High-Risk Palliative Care Patients’ Knowledge and Attitudes about Hereditary Cancer Testing and DNA Banking

Even at the end of life, testing cancer patients for inherited susceptibility may provide life-saving information to their relatives. Prior research suggests palliative care inpatients have suboptimal understanding of genetic importance, and testing may be underutilized in this clinical setting. These conclusions are based on limited research. This study aimed to estimate genetic testing prevalence among high-risk palliative care patients in a National Cancer Institute-designated comprehensive cancer center. We also aimed to understand these patients’ understanding of, and attitudes toward, hereditary cancer testing and DNA banking. Palliative care in-patients with cancer completed structured interviews, and their medical records were reviewed. Among patients at high risk for hereditary cancer, we assessed history of genetic testing/DNA banking; and related knowledge and attitudes. Among 24 high-risk patients, 14 (58.3%) said they/their relatives had genetic testing or they had been referred for a genetics consultation. Of the remaining 10 patients, seven (70%) said they would “probably” or “definitely” get tested. Patients who had not had testing were least concerned about the impact of future testing on their family relationships; two (20%) said they were “extremely concerned” about privacy related to genetic testing. Of patients without prior testing, five (50%) said they had heard or read “a fair amount” about genetic testing. No high-risk patients had banked DNA. Overall, 23 (95.8%) said they had heard or read “almost nothing” or “relatively little” about DNA banking. Written materials and clinician discussion were most preferred ways to learn about genetic testing and DNA banking. Overall, this study demonstrates underutilization of genetics services at the end of life continues to be problematic, despite high patient interest.     

Transition to motherhood: A longitudinal study

A prospective longitudinal study assessed the development of the mother-child relationship within the context of other important aspects of transition to parenthood. In the prenatal phase, 238 women who were 8 months pregnant with their first child completed a set of questionnaires. At 1 month post-partum, 165 of these women completed a second set of questionnaires, and a subset of 86 were observed for 1 hour at home with their infants. When their child was 2 years old, 62 of the 86 mothers completed questionnaires and were observed in interaction with their toddler in the laboratory. The several hundred individual variables were reduced to internally consistent composite variables, 5 in the prenatal phase, 7 postpartum, and 14 in the toddler phase. Preliminary analyses reported in this paper assessed the structure of relationships among the composite variables within each phase (Pearson correlations) and whether there was significant prediction from one dimension to another across the phases, beyond stability in the predicted dimension (multiple regressions). Causal modeling analyses are still in progress. The results indicate that the development of maternal attachment is a gradual process and that feelings of attachment are related to a number of other measures of women's psychological well-being. Parenting confidence was found to play a central role in adaptation to motherhood within each phase, as well as from the prenatal to postpartum and postpartum to toddler phases.     

Spiritual well-being in older adults: Harmonious interconnectedness

The current study was designed to identify indicators of spiritual well-being in persons 65 years of age and over, using a grounded theory approach through the constant comparative method of data analysis. The basic social process of harmonious interconnectedness was discovered. This process was the unifying force between categories and within each identified category. The study has implications for health care personnel in that it provides a basis for assessing spiritual well-being in patients.This study was partially funded by a special project grant from Marquette University.     

“Active faith” in Christian marriage: The challenge of family systems

The purpose of this paper is to examine the possibilities for creating an environment which nurtures active faith in marriage. I intend to do this by examining historical tradition on Christian marriage, and exploring behavioral science for its contribution to the subject. In particular, I will suggest some ways that family systems theory, with its understanding of healthy marriage and family life, can be a transforming element for the study of marriage today.Presented at The Future of the American Church Conference, Washington, D.C., September 22, 1991.     

Actual and subjective age-related differences in women's attitudes toward their bodies across the life span

The present study examined actual and subjective age-related variations in women's perceptions of their weight, sexual attractiveness, physical condition, and overall body satisfaction. To this end, 265 women between the ages of 17 and 85 years completed the Body Esteem Scale (Franzio & Shields, 1984), the subjective age scales of the Subjective Age and Gender Scale (Montepare, 1996), and the Self-Esteem Scale (Rosenberg, 1965). Analyses revealed that, whereas women of all ages held unfavorable attitudes toward their weight, the positivity of their perceptions of their sexual attractiveness and physical condition was curvilinearly related to their age group with middle-aged women having the most favorable images. Analyses also revealed that women's subjective age, as opposed to their actual age, was a stronger predictor of their body attitudes. Moreover, the observed relationships were independent of the effects of self-esteem, which was nevertheless strongly linked to women's body image.     

Variations in adults' subjective ages in relation to birthday nearness,age awareness,and attitudes toward aging

This research examined the extent to which variations in adults' subjective age identities were related to information provided by proximal age markers, which are specific age-symbolic experiences presumed to channel shifts in age identities. To this end, adults' psychological, physical, and social subjective age identities were examined in relation to the nearness of their birthdays. In the absence of proximal age information, younger and older adults showed distinctive age-related changes in subjective age. On the other hand, older men's and women's social subjective ages as well as older women's psychological subjective age were less youthful the nearer their birthdays. However, younger adults' age identities did not vary with the closeness of their birthdays. Several gender differences in addition to the moderating effects of adults' awareness of their age and their attitudes toward aging were also observed.     

A Voice and So Much More: The Neglect and Representation of Language in Social Psychology

Linguistic diversity is an irreducible characteristic of the world we live in today, yet the study of language remains relatively neglected in mainstream and critical social psychologies alike. In order to argue for a renewed confrontation between language and critical social psychology, this study presents an overview of both the absence of language from mainstream, experimental social psychology and of the emergence, since the 1970s, of the social psychology of language as a distinctive subfield in the discipline. It is argued that although the social psychology of language made the subject perceptible as a speaking and above all accented subject, foregrounding language as an index of class, ethnicity and race, it achieved this perceptibility without challenging the basic ideological coordinates according to which experimental social psychology conceptualises the world and subjects in relation to language. For this reason, the social psychology of language, despite its important contributions, reproduces an essentially national and monolingual imagination of language related phenomena and linguistic subjectivities. The task for a critical social psychology of language, it is argued, is to 'demythologise' and 'disinvent' language and language ideologies in the discipline.