Attitudes About Internet Support Groups Among Adolescents and Young Adults with Neurofibromatosis Type 1 and their Parents

Youth with neurofibromatosis type 1 (NF1) have multiple, complex symptoms associated with physical, social-emotional, and cognitive difficulties. In addition, caring for a child with NF1 can be extremely challenging for parents. Since research with other chronic illness populations suggests that social support, including internet support groups (ISGs), can be beneficial, this survey study aimed to determine the attitudes and preferences of adolescents and young adults with NF1 and parents of a child with NF1 regarding ISGs. Thirty patients and 30 caregivers completed a 24-item survey about ISGs. Many patients and parents are not aware of any ISGs for NF1, but are interested in using one in the future for a variety of reasons, including to get answers to their questions about NF1, to find out about research studies, and to discuss problems and concerns about NF1. Specific concerns of interest include physical, social-emotional, and cognitive aspects of NF1. ISGs have potential as a social support intervention within the NF1 community. ISGs for the NF1 population should include patients with NF1 (or parents of children with NF1) as well as a health professional, and both chat rooms and discussion boards likely would be well-received.     

Discomfort in the community. The place of psyche: Between zōē and bios

In this paper, the author considers the treatment of people diagnosed with a psychosis or borderline personality disorder in therapeutic communities from a psychoanalytic perspective, with a particular focus on the work of Jacques Lacan and of André Green. He discusses two key questions. First, how are these patients to recover life? – not just in the biological sense but in terms of subjectivity. Secondly, is it ever really possible to build relationships with them? In relation to this second question, the author emphasizes the importance of the training and supervision of practitioners, as well as their own analysis. Therapeutic communities, above all, he argues, can provide structure and security in a society which is increasingly fragmented and unstable.     

The Role of Affective Instability in Loss of Control Eating in Youth with Overweight/Obesity Across Development: Findings from Two EMA Studies

Research on Child and Adolescent Psychopathology - Affective instability is common during adolescence, but at high levels it is associated with a variety of internalizing and externalizing...     

Work,Leisure, and Life Satisfaction for Employees with Physical Disabilities in South Korea

Applied Research in Quality of Life - Empirical studies on work-life balance (WLB) among employees without disabilities are abundant; in contrast, insufficient research exists on WLB and quality of...     

Profession Differences in Family Focused Practice in the Adult Mental Health System

There is a large gulf between what psychiatric services should (or could) provide and what they do in practice. This article sought to determine practice differences between the differing professions working in adult mental health services in terms of their family focused work. Three hundred and seven adult mental health professionals completed a cross‐sectional survey of family focused practices in adult mental health services. Findings highlight that social workers engaged in more family focused practice compared to psychiatric nurses, who performed consistently the lowest on direct family care, compared to both social workers and psychologists. Clear skill, knowledge, and confidence differences are indicated between the professions. The article concludes by offering direction for future profession education and training in family focused practices.     

Patterns of Religious Education Policy in Switzerland: The Long Arm of Distanced Christians?

In spite of its different cantonal jurisdictions and traditions, the development of religious education in Switzerland over the past decade has taken a common direction: the state has assumed a more active role in the field of religious education in public (state‐run) schools. In this article, we ask the question: How do key social actors interpret these reforms and how do these interpretations relate to the social structure of religion in Switzerland, in particular with respect to the majority category of the so‐called distanced Christians? Drawing on qualitative interviews with members of the schools’ teaching staff, school administrators, and church representatives, the article highlights a dominant interpretative pattern that frames the socially accepted representation of religion in public schools. Thus, rather than addressing the pedagogical dimension of religious education, we discuss the significance of this pattern for the debate on the public presence of religion in Switzerland and Europe.     

Ockhamism without Thin Red Lines

This paper investigates the logic of Ockhamism, a view according to which future contingents are either true or false. Several attempts have been made to give rigorous shape to this view by defining a suitable formal semantics, but arguably none of them is fully satisfactory. The paper draws attention to some problems that beset such attempts, and suggests that these problems are different symptoms of the same initial confusion, in that they stem from the unjustified assumption that the actual course of events must be represented in the semantics as a distinguished history, the Thin Red Line.     

Assessing Recall in Mothers’ Retrospective Reports: Concerns Over Children’s Speech and Language Development

Retrospective recall about children’s symptoms is used to establish early developmental patterns in clinical practice and is also utilised in child psychopathology research. Some studies have indicated that the accuracy of retrospective recall is influenced by life events. Our hypothesis was that an intervention: speech and language therapy, would adversely affect the accuracy of parent recall of early concerns about their child’s speech and language development. Mothers (n?=?5,390) reported on their child’s speech development (child male to female ratio = 50:50) when their children were aged 18 or 30 months, and also reported on these early concerns retrospectively, 10 years later, when their children were 13 years old. Overall reliability of retrospective recall was good, 86 % of respondents accurately recalling their earlier concerns. As hypothesised, however, the speech and language intervention was strongly associated with inaccurate retrospective recall about concerns in the early years (Relative Risk Ratio = 19.03; 95 % CI:14.78–24.48). Attendance at speech therapy was associated with increased recall of concerns that were not reported at the time. The study suggests caution is required when interpreting retrospective reports of abnormal child development as recall may be influenced by intervening events.     

The role of thought-content and mood in the preparative benefits of upward counterfactual thinking

Upward counterfactual thoughts identify how a prior outcome could have been better and have been shown to improve subsequent performance. Both the identification of corrective actions (content-specific effects) and the more general mobilization of effort as a result of negative affect (content-neutral effects) have been suggested to underlie performance benefits. The results of three experiments presented here indicate that counterfactual thoughts have broad benefits for performance, independent of their content and beyond the effects of planning. These benefits were consistently dependent upon the experience of negative affect, but were eliminated when negative affect could be (mis)attributed to an intervening task. This misattribution effect is consistent with the operation of a mood-as-input process in which affect informs judgments of goal progress. Overall, the findings suggest that the benefits of upward counterfactual thinking reflect more broad attempts to improve following a subjectively unsatisfactory performance.     

Assessing Fear of Storms and Severe Weather: Validation of the Storm Fear Questionnaire (SFQ)

To date, research on storm phobia has been limited by a lack of validated self-report measures for evaluating the severity of anxiety, phobic avoidance, and distress associated with storms and severe weather. The current research presents the development and validation of the Storm Fear Questionnaire (SFQ), a 15-item self-report questionnaire that assesses the cognitive, affective, and behavioral aspects thought to be associated with Storm Phobia in adults. Three studies were conducted to assess 1) the factor structure, internal consistency, and convergent and discriminant validity of the SFQ, 2) the test-retest reliability of the SFQ, 3) the extent that scores on the SFQ were associated with subjective anxiety ratings during a Behavioral Approach Test (BAT) involving exposure to a virtual thunderstorm, and the extent to which SFQ scores distinguished community participants with versus without a fear of storms. Exploratory factor analyses supported a one-factor model with good internal consistency (Cronbach’s α?=?.95), good convergent and discriminant validity with self-report measures of anxiety, worry, depression, and other specific phobias, and acceptable test-retest reliability. Moreover, there was a significant positive association between SFQ scores and anxiety ratings following the BAT involving exposure to a virtual thunderstorm and participants with a high fear of storms reported significantly higher SFQ scores than those with a low fear of storms. In sum, the SFQ has good psychometric properties and appears to be a valuable tool for assessing the severity of fear associated with storms and severe weather. Research evaluating the diagnostic and clinical utility of the SFQ is still needed.