The Disability Paradox Revisited: Quality of Life and Family Caregiving in Pediatric Cerebral Palsy

Parents who have children with cerebral palsy (CP) have been reported to have a more impaired QL and higher levels of burden than parents of typically developing children; however, little is known about the positive dimensions of their caregiving experience. In this study, WHOQOL-Bref and The Revised Burden Measure were administered to a sample of 105 parents of children/adolescents with CP (clinical group) and 117 parents of children/adolescents with no disabilities (control group). Despite the fact that parents of children with CP reported more Subjective Burden and less caregiving Uplifts, there were more similarities than differences in the variables compared between clinical and control groups. For parents of children with CP, the associations between Burden dimensions and QL, and between caregiving Uplifts and QL, were respectively moderate and weak. Caregiving Uplifts were found to moderate the links between Objective Burden and Psychological QL, and between Relationship Burden and Social QL. In addition, differential main effects of Burden dimensions and caregiving Uplifts were verified for Physical, Psychological and Social QL domains. These results highlight the adaptation variability of parents who have children with CP, as well as the importance of acknowledging caregiving uplifts as a resource that may attenuate the impact of burden on their QL.     

Constructing Cultural Competence: Perspectives of Family Therapists Working with Latino Families

This article focuses on developing an understanding of how nine therapists working with Latino families construct the idea of cultural competence in the counseling room. In-depth interviews were conducted and analyzed yielding five themes in cultural competence from the therapists' perspectives: the use of language in therapy; the impact of social class, gender, and power on the therapeutic relationship; immigration and culture clash; definitions of family; and unique constructions of cultural competence. The therapists'narratives in this study are best understood through a postmodern paradigm suggesting that the field of psychotherapy needs to move beyond a “checklist” modernistic approach to developing cultural competency.     

Attachment, depression, and fear of death in older adults: The roles of neediness and perceived availability of social support

This study investigated individual differences in depression and fear of death in older adulthood in the context of attachment theory. The roles of neediness and perceived availability of social support were examined. Participants were 113 Israeli older adults (aged 69–85) who were all in good health and functioning well. Social support was found to moderate the association between a low positive other-dimension (PO) of attachment and fear of death. Neediness mediated the relationships between a low positive self-dimension (PS) of attachment and depression. Findings are discussed within the framework of Bowlby’s distinction between attachment and dependency.     

Friendship and loneliness among bullies and victims: Data from seven countries

Research suggests that the relationship between school bullying and its various risk factors should be clearer among girls than boys, and should become stronger with age, as roles within the peer group stabilise. This paper tests this theory by comparing sex, school type, and bully/victim status differences in friendships and playground social interactions, using data from nine surveys in seven countries: China, England, Ireland, Italy, Japan, Portugal, and Spain. A total of approximately 48,000 children completed various translations of the Olweus Bullying Questionnaire. Small but generally consistent main effects were found for sex and school type (boys and primary pupils enjoyed playtimes more and had more friends, but were also more likely to spend playtimes alone). Larger effects were consistently found for bully/victim status (victims were significantly worse off on all the measures in all the samples where a difference was found, while bullies and neutrals did not differ consistently), but the interactions between these factors varied widely between samples and there were few consistent patterns. It is concluded that bullying is a universal phenomenon with many negative correlates for victims and few (if any) for bullies, but that there are cultural variations in the way that bullying is related to sex, age, and social support. Aggr. Behav. 30:71–83, 2004. © 2004 Wiley‐Liss, Inc.     

Parents’ Positive Interpersonal Coping After a Child’s Death

Despite the challenging context of grieving for the death of a child, evidence shows that it is possible for parents to manage and preserve their relationship. The aim of this study was to examine parents’ perceptions of positive interpersonal coping processes that helped their relationship after the death of their child. Individual semi-structured interviews with 17 bereaved maritally committed parents were conducted. The interview guide included questions covering themes such as parents’ coping together, relationship strengths and mutual support. Data were analyzed through constructivist grounded theory methods. Three main themes were identified: search for meaning (reframing of partners’ different coping processes and the changes/difficulties in the relationship, and development of shared beliefs); communication with the partner (direct and indirect feedback, and mutual learning); and care-in-relation (caring for the partner and the relationship). Dyad-level interventions should aim at promoting mutual empathy, development of shared appraisals, and the identification and consideration of each other’s boundaries.     

Relations between life satisfaction, adjustment to illness, and emotional distress in a sample of men with ischemic cardiopathy

Fifty-two men who had suffered a first episode ischemic heart disease reported their degree of life satisfaction, the strategies they used to adjust to the illness, and the symptoms of anxiety and depression they felt. The multiple regression analyses carried out indicated that emotional distress was associated with a lower level of life satisfaction. In the analyses of anxiety symptoms, the use of negative adjustment strategies was also a significant predictor. Lastly, a significant Life Satisfaction x Type of Adjustment interaction was obtained. According to this, the patients who felt more satisfaction with their lives used more positive strategies to adjust to the illness and fewer negative ones, than the group of patients who were less satisfied. In conclusion, life satisfaction predicts emotional wellbeing of patients with ischemic heart disease and it enhances the implementation of appropriate strategies to cope with the disease. Moreover, although life satisfaction has been considered a stable measure, we suggest it may change as the experience of illness limits individuals' important goals.     

Not your mother's view: the dynamics of toddler visual experience

Human toddlers learn about objects through second-by-second, minute-by-minute sensory-motor interactions. In an effort to understand how toddlers' bodily actions structure the visual learning environment, mini-video cameras were placed low on the foreheads of toddlers, and for comparison also on the foreheads of their parents, as they jointly played with toys. Analyses of the head camera views indicate visual experiences with profoundly different dynamic structures. The toddler view often consists of a single dominating object that is close to the sensors and thus that blocks the view of other objects such that individual objects go in and out of view. The adult view, in contrast, is broad and stable, with all potential targets continually in view. These differences may arise for several developmentally relevant reasons, including the small visuo-motor workspace of the toddler (short arms) and the engagement of the whole body when actively handling objects.     

Quality of maternal thinking and mother-child interaction in at-risk contexts

This study investigates how the maternal level of perspectivistic reasoning and the level of socialization goals in the representation of their actions are related to the quality of mother-child behaviors as well as to the expert ratings on maternal practices in at-risk contexts. It also investigated whether there is any direct link between mother and child behaviors and expert ratings. A sample of 75 mothers of children between 8 and 12 years old reported on their level of perspectivistic reasoning and were characterized by the social workers of municipal services as being coercive, neglectful or meeting their child's needs. Interactions during a collaborative task were observed to obtain information on level of socialization goals and mother-child behaviors. Structural equation models showed that mothers' higher levels of perspectivism and higher levels of socialization goals positively predicted the mother's and child's sensitivity and active involvement in the task and negatively predicted avoidance and passivity. Higher levels of perspectivism consistently predicted experts' views on maternal practices. However, only mother's avoidance predicted negatively expert ratings on coercion practice, indicating that expert views were mostly derived from the mothers' perspective on their child. The implications of these results for parental assessment and intervention programs are discussed.