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121.
Sarah Wright Mary Porteous Diane Stirling Julia Lawton Oliver Young Charlie Gourley Nina Hallowell 《Journal of genetic counseling》2018,27(6):1459-1472
This paper explores patients’ views and experiences of undergoing treatment-focused BRCA1 and BRCA2 genetic testing (TFGT), either offered following triaging to clinical genetics (breast cancer) or as part of a mainstreamed care pathway in oncology (ovarian cancer). Drawing on 26 in-depth interviews with patients with breast or ovarian cancer who had undergone TFGT, this retrospective study examines patients’ views of genetic testing at this point in their care pathway, focusing on issues, such as initial response to the offer of testing, motivations for undergoing testing, and views on care pathways. Patients were amenable to the incorporation of TFGT at an early stage in their cancer care irrespective of (any) prior anticipation of having a genetic test or family history. While patients were glad to have been offered TFGT as part of their care, some questioned the logic of the test’s timing in relation to their cancer treatment. Crucially, patients appeared unable to disentangle the treatment role of TFGT from its preventative function for self and other family members, suggesting that some may undergo TFGT to obtain information for others rather than for self. 相似文献
122.
Amanda?M.?Willis Sian?K.?Smith Bettina?Meiser Mandy?L.?Ballinger David?M.?Thomas Martin?Tattersall the International Sarcoma Kindred Study the Kathleen Cuningham National Consortium for Research into Familial Breast Cancer Mary-Anne?Young 《Journal of genetic counseling》2018,27(5):1055-1066
Germline genomic testing is increasingly used in research to identify genetic causes of disease, including cancer. However, there is evidence that individuals who are notified of clinically actionable research findings have difficulty making informed decisions regarding uptake of genetic counseling for these findings. This study aimed to produce and pilot test a decision aid to assist participants in genomic research studies who are notified of clinically actionable research findings to make informed choices regarding uptake of genetic counseling. Development was guided by published literature, the International Patient Decision Aid Standards, and the expertise of a steering committee of clinicians, researchers, and consumers. Decision aid acceptability was assessed by self-report questionnaire. All 19 participants stated that the decision aid was easy to read, clearly presented, increased their understanding of the implications of taking up research findings, and would be helpful in decision-making. While low to moderate levels of distress/worry were reported after reading the booklet, a majority of participants also reported feeling reassured. All participants would recommend the booklet to others considering uptake of clinically actionable research findings. Results indicate the decision aid is acceptable to the target audience, with potential as a useful decision support tool for genomic research participants. 相似文献
123.
Marta Santos-Nunes Isabel Narciso Salomé Vieira-Santos Magda S. Roberto 《Journal of child and family studies》2018,27(6):1858-1869
Recent research in adoption has considered the factors and processes that underlie the adjustment of children and families. However, little research has been conducted on certain types of adoptive families, specifically on families with both adoptive and biological children often designated as mixed families. This subject is addressed by the present study which also analyzes the association between the type of adoptive family and children’s outcomes—prosocial and problem behavior—parenting stress and the relational family environment. It also examines whether children’s gender, age at adoption and the number of children in the home moderate these effects. 102 parents of adoptive children (ACF) 33 parents of both adoptive and biological children (ABCF) and 102 parents of biological children (BCF) participated in the study. Target-children were aged from 6 to 12 years. The Portuguese versions of the SDQ-P, PSI-SF and FES (Interpersonal Relationship dimension) were used. Results showed that the type of adoptive family—ACF and ABCF—significantly explained the variance of children’s behavioral problems and parenting stress. The child’s gender was shown to moderate the relationship between ACF parents and their perception of child’s prosocial behavior. The results give relevant clues as to the importance of distinct outcomes in adoptive families—ACF and ABCF—compared to families with only biological children and should, therefore, be a resource for professionals involved in the adopters’ suitability assessment and adoption intervention. 相似文献
124.
Michael E. Young 《Journal of the experimental analysis of behavior》2018,109(2):293-312
Multilevel modeling provides the ability to simultaneously evaluate the discounting of individuals and groups by examining choices between smaller sooner and larger later rewards. A multilevel logistic regression approach is advocated in which sensitivity to relative reward magnitude and relative delay are considered as separate contributors to choice. Examples of how to fit choice data using multilevel logistic models are provided to help researchers in the adoption of these methods. 相似文献
125.
