Developing a Framework for Assessing Responsible Conduct of Research Education Programs

Education in the responsible conduct of research (RCR) in the United States has evolved over the past decade from targeting trainees to including educational efforts aimed at faculty and staff. In addition RCR education has become more focused as federal agencies have moved to recommend specific content and to mandate education in certain areas. RCR education has therefore become a research-compliance issue necessitating the development of policies and the commitment of resources to develop or expand systems for educating faculty and staff and for assuring compliance. These changes implied the need to develop a program evaluation model that could be applied to institutional RCR education programs, which were expected to differ from traditional academic credit-bearing courses targeting trainees. Information gleaned from the examination of corporate compliance models was analyzed in order to create a program evaluation module that could be used to document and assess educational programs focused on teaching RCR. A programmed series of questions for each of the nine RCR content areas identified by the United States Office of Research Integrity was created based on a performance-monitoring evaluation model. The questions focus on educational goals, resources provided to support the educational efforts, educational content, content delivery, educational outcomes, compliance requirements and feedback. Answers collected in response to the questions could be used to both document and continually improve the quality of RCR educational programs through on-going formative assessment and feedback.     

Measuring Androgyny in Adulthood

A critique is presented of trends in sex differences studies over the past few years. Such studies have failed to study possible integration of sex role identity as a developmental process, and have often neglected self-definitions in favor of stereotypes. A new approach for measuring androgynous competencies is suggested which utilizes Bakan's (1966) concepts of agency and communion. Adult women high on both agentic and communion competencies seem to have many advantages over those who are low on both competencies or who are competent in only one area.     

Estimating rates of chronic fatigue syndrome from a community-based sample: A pilot study

Most of the Chronic Fatigue Syndrome (CFS) epidemiological studies have relied on physicians who refer patients having at least 6 months of chronic fatigue and other symptoms. However, there are a number of potential problems when using this method to derive prevalence statistics. For example, some individuals with CFS might not have the economic resources to access medical care. Other individuals with CFS might be reluctant to use medical personnel, particularly if they have encountered physicians skeptical of the authenticity of their illness. In addition, physicians that are skeptical of the existence of CFS might not identify cases. In the present pilot study, a random community sample (N=1,031) was interviewed by telephone in order to identify and comprehensively evaluate individuals with symptoms of CFS and those who self-report having CFS. Different definitions of CFS were employed, and higher rates (0.2%) of CFS were found than in previous studies. Methodological benefits in using more rigorous epidemiological methods when estimating CFS prevalence rates are discussed. The authors appreciate the generous financial support of the CFIDS Association and Minnan, Inc. We also are grateful for many helpful suggestions provided by Judith A. Richman, William McCready, Wendell Richmond, and Stephen E. Goldston. Finally, we are very thankful to the many undergraduate volunteers who helped us complete this study, and they include Cheryl Stenzel, Georgina DeLa Torre, Vickie Chrisos, Don Banik, Hillary Loeb, Leslie Ramesack, Ellen Diamond, Rob Bleeker, Gib Garza III, Mindy Silverstein, Kadip Sen, Meredith Lombrazo, Brian Miller, Caroline Marsden, Lorraine Whitmore, Stan Gayot, Karen Costakis, and Dave Sobotka.     

Operationalizing the Reciprocal Engagement Model of Genetic Counseling Practice: a Framework for the Scalable Delivery of Genomic Counseling and Testing

