Experiences of patients undergoing repeated intravitreal anti-vascular endothelial growth factor injections for neovascular age-related macular degeneration

Current therapy to slow disease progression in patients with neovascular age-related macular degeneration (AMD) entails regular intravitreal anti-vascular endothelial growth factor (VEGF) injections, often indefinitely. Little is known about the burden imposed on patients by this repetitive treatment schedule and how this can be best managed. The aim of this study was to explore the psychosocial impact of repeated intravitreal injections on patients with neovascular AMD. Forty patients (16 males, 24 females) with neovascular AMD undergoing anti-VEGF treatment were recruited using purposive sampling from a private ophthalmology practice and public hospital in Melbourne. Patients were surveyed using the Macular Disease Treatment Satisfaction Questionnaire (MacTSQ; Bradley, Health Psychology Research Unit, Surrey, England) and underwent semi-structured, one-on-one interviews. Interview topics were: treatment burden and satisfaction; tolerability; barriers to adherence; treatment motivation; and patient education. Interviews were audio recorded and thematic analysis performed using NVivo 10 (QSR International, Doncaster, Australia). Patients recognised the importance of treatment to preserve eyesight, yet experienced significant psychosocial and practical burden from the treatment schedule. Important issues included treatment-related anxiety, financial considerations and transport burden placed on relatives or carers. Many patients were restricted to sedentary activities post-injection owing to treatment side effects. Patients prioritised treatment, often sacrificing family, travel and social commitments owing to a fear of losing eyesight if treatment was not received. Whilst anti-VEGF injections represent the current mainstay of treatment for neovascular AMD, the ongoing treatment protocol imposes significant burden on patients. An understanding of the factors that contribute to the burden of treatment may help inform strategies to lessen its impact and assist patients to better manage the challenges of treatment.     

The influence of making judgments of learning on memory performance: Positive,negative, or both?

Psychonomic Bulletin & Review - A common measure of memory monitoring——judgments of learning (JOLs)——has recently been shown to have reactive effects on learning. When...     

Why theatre-based research works? Psychological theories from behind the curtain

While many scholars have demonstrated the effectiveness of theatre-based knowledge mobilization, fewer studies have examined its psychological dimensions. This article examines some psychological theories that may account for the success behind theatre-based knowledge mobilization. Drawing from the Canadian Experience Project, a study about the labor market challenges of skilled immigrant workers, we show how theatre-based research dissemination efforts attempt to achieve optimal stress by using aesthetic distance processes. We maintain that this psychological capacity to attune to audience members, especially evident in forum theatre, makes theatre a particularly effective means for knowledge mobilization.     

An Evaluation of the Word Triad Method for Monitoring Spelling Progress

Although spelling skill progress has typically been studied within the context of students' responses to written story starters (Deno, Marsten, & Mirkin, 1982; Fuchs & Fuchs, 2011; Hosp, Hosp, & Howell, 2007; Shinn & Shinn, 2002), there has been little research conducted within a curriculum-based measurement framework that has studied spelling progress monitoring on a weekly basis throughout an entire school year. The authors evaluated spelling progress using word triads, defined as a group of 3 words (with the same number of letters) that have a similar phonetic or morphological structure. Successful spelling of word triads as the unit of analysis has the potential to be more useful diagnostically to teachers than successful spelling of single words as the unit of analysis. An alternating series of three 15-word spelling tests were administered weekly to 10 third- and fourth-grade classrooms in the same school district throughout the school year for 8 rounds (1 round = 3 weeks of different but phonetically and/or morphologically similar word lists). Results indicate steady progress throughout the school year in the correct spelling of word triads (despite teacher reporting of no explicit spelling instruction in classrooms using in the words employed in the study). Correlations between the number of correctly spelled word triads with standard scores from a group-administered communication arts test were significant and comparable to alternate spelling test scoring methods. The authors conclude with limitations of the study and implications for practitioners.     

