Parents’ Experiences of Receiving the Initial Positive Newborn Screening (NBS) Result for Cystic Fibrosis and Sickle Cell Disease

The clinical advantages of the newborn screening programme (NBS) in the UK are well described in the literature. However, there has been little exploration of the psychosocial impact on the family. This study followed the principles of grounded theory to explore parents’ experiences of receiving the initial positive NBS result for their child with cystic fibrosis (CF) or sickle cell disease (SCD). Semi-structured, qualitative interviews were conducted with 22 parents (12 mothers and 10 fathers) whose children had been diagnosed with CF or SCD via NBS and were under the age of 1 year at the time of interview. The main themes that arose from the data were; parents previous knowledge of the condition and the NBS programme, the method of delivery and parental reactions to the result, sharing the results with others, the impact on parental relationships and support strategies. Study conclusions indicate that most parents thought initial positive NBS results should be delivered by a health professional with condition specific knowledge, preferably with both parents present. Genetic counselling needs to include a focus on the impact of NBS results on parental relationships. Careful consideration needs to be given to strategies to support parents of babies who have positive NBS results both in terms of the psychological health and to assist them in sharing the diagnosis.     

Psychometric Properties of the Mental Health Continuum-Short Form: A Study of Portuguese Speaking Children/Youths

The development of measures of children and adolescents’ subjective well-being is crucial to the conceptualization and evaluation of positive mental health. The aim of this study was to investigate the factorial structure and invariance of the Mental Health Continuum-Short Form (MHC-SF—adolescents) across children and youths. Participants were from two different samples: 208 elementary school children (sample 1) and 216 middle school youths (sample 2). Results confirmed the three-dimensional structure of subjective well-being in both samples. The three sub-scales of the MHCSF yielded high internal consistency and results from the HTMT85 indicated discriminant validity. Measurement invariance testing across three different age groups (7–8, 9–10 and 11–14 years) confirmed the full metric and approximate scalar invariance of the MHC-SF. Full scalar invariance was achieved across gender. The study also compared the latent means for mental well-being in the three age groups, and found that the younger groups showed significantly higher levels of wellbeing. The present research study strongly suggests that the MHC-SF (adolescents) is an appropriate instrument to measure the positive mental health and well-being of children and pre-adolescents as multidimensional construct.     

Does the Quality of Academic Life Matter for Students’ Performance,Loyalty and University Recommendation?

The quality of academic life (QAL) is concerned with all the general feelings of satisfaction of a student who experiences university. For universities, academic staff, public managers and policy makers, the fundamental question is how the measures and management of this construct can be improved in order to render a better service to students. Based on a sample of 726 students from all Portuguese State universities, we test a structural model that allows us to evaluate the impact of QAL on students’ academic performance (SAP) along with loyalty and willingness to recommend the university. In the analysis of all groups, the results reveal that QAL has a positive and significant, although not robust, influence on SAP. That positive influence is ratified, however, in the multi-group analysis for the 2nd and 3rd Study Cycles, through obtaining significant and robust empirical evidence. The results also show that QAL is a good predictor of loyalty and university recommendation.     

Social influence on metacognitive evaluations: The power of nonverbal cues

Metacognitive evaluations refer to the processes by which people assess their own cognitive operations with respect to their current goal. Little is known about whether this process is susceptible to social influence. Here we investigate whether nonverbal social signals spontaneously influence metacognitive evaluations. Participants performed a two-alternative forced-choice task, which was followed by a face randomly gazing towards or away from the response chosen by the participant. Participants then provided a metacognitive evaluation of their response by rating their confidence in their answer. In Experiment 1, the participants were told that the gaze direction was irrelevant to the task purpose and were advised to ignore it. The results revealed an effect of implicit social information on confidence ratings even though the gaze direction was random and therefore unreliable for task purposes. In addition, nonsocial cues (car) did not elicit this effect. In Experiment 2, the participants were led to believe that cue direction (face or car) reflected a previous participant's response to the same question—that is, the social information provided by the cue was made explicit, yet still objectively unreliable for the task. The results showed a similar social influence on confidence ratings, observed with both cues (car and face) but with an increased magnitude relative to Experiment 1. We additionally showed in Experiment 2 that social information impaired metacognitive accuracy. Together our results strongly suggest an involuntary susceptibility of metacognitive evaluations to nonverbal social information, even when it is implicit (Experiment 1) and unreliable (Experiments 1 and 2).     

Dirty dozen: A concise measure of dark triad traits among at-risk youths

Current Psychology - The Dark Triad is a term used to describe a constellation of three socially undesirable personality traits: psychopathy, narcissism, and Machiavellianism. The aim of the...     

