Satisfaction profile (SAT-P) in 732 patients: Focus on subjectivity in hrqol assessment

Abstract

A 32-item questionnaire aimed at assessing patient's satisfaction about every day life is presented. In the Satisfaction Profile (SAT-P) patients are asked to evaluate their own satisfaction level on 32 daily life aspects concerning the last month. 732 participants were enrolled into the study: 490 in-patients suffering from different types of chronic diseases (e.g., chronic heart failure, severe respiratory failure, coronary heart disease) and 242 healthy persons of working age. SAT-P validity was confirmed by comparing its scores with the NHP, EPQ and STAI-X2 scores. The factor analysis extracted 5 factors which corresponded to the hypothesised areas (54% of variance explained). Test-retest reliability and internal consistency were confirmed: Pearson's coefficients were ranging from 0.45 to 0.93 and Cronbach's alpha coefficient was 0.92. SAT-P responsiveness, evaluated by comparing baseline and 6 months follow up scores from 45 chronic heart failure patients, resulted to be satisfatory, although further studies are needed. These results, together with the “user-friendly” structure, the brief administration and scoring time, the simple graphic representation, suggest to consider the SAT-P a useful complementary tool in HRQoL assessment. The Italian, English and French versions are available.     

A Network Approach for Evaluating Coherence in Multivariate Systems: An Application to Psychophysiological Emotion Data

We present an approach for evaluating coherence in multivariate systems that considers all the variables simultaneously. We operationalize the multivariate system as a network and define coherence as the efficiency with which a signal is transmitted throughout the network. We illustrate this approach with time series data from 15 psychophysiological signals representing individuals’ moment-by-moment emotional reactions to emotional films. First, we summarize the time series through nonparametric Receiver Operating Characteristic (ROC) curves. Second, we use Spearman rank correlations to calculate relationships between each pair of variables. Third, based on the obtained associations, we construct a network using the variables as nodes. Finally, we examine signal transmission through all the nodes in the network. Our results indicate that the network consisting of the 15 psychophysiological signals has a small-world structure, with three clusters of variables and strong within-cluster connections. This structure supports an effective signal transmission across the entire network. When compared across experimental conditions, our results indicate that coherence is relatively stronger for intense emotional stimuli than for neutral stimuli. These findings are discussed in relation to multivariate methods and emotion theories.     

Psychiatric Symptoms and Quality of Life in Patients Affected by Epidermolysis Bullosa

The aim of our study was to provide a psychosocial and psychiatric evaluation of patients with epidermolysis bullosa (EB; a rare genetic disorder characterized by skin fragility), to assess psychological status, ascertain the presence of any psychiatric disorders and understand the impact of EB on quality of life. Twenty-five patients were assessed using a case record form and several standardized instruments. In 82% of patients, EB had a negative impact on quality of life and 80% of patients experienced psychiatric symptoms. Our findings revealed a high prevalence of psychosocial problems and psychiatric symptoms in patients with EB and suggested that a combined bio-psychosocial approach is the most appropriate therapeutic intervention.     

Computer-mediated communication and time pressure induce higher cardiovascular responses in the preparatory and execution phases of cooperative tasks

The cardiovascular (CV) response to social challenge and stress is associated with the etiology of cardiovascular diseases. New ways of communication, time pressure and different types of information are common in our society. In this study, the cardiovascular response to two different tasks (open vs. closed information) was examined employing different communication channels (computer-mediated vs. face-to-face) and with different pace control (self vs. external). Our results indicate that there was a higher CV response in the computer-mediated condition, on the closed information task and in the externally paced condition. These role of these factors should be considered when studying the consequences of social stress and their underlying mechanisms.     

Perceived social support from significant others,family and friends and several socio‐demographic characteristics

The first aim was to explore the relationship between socio‐demographic characteristics and perceived support from significant others, family and friends. Zimet, Dahlem, Zimet, and Farley's Multidimensional Scale of Perceived Social Support (MSPSS) (Journal of Personality Assessment, 52, 1988, 30–41) was administered to 418 males and 623 females between 18 and 77 years of age. The results indicate that family support is higher in males, and the support of friends decreases with age as does the support of significant others. Significant interactions also emerged between gender and age and between gender and marital status. No differences were found for educational level. The second aim was to discover which persons are identified as ‘special persons’ on the items of the ‘Significant others’ sub‐scale of the MSPSS. Copyright © 2002 John Wiley & Sons, Ltd.     

