The Quality of Genetic Counseling and Connected Factors as Evaluated by Male BRCA1/2 Mutation Carriers in Finland

There is little written about the quality of genetic counseling for men with the BRCA1/2 mutation. The purpose of this study was to describe the quality of genetic counseling and connected factors according to Finnish male BRCA1/2 mutation carriers’ (n?=?35) perspectives and reasons for seeking genetic counseling. Data were collected from the Departments of Clinical Genetics at five Finnish university hospitals. The exploratory study design was conducted using a 51-item questionnaire based on a previously devised quality of counseling model and analyzed using non-parametric tests and principle content analysis. The satisfaction level with genetic counseling was high, especially with regard to the content of genetic counseling. The benefit of genetic counseling on the quality of life differed significantly (p?<?0.001–0.009) from other factors. In particular, genetic counseling was in some cases associated to reduce the quality of life. Only 49 % of the male carriers felt they received sufficient counseling on social support. Attention to individual psychosocial support was proposed as an improvement to genetic counseling. Primary and secondary reasons for seeking genetic counseling and background information, such as education, affected the perceived quality of genetic counseling. The results of the study could be used to tailor genetic counseling for male BRCA1/2 mutation carriers.     

Illness Perception and Well-Being Among Persons with Multiple Sclerosis and Their Caregivers

This study jointly examined illness beliefs held by persons with multiple sclerosis (PwMS) and caregivers in relation to well-being. A group of 68 PwMS and their caregivers completed the Revised Illness Perception Questionnaire, Psychological Well-being Scales, Satisfaction with Life Scale and Positive Affect and Negative Affect Schedule. Findings revealed that PwMS’ well-being was primarily predicted by their own illness beliefs, and that also caregivers’ well-being was primarily predicted by their own beliefs. Across the two groups, well-being was positively associated with their belief that they understood the disease, and inversely associated with their representations of negative emotions. In addition, among PwMS, well-being was inversely associated with the number of symptoms they specifically attributed to their illness, while among caregivers, well-being was positively associated with beliefs that treatment could control the disease. Based on the study findings, psychoeducational and cognitive-behavioral strategies are suggested to promote well-being among PwMS and caregivers.     

Early Traumatic Stress Responses in Parents Following a Serious Illness in Their Child: A Systematic Review

A systematic review of the literature investigating the early traumatic stress responses in parents of children diagnosed with a serious illness/injury. A literature review was conducted (September 2013) using Medline, PsycINFO, and CINAHL databases. Twenty-four studies related to parents of children hospitalized due to diagnosis of cancer, type 1 diabetes, meningococcal disease, trauma or serious injury, preterm birth and other serious illnesses requiring admission to intensive care were included. Parents were assessed for early traumatic stress symptoms within 3 months of their child’s diagnosis/hospitalization. Prevalence rates of acute stress disorder in parents ranged from 12 to 63 %. Prevalence of posttraumatic stress disorder ranged from 8 to 68 %. Variability was related to methodological factors including differences in study design, timing of assessments, measurement tools, and scoring protocols. Psychosocial factors rather than medical factors predicted parent distress. This review integrates and compares early traumatic reactions in parents with children suffering a range of serious illnesses. Findings suggest a high prevalence of acute and posttraumatic stress symptoms in parents. Methodological inconsistencies made comparison of early traumatic stress prevalence rates difficult. Risk factors associated with traumatic stress symptoms were identified.     

Family Cohesion and Adaptation in Pediatric Chronic Conditions: The Missing Link of the Family’s Condition Management

The quality of family functioning has been considered an important predictor of adaptation in children with chronic conditions and their parents. Previous research suggests that beyond general family functioning, the specific experience of the family’s condition management is paramount for understanding family members’ adaptation. This study’s first goal was to compare family functioning and parents’ and children’s adaptation outcomes across four chronic conditions: asthma, diabetes, epilepsy, and obesity. Secondly, we explored the mediating role of family life difficulties and parental mutuality, as two potential paths through which family cohesion is linked to family members’ adaptation. A total of 263 parents of children (3–19 years old) with asthma (n = 77), obesity (n = 79), epilepsy (n = 52) and diabetes (n = 55) completed self-report measures of family cohesion, family life difficulty, parental mutuality, anxiety and depressive symptoms, and their children’s health-related quality of life (HrQoL). The results showed that families of children with diabetes, obesity, and epilepsy were at higher risk of experiencing family difficulties and children’s deteriorated HrQoL when compared to families of children with asthma. With regard to the links among study variables, although family cohesion had both a direct and indirect relationship with parental depressive symptoms, its links with parental anxiety symptoms and children’s HrQoL were only indirect, through family life difficulty. These associations were consistent across the four clinical groups. These findings emphasize the relevance of family-centered interventions aimed at promoting family cohesion, parents’ mutuality, and effective coping with the demands of pediatric chronic conditions.     

