Standards for the Reporting of Genetic Counseling Interventions in Research and Other Studies (GCIRS): an NSGC Task Force Report

As the demand for evidence to support the value of genetic counseling increases, it is critical that reporting of genetic counseling interventions in research and other types of studies (e.g. process improvement or service evaluation studies) adopt greater rigor. As in other areas of healthcare, the appraisal, synthesis, and translation of research findings into genetic counseling practice are likely to be improved if clear specifications of genetic counseling interventions are reported when studies involving genetic counseling are published. To help improve reporting practices, the National Society of Genetic Counselors (NSGC) convened a task force in 2015 to develop consensus standards for the reporting of genetic counseling interventions. Following review by the NSGC Board of Directors, the NSGC Practice Guidelines Committee and the editorial board of the Journal of Genetic Counseling, 23 items across 8 domains were proposed as standards for the reporting of genetic counseling interventions in the published literature (GCIRS: Genetic Counseling Intervention Reporting Standards). The authors recommend adoption of these standards by authors and journals when reporting studies involving genetic counseling interventions.     

Social entrepreneurship: understanding consumer motives for buying The Big Issue

This paper examines consumer response to a particular social entrepreneurship initiative, The Big Issue. Focusing on consumer motivation, the research explores the utilitarian value of the product as compared to the desire to help the homeless as the primary motivation for purchase. The research found that, although the utilitarian value partly motivated purchase, consumers widely perceived there to be a helping dimension to the exchange. Consumers valued the empowerment goals espoused by The Big Issue and found it rewarding to play a part in the empowerment process. The appearance and manner of The Big Issue vendors influenced consumer reactions to the initiative, indicating a need for careful management of ‘beneficiary portrayal’ in this context.     

Spirituality: A Coping Mechanism in the Lives of Adults With Congenital Disabilities

The purpose of this study was to gain insight into the perspective of individuals with congenital disabilities about spirituality as a coping mechanism during crucial times in their lives. Qualitative analysis of interviews assessing turning points in the lives of 15 adults (6 women and 9 men; M = 37 years) with spina bifida, cerebral palsy, or attention deficit disorder was performed to determine how spirituality assisted them at these crucial times. Four recurring themes were identified: God as a guiding force, inner strength, meaning in life, and appropriateness of the use of spirituality in counseling. The authors discuss their findings and the use of spirituality in counseling adults with congenital disabilities.     

How societal stereotypes might form and evolve via cumulative cultural evolution

The current article examines how societal stereotypes might form and evolve through a process of cumulative cultural evolution as social information is repeatedly passed from person to person. Social psychology research has done much to inform our understanding about the substantial influence stereotypes exert on us as individuals and on our society, yet comparatively little is known about how society's pools of stereotype knowledge form and how they evolve. Here, we review evidence that as social information is repeatedly passed from person to person, there is a continuous cycle of stereotype formation and evolution that is driven by constraints and biases in (a) observations of the social environment, (b) cognitive representations of the social environment, and (c) social transmissions of cognitive representations of the social environment. We suggest the reason stereotypes exist and persist is because they are perfectly adapted for human cognition and the reason they are perfectly adapted for human cognition is because they are the cumulative product of human cognition.     

Parents’ Communication with Siblings of Children Affected by an Inherited Genetic Condition

The objective of this study was to explore parents’ communication about risk with siblings of children affected by an inherited genetic condition, and to ascertain what level of support, if any, is required from health professionals. Semi-structured interviews were conducted with affected and unaffected children and their parents. Families were affected by one of six genetic conditions representing different patterns of inheritance and variations in age of onset, life expectancy and impact on families. Interviews were analysed using constructivist grounded theory and informed by models which focused on three different aspects of family communication. Interviews with 33 families showed that siblings’ information and support needs go largely unrecognized by health professionals and sometimes by parents. Some siblings were actively informed about the genetic condition by parents, others were left to find out and assimilate information by themselves. Siblings were given information about the current symptoms and management of the genetic condition but were less likely to know about its hereditary nature and their own potential risk. When siblings were fully informed about the condition and included in family discussion, they had a better understanding of their role within their family, and family relationships were reported to be more harmonious. The information and support needs of siblings can be overlooked. Parents with the responsibility for caring for a child affected by a genetic condition may require support from health professionals to understand and respond to their unaffected children’s need for more information about the genetic condition and its implications for the children’s own future health and reproductive decision-making.     