Igor Esnaola Lorea Azpiazu Iratxe Antonio-Agirre Marta Sarasa Eloisa Ballina 《Estudios de Psicología》2018,39(1):127-153
The aim of this study was to obtain evidence on the validity of the Emotional Quotient Inventory Youth Version-Short Form (EQ-i:YV-S) with a sample of Mexican adolescent participants. The sample comprised 375 adolescents, 183 males (48.8%), from years seven to 12 (Mage = 14.80, SD = 1.72). Different tests were carried out to provide evidence of the questionnaire’s validity: (1) reliability and internal consistency analyses; (2) exploratory and confirmatory analyses; and (3) correlational and predictive validity analyses through structural equation modelling. The four EQ-i:YV-S subscales (interpersonal, intrapersonal, stress management and adaptability) provided acceptable indexes of reliability. Exploratory factor analysis supported the multidimensionality of the questionnaire. The results of the confirmatory factor analysis showed that the hierarchical model that hypothesized four first-order factors and one second-order factor (social-emotional intelligence) had the best fit for the data. Finally, the positive correlations found between the four specific EQ-i:YV-S subscales, general self-concept and satisfaction with life, supported the convergent validity of the questionnaire; in addition, the questionnaire’s capacity to predict satisfaction with life corroborated its predictive validity. It can therefore be affirmed that the EQ-i:YV-S is a brief questionnaire that is suitable for measuring the emotional intelligence of Mexican adolescents. 相似文献
126.
127.
While inanimate objects can neither experience nor express emotions, in principle they can be expressive of emotions. In particular, music is a paradigmatic example of something expressive of emotions that surely cannot feel anything at all. The Contour theory accounts for music expressiveness in terms of those resemblances that hold between its external and perceivable properties (i.e., its contour) and the typical contour of human emotional behavior. Provided that some critical aspects are emended – notably, the stress on the perception of similarity instead of the more plausible hypothesis that the listener perceives manifestations that are similar – we are inclined to endorse contour theory. In particular, we share its basic idea that expressive properties are perceived. Although other kinds of processes – high-level conceptual inferences, imagination – sometimes characterize our encounters with music, still perception constitutes the standard process underlying the detection of expressiveness. Moreover, we propose to extend contour theory to visual arts. Taking into consideration, as a case study, depicted landscapes, we observe that they frequently cannot but express emotions such as joy, sadness, liveliness or melancholy. The fact that pictures, unlike music, lack any temporal dimension is a prima facie reason for doubting the extendibility of contour theory’s conceptual arsenal to them. Nevertheless, while being obviously unable to behave somehow, we claim that depicted landscapes can perfectly convey dynamic information. If this is the case, the extension of the notion of contour to visuals art via the stress on the notion of dynamism would represent a second interesting revision of contour theory. 相似文献
128.
Carlton J. Fong Kyle M. Williams Zachary H. Williamson Shengjie Lin Young Won Kim Diane L. Schallert 《Motivation and emotion》2018,42(2):236-257
Even with the recent surge of research on achievement emotions, few studies have investigated emotions in feedback situations and the appraisals associated with such emotions. The purpose of this study was to examine emotion appraisals of constructive criticism, negative, and positive feedback, to aid us in determining whether these appraisals differed by feedback type. In a task asking them to provide open-ended responses as they imagined receiving feedback on a writing task, undergraduates (N?=?270) gave reasons for why they might experience unpleasant emotions from positive feedback and pleasant emotions from negative feedback along with reasons for both pleasant and unpleasant emotions emanating from constructive feedback. Open coding of responses yielded categories for each emotion-feedback pairing that, across all emotions, were collapsed into five appraisal categories: feedback suggests ways to improve, a mismatch between feedback and task exists, feedback targets the self or one’s ability, feedback says something about the relationship between feedback giver and receiver, and the task is judged for its value. Distributions of appraisal categories distinguished constructive feedback from positive and negative feedback. Implications are drawn for control-value theory and for classroom feedback practices. 相似文献
129.
Marta Garrett 《Journal of Creativity in Mental Health》2015,10(1):77-88
Artist trading cards (ATCs) are miniature works of art that are created within the dimensions of standardized trading cards or playing cards (2.5 inches × 3.5 inches). ATCs can be made with a variety of media—everything from pen and ink to oil paints, collages, mosaics, stamping, and altered photos. Using this compact art format as an expressive arts intervention in the therapeutic environment provides the counselor with most, if not all, of the same therapeutic benefits of larger art media (e.g., expressive release, creativity, artistic communication, symbolic self-expression, self-exploration, etc.). The unique benefit of the ATC format is that ATCs allow for traditional expressive arts interventions to be “better, faster, and cheaper” in many ways. 相似文献
130.
People often use indirect speech, for example, when trying to bribe a police officer by asking whether there might be “a way to take care of things without all the paperwork.” Recent game theoretic accounts suggest that a speaker uses indirect speech to reduce public accountability for socially risky behaviors. The present studies examine a secondary function of indirect speech use: increasing the perceived moral permissibility of an action. Participants report that indirect speech is associated with reduced accountability for unethical behavior, as well as increased moral permissibility and increased likelihood of unethical behavior. Importantly, moral permissibility was a stronger mediator of the effect of indirect speech on likelihood of action, for judgments of one's own versus others' unethical action. In sum, the motorist who bribes the police officer with winks and nudges may not only avoid public punishment but also maintain the sense that his actions are morally permissible. 相似文献