‘For Fun’: (De) Humanizing Gisberta—The Violence of Binary Gender Social Representation

In 2006, Gisberta Salce Júnior died inside of a pit, in an abandoned building, after being tortured for 3 days by a group of teenagers, in Porto, Portugal. Gisberta was a transgender woman who had moved to Portugal from Brazil in the 1980’s. In this paper, we explore the media coverage of her death as an illustrative case of existing social representations of gender, resulting in two main findings: that even those who are seen as communities of support and recognition perpetuate discourses of gender binary norms, and that the only apparent possibility to humanize and transcend these norms is materialized in artistic performance and production, which allows for a more emotional connection to the ‘subject’ as a human individual rather than a mere transgression. The analysis of articles about Gisberta revealed that there is a very strong social representation of gender as a binary, consisting rigidly of female and male poles. As such, the social representation of those individuals who transgress this binary, embodying alternative performances of gender, as was the case with Gisberta, is reduced to their sexuality, their embodiment of something other than the gender binary. Different perspectives were identified: media, the courtroom, the teenagers, LGTB activists and the arts. Through this analysis and division, it was possible to conclude that these binary norms are embedded to the extent that they permeate even the discourses of those who tend to speak for trans people, in such a way that it seems almost impossible to escape them, with one powerful exception: that of artistic expression, which seems to be the only topos from which true recognition is achieved. This case is an extreme example of the necessity to transcend gender norms and allow for recognition of individuals as such.     

Attentional capture by items that match episodic long-term memory representations

A remarkable ability of the human visual system is the implementation of attentional control settings (ACSs) that govern what stimuli capture or hold attention. We provide evidence that ACSs can be specified by episodic long-term memory representations. In all experiments, participants memorized 30 images of objects that they then monitored for in an attention task, inducing an episodic-based ACS. In Experiments 1a and 1b, only studied cues in a cueing task captured attention. We confirmed these cueing effects reflect capture by testing for inhibition of return in Experiment 2a, and controlled for perceptual masking by cues in Experiment 2b. In Experiment 3 we determined that ACSs are specifically supported by episodic retrieval, by dividing studied images into two sets and designating one as the targets in a rapid serial visual presentation task: Only target-set matching distractors produced a spatial blink (captured attention). These results extend our understanding of the representations specifying ACSs.     

How religiosity shapes health perceptions and behaviors of Latina immigrants: is it an enabling or prohibitive factor?

The study examines how religiosity shapes the health perceptions and health-related behaviors of 50 Latina immigrants from El Salvador, Guatemala, Mexico and Bolivia. Between May and August 2011, focus groups were conducted with participants representing each country of origin. Qualitative content analysis was the analytic strategy adopted in the study. The meta-theme, Religiosity Contributes to Positive Perceptions of Health and Health-Promoting Behaviors, is associated with six emerging themes: (1) Religiosity promotes a sense of personal responsibility for one’s health; (2) Religiosity promotes a holistic view of health; (3) Religiosity promotes the view that health is a priority; (4) Religiosity promotes the view that health enables one to perform necessary tasks; (5) Religiosity promotes health-seeking behavior; and (6) Religiosity provides intrinsic health benefits. Findings do not follow the clear-cut dichotomy of the health locus of control model and challenge simplified notions that Latinas hold a purely external health locus of control toward their health and health care. Latinas rely on both God and themselves in managing their health and engaging in health-promoting actions, which are prompted in large part by their religiosity. Implications for culturally appropriate health communication and interventions are discussed.     

Small on the left,large on the right: numbers orient visual attention onto space in preverbal infants

Numbers are represented as ordered magnitudes along a spatially oriented number line. While culture and formal education modulate the direction of this number–space mapping, it is a matter of debate whether its emergence is entirely driven by cultural experience. By registering 8–9‐month‐old infants’ eye movements, this study shows that numerical cues are critical in orienting infants’ visual attention towards a peripheral region of space that is congruent with the number's relative position on a left‐to‐right oriented representational continuum. This finding provides the first direct evidence that, in humans, the association between numbers and oriented spatial codes occurs before the acquisition of symbols or exposure to formal education, suggesting that the number line is not merely a product of human invention.     

The need to belong and self‐disclosure in positive word‐of‐mouth behaviours: The moderating effect of self–brand connection

Word of mouth (WOM) is an important information source for consumers. Nowadays, many consumers promote and spread the word about their preferred brands, thereby influencing others' attitudes and behaviours. Based on a social behaviour perspective and the need to belong theory, this research proposes that the individual's need to belong and the individual's level of self‐disclosure increase their probability of engaging in positive WOM behaviour. The moderating role of self–brand connection in the aforementioned relationships is also analysed. In the study conducted, users of a well‐known baby food brand (n = 851) were surveyed. The results revealed that the individuals' need to belong fostered the desire to talk to others about their preferred brand. A negative moderating effect of self–brand connection was also observed. As the connection with the brand is lower, the motivation to engage in positive WOM will be more related to personal characteristics, such as their need to belong and level of self‐disclosure. Copyright © 2015 John Wiley & Sons, Ltd.     

Italian American Ethnic Identity Persistence: A Qualitative Study

This study explores the persistence of ethnic identity among second- and fourth-generation Italian American emerging adults. In particular, the relational and college influences affecting its development were examined. The findings indicate that a distinct Italian American ethnic identity persists in this population, although it evolves with distance from the immigrant generation. We found that Italian American identity is relationally dynamic and shaped by many factors, most notably, family ethnic socialization, peer relationships, college experiences, ethnic pride, exposure to Italian culture, and life transitions. These findings extend our understanding of the cyclical nature of ethnic identity development within a specific ethnic group and the unique cultural forces shaping the identity of Italian Americans.