How Democracy Can Inform Consent: Cases of the Internet and Bioethics

Traditional conceptions of informed consent seem difficult or even impossible to apply to new technologies like biobanks, big data, or GMOs, where vast numbers of people are potentially affected, and where consequences and risks are indeterminate or even unforeseeable. Likewise, the principle has come under strain with the appropriation and monetisation of personal information on digital platforms. Over time, it has largely been reduced to bare assent to formalistic legal agreements. To address the current ineffectiveness of the norm of informed consent, I suggest that we need a notion of structural injustice (on a distinctive interpretation, elaborated here, which takes account of unequal power and property relations). I then argue that in order to protect and enhance people's freedom, we have to go beyond traditional applied ethics and introduce perspectives from democratic theory and social philosophy. I attempt to show how applications of the ‘all‐affected principle’, together with new forms of democratic participation, deliberation, and representation can helpfully frame the narrower principle of informed consent. There is an important role for what we could call collective consent, and informed consent can only succeed in increasing individual agency if it is situated within enhanced forms of democratic decision‐making.     

Communicative gestures in aphasia

Gestural communications of 10 mild and moderate aphasics and five controls were examined in two conditions: Face-to-face informal dyadic conversation and restricted visual access between speaker and listener. Gestural production was significantly reduced with restriction of visual access, supporting the posited communicative function of the hand and arm gestures investigated in this study. No differences were found between aphasic and control subjects in the rate of gestural communication in the natural condition of face-to-face interaction. Moderate aphasics, however, were found to produce proportionally fewer of the complex semantic modifying and relational communicative gestures and more nonspecific, nonconsensually shared, unclear gestures. Gestural complexity was significantly negatively correlated with measures of linguistic impairment for the aphasics. The relationship between the frequency and complexity of communicative gestures and concurrent verbalizations was also examined. The findings of this study provide confirmation for the view that there is an identifiable class of gestures utilized by aphasics for communication, aphasics are impaired in their gestural communicative competence in natural conditions of communication, and the quality of aphasics' gestural communications parallels changes in their verbal communication patterns.