the world’s largest bodies of water and continents, a set of countries, and the world’s largest cities, with their marked locations on maps. In the first experiment, men matched significantly more local cities than did women; in the second experiment, men recalled significantly more of the cities under the site-name/map-aid and the map-aid/name-aid memory conditions than did women; and in the third experiment, men matched significantly more sites on all three maps than did women. The absence of gender differences for campus buildings and states may have been a product of the participants having had extensive opportunities to learn these sites. That men displayed greater knowledge of cities and international sites suggests that they have a greater interest in geography than do women. Because of the limitations of the methodology used, the gender differences favoring men could not be interpreted as primarily a product of nature or of nurture, and thus it was concluded that they were a joint product of nature and nurture.     

Behavior under the microscope: increasing the resolution of our experimental procedures

Behavior analysis has exploited conceptual tools whose experimental validity has been amply demonstrated, but their relevance to large-scale and fine-grained behavioral phenomena remains uncertain, because the experimental analysis of these domains faces formidable obstacles of measurement and control. In this essay I suggest that, at least at the fine-grained end of the behavioral spectrum, we have not taken sufficient advantage of all available procedures. Specifically, I propose that an examination of eye movements, joint control, and response latency in intraverbal tasks might help us to formulate more complete accounts of complex human behavior.     

Moving into tummy time,together: Touch and transitions aid parent confidence and infant development

“Back to sleep” messages can reduce prone practice for infants, with potential for motor delay and cranial deformation. Despite recommendations for “tummy time,” young infants fuss in prone, and parents report uncertainty about how to help infants tolerate prone positioning. We hypothesized that a Child'Space Method lesson, teaching proprioceptive touch and transitions to prone, would facilitate prone tolerance, parent behavioral support, and parent self-efficacy. This randomized study recruited parents (N = 37) of 2- to 5-month-old infants. On two visits, parents answered questions about infant behavior and parent experience, and played with their infant. Lesson group parents had the lesson following the first free play. One week later, lesson parents reported that infants tolerated more prone time and that parents showed more supportive behaviors in bringing infant to prone, as compared to waiting parents. Lesson parents’ efficacy, and infant behavior during play, trended in the hypothesized direction. The study demonstrated how a lesson in preparatory touch, and gradual transitions, promoted infant prone tolerance and also parent support of rolling, side-lying, and prone positioning. The lesson could be incorporated in parent education and early pediatric visits, helping infants and parents negotiate the prone challenge and setting the stage for further parent support of infant development.     

A Report on a Four-Year Longitudinal Study of Intellectual Development of Engineering Undergraduates

As part of an investigation into the effects of curricular reforms in the undergraduate program in the College of Engineering, a series of Perry-style interviews were conducted over a 4-year period. The study was undertaken in an attempt to assess the impact of collaborative design-based engineering courses that were being implemented. Students who completed the collaborative design course in their first year were higher on the Perry scale than their peers who did not. However, this effect was not sustained through the rest of the curriculum, as more traditional courses dominated. No statistically significant change in Perry position was observed for students in their 1st and 3rd years; however, a growth of approximately one Perry position was observed between the 3rd and 4th years. The relationship of current curricula to this pattern of intellectual development is discussed, and arguments for altering the curriculum to support intellectual development are made.     

Offender-Victim Relationships in Criminal Homicide Followed by Offender's Suicide,North Carolina, 1972–1977

ABSTRACT: An analysis of 90 cases of criminal homicide followed by suicide in North Carolina, 1972 to 1977. Homicidal victim-offender relationships were investigated in regard to age, sex, race and whether victim and offender were member of the same family, friends, acquaintances, or strangers. These results were compared with victim-offender relationships in 994 criminal homicide cases in North Carolina in which offenders did not commit suicide. Married white males over 30 years were much more involved in homicide-suicide than they were in homicide alone. In these homicide-suicide cases, the victim was usually the spouse. Except for marital status, characteristics of homicide offenders who killed themselves resembled those of suicide-only individuals much more than those of homicide-only offenders. In the homicide-suicide cases, the killing of someone in close relationship to the offender, often a wife, appeared to be part of the evolving process of suicide. This clearly has implications for intervention into marital strife and also for immediate treatment of homicide offenders who kill spouses and other family members.