Four Pillars of Internet Research Ethics with Web 2.0

The proliferation of social media and web 2.0 applications (Facebook, MySpace, Twitter, blogs, etc.) in the previous 5 years has created a new social research opportunity, with over an estimated 552 million active daily users on Facebook (Facebook Press 2012). As with all research, boundaries must be set out to create valid and accurate data, keeping ethical practices at the forefront of the data gathering process. The lack of standardized practices requires an in-depth look into the use of such methods, with focus on four major areas: 1) security for the individual, 2) anonymity, 3) safety and 4) use of mined data and information gathered by either passive or active means.     

Relationship Quality as a Moderator of Anxiety in Siblings of Children Diagnosed with Autism Spectrum Disorders or Down Syndrome

The purpose of this study was to examine typically-developing adolescents’ perceived relationship quality with their developmentally-disabled sibling, specifically siblings diagnosed with an autism spectrum disorder (ASD) or Down syndrome (DS). The 119 eleven through seventeen-year-old adolescent participants (M = 13.32, SD = 1.90) completed an online survey that assessed demographics, sibling relationship quality, and anxiety. Results showed that siblings of children with DS have a greater overall sibling relationship quality than do siblings of children with an ASD. Results further indicated that reporting more negative interchanges within the sibling relationship was related to higher levels of anxiety regardless of sibling disability type. Lastly, sibling relationship quality moderated the relation between sibling disability type and anxiety. These findings promote greater understanding of the sibling dynamic in families with children with developmental disabilities and suggest the need for establishing more research and greater clinical evaluation in this area. Furthermore, the current study suggests that therapeutic intervention to address the sibling relationship quality within children diagnosed with ASDs and their typically-developing siblings would be beneficial in order to increase social support within the relationship as well as decrease the amount of negative interchanges within the sibling relationship. Results also suggested that decreasing the amount of negative interchanges within the sibling relationship may decrease the level of anxiety the typically-developing sibling reports.     

Promoting social responsibility amongst health care users: medical tourists’ perspectives on an information sheet regarding ethical concerns in medical tourism

Background

Medical tourists, persons that travel across international borders with the intention to access non-emergency medical care, may not be adequately informed of safety and ethical concerns related to the practice of medical tourism. Researchers indicate that the sources of information frequently used by medical tourists during their decision-making process may be biased and/or lack comprehensive information regarding individual safety and treatment outcomes, as well as potential impacts of the medical tourism industry on third parties. This paper explores the feedback from former Canadian medical tourists regarding the use of an information sheet to address this knowledge gap and raise awareness of the safety and ethical concerns related to medical tourism.

Results

According to feedback provided in interviews with former Canadian medical tourists, the majority of participants responded positively to the information sheet and indicated that this document prompted them to engage in further consideration of these issues. Participants indicated some frustration after reading the information sheet regarding a lack of know-how in terms of learning more about the concerns discussed in the document and changing their decision-making. This frustration was due to participants’ desperation for medical care, a topic which participants frequently discussed regarding ethical concerns related to health care provision.

Conclusions

The overall perceptions of former medical tourists indicate that an information sheet may promote further consideration of ethical concerns of medical tourism. However, given that these interviews were performed with former medical tourists, it remains unknown whether such a document might impact upon the decision-making of prospective medical tourists. Furthermore, participants indicated a need for an additional tool such as a website for continued discussion about these concerns. As such, along with dissemination of the information sheet, future research implications should include the development of a website for ongoing discussion that could contribute to a raised awareness of these concerns and potentially increase social responsibility in the medical tourism industry.

     

Demonstrating how unfamiliar faces become familiar using a face matching task

Two experiments examine a novel method of assessing face familiarity that does not require explicit identification of presented faces. Earlier research (Clutterbuck & Johnston, 2002; Young, Hay, McWeeny, Flude, & Ellis, 1985) has shown that different views of the same face can be matched more quickly for familiar than for unfamiliar faces. This study examines whether exposure to previously novel faces allows the speed with which they can be matched to be increased, thus allowing a means of assessing how faces become familiar. In Experiment 1, participants viewed two sets of unfamiliar faces presented for either many, short intervals or for few, long intervals. At test, previously familiar (famous) faces were matched more quickly than novel faces or learned faces. In addition, learned faces seen on many, brief occasions were matched more quickly than the novel faces or faces seen on fewer, longer occasions. However, this was only observed when participants performed “different” decision matches. In Experiment 2, the similarity between face pairs was controlled more strictly. Once again, matches were performed on familiar faces more quickly than on unfamiliar or learned items. However, matches made to learned faces were significantly faster than those made to completely novel faces. This was now observed for both same and different match decisions. The use of this matching task as a means of tracking how unfamiliar faces become familiar is discussed.     

Parents' structuring of children's daily lives in relation to the quality and stability of children's friendships

This study focused on the implications of parents' structuring of their children's home lives for the friendships of their children. Participants were 224 elementary‐school children (108 girls and 116 boys) from four grade levels in two schools in Aix‐en‐Provence, France. Most of the families were of middle or high socio‐economic status. The participating children were seen twice during the same school year in order to assess the stability of their friendship choices and the quality of their friendships. We used Lautrey's (1989) questionnaire in order to assess the parents' styles in the structuring of family life and related child‐rearing practice. This questionnaire delineates three structuring styles: 1) rigid, characterized by considerable imposition of routines with little leeway for exceptional circumstances; 2) flexible, in which established routines can be modified as circumstances dictate; and 3) laissez‐faire, characterized by an absence of predictability and routine. We measured friendship quality by means of Friendship Quality Scale developed by Bukowski, Hoza, and Boivin (1989). This scale consists of 23 items representing five dimensions: companionship, help, security, closeness and conflict. This tool was designed to elicit children's perceptions of a specific relationship with a friend. Results indicated a significant link between parenting style and both of the dimensions of child friendship we studied. Children from homes characterized by a laissez‐faire style of parenting have friendships with more positive features than children from homes with flexible or rigid styles. We also found that friendships were generally less stable and rated as less positive than in similar studies conducted in other countries.     

Cloninger's Temperament and Character Inventory Correlates with Personality Characteristics of Organ Donation Advocates

Temperament and Character Inventory (TCI) and background questionnaire data were collected from a sample of men and women organ donation advocates (N = 362) as part of a national study to investigate their personality characteristics, temperaments, and attitudes about organ donation advocacy. Goals included identifying unique traits for advocates, and response consistency between the TCI and questionnaire. The TCI results included high scores on Cooperativeness and Self-Directedness, and low on Harm Avoidance dimensions. The questionnaire results indicated that most advocates were White, married, college-educated females, who typically spent less than 2 hr with potential donor families, were satisfied with life and job, and believed they would be in a donation position 2 years from the time surveyed. TCI and questionnaire measures were correlated for Self-Transcendence and Spirituality, Helpfulness and Job Satisfaction, and Compassion and Identification variables.