Genetic Counseling Supervisors’ Self-Efficacy for Select Clinical Supervision Competencies

Supervision is a primary instructional vehicle for genetic counseling student clinical training. Approximately two-thirds of genetic counselors report teaching and education roles, which include supervisory roles. Recently, Eubanks Higgins and colleagues published the first comprehensive list of empirically-derived genetic counseling supervisor competencies. Studies have yet to evaluate whether supervisors possess these competencies and whether their competencies differ as a function of experience. This study investigated three research questions: (1) What are genetic counselor supervisors’ perceptions of their capabilities (self-efficacy) for a select group of supervisor competencies?, (2) Are there differences in self-efficacy as a function of their supervision experience or their genetic counseling experience, and 3) What training methods do they use and prefer to develop supervision skills? One-hundred thirty-one genetic counselor supervisors completed an anonymous online survey assessing demographics, self-efficacy (self-perceived capability) for 12 goal setting and 16 feedback competencies (Scale: 0–100), competencies that are personally challenging, and supervision training experiences and preferences (open-ended). A MANOVA revealed significant positive effects of supervision experience but not genetic counseling experience on participants’ self-efficacy. Although mean self-efficacy ratings were high (>83.7), participant comments revealed several challenging competencies (e.g., incorporating student’s report of feedback from previous supervisors into goal setting, and providing feedback about student behavior rather than personal traits). Commonly preferred supervision training methods included consultation with colleagues, peer discussion, and workshops/seminars.     

Developing a Model of Advanced Training to Promote Career Advancement for Certified Genetic Counselors: An Investigation of Expanded Skills,Advanced Training Paths,and Professional Opportunities

There are currently multiple paths through which genetic counselors can acquire advanced knowledge and skills. However, outside of continuing education opportunities, there are few formal training programs designed specifically for the advanced training of genetic counselors. In the genetic counseling profession, there is currently considerable debate about the paths that should be available to attain advanced skills, as well as the skills that might be needed for practice in the future. The Association of Genetic Counseling Program Directors (AGCPD) convened a national committee, the Committee on Advanced Training for Certified Genetic Counselors (CATCGC), to investigate varied paths to post-master’s training and career development. The committee began its work by developing three related grids that view career advancement from the viewpoints of the skills needed to advance (skills), ways to obtain these skills (paths), and existing genetic counselor positions that offer career change or advancement (positions). Here we describe previous work related to genetic counselor career advancement, the charge of the CATCGC, our preliminary work in developing a model through which to view genetic counselor advanced training and career advancement opportunities, and our next steps in further developing and disseminating the model.     

Performance of Asian elephants (Elephas maximus) on a quantity discrimination task is similar to that of African savanna elephants (Loxodonta africana)

Animal Cognition - Using an object-choice task, we measured the relative quantity discrimination ability of Asian elephants. Two zoo-housed elephants were given auditory cues of food being dropped...     

Gay, Lesbian, and Bisexual Patients’ Recommendations for Genetic Counselors: A Qualitative Investigation

Gay, lesbian, and bisexual (GLB) individuals comprise a growing patient population in genetic counseling. However, only one article from a genetic counseling journal provides empirical data on GLB patients' genetic counseling experiences and genetic counselor attitudes and practices regarding GLB patients. The present study, an extension of the aforementioned article, gathered further information about patients' genetic counseling experiences through semi-structured telephone interviews. Twelve of the previous study's 29 patient respondents (n?=?10 lesbian women, n?=?1 gay man, n?=?1 bisexual woman) participated. Interview questions concerned the use of medically inclusive forms, factors influencing patient disclosure, counselors' ability to relate to them, and their expectations of genetic counselors. Inductive analysis of the interviews yielded seven themes: 1) Medically inclusive forms with gender neutral terms are important; 2) Genetic counselor ability to relate to a GLB person depends more on the relationship established during the session and less on external symbols; 3) The presence of GLB-friendly symbols increases comfort when disclosing one's orientation; 4) Inclusion of the patient's partner is important and best done by encouraging their active participation in sessions; 5) When GLB patients disclose their orientation, they expect to be treated like any other patient; 6) Providers should ask about orientation if medically pertinent and the remaining discussion should take orientation into consideration; and 7) When a provider inquires about orientation it should be done in a safe and appropriate way. Illustrative quotations, genetic counseling practice implications, and research recommendations are presented.     

