“Nothing About Me, Without Me”: Participatory Action Research with Self-Help/Mutual Aid Organizations for Psychiatric Consumer/Survivors

Participatory action research with self-help/mutual aid organizations for psychiatric consumer/survivors is reviewed. We begin by tracing the origins of and defining both participatory action research and self-help/mutual aid. In so doing, the degree of correspondence between the assumptions/values of participatory action research and those of self-help/mutual aid for psychiatric consumer/survivors is examined. We argue that participatory action research and self-help/mutual aid share four values in common: (a) empowerment, (b) supportive relationships, (c) social change, and (d) learning as an ongoing process. Next, selected examples of participatory action research with psychiatric consumer/survivor-controlled self-help/mutual aid organizations which illustrate these shared values are provided. We conclude with recommendations of how the key values can be promoted in both the methodological and substantive aspects of future participatory action research with self-help/mutual aid organizations for psychiatric consumer/survivors.     

The Beavers Systems Model of Family Functioning

Family competence and family style are the two main dimensions of the Beavers Systems Model of Family Functioning. The competence dimension ranges from optimal through adequate, midrange and borderline to severely dysfunctional. The style dimension ranges from centripetal to centrifugal. When the two dimensions are combined, they diagramatically define nine distinct family groupings, three of which are relatively functional and six of which are thought to be sufficiently problematic to require clinical intervention. A family's status on the competence and style dimensions may be established with the Beavers interactional scales. The self-report family inventory may be used to evaluate family members' perceptions of their status on the competence dimension. The reliability and validity of the self-report instrument and observational rating scales have been documented in over thirty papers and books published by the Beavers research team since 1970. The model has proved useful in training, research and clinical work.     

Shortage of highly skilled workers in Hong Kong and policy responses

As Hong Kong develops into a knowledge-based economy, there is a strong increase in demand for highly educated and highly skilled workers. At the same time, many other countries are also experiencing shortages of highly-skilled workers as the development of hi-tech and information technology sectors have become an international trend. In this article, we study the changes in demand and supply of highly-skilled workers in Hong Kong and analyse the role that natural population growth, immigration, emigration, and return migration play in relation to the supply of highly-skilled workers. We also give an account of the policy responses of the government of the Hong Kong Special Administrative Region in its attempt to attract highly-skilled professionals as well as the challenges facing Hong Kong in the light of keen international competition.     

Defensive aggression in terns: Discrimination and response to individual researchers

The defensive responses of roseate terns (Sterna dougallii) were studied during the middle of the breeding season when all reproductive stages (incubation, chick-hatching, chick-rearing) were represented, to determine the factors affecting levels of nest defense and whether terns responded differently towards a familiar versus an unfamiliar researcher. Defensive aggression generally varied as a function of researcher identity, time of day, section or location in the colony and nest density. These variables explained from 60 to 66% of the variation in defensive aggression. More terns mobbed one researcher with more dive attacks than the other researcher. Terns were more aggressive in areas where the chicks had just hatched and were most vulnerable. © 1993 Wiley-Liss, Inc.     

Pilot randomised controlled trial of counselling in a community mental health setting: Pitfalls and learnings

The establishment of counselling and psychotherapy as “evidence‐based” interventions is contingent on the effective implementation of randomised controlled trials (RCTs) in real‐world clinical settings. This paper identifies some of the pitfalls that led to the termination of a practical RCT in a community mental health setting. It reflects upon the significance of the lessons learned by drawing on similar challenges that are documented in the wider literature. Issues surrounding staff turnover, counsellor engagement and procedural clarity are discussed, as is the conflict between the time required for research procedures and counsellors’ clinical time constraints. In our recommendations, we recognise the decisive role of collaboration and counsellor motivation in research partnerships, and the significance of clinical relevance, communication, training and research co‐production in achieving them. Time commitment is identified as the pivotal challenge in the formation and maintenance of collaborative research, but one that also must be overcome for the advancement of the counselling and psychotherapy field.     

The phenotypic consequences of MECP2 mutations extend beyond Rett syndrome

Although MECP2 was initially identified as the causative gene in classic Rett syndrome (RTT), the gene has now been implicated in several phenotypes that extend well beyond the clinically defined disorder. MECP2 mutations have been found in people with various disorders, including neonatal onset encephalopathy, X-linked recessive mental retardation (MRX), classic and atypical RTT, autism, and Angelman syndrome, as well as mildly affected females and normal carrier females. To make matters more complex, in approximately 20% of classic sporadic RTT cases and more than 50% of affected sister pairs, no mutation in MECP2 has been found. X-chromosome inactivation patterns can clearly affect the phenotypic expression in females, while the effect of the type and position of the mutation is more apparent in the broader phenotype than in RTT. Both males and females are at risk, although an excess of paternally derived mutations are found in most cases of classic RTT. Thus, because of the range of disparate phenotypes, the gene may account for a relatively large portion of mental retardation in the population.