Understanding Adult Participant and Parent Empowerment Prior to Evaluation in the Undiagnosed Diseases Network

The burden of living with an undiagnosed condition is high and includes physical and emotional suffering, frustrations, and uncertainty. For patients and families experiencing these stressors, higher levels of empowerment may be associated with better outcomes. Thus, it is important to understand the experiences of patients with undiagnosed conditions and their families affected by undiagnosed conditions in order to identify strategies for fostering empowerment. In this study, we used the Genetic Counseling Outcome Scale (GCOS-24) to assess levels of empowerment and support group participation in 35 adult participants and 67 parents of child participants in the Undiagnosed Diseases Network (UDN) prior to their UDN in-person evaluation. Our results revealed significantly lower empowerment scores on the GCOS-24 in adult participants compared to parents of child participants [t(100)?=???3.01, p?=?0.003, average difference?=???11.12, 95% CI (??3.78, ??18.46)] and no significant association between support group participation and empowerment scores. The majority of participants (84.3%, 86/102) are not currently participating in any support groups, and participation rates were not significantly different for adult participants and parents of child participants (11.4 vs. 19.7%, respectively, FE p?=?0.40). Open-ended responses provided additional insight into support group participation, the challenges of living with undiagnosed conditions, and positive coping strategies. Future research will evaluate the extent to which empowerment scores change as participation in the UDN unfolds.     

A multidimensional measure of work valences

Work valence is derived from expectancy-valence theory and the literature on children's vocational development and is presumed to be a general appraisal of work that emerges during the childhood period. Work valence serves to promote and inhibit the motivation and tasks associated with vocational development. A measure of work valence, composed of perceptions about future work experiences and affects, is developed and tested employing samples of high school and university students. Multi-group confirmatory factor models demonstrated that the Work Valence Scale (WVS) conformed to a hierarchical measurement model and may be employed to yield a general work valence construct or more specific positive and negative work valences. The WVS demonstrated metric invariance across the high school and university years. Criterion validity tests demonstrated that the general work valence was positively associated with work approach motivation and in-depth career exploration and negatively associated with work avoidance. Discriminant validity tests demonstrated that the positive and negative work valences and affectivities were only weakly correlated with general measures of affectivity.     

At the mercy of prior entry: Prior entry induced by invisible primes is not susceptible to current intentions

If one of two events is attended to, it will be perceived earlier than a simultaneously occurring unattended event. Since 150 years, this effect has been ascribed to the facilitating influence of attention, also known as prior entry. Yet, the attentional origin of prior-entry effects(1) has been repeatedly doubted. One criticism is that prior-entry effects might be due to biased decision processes that would mimic a temporal advantage for attended stimuli. Although most obvious biases have already been excluded experimentally (e.g. judgment criteria, response compatibility) and prior-entry effects have shown to persist (Shore, Spence, & Klein, 2001), many other biases are conceivable, which makes it difficult to put the debate to an end. Thus, we approach this problem the other way around by asking whether prior-entry effects can be biased voluntarily. Observers were informed about prior entry and instructed to reduce it as far as possible. For this aim they received continuous feedback about the correctness of their temporal judgments. If elicited by invisible primes the effect could not be reduced at all and only by 12 ms if elicited by visible cues. This challenges decision biases as primary source of prior-entry effects - at least if attention is oriented exogenously.     

Sex differences in components of imagined perspective transformation

We explored the impact of motor experience on the interaction between implicit motor simulation and language-processing. In an action familiarity judgment task, expert volleyball players, fans and novices were presented with semantically correct sentences describing possible and not possible motor actions, all as negative or positive contexts, e.g., "Don't shank!" or "Assist!". As processing negated action-phrases is known to reduce simulation states, exposure to negative or positive contexts was used here to test how simulation varies according to motor feasibility (possible, impossible) and experience (experts and fans). A significant group×stimulus×context interaction showed that athletes and fans, took longer to process negative than positive contexts for possible actions, compared to action-impossible sentences. In addition, experts were significantly faster and more accurate than fans and, in turn, they were both more accurate than novices. Thus, implicit motor simulation impacts on action-verb processing depending on (i) the domain-relevant expertise, (ii) the feasibility of the actions, and (iii) on whether scenes are presented in a negated context. These results suggest that the implicit triggering of motor representations is modulated by the context and it is tuned to people's motor repertoire, even when actions are described linguistically.     

Team Climate Inventory with a merged organization

The present study examines the team climate for innovation in work teams within a newly merged organization. Four teams working at a regional head office of a Social Insurance organization answered the Team Climate Inventory. The results were compared to those of a study by Agrell and Gustafson of more stable teams. The comparison showed that participative safety and support for innovation were rated lower and that vision was rated higher in the newly merged teams. The 38-item original inventory was used and based on the results, a 1999 proposed shortened version of 14 items by Kivim?ki and Elovainio was compared with the original one. Analysis indicated that the short version can be a valid alternative to the original version but that further testing of the short version is needed.     

Der Arztbrief

The right of inspection in the hospital documents, the hospital discharge report for example, is often refused to patients in in-patient psychotherapeutic treatment (psychiatry, psychosomatic and psychotherapeutic medicine) with reference to the protection of the patients themselves, their doctors or relatives. Within a systemic therapy approach patients of an acute psychosomatic care unit in a hospital the patients could inspect the report of their hospital treatment including all ?objective” and ?subjective” data of their hospital stay. The conversation with patients and their relatives about this report and modifications of the details and addresses of the report in case of patients’ objections is considered as a psychotherapeutic tool (narrative of doctor and patient) in order to improve the transparency of the diagnostic and therapeutic process and the insights in the psychosomatic mechanisms of the patient’s disease. We discuss our organisation of cocreating the hospital discharge report and our experiences with this type of patient-doctor-communication.