Breaking Difficult News in a Cross-cultural Setting: a Qualitative Study about Latina Mothers of Children with Down Syndrome

Giving difficult news to patients represents a common dilemma for health care professionals. Based on three decades of research, various authors have proposed guidelines outlining the ideal setting, delivery, and timing. Existing publications focus on patients of European descent and may not be applicable in cross-cultural settings. We explored perceptions of Spanish-speaking mothers who have a child with Down syndrome and how they preferred to receive the news of their child's diagnosis. We conducted semi-structured qualitative interviews (n?=?14), which were coded and analyzed by thematic networks to identify common themes. Six significant themes emerged: Cultural Belief System, Communication, Support/Lack of Support, Feelings Engendered, Medical Issues, and Medical System. One overarching theme of mother-child bonding encompassed all sub-themes. The mothers desired the news in a more positive, balanced light and with more complete explanations about the condition. Mothers felt excluded from the diagnostic process and wanted to be better informed about the need for diagnostic studies. Participants used religious beliefs to explain the reason for their child's condition. Many factors influenced Latina mothers' ability to bond initially with their children with Down syndrome. Ideally, these factors should be acknowledged during informing interviews to assist Latino families in adjustment.     

Mother and Child Depressive Symptoms in Youth with Spina Bifida: Additive, Moderator, and Mediator Models

The purpose of the study was to examine the extent to which parenting behaviors influence the relation between maternal and child depressive symptoms in youth with spina bifida and a comparison sample. Previous research has found that maternal depression not only negatively impacts the mother–child relationship, but also places the child at risk for developing depressive symptoms. However, certain parenting behaviors might buffer the association between maternal and youth depression. The influence of maternal depressive symptoms and parenting behavior (i.e., acceptance, behavioral control, psychological control) on youth depressive symptoms were examined in the context of three models: (1) an additive/cumulative risk model, (2) a moderator model, and (3) a mediator model. Data were examined longitudinally at five time points when youth were 8–9 through 16–17 years of age. Results supported an additive/cumulative risk model, but did not support the moderator or mediator models. Low maternal acceptance, high behavioral control, and high psychological control were risk factors for child depressive symptoms at several time points, with maternal depressive symptoms exerting an additional risk at later time points. A group difference between the spina bifida and comparison youth was not supported. Findings indicate that in general, maternal parenting behavior is salient throughout childhood and early adolescence, but maternal depressive symptoms do not exert an influence until mid-adolescence. Family interventions should aim to promote maternal mental health and maternal parenting behaviors to reduce the risk of the development of depressive symptoms in adolescence.     

Two Sides of the Same Coin? Viewing Altruism and Aggression Through the Adaptive Lens of Kinship

Are altruism and aggression polar opposites, or are they two sides of the same coin? In this review, the authors examine the evolved biological roots of these behaviors and focus on the psychology of kinship and how it can serve to bridge both behaviors. Drawing on inclusive fitness theory ( Hamilton, 1964 ), the kinship, acceptance, and rejection model of altruism and aggression (KARMAA; Webster, 2008 ), and a sociofunctional threat‐based approach to prejudice ( Cottrell & Neuberg, 2005 ), the authors propose that altruism and aggression can be viewed as two sides of the same coin depending on context and perspective. For example, a mother bear protecting her cubs by attacking a predator may be simultaneously exhibiting an act of altruism and aggression. After offering some empirical support for their view, the authors discuss the theoretical and practical implications of viewing altruism and aggression as related constructs at the intrapersonal, interpersonal, and intergroup levels.     

Specific language deficiencies in children with early onset hydrocephalus

Specific language abilities of children with early onset hydrocephalus were compared to nonhydrocephalic comparison groups. Ninety children, aged 5 to 7 years, composed six subject groups: three groups having a history of hydrocephalus due to spina bifida, prematurity-intraventricular hemorrhage, or aqueductal stenosis. and three comparison groups of children with spina bifida who had never been shunted, premature children with no hydrocephalus, and normal controls. Group performance scores were compared on measures of phonological awareness, semantics, fluency, and word retrieval. Children with hydrocephalus performed below their peers on all measures. These results indicate that early onset hydrocephalus has a substantial adverse impact on the development of a wide range of specific language abilities.