How Therapy With Victims of Political Trauma Repairs the Third—Commentary on Gómez and Kovalskys’s Work in the Context of Postdictatorship Chile

In this discussion I use the concept of the moral Third to designate the position in which we experience the world as lawful because repair is possible. Repair takes place through acknowledgment of harming and consequent suffering. This form of acknowledgment, coupled with social recognition, is considered by the authors to be a crucial part of the therapeutic work with victims of collective trauma, especially of torture by the Pinochet security police. In relation to Gómez’s case, I discuss how the moral Third, the representation of a lawful world, is shattered by attacks on the victim’s family. Further, the witnessing function is reversed and perverted in torture, where the torturer presents a blank face and denies the very suffering he is inducing. The experience of betrayal becomes the core issue which the therapist seeks to address through the attachment relationship itself. In relation to Kovalskys’ case I consider how the moral Third of the activists, the belief in the possibility of a world in which all can live, is attacked in order to affirm the paranoid view that “only one can live.” The lived experience of this traumatizing attack is that the child becomes imbued with the sense of not deserving life, of having gained life at the expense of the other. Helping the patient to testify publicly to her personal history and truth becomes part of the healing process in the context of collective trauma.     

Development and Validation of the Knowledge of Parenting Strategies Scale: Measuring Effective Parenting Strategies

The current study aimed to develop and evaluate a measure of parenting knowledge, the Knowledge of Parenting Strategies Scale (KOPSS); specifically, to establish the scales internal reliability, ensure a clinically appropriate length, provide a community sample for future comparison, demonstrate adequate test–retest reliability and convergent validity, and to compare the scale to dysfunctional discipline styles. A total of n?=?865 parents were involved in the development and evaluation of the scale. In Study 1, data was collected from n?=?229 parents and Rasch analyses revealed seven items did not fit the measurement model. Study 2 involved a further sample of community families (n?=?346) and revealed the scale could be further shortened to 16 items. Study 3 revealed the scale has good test–retest reliability over a one-week period (r?=?.88, p?<?.001). Study 4 demonstrated convergent validity through a comparison to the Knowledge of Effective Parenting Scale (r?=?.583, p?=?.009). Study 5 utilised a sample of community families (n?=?190), revealing the scale was negatively correlated with hostile and lax discipline (r?=??.29, p?<?.001; r?=??.15, p?<?.05). Lastly, Study 6 showed scores on the KOPSS significantly improved following clinic-based and Internet-based Behavioural Parent Training. The KOPSS was found to be a valid and reliable measure of parenting knowledge of effective parenting strategies, which can be used to evaluate knowledge acquisition in parenting programs, and test the role of knowledge in behaviour change.     

A Two-Phase Approach to Developing SNAP: an iPhone Application to Support Appointment Scheduling and Management for Women with a <Emphasis Type="Italic">BRCA</Emphasis> Mutation

Professional organizations provide surveillance guidelines for BRCA1 and BRCA2 (BRCA) carriers with intact breasts and/or ovaries to facilitate early cancer detection. However, literature indicates adherence to surveillance guidelines is inconsistent at best. Using the Messaging Model for Health Communication Campaigns framework, we undertook a two-phase formative research approach to develop an intervention to promote adherence to surveillance guidelines. Discussion groups identified preferred intervention format and function in phase I. Findings indicated carriers desired a phone application (app) to assist with surveillance management and appointment tracking. Thus, an iPhone app for carriers to track appointments based on published surveillance guidelines was developed. In phase II, we obtained feedback from BRCA carriers via a survey during a prototype demonstration at a regional conference. Participants in phase II wanted reminder capabilities and the ability to add and modify information fields. This feedback informed intervention modifications, resulting in the Scheduling Necessary Advised Procedures (SNAP) iPhone app currently being pilot tested by BRCA carriers throughout the USA.     

Ecological Networks and Community Attachment and Support Among Recently Resettled Refugees

Interventions aimed at enhancing mental health are increasingly centered around promoting community attachment and support. However, few have examined and tested the specific ecological factors that give rise to these key community processes. Drawing from insights from the ecological network perspective, we tested whether spatial and social overlap in routine activity settings (e.g., work, school, childcare) with fellow ethnic community members is associated with individuals’ attachment to their ethnic communities and access to social resources embedded in their communities. Data on routine activity locations drawn from the Refugee Well‐Being Project (based in a city in the Southwestern United States) were used to reconstruct the ecological networks of recently resettled refugee communities, which were two‐mode networks that comprise individuals and their routine activity locations. Results indicated that respondents’ community attachment and support increased with their ecological network extensity—which taps the extent to which respondents share routine activity locations with other community members. Our study highlights a key ecological process that potentially enhances individuals’ ethnic community attachment that extends beyond residential neighborhoods.