Training Genetic Counsellors to Deliver an Innovative Therapeutic Intervention: their Views and Experience of Facilitating Multi-Family Discussion Groups

Innovations in clinical genetics have increased diagnosis, treatment and prognosis of inherited genetic conditions (IGCs). This has led to an increased number of families seeking genetic testing and / or genetic counselling and increased the clinical load for genetic counsellors (GCs). Keeping pace with biomedical discoveries, interventions are required to support families to understand, communicate and cope with their Inherited Genetic Condition. The Socio-Psychological Research in Genomics (SPRinG) collaborative have developed a new intervention, based on multi-family discussion groups (MFDGs), to support families affected by IGCs and train GCs in its delivery. A potential challenge to implementing the intervention was whether GCs were willing and able to undergo the training to deliver the MFDG. In analysing three multi-perspective interviews with GCs, this paper evaluates the training received. Findings suggests that MFDGs are a potential valuable resource in supporting families to communicate genetic risk information and can enhance family function and emotional well-being. Furthermore, we demonstrate that it is feasible to train GCs in the delivery of the intervention and that it has the potential to be integrated into clinical practice. Its longer term implementation into routine clinical practice however relies on changes in both organisation of clinical genetics services and genetic counsellors’ professional development.     

Do Extenuating Circumstances Influence African American Women's Attitudes Toward Suicide?

African American women commit suicide less than other U.S. women and men, perhaps partly due to strong, anti-suicide attitudes. To see if suicide attitudes might be softened by extenuating circumstances such as terminal illness, 192 African American and European American women imagined themselves in one of four extenuating circumstances, then completed measures of suicide acceptability and religiosity. Both ethnic groups reported a greater likelihood of suicide when imagining depression, regardless of religiosity. Religiosity, but not extenuating circumstances, corresponded with negative attitudes toward suicide and physician assisted suicide. These African American and European American young women remained steadfastly against suicide, regardless of circumstance.     

Loving, discernment, and distance: pastoral care in schizophrenia

Schizophrenia is very common in our society, yet many people, both clergy and lay, are afraid of it and do not know what to do when confronted with someone who suffers from the disorder. Strange ideas and behavior can be frightening for those who don't understand and often result in further marginalization, even within the church community. This article seeks to outline the main features of schizophrenia and considers how to deal with particular situations which may arise in pastoral care. It suggests ways of dealing with people who express religious delusions and also argues that the "staples" of pastoral care--relationship building, empathy and inclusion--may not always be appropriate in the care of people with schizophrenia, who often need a "safe distance" between themselves and others. Some practical advice for families is also offered.     

German noun plurals: a challenge to the dual-mechanism model

In this article, the authors test one of the central claims of the Dual-Mechanism Model (Pinker and Prince, 1994), that is, that regular inflection equals default inflection. Based on results from an elicitation task with eight agrammatic Broca's aphasics and a lexical decision task with unimpaired subjects, the authors show that this assumption is not borne out. Their data on German plural inflection rather indicate that regular inflection is not necessarily identical to default inflection. To capture the German data, they have to assume regular but input-restricted inflection besides regular default inflection.     

Body tilt effect on the reproduction of orientations: studies on the visual oblique effect and subjective orientations

Body tilt effects on the visual reproduction of orientations and the Class 2 oblique effect (E. A. Essock, 1980) were examined. Body tilts indicate whether the oblique effect (i.e., lower performance in oblique orientations than in vertical-horizontal orientations) is defined in an egocentric or a gravitational reference frame. Results showed that the oblique effect observed in upright posture disappeared in tilted conditions, mainly due to a decrease in the precision of the vertical and horizontal settings. In tilted conditions, the subjective visual vertical proved to be the orientation reproduced the most precisely. Thus, the oblique effect seemed to be not purely gravitationally or egocentrically defined but, rather, to depend on a subjective gravitational reference frame tilted in the same direction as body tilts.     

“State of happiness”? Petroreligion and petromelancholia in Norway

This article discusses the intersection between the symbol systems of petroculture and religion in development of the Norwegian oil age. The public TV series State of Happiness (2018-now) dramatizes Norway's adventure with oil and gas, beginning in 1969. Drawing parallels to Darren Dochuk's work on the mutual construction of petroculture and American religion in Anointed with Oil, this essay argues that State of Happiness retells the story of Norway's adventure with oil framed by some in terms of salvation, as a blessing and as the arrival of a better, messianic age. The characters in the series negotiate their religious commitments with the enchantments of the emerging petroculture in the Stavanger region, engaging the themes of Advent, Christmas, Baptism, and Trinity.     

Examining the Ethics of Clinical Use of Unproven Interventions Outside of Clinical Trials During the Ebola Epidemic

The recent Ebola outbreak in West Africa began in the spring of 2014 and has since caused the deaths of over 6,000 people. Since there are no approved treatments or prevention modalities specifically targeted at Ebola Virus Disease (EVD), debate has focused on whether unproven interventions should be offered to Ebola patients outside of clinical trials. Those engaged in the debate have responded rapidly to a complex and evolving crisis, however, and this debate has not provided much opportunity for in-depth analysis. Additionally, the existing literature on access to unproven therapies has focused on contexts like HIV/AIDS and oncology, which are very different than the Ebola epidemic. In this paper, we examine the ethical issues surrounding access to unproven therapies in the context of the recent Ebola outbreak to yield new insights about this controversial and unsettled issue. We argue first that, in this context, the interests of patients in obtaining access to unproven therapies are not fully aligned with the interests of their providers and drug developers. Second, we focus on the resource constraints facing providers, funders, and patients and conclude that they often counsel against the use of unproven interventions against EVD.     

Proactive and retroactive transfer of middle age adults in a sequential motor learning task

We assessed the effects of aging in the transfer of motor learning in a sequential manual assembly task that is representative for real working conditions. On two different days, young (18–30 years) and middle-aged adults (50–65 years) practiced to build two products that consisted of the same six components but which had to be assembled in a partly different order. Assembly accuracy and movement time during tests, which were performed before and after the practice sessions, were compared to determine proactive and retroactive transfer.