Parents' Experiences with Genetic Counseling After the Birth of a Baby with a Genetic Disorder: An Exploratory Study

Little is known about factors determining which families utilize genetic counseling services. We conducted semistructured interviews with parents of four children born with cystic fibrosis (CF) and ten with Down's syndrome (DS) to ascertain reasons for using, or not using, genetic counseling services in the state of Victoria, Australia. We also explored the usefulness of genetic counseling for the families who had experienced it, and the perceived role of genetic counseling. All mothers of children with CF see a genetic counselor as part of a structured education program following diagnosis through newborn screening. Information overload was identified by them as an important problem. There is no specific program for families of children with DS. Six of them had received genetic counseling and four had not, either because it was not specifically offered to them or because they did not pursue it in the context of misconceptions about its purpose. The timing of the offer of genetic counseling is important and needs to take into account parents' coping strategies after diagnosis. Several parents commented on the favorable aspects of counseling, including getting information they needed to deal with the diagnosis and relief of guilt. Better awareness of genetic counseling by referring physicians, and providing counseling at more than one visit, may contribute to a more effective service.     

Gay and Lesbian Parents: No Longer a Paradox

The authors discuss parenting as a normative developmental issue for gay and lesbian individuals. Issues and choices that affect decisions concerning parenting, implications for counselors, and suggestions for research are discussed.     

Factor Structure of a Coping Scale Across Two Samples1

Exploratory factor analysis (EFA) and confirmatory factor analysis (CFA) were used to assess the structure of a coping with illness scale. Two HIV‐positive samples from different geographical areas were used to verify the underlying factor structure: a sample of 320 young adults (M age = 20.9 years; 72% males) and a second sample of 273 older adults (M= 38.1 years; 81% females). Exploratory results with the young adult sample assuming correlated factors showed 7 reliable factors; CFA results supported these findings in that sample. Confirmation of the 7 derived subscales using the adult sample was found using CFA, although 2 subscale reliabilities were just below .50. Correlations between the 7 sub‐scales and other scales used for construct validation were generally as predicted. Coping similarities and differences between HIV‐infected young adult and adult populations are discussed.     

Inverse relations between preference and contrast

Pigeons were trained on a multiple schedule in which two target components with identical reinforcement schedules were followed by either the same-valued schedule or by extinction. Response rate increased in both target components but was higher in the target component followed by extinction, replicating previous findings of positive anticipatory contrast. A similar design was used to study negative contrast, in that the two target components were followed either by the same-valued schedule or by a higher valued schedule. Negative contrast occurred equally, on average, in both target components, thus failing to demonstrate negative contrast that is specifically anticipatory in nature. When the stimuli correlated with the two target components were paired in choice tests, the pattern of preference was in the opposite direction. For the positive contrast procedure, no significant preference between the two target stimuli was evident. But for the negative contrast procedure, preference favored the stimulus followed by the higher valued schedule. The results demonstrate a functional dissociation between positive and negative contrast in relation to stimulus value. More generally, the results demonstrate an inverse relation between response rate and preference and challenge existing accounts of contrast in terms of the concept of relative value.     

AN ARGUMENT FOR THE MANY

If one believes vagueness to be an exclusively representational phenomenon, one faces the problem of the many: in the vicinity of Kilimanjaro, there are many 'mountain-candidates', all, apparently, with more or less equal claim to be mountains. David Lewis has defended a radical claim: that all these billions of mountain-candidates are mountains. I argue that the supervaluationist about vagueness should adopt Lewis's proposal, on pain of losing their best explanation of the seductiveness of the sorites paradox.     

‘Oh I do like to be beside the seaside’: opportunity structures for four un/underemployed young people living in English coastal towns

Long-term unemployed young people are a ‘social concern’ in many countries. The focus for research is usually cities, but may also include rural areas. The qualitative study described in this paper focuses instead on four young people living in coastal towns in South East England. The study suggests that their experiences in education and employment markets are shaped, negatively, by their particular location and the ongoing opportunity structures. The paper outlines their views and discusses the three main themes that emerged from the analysis: opportunity structures, supported resilience and the impact of living in a coastal town. Implications for targeted youth guidance are considered, alongside a consideration of the reflexive role of the researcher in such work.     

Unhealthy fear: Influence of general health on fear of crime

The current study proposed general health as a predictor of fear of crime with risk perception and general fear as mediating factors. Data were collected from a randomly selected household sample using face to face interviews (n = 300) and utilizing the following scales: general health, general fear, fear of crime, and perceived risk of victimization. Findings confirm hypothesis that persons with low general health will experience higher fear of crime, a relationship mediated by both general fear and perceived risk of victimization. A significant gender difference was observed with general fear significantly mediating relationship for females, and risk of perceived victimization mediating for males. Implications of findings are discussed in the context of previous and future research.     

Taxometric analysis supports a dimensional latent structure for schizotypy

The existence of a discrete class of people vulnerable to schizophrenia spectrum disorders is the most replicated finding of taxometric research. Evidence for such a “taxon” has been obtained with diverse measures of schizotypy in clinical, high-risk, and normal samples. However, recent demonstrations that skewed indicators of a latent dimension can yield a spuriously taxonic pattern of results may call some of these findings into question. Normal adults (N = 1073) completed measures of positive (perceptual aberration, magical ideation) and negative (physical and social anhedonia) components of schizotypy. Taxometric curves resembled those obtained previously, but when a simulation procedure took skew into account, dimensional models of schizotypy received stronger support than taxonic models for most schizotypy components, with findings for magical thinking inconclusive. A re-evaluation of previous taxonic conclusions regarding the latent structure of schizotypy is indicated.     

Neural Correlates of Reward Processing in Adolescents With a History of Inhibited Temperament

ABSTRACT— Functional imaging data were acquired during performance of a reward-contingency task in a unique cohort of adolescents (ages 14–18 years) who were characterized since infancy on measures of temperamental behavioral inhibition. Neural activation was examined in striatal structures (nucleus accumbens, putamen, caudate) with a known role in facilitating response to salient reward-related cues. Adolescents with a history of behavioral inhibition, relative to noninhibited adolescents, showed increased activation in the nucleus accumbens when they believed their selection of an action would affect reward outcome. Neural responses did not differ between the two groups when participants made a prespecified response that they knew would result in reward or when they produced random motor responses that they knew would not be rewarded. These results link inhibited temperament and perturbed neural responses to reward-contingency cues.