Moving beyond categorization to understand affective influences on real world health decisions

This paper provides an overview of affect and health decision‐making research, with a focus on identifying gaps, opportunities, and challenges to guide future research. We begin by defining common categorical distinctions of affective processes that influence health decisions: integral (i.e., related to the decision) and incidental (i.e., normatively unrelated to the decision) influences, and current (experienced in the moment) and anticipated (“cognitive representations” of future affect) affect. We then summarize key discoveries within the most common categories of affective influences on health decision making: current integral affect, current incidental affect, and anticipated integral affect. Finally, we highlight research gaps, challenges, and opportunities for future directions for research aimed at translating affective and decision science theory to improve our understanding of, and ability to intervene upon, health decision making.     

Effects of anisomycin on inhibitory avoidance in male and female CD1 mice

The antibiotic anisomycin inhibits protein synthesis, which much research has suggested is required for the formation of long-term memory. The present work studied the effects of acute subcutaneous administration of anisomycin on the consolidation of memory in an inhibitory avoidance task in CD1 mice of both sexes. The animals were separated by sex and randomly distributed into three groups: two groups were injected with 150 mg/kg anisomycin, one immediately after the training phase and the other 24 h later, while the control group received saline. The interval between training and test was four days. Anisomycin administrated immediately after training produced statistically significant impairment of memory, which was not observed when the drug was administered 24 h after training. No sex differences were observed in the effects of anisomycin. These results extend to female mice the memory impairing effects of anisomycin previously observed in males and endorse the hypothesis that the establishment of long-term memory depends on protein synthesis shortly after training.     

Estimating retest effects in longitudinal assessments of cognitive functioning in adults between 18 and 60 years of age

Several analyses were conducted on data from samples of adults between 18 and 58 years of age who completed the same cognitive tests after an interval ranging from less than 1 week to 35 years. Because the retest interval varied across individuals, it was possible to determine the length of time needed before the gains associated with a retest decreased to 0 and to obtain simultaneous estimates of the magnitude of effects associated with increased age and a prior assessment. The results indicated that for adults within this age range, 7 or more years were needed before positive retest effects were no longer detectable. Age effects in longitudinal comparisons could be interpreted in terms of large positive effects associated with a prior assessment and negative effects associated with age that were comparable in magnitude to those observed in cross-sectional comparisons.     

Women abuse: beliefs and attitudes in university students

Beliefs and attitudes positives toward domestic violence are one of the risks factors for his occurrence. Among his most studied predictors are gender, gender role attitudes or educational level. In this paper, domestic violence beliefs and attitudes are analysed in 1395 university students. "Inventory of Thoughts Distorted on the Woman and the Violence" (Echeburúa and Fernández-Montalvo, 1997) and "Inventory of Social Desirability" by Crowne and Marlowe (Form C, Reynolds, 1982) were administrated. Boys and students without specific formation about this subject show more positive beliefs and attitudes toward domestic violence. Though social desirability introduces some limitations, these results suggest the importance of incorporating matters on this subject in the curriculum of university students in general and, especially, in future professional that will work with these groups.     

Starting research in interaction design with visuals for low-functioning children in the autistic spectrum: a protocol.

On starting to think about interaction design for low-functioning persons in the autistic spectrum (PAS), especially children, one finds a number of questions that are difficult to answer: Can we typify the PAS user? Can we engage the user in interactive communication without generating frustrating or obsessive situations? What sort of visual stimuli can we provide? Will they prefer representational or abstract visual stimuli? Will they understand three-dimensional (3D) graphic representation? What sort of interfaces will they accept? Can we set ambitious goals such as education or therapy? Unfortunately, most of these questions have no answer yet. Hence, we decided to set an apparently simple goal: to design a "fun application," with no intention to reach the level of education or therapy. The goal was to be attained by giving the users a sense of agency--by providing first a sense of control in the interaction dialogue. Our approach to visual stimuli design has been based on the use of geometric, abstract, two-dimensional (2D), real-time computer graphics in a full-body, non-invasive, interactive space. The results obtained within the European-funded project MultiSensory Environment Design for an Interface between Autistic and Typical Expressiveness (MEDIATE) have been extremely encouraging.