The National Society of Genetic Counselors (NSGC) supports the development of practice recommendations (guidelines) in the field of genetic counseling. This paper reviews the basic components of NSGC genetic counseling practice recommendations as well as the process for formal adoption of such documents, as approved by the Board of Directors of the NSGC. 相似文献
This study describes utilization of coping strategies and evaluates the interaction between coping strategies, depression, and quality of life (QOL) in patients with Parkinson's disease (PD) who are being considered for neurosurgical intervention. Eighty patients (mean age 61.7 years) with PD being evaluated for possible deep brain stimulation completed self-report instruments of coping strategies (Coping Responses Inventory), depression (Beck Depression Inventory), and disease-specific QOL (Parkinson's Disease Questionnaire-39). Analyses showed that patients with PD cope with the acute stressor of approaching neurosurgery through a variety of strategies, but particularly avoidant and behavioral strategies. When the correlated but apparently opposing effects of cognitive and behavioral strategies were teased apart, greater use of cognitive strategies was associated with more severe depressive symptomatology (and poorer QOL), while greater use of behavioral strategies appeared to be associated with less depression. Depressive symptomatology, in turn, was associated with poorer QOL. However, coping had minimal direct association with QOL. From this it was concluded that patients with advanced PD generate a variety of coping responses to an acute stressor such as surgery, and the use of behavioral strategies, in particular seeking of alternative enjoyable activities, may be associated with better mood if salutary effects are not overwhelmed by less helpful cognitive coping techniques. The minimization of depressive symptomatology, in turn, is associated with better QOL. 相似文献
Children recognize that people who know more are better informants than those who know less. How does an individual’s prior knowledge affect children’s decisions about whom to inform? In 3 experiments, 3- to 6-year-old children were invited to share a novel piece of information with 1 of 2 potential recipients who differed in their recent history of knowledge. Children tended to inform the previously knowledgeable person rather than the previously ignorant person. This same effect was observed in a 4th experiment when the knowledgeable person stated that she already knew the information the participant had to share. In no case was the opposite pattern observed: Children never chose to inform the person who had known less. These results seem to conflict with equity considerations and may reflect a preference to affiliate with competent social partners. 相似文献
Objective: Adjustment to cleft lip and/or palate (CL/P) is multifaceted, involving several domains of psychological and social functioning. A substantial increase in research in this area has been evident in recent years, along with a preliminary shift in how adjustment to CL/P is conceptualised and measured. An updated and comprehensive review of the literature is needed in light of the rapidly expanding and changing field.
Design: A narrative review of 148 quantitative and qualitative studies published between January 2004 and July 2015.
Main outcome measures: Findings are presented according to five key domains of adjustment: Developmental Trajectory, Behaviour, Emotional Well-being, Social Experiences and Satisfaction with Appearance and Treatment. Data pertaining to General Psychological Well-being were also examined.
Results: The overall impact of CL/P on psychological adjustment appears to be low. Nonetheless, the review demonstrates the complexity of findings both within and across domains, and highlights recurring methodological challenges.
Conclusions: Research findings from the last decade are considered to be largely inconclusive, although some areas of emerging consensus and improvements in the approaches used were identified. Efforts to collect data from large, representative and longitudinal samples, which are comparable across studies and encompassing of the patient perspective, should be doubled. 相似文献
Cognitive training programs that instruct specific strategies frequently show limited transfer. Open-ended approaches can achieve greater transfer, but may fail to benefit many older adults due to age deficits in self-initiated processing. We examined whether a compromise that encourages effort at encoding without an experimenter-prescribed strategy might yield better results. Older adults completed memory training under conditions that either (1) mandated a specific strategy to increase deep, associative encoding, (2) attempted to suppress such encoding by mandating rote rehearsal, or (3) encouraged time and effort toward encoding but allowed for strategy choice. The experimenter-enforced associative encoding strategy succeeded in creating integrated representations of studied items, but training-task progress was related to pre-existing ability. Independent of condition assignment, self-reported deep encoding was associated with positive training and transfer effects, suggesting that the most beneficial outcomes occur when environmental support guiding effort is provided but participants generate their own strategies. 相似文献
This essay provides an overview of research and theory on narrative and its important, functional role in human experience, including the ways people use media to interrogate their own beliefs and feelings, and derive social meaning. Thought‐provoking film, television, and books can help us make meaning of our lives and grow in ways that are important for our successful social functioning. Research reviewed here demonstrates that exposure to fiction can increase empathy and social skills and reduce prejudice. Our connection to characters and stories has been studied in various ways as extensions of the self into another, while at the same time bringing the other into the self. Bringing together disparate perspectives, we propose that connecting to story worlds involves a process of “dual empathy”—simultaneously engaging in intense personal processing while also “feeling through” characters, both of which produce benefits. Because the value of entertainment narratives may not always be well understood, we explain how those experiences can be personal, social, and can serve important adaptive functions. 相似文献