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Although available guidelines for familial cancer risk counseling clearly state the need to provide adequate psychosocial assessments and support, this feature of care is only available in part for individuals and families in oncogenetic counseling protocols in Portugal. The purpose of this study was to examine the psychosocial aspects of oncogenetic counseling provided by a sample of Portuguese genetics professionals. We sought to ascertain perceived need for the provision of psychosocial services and ways to enhance the psychosocial focus in service delivery. A qualitative study was designed; semi-structured focus groups and individual interviews were performed with 30 professionals from Portuguese healthcare institutions where oncogenetic counseling is offered. Findings suggest: current practice is aligned with the teaching model, with a mainly information-based focus; use of psychosocial counseling techniques and psychosocial support is limited throughout the genetic counseling timeline; there is a limited workforce of adequately trained psychosocial professionals, who are disadvantaged by structural and organizational constraints. These factors are considered to be serious barriers for psychosocial delivery. Development of multidisciplinary teams working in oncogenetics, and need for further counselling skills and training for genetics healthcare professionals were identified as priorities. Implications for practice and policy are discussed. Portuguese genetic counselors who have recently completed their training, may therefore contribute to enhanced psychosocial services delivery. 相似文献
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Thompson Stephanie F. Shimomaeda Lisa Calhoun Rebecca Moini Natasha Smith Michele R. Lengua Liliana J. 《Journal of abnormal child psychology》2022,50(6):695-708
Research on Child and Adolescent Psychopathology - Parents living in low-income contexts shouldered disproportionate hardships during the COVID-19 pandemic with consequences to maternal mental... 相似文献
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Rothenberg W. Andrew Ali Sumbleen Rohner Ronald P. Lansford Jennifer E. Britner Preston A. Di Giunta Laura Dodge Kenneth A. Malone Patrick S. Oburu Paul Pastorelli Concetta Skinner Ann T. Sorbring Emma Steinberg Laurence Tapanya Sombat Tirado Liliana Maria Uribe Yotanyamaneewong Saengduean Alampay Liane Peña Al-Hassan Suha M. Bacchini Dario Bornstein Marc H. Chang Lei Deater-Deckard Kirby 《Journal of child and family studies》2022,31(1):335-335
Journal of Child and Family Studies - 相似文献
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Accounting for both bidirectional and interactive effects between parenting and child temperament can fine-tune theoretical
models of the role of parenting and temperament in children’s development of adjustment problems. Evidence for bidirectional
and interactive effects between parenting and children’s characteristics of frustration, fear, self-regulation, and impulsivity
was reviewed, and an overall model of children’s individual differences in response to parenting is proposed. In general,
children high in frustration, impulsivity and low in effortful control are more vulnerable to the adverse effects of negative
parenting, while in turn, many negative parenting behaviors predict increases in these characteristics. Frustration, fearfulness,
and effortful control also appear to elicit parenting behaviors that can predict increases in these characteristics. Irritability
renders children more susceptible to negative parenting behaviors. Fearfulness operates in a very complex manner, sometimes
increasing children’s responses to parenting behaviors and sometimes mitigating them and apparently operating differently
across gender. Important directions for future research include the use of study designs and analytic approaches that account
for the direction of effects and for developmental changes in parenting and temperament over time. 相似文献
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Wong A Rodríguez M Quevedo L Fernández de Cossío L Borges A Reyes A Corral R Blanco F Alvarez M 《Assessment》2012,19(3):383-387
There is a current debate about the ecological validity of executive function (EF) tests. Consistent with the verisimilitude approach, this research proposes the ballet executive scale (BES), a self-rating questionnaire that assimilates idiosyncratic executive behaviors of classical dance community. The BES was administrated to 149 adolescents, students of the Cuban Ballet School. Results present a Cronbach's alpha coefficient of .80 and a split-half Spearman-Brown coefficient r (SB) = .81. An exploratory factor analysis describes a bifactorial pattern of EF dimensions, with a self-regulation component, which explains more than 40% of variance, and a Developmental component, which accounts for more than 20% of variance. The questionnaire's total scores fit linear regression models with two external criteria of academic records, confirming concurrent validity. These findings support the hypothesis that the internalization of specific contextual cultural meanings has a mediating influence in the development of EF. 相似文献
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