Newborn Screening: Education,Consent, and the Residual Blood Spot. The Position of the National Society of Genetic Counselors

Newborn screening (NBS) is a minimally invasive lifesaving test. There is currently no federal mandate for NBS, thus states determine their own screening panel based on the recommendations of the Secretary’s Advisory Committee on Heritable Disorders in Newborn and Children (SACHDNC), which was recently re-chartered as the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children (DACHDNC). After NBS is completed, a couple of residual blood spots remain. While some states allow these spots to be used for public health and scientific research purposes, parents are not always informed about these additional uses. This paper addresses the National Society of Genetic Counselors’ (NSGC’s) position about NBS and blood spot storage/use and the rationale for these positions. The National Society of Genetic Counselors strongly supports newborn screening for the uniform screening panel of conditions recommended by the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children. NSGC also supports storage and use of blood spot samples by newborn screening laboratories and transparent policies that govern these activities.     

Attenuating depletion using goal priming

This research examines how goal priming can attenuate the depletion effect. Using different self-control goals (i.e., savings and healthy eating) and different measures of self-control ability (i.e., willingness to buy and actual consumption), this study reveals that when people were primed with cues related to a self-control goal and then depleted, the effect of depletion on a subsequent self-control task (related to the primed goal) became attenuated. Also, depleted people, relative to nondepleted people, reported a lower level of commitment to a self-control goal; however, when cues related to a self-control goal were primed, their level of goal commitment increased, weakening the depletion effect. This research clarifies questions related to the process underlying depletion, while highlighting the importance of goal commitment (a measure of motivation) in understanding depletion.     

“Putting One Foot in Front of the Other”: A Qualitative Study of Emotional Experiences and Help-Seeking in Women with Multiple Sclerosis

Treatments for depression and anxiety in multiple sclerosis (MS) are effective but evidence suggests that individuals do not always seek help for emotional difficulties. This study explored how ten women with MS (aged 30–64), recruited via a hospital based MS clinic, coped with and understood their emotions. The semi-structured interviews were analysed using interpretative phenomenological analysis. Eight participants discussed the analytic process and themes. Four overarching themes emerged: Disclosure stress, Uncomfortable dependence, Facing deterioration and One step at a time. The women struggled emotionally with many aspects of living with MS yet coping alone provided a way of defying MS and maintaining independence and control. The women needed emotional support but reported thinking others either did not notice or understand; their emotions often felt invisible. More holistic care from services was desired. Non help-seeking for distress was partially influenced by a desire to keep things “normal” and a lack of knowledge regarding service provision.     

Trait Resilience Fosters Adaptive Coping When Control Opportunities are High: Implications for the Motivating Potential of Active Work

Purpose

We examine the interaction between trait resilience and control in predicting coping and performance. Drawing on a person–environment fit perspective, we hypothesized resilient individuals would cope and perform better in demanding work situations when control was high. In contrast, those low in resilience would cope and perform better when control was low. Recognizing the relationship between trait resilience and performance also could be indirect, adaptive coping was examined as a mediating mechanism through which high control enables resilient individuals to demonstrate better performance.

Methodology

In Study 1 (N = 78) and Study 2 (N = 94), participants completed a demanding inbox task in which trait resilience was measured and high and low control was manipulated. Study 3 involved surveying 368 employees on their trait resilience, control, and demand at work (at Time 1), and coping and performance 1 month later at Time 2.

Findings

For more resilient individuals, high control facilitated problem-focused coping (Study 1, 2, and 3), which was indirectly associated with higher subjective performance (Study 1), mastery (Study 2), adaptive, and proficient performance (Study 3). For more resilient individuals, high control also facilitated positive reappraisal (Study 2 and 3), which was indirectly associated with higher adaptive and proficient performance (Study 3).

Implications

Individuals higher in resilience benefit from high control because it enables adaptive coping.

Originality/value

This research makes two contributions: (1) an experimental investigation into the interaction of trait resilience and control, and (2) investigation of coping as the mechanism explaining better performance.

     

Why are women more religious than men? Testing the explanatory power of personality theory among undergraduate students in Wales

This study tests the explanatory power of personality-based psychologically grounded theories to account for the well-established finding within the psychology of religion that within Christian and post-Christian contexts women are more religious than men. A sample of 1682 undergraduate students in Wales completed the short form of the Eysenck Personality Questionnaire Revised together with the adult form of the Francis Scale of Attitude towards Christianity and measures of frequency of church attendance, and frequency of personal prayer. These data confirm that women record higher levels of religiosity and lower levels of psychoticism, and demonstrate that psychoticism is the strongest predictor of individual differences in religiosity. Multiple-regression analyses show that, when individual differences in personality are taken into account, biological sex adds no further impact on religiosity. This finding suggests that higher levels of religiosity among women may be interpreted as a function of basic psychological differences in levels of psychoticism rather than as a sociological function of being female.