Problem Gambling in Adolescence: An Analysis Conducted from the Actor’s Perspective

The objective of this study is, by using the general theory of rationality (GTR), to better understand the rationale underlying gambling behavior in adolescents considered to have gambling problems. The study explore gambling associated benefits, negative consequences of gambling, and the adolescents’ perceptions of the severity of their gambling behavior. The qualitative research is based on semi-structured interviews with 31 adolescents considered as having gambling problems. The analysis revealed that gambling behavior are based on a threefold rationality: instrumental, cognitive and axiological. The GTR allows to better understand why most of them do not consider to have gambling problems.     

Does psychosocial stress exacerbate avoidant responses to cancer information in those who are afraid of cancer? A population-based survey among older adults in England

Objective: Communication of cancer information is an important element of cancer control, but cancer fear may lead to information avoidance, especially when coping is low. We examined the association between cancer fear and cancer information avoidance, and tested whether this was exacerbated by psychosocial stress.

Design: Cross-sectional survey of 1258 population-based adults (58–70 years) in England.

Main outcome measures: Cancer fear (intensity and frequency), perceived psychosocial stress and cancer information avoidance. Control variables were age, gender, ethnicity, marital status and education.

Results: A quarter (24%) of respondents avoided cancer information. Ordinal logistic regression analyses showed main effects of psychosocial stress (OR = 1.17, 95% CI 1.07–1.29) and cancer fear: cancer information avoidance was lowest in those with no cancer fear (13%), followed by those with moderate (24%; OR = 2.15, 95% CI: 1.49–3.12), and high cancer fear (35%; OR = 3.90, 95% CI: 2.65–5.73). In the adjusted model, the interaction between cancer fear and stress was significant (OR = 1.14, 95% CI 1.004–1.29, p < .05): 40% of those with high fear/high stress avoided cancer information compared with 29% with high fear/low stress.

Conclusion: Cancer fear and psychosocial stress interact to produce disengagement with cancer-related information, highlighting the importance of affective processes to cancer control efforts.     

Depictions of Gender Across Eight Decades of Disney Animated Film: The Role of Film Producer,Director, and Writer Gender

Depictions of gender in media are often scrutinized for stereotypical patterns. Disney films are of particular interest, as they are often watched by children and may play a role in children’s gender socialization. The purpose of this paper is twofold: first, to assess gender depictions of characters in animated Disney films (released between 1937 and 2019; 61 films with 323 characters total), and second, to explore depictions of gender in Disney animated films coupled with an analysis of the gender of those involved in the production of these films (producers, directors, and writers). We found a significant difference in the number of male and female characters (roughly 60% male, 40% female), which did not significantly differ by decade. Female characters were more consistently depicted as attractive compared to male characters, although character’s intelligence, ability, popularity, activity level, family role, story role, and romantic engagement did not differ by gender. Male characters were more often represented as parents or children in films written by women, and female characters were more often represented as the antagonist in films written by men. Male characters were over-represented as overly active in films produced by women, and female characters were over-represented as grandparents in films produced by women. These findings revealed few stereotypical gendered depictions of characters in Disney films over nine decades and that the inclusion of women in the production process resulted in more nuanced depictions of both male and female characters.

     

Impact of End-of-Life Circumstances on the Adjustment of Bereaved Siblings of Children Who Died from Cancer

The aim of this study was to examine the impact of end-of-life (EoL) circumstances on grief and internalizing symptoms among bereaved siblings. Bereaved families (N?=?88) were recruited from three sites 3–12 months (M?=?11.57, SD?=?3.48) after their child’s death from cancer. One sibling per family aged 8–17 years (M?=?12.41, SD?=?2.64) was randomly selected to participate. Families completed measures of siblings’ grief and internalizing symptoms, as well as a structured interview about circumstances surrounding the death. Mother and sibling reports of EoL circumstances were generally concordant, except there was a discrepancy between mothers and children about whether or not children expected their sibling’s death (t(75)?=?1.52, p?=?.018). Mother reports of sibling internalizing symptoms were above the normative mean (t(83)?=?4.44, p?≤?.001 (M?=?56.01?±?12.48), with 39% (n?=?33) in the borderline/clinical range. Sibling opportunity to say goodbye was associated with greater grief-related growth (t(79)?=?? 1.95, p?=?.05). Presence at the death and wishing they had done something differently were both associated with greater grief (t(80)?=?? 2.08, p?=?.04 and t(80)?=?? 2.24, p?=?.028, respectively) and grief-related growth (t(80)?=?? 2.01, p?=?.048 and t(80)?=?? 2.31, p?=?.024, respectively). However, findings were primarily unique to sibling report, with few mother-reported effects. The adjustment of bereaved siblings may be affected by certain modifiable circumstances surrounding the death of their brother or sister. A proportion of bereaved siblings had elevated internalizing symptoms irrespective of circumstances at EoL. Further work is needed to understand predictors of adjustment among bereaved siblings to provide better support and optimize their outcomes.