Incorporating Social Media into your Support Tool Box: Points to Consider from Genetics-Based Communities

Patients with newly-described or rare genetic findings are turning to social media to find and connect with others. Blogs, Facebook groups, and Twitter have all been reported as tools for patients to connect with one another. However, the preferences for social media use and privacy among patients, their families, and these communities have not been well characterized. To explore preferences about privacy and membership guidelines, an online survey was administered to two web-based patient registries, Simons Variation in Individuals Project (www.simonsvipconnect.org) and GenomeConnect (www.genomeconnect.org). Over a three-month period, invitations were sent to 2524 individuals and 103 responses (4%) were received and analyzed. Responses indicate that Facebook is the most popular resource accessed within this sample population (99%). Participants used social media to look for information about their diagnosis or test results (83%), read posts from rare disease groups or organizations (73%), participate in conversations about their diagnosis (67%), and connect with others to find support (58%). Focusing on privacy issues in social media, respondents indicate that membership and access impact the level of comfort in sharing personal or medical information. Nearly 60% of respondents felt uncomfortable sharing photos or medical information within a public Facebook group, whereas only 12% of respondents felt uncomfortable sharing in private group targeted to families alone. Using this preliminary data concerning social media use and privacy, we developed points for genetic counselors to incorporate when discussing available support resources for patients with a new, or rare, genetic diagnosis or genetic test result. Genetic counselors are trained to provide anticipatory guidance to families adapting to new genetic information, and are well-equipped to help patients consider their preferences about using social media as a source of information and support.     

Social information in equine movement gestalts

One model of signal evolution is based on the notion that behaviours become increasingly detached from their original biological functions to obtain a communicative value. Selection may not always favour the evolution of such transitions, for instance, if signalling is costly due to predators usurping signal production. Here, we collected inertial movement sensing data recorded from multiple locations in free-ranging horses (Equus caballus), which we subjected to a machine learning algorithm to extract kinematic gestalt profiles. This yielded surprisingly rich and multi-layered sets of information. In particular, we were able to discriminate identity, breed, sex and some personality traits from the overall movement patterns of freely moving subjects. Our study suggests that, by attending to movement gestalts, domestic horses, and probably many other group-living animals, have access to rich social information passively but reliably made available by conspecifics, a finding that we discuss in relation with current signal evolution theories.     

Elective mutism in a first grader: The remediation of a complex behavioral problem

Teachers frequently deal with unusual and perplexing behavioral problems in their classes. This study demonstrates how spontaneous and prompted speech were produced in a six-year-old mute by a first-grade teacher and her aide. A reinforcement system for peer-prompted speech and spontaneous speech was employed in three separate school classes in a multiple-baseline fashion. The reinforcement system produced prompted and spontaneous speech in each situation. Postchecks in the second grade indicated the child was still speaking and conversing spontaneously with his peers. This study suggests a method that teachers can use in the classroom to deal with this severely handicapping condition.     

SOME DETERMINANTS OF THE REINFORCING AND PUNISHING EFFECTS OF TIMEOUT1

Some determinants of the reinforcing and punishing properties of timeout were investigated in two experiments. Experiment I began as an attempt to reduce the frequency of tantrums in a 6-yr-old autistic girl by using timeout. Unexpectedly, the result was a substantial increase in the frequency of tantrums. Using a reversal design, subsequent manipulations showed that the opportunity to engage in self-stimulatory behavior during the timeout period was largely responsible for the increase in tantrums. Experiment II was initiated following the failure of timeout to reduce the spitting and self-injurious behavior of a 16-yr-old retarded boy. Using a multiple-baseline design, the nature of the timein environment was shown to be an important determinant of the effects of timeout. When the timein environment was “enriched”, timeout was effective as a punisher. A conception of timeout in terms of the relative reinforcing properties of timein and timeout and their clinical implications are discussed.     

Relationship of Ethnic Identity and Spiritual Development: An Exploratory Study

The current investigation examined the relationship of ethnic identity and spiritual development. The Multigroup Ethnic Identity Measure (J. Phinney, 1992), Spirituality Ends Measure (B. Fiorito & L. Ryan, 1998), and Spirituality Means Measure (B. Fiorito & L. Ryan, 1998) were administered to 198 male and female college students from 4 ethnic groups. Results revealed differences among ethnic groups in the way that they identified with their ethnic heritage and spiritual orientation. In addition, the results Indicated that ethnic identity was positively associated with an intrinsic spiritual means orientation and negatively related to an extrinsic spiritual ends orientation. Implications for counselors and recommendations for future research are discussed.     

Academic Ethics: a Pilot Study on the Attitudes of Finnish Students

This research details a pilot study of Finnish college students and their views on the academic ethics (cheating). Finland is an unexamined population on this issue. In the current project, we surveyed students (n = 119) in the spring of 2014. We found unethical behavior is common on projects but less common on exams. We also found students are unwilling to report wrongdoing by other students. We examined differences between students’ attitudes on cheating based on several demographic factors, including gender, age and major. We conclude by discussing the implications for further research in this area.     

Experiential Training: Connecting School Counselors‐in‐Training,English as a Second Language (ESL) Teachers,and ESL Students

English as a second language (ESL) students present challenges to counselors who are unaccustomed to working with students who speak limited English. A field experience prepared school counselors‐in‐training to develop cultural sensitivity while working with ESL teachers and students. The counselors suggested that early experiential learning fostered multicultural sensitivity and refined counseling skills. Los estudiantes de inglés como segunda lengua (ESL) presentan desafíos para aquellos consejeros que no están acostrumbrados a trabajar con estudiantes con un nivel de inglés limitado. Una experiencia práctica de campo preparó a los consejeros escolares en formación para que desarrollaran una sensibilidad cultural mientras trabajaban con profesores y alumnos de ESL. Los consejeros indicaron que el aprendizaje experiencial en fase temprana fomentó su sensibilidad multicultural y perfeccionó sus habilidades en consejería.     

Structure and continuity of intellectual development in early childhood

We evaluated over 200 participants semiannually from 12 to 48 months of age on measures of intellectual (Bayley Scales, Stanford–Binet Scale) and verbal (MacArthur–Bates Inventory, Peabody Picture Vocabulary Test) status. Structural equation modeling and hierarchical linear (growth curve) analyses were applied to address the nature of development and individual differences during this time. Structural analyses showed a strong and robust simplex model from infancy to the preschool period, with no evidence of qualitative reorganizations or discontinuities. Growth-curve modeling revealed significant associations between level factors across the early and later measures of cognition, providing further evidence of continuity; the growth trajectory from the Bayley through 24 months predicted growth in a nonverbal factor, but not in a verbal factor. Altogether, the findings reveal continuous and stable development in intellectual function from late infancy through the preschool years. Additionally, the high level of continuity demonstrated across these ages was observed to be largely independent of growth in vocabulary.