Attitudes About Internet Support Groups Among Adolescents and Young Adults with Neurofibromatosis Type 1 and their Parents

Youth with neurofibromatosis type 1 (NF1) have multiple, complex symptoms associated with physical, social-emotional, and cognitive difficulties. In addition, caring for a child with NF1 can be extremely challenging for parents. Since research with other chronic illness populations suggests that social support, including internet support groups (ISGs), can be beneficial, this survey study aimed to determine the attitudes and preferences of adolescents and young adults with NF1 and parents of a child with NF1 regarding ISGs. Thirty patients and 30 caregivers completed a 24-item survey about ISGs. Many patients and parents are not aware of any ISGs for NF1, but are interested in using one in the future for a variety of reasons, including to get answers to their questions about NF1, to find out about research studies, and to discuss problems and concerns about NF1. Specific concerns of interest include physical, social-emotional, and cognitive aspects of NF1. ISGs have potential as a social support intervention within the NF1 community. ISGs for the NF1 population should include patients with NF1 (or parents of children with NF1) as well as a health professional, and both chat rooms and discussion boards likely would be well-received.     

Further exploration of the Vedic Personality Inventory: validity, reliability and generalizability

The purpose of this study was to explore the validity, reliability, and generalizability of the Vedic Personality Inventory which consists of constructs derived from the Vedic literature of India. There were 57 participants (20 men, 37 women). The mean age was 44.3 yr. (SD= 15.1). The sample was predominantly older, well-educated women who volunteered to participate as respondees to invitations to participate posted in supermarkets, churches, colleges, and on the internet. Analysis yielded statistically significant correlations for scores on the Vedic Personality Inventory and on the Daily Spiritual Experiences Scale and the Brief Symptom Inventory, each of which measures domains of interest addressed by the first inventory.     

Social Networking Sites: Mediating the Self and its Communities

What do social networking sites reveal about the relation between the self and the community? We conceptualise social networking sites as technologies of the self and the community enabling individuals to self‐present and also objectifying the community's evaluation of individuals (through ‘structures of recognition’ such as page views, friends and lovehearts). We analyse the way in which 37 Scottish adolescents used the social networking site Bebo in nonprescribed and creative ways. First, they challenged the single authorship of profiles by co‐creating multi‐authored profiles. Second, they used creative language to obscure meaning from the preying eyes of parents, teachers and potential employers. We conclude by discussing the simplistic assumptions that Bebo makes about the relation between the self and the community. In contrast, newer social networking sites such as Facebook and Google+ are increasingly enabling people to present different facets of themselves to different communities. How people use social networking sites, and how these sites are developing to attract more users, reveals how the multiplicity of human identity is related to the multiple communities that people participate in. Copyright © 2013 John Wiley & Sons, Ltd.     

Relationship infidelity: A loss perspective

Abstract

A particularly poignant type of loss may be experienced by persons involved in intimate relationships in which a partner is sexually or emotionally unfaithful. As a means of exploring women's and men's perceptions about and personal experiences of unfaithfulness, approximately 140 participants completed a lengthy questionnaire relevant to close relationships. As expected, participants perceived selected gender differences in reasons for and reactions to a partner's infidelity. Based on personal reports about relationship infidelities, it appears that extrarelationship involvement is a complex issue that may result in substantial losses for relationship partners.     

Investigating the Role of Emotion in Science Center Visitor Learning

ABSTRACT

A number of investigators have argued that emotion plays an important role in free-choice learning in settings such as museums, science centers, zoos, and aquariums, particularly given the relationship between emotion and cognition. Despite considerable research on the cognitive aspects of visits, empirical studies on emotion in such settings are virtually non-existent. This study investigated the role that emotion plays in facilitating and enhancing learning at a science center. Three major research questions were addressed: (a) Can emotion be measured using Russell's Affect Grid in a non-laboratory setting such as an interactive science center? (b) If so, do different types of science center experiences create measurably different levels of emotional arousal and/or valence in visitors? and (c) If so, was there evidence that elevated arousal and/or valence enhanced or retarded visitors' long-term cognitive science learning? The study provided evidence that emotion could be measured using a modified Affect Grid technique and that a particular traveling exhibition generated arousal levels above baseline levels as determined by a control group. Findings suggest a relationship between emotional arousal and positive changes in visitor long-term cognition, attitudes, and behaviors.     

Saving What We Love at Any Cost: The Rhetoric of Heroic Medicine as Diversion

Discussion of the worldwide corporate development of biotechnologies is sometimes diverted through the introduction of images of heroic medical intervention, exemplified by the statement, “I would do anything to save my daughter.” Such heroic images seem to justify virtually any deployment of resources and nearly any health or environmental risk. But it is instructive for future public discussions to examine the use of such images, and to note that those advocating a prominent role for biotechnologies in an expanding global economy welcome such diversionary patterns. Our responsibility to do our own thinking is beset by conditions that may lead us astray. In a time burdened by profound worry—crushing inequalities among the world's peoples, an ecological crisis, and threat of nuclear war—it is tempting to avert our eyes when we are faced with grave new dangers. Moreover, in our increasingly visual culture, images have come to function as a facsimile of and substitute for real thinking. If we are to have significant discussions about the potential of biotechnology, we must not only be wary of promises of economic growth but must also be mindful of sources of diversion and the appeals of image-thinking. We should strive to become more critical of our own ways of thinking, thus opening the discussion to a fuller consideration of what needs to be saved.     

Cross-modal links in exogenous covert spatial orienting between touch, audition, and vision

Three experiments investigated cross-modal links between touch, audition, and vision in the control of covert exogenous orienting. In the first two experiments, participants made speeded discrimination responses (continuous vs. pulsed) for tactile targets presented randomly to the index finger of either hand. Targets were preceded at a variable stimulus onset asynchrony (150,200, or 300 msec) by a spatially uninformative cue that was either auditory (Experiment 1) or visual (Experiment 2) on the same or opposite side as the tactile target. Tactile discriminations were more rapid and accurate when cue and target occurred on the same side, revealing cross-modal covert orienting. In Experiment 3, spatially uninformative tactile cues were presented prior to randomly intermingled auditory and visual targets requiring an elevation discrimination response (up vs. down). Responses were significantly faster for targets in both modalities when presented ipsilateral to the tactile cue. These findings demonstrate that the peripheral presentation of spatially uninforrnative auditory and visual cues produces cross-modal orienting that affects touch, and that tactile cues can also produce cross-modal covert orienting that affects audition and vision.