The Virtue Blind Spot: Do Affective Forecasting Errors Undermine Virtuous Behavior?

Why is it difficult to be virtuous? Although cultural wisdom teaches that cultivating virtue brings happiness—and empirical studies have demonstrated the long‐term benefits of acting virtuously—many people seem to behave as though exercising virtues is difficult, or even painful. When it comes to virtue, any benefits for the self may seem distant: short‐term pain for long‐term gain. We propose, however, that behaving virtuously often provides affective benefits even in the short term, but these benefits are obscured by systematic affective forecasting errors. Using five virtues (humanity, wisdom, courage, temperance, and transcendence), we demonstrate that people tend to feel happier after acting virtuously. We also show that people do not realize that these short‐term emotional benefits will occur; when asked to predict how they will feel, people make inaccurate affective forecasts. We argue that these affective forecasting errors drive people away from the exercise of virtue.     

The impact of cognitive predispositions on exploration decisions in the minerals industry

Minerals exploration is conducted within an environment of ambiguity in the information and a high degree of uncertainty concerning success. In an extension and application of Tetlock (2005) the present research examined the impact of cognitive predispositions on the quality of minerals exploration decision‐making. Utilising instruments specifically designed to assess thinking and judgement predispositions results indicate that for this sample (n = 94) an enjoyment of rational thinking and the need for cognitive closure were predictive of lower estimated percentages of the likelihood of finding an exploitable deposit keeping geophysical data constant. Several counter‐intuitive findings related to the relationship between likelihood and amount of expenditure were also found. The findings add further support to Tetlock's (2005) call to hold experts in all fields to account for the recommendations they make and to examine not just what they think but how they think. Copyright © 2010 John Wiley & Sons, Ltd.     

The experience of outsourcing transfer: implications for guidance and counselling

Outsourcing can involve the forced transfer of employees to another organisation. During or after the transfer they may find their jobs have changed or go through a process of downsizing. They also often have to maintain a relationship with their previous employer as they continue to work on joint projects. In this paper we review relevant research literature and identify important psychological and organisational processes involved in this process, which are of specific interest to guidance and counselling. We also present data from a longitudinal research study in which employees undergoing an outsourcing transfer discussed their experiences. A number of these employees required career counselling and some were undergoing psychological counselling to reduce depression and anxiety. In conclusion, we summarise important issues to be considered by the counsellor when advising individuals going through this process.     

Spirituality and transformation in a community-based group in the Bahamas

Understanding the specific contexts where spirituality may or may not be helpful has been identified as a priority in spirituality and health research. The study aims were to clarify the helpfulness of spirituality and the interrelationships among transformation, spirituality, and forgiveness in this community-based group offered in a societal context of violence. Sixteen group participants from the Bahamas were selected and interviewed. Nine participants were female (56%); 75% identified as Black and 25% identified as White/Caucasian. NVivo 11 software was used. Transformation and spirituality themes were prevalent: themes related to prayer, group connection, and compassion were prominent. Selected spirituality themes were proximal to transformation themes, particularly forgiving others. The group process themes were closely linked to transformation themes. Participants noted that modelling by the group provided support for them to forgive and change. These findings may inform future efforts to intervene in communities experiencing violence and societal fragmentation.     

The influence of divided attention on holistic face perception.

There is evidence that upright, but not inverted, faces are encoded holistically. The holistic coding of faces was examined in four experiments by manipulating the attention allocated to target faces. In Experiment 1, participants in a divided attention condition were asked to match two upright flanker faces while encoding a centrally presented upright target face. Although holistic coding was evident in the full attention conditions, dividing attention disrupted holistic coding of target faces. In Experiment 2, we found that while matching upright flanker faces disrupted holistic coding, matching inverted flanker faces did not. Experiment 3 demonstrated that the differential effects of flanker orientation were not due to participants taking longer to match upright, than inverted, flanker faces. In Experiment 4, we found that matching fractured faces had an intermediate effect to that of matching upright and inverted flankers, on the holistic coding of the target faces. The findings emphasize the differences in processing of upright, fractured and inverted faces and suggest that there are limitations in the number of faces that can be holistically coded in a brief time.