With the advent of widespread genomic testing for diagnostic indications and disease risk assessment, there is increased need to optimize genetic counseling services to support the scalable delivery of precision medicine. Here, we describe how we operationalized the reciprocal engagement model of genetic counseling practice to develop a framework of counseling components and strategies for the delivery of genomic results. This framework was constructed based upon qualitative research with patients receiving genomic counseling following online receipt of potentially actionable complex disease and pharmacogenomics reports. Consultation with a transdisciplinary group of investigators, including practicing genetic counselors, was sought to ensure broad scope and applicability of these strategies for use with any large-scale genomic testing effort. We preserve the provision of pre-test education and informed consent as established in Mendelian/single-gene disease genetic counseling practice. Following receipt of genomic results, patients are afforded the opportunity to tailor the counseling agenda by selecting the specific test results they wish to discuss, specifying questions for discussion, and indicating their preference for counseling modality. The genetic counselor uses these patient preferences to set the genomic counseling session and to personalize result communication and risk reduction recommendations. Tailored visual aids and result summary reports divide areas of risk (genetic variant, family history, lifestyle) for each disease to facilitate discussion of multiple disease risks. Post-counseling, session summary reports are actively routed to both the patient and their physician team to encourage review and follow-up. Given the breadth of genomic information potentially resulting from genomic testing, this framework is put forth as a starting point to meet the need for scalable genetic counseling services in the delivery of precision medicine.     

A threat to Canadian national security: a lesbian soldier’s story

Before 1992, lesbians and gay soldiers were purged and discharged from the Canadian military for “reasons of homosexuality.” Those caught or suspected of homosexuality were subject to lengthy, humiliating, and degrading interrogations. This short story sheds light on this painful past. It is based on findings of a nationally funded pan-Canadian longitudinal study examining how Canadian military policies and practices influenced the lives of lesbian, gay, bisexual, and transgender soldiers and their partners. In total, 126 people were interviewed. While in the military, countless soldiers were investigated, numerous interrogated, many lost their careers, some committed suicide and others survived. Personal details have been changed to ensure the anonymity of the people, but it is their voices that tell this story. An official state apology was delivered November 28, 2017. Due to an impending class action court case, an agreement for compensation was also reached. Compensation and memorials will be forthcoming to those who were affected by the LGBTQI2+ purge campaign. To this day, no evidence exits that these soldiers were “ever” a threat to national security.     

On the Disambiguation of Meaning and the Effect of Cognitive Load

Most research supports a non-selective (or exhaustive) account of activation whereby multiple meanings of a word are initially activated (Degani and Tokowicz Quarterly Journal of Experimental Psychology, 63, 1266-1303, 2010). But what happens to the non-selected meaning of an ambiguous word (e.g., bark) and how is the decision made to select one meaning over the other? A great deal of research by Gernsbacher and colleagues (e.g., Gernsbacher and Faust 1991a) suggests that the non-selected meaning is “discarded” via active suppression. The present paper examines meaning-selection in ambiguous words using a word to elicit meaning context (rather than a sentence). Additionally, a manipulation of cognitive load (Experiment 2) was employed to examine these processes. Results support a suppression account of meaning selection. An updated conceptualization of ambiguity resolution is proposed.     

Detecting Duplication in Students’ Research Data: A Method and Illustration

Research integrity is core to the mission of higher education. In undergraduate student samples, self-reported rates of data fabrication have been troublingly high. Despite this, no research has investigated undergraduate data fabrication in a more systematic manner. We applied duplication screening techniques to 18 data sets submitted by psychology honors students for assessment. Although we did not identify any completely duplicated cases, there were numerous partial duplicates. Rather than indicating fabrication, however, these partial duplicates are likely a consequence of poor measure selection, insufficient data screening, and/or participant characteristics. Implications for the teaching and supervision of honors students are discussed.     

Parents’ Verbal Communication and Childhood Anxiety: A Systematic Review

Parents’ verbal communication to their child, particularly the expression of fear-relevant information (e.g., attributions of threat to the environment), is considered to play a key role in children’s fears and anxiety. This review considers the extent to which parental verbal communication is associated with child anxiety by examining research that has employed objective observational methods. Using a systematic search strategy, we identified 15 studies that addressed this question. These studies provided some evidence that particular fear-relevant features of parental verbal communication are associated with child anxiety under certain conditions. However, the scope for drawing reliable, general conclusions was limited by extensive methodological variation between studies, particularly in terms of the features of parental verbal communication examined and the context in which communication took place, how child anxiety was measured, and inconsistent consideration of factors that may moderate the verbal communication–child anxiety relationship. We discuss ways in which future research can contribute to this developing evidence base and reduce further methodological inconsistency so as to inform interventions for children with anxiety problems.