“Be Prepared if I Bring It Up:” Patients’ Perceptions of the Utility of Religious and Spiritual Discussion During Genetic Counseling

As debates continue about the relevance of religion to health care, research is needed to guide decisions about whether genetic counselors (GCs) should routinely address religious and/or spiritual (R/S) issues with their patients. We conducted an online survey to gauge patient perspectives on this issue. Among the 70 respondents, frequencies of closed-ended responses and thematic analyses of open-ended responses revealed multiple patient concerns related to R/S discussions with GCs. Although 60 respondents reported being R/S, only a small minority would want to discuss R/S issues if it meant less time discussing medical information. Most respondents also expressed opinions that: 1) genetic counseling should be about science; 2) GCs are not qualified to discuss R/S issues; 3) other outlets are available to meet the needs of patients who want R/S counseling; and/or 4) R/S discussions are more likely to be acceptable if patients broach the topic or in specific circumstances (e.g., when patients are facing end-of life issues). Overall, responses suggest routine or comprehensive R/S assessments or discussions are not necessary and that GCs would be best equipped to help all their patients if they were prepared to listen, be supportive, and make referrals when R/S issues arise in clinic.     

Genetic Counselors in Startup Companies: Redefining the Genetic Counselor Role

Genetic counselors (GCs) have recently begun moving into non-clinic based roles in increasing numbers. A relatively new role for GCs is working for startup companies. Startups are newly established companies in the phase of developing and researching new scalable businesses. This article explores the experiences of four GCs working at different startup companies and aims to provide resources for GCs interested in learning more about these types of roles. The article describes startup culture, including a relatively flat organizational structure, quick product iterations, and flexibility, among other unique cultural characteristics. Financial considerations are described, including how to understand and evaluate a company’s financial status, along with a brief explanation of alternate forms of compensation including stock options and equity. Specifically, the article details the uncertainties and rewards of working in a fast-paced startup environment that affords opportunities to try new roles and use the genetic counseling skill set in new ways. This article aims to aid GCs in determining whether a startup environment would be a good fit, learning how to evaluate a specific startup, and understanding how to market themselves for positions at startups.     

Facial speech gestures: the relation between visual speech processing,phonological awareness,and developmental dyslexia in 10‐year‐olds

Successful communication in everyday life crucially involves the processing of auditory and visual components of speech. Viewing our interlocutor and processing visual components of speech facilitates speech processing by triggering auditory processing. Auditory phoneme processing, analyzed by event‐related brain potentials (ERP), has been shown to be associated with impairments in reading and spelling (i.e. developmental dyslexia), but visual aspects of phoneme processing have not been investigated in individuals with such deficits. The present study analyzed the passive visual Mismatch Response (vMMR) in school children with and without developmental dyslexia in response to video‐recorded mouth movements pronouncing syllables silently. Our results reveal that both groups of children showed processing of visual speech stimuli, but with different scalp distribution. Children without developmental dyslexia showed a vMMR with typical posterior distribution. In contrast, children with developmental dyslexia showed a vMMR with anterior distribution, which was even more pronounced in children with severe phonological deficits and very low spelling abilities. As anterior scalp distributions are typically reported for auditory speech processing, the anterior vMMR of children with developmental dyslexia might suggest an attempt to anticipate potentially upcoming auditory speech information in order to support phonological processing, which has been shown to be deficient in children with developmental dyslexia.     

The Parable of the Sower: a case study examining the use of the Godly Play® method as a spiritual intervention on a psychiatric unit of a major children’s hospital

This case study examines the use of Godly Play® as a pastoral intervention on a psychiatric unit at Children’s Health – Children’s Medical Center in Dallas, Texas. The chaplain adapts Godly Play®, more typically used as a programme of Christian formation in churches and schools, for this setting, leading a ‘Purpose and Meaning’ group weekly whose goal is to provide inpatients with a developmentally appropriate way of reflecting on and expressing their own sense of identity, purpose and meaning within the personal, social and spiritual milieu in which they identify themselves as members. The case study examines how the method is adapted as a spiritual intervention in a clinical setting, and analyses its effectiveness in meeting the stated goals of the group.     

The role of mortality awareness in hero identification

Three studies examine hypotheses derived from terror management theory to investigate the relationship between mortality concerns and hero identification. Study 1 found reminders of death, followed by a distraction task and a self-prime, led to greater inclusion of heroes in the self. Study 2 found that writing about a personal hero, but not other’s heroes or acquaintances, led to lower death-thought accessibility after being reminded of mortality. Finally, Study 3 found that after death reminders, participants led to identify with a hero exemplifying traits of legacy and/or sacrifice showed lower death thought accessibility. Findings are discussed as generative for heroism research, informing a previously overlooked motivation underlying hero identification and the existential function of such identification.     

Why doesn’t feedback correct Vierordt’s law?

Vierordt [(1868). Der zeitsinn nach versuchen. Tübingen: Laupp] observed that participants over-reproduce short durations and under-reproduce long durations within a test range of sample durations (Vierordt’s law). Similar phenomena have been reported for sensory and other processing (e.g. [Helson (1964 Helson, H. (1964). Adaptation-level theory. New York, NY: Harper &; Row. [Google Scholar]). Adaptation-level theory. New York: Harper &; Row; Stevens, and Greenbaum (1966). Regression effect in psychophysical judgment. Perception &; Psychophysics, 1, 439–446]. Performance feedback (knowledge of results) does not correct this performance distortion although it does correct other errors. In Experiment 1, I tested the hypothesis that a random presentation order of the standard durations makes feedback on one trial inappropriate for the next trial preventing correction of the Vierordt effect. In Experiment 2, participants performed two consecutive reproductions after each standard duration. Having the opportunity to immediately utilize the feedback from the first reproduction did not eliminate the Vierordt effect, although participants did attempt to correct the error on the first reproduction. In Experiment 3, the Vierordt effect was reduced in a blocked presentation design. Feedback produced more veridical performance. I conclude that the resistance of the Vierordt effect to correction by feedback may result, in part, from feedback on a given trial being misapplied to correcting performance on the next trial. Ironically, the Vierordt effect, which produced the differing directions and magnitudes of performance errors reported by the feedback, may be what prevents feedback from correcting for the Vierordt effect.     

Engagement in Group Psychotherapy Among Marginalized Individuals With Hepatitis C

This article examines an innovative psychoeducational group model at a community-based hepatitis C treatment program in Toronto, Canada. Group support is increasingly used as part of community-based, interdisciplinary approaches to addressing the complex psychosocial needs and barriers to care of individuals living with and/or undergoing treatment for hepatitis C. This article articulates the theoretical framework and details of one such group model. It also examines group engagement and outcomes using data collected over three group cycles. Psychotherapeutic engagement was higher than might be anticipated for a highly marginalized population. Specifically, group cohesion measures were equivalent or higher compared to norms for other support/psychotherapy groups. This study suggests that individuals with complex psychosocial issues have the ability to engage meaningfully in group therapy.     

Resilience in developing systems: the promise of integrated approaches

Abstract

This article describes a contemporary systems approach to resilience in human development and its promise for integrating findings and applications across system levels. Resilience is defined as the capacity of a system for successful adaptation to disturbances that threaten system function, viability, or development. Advantages of this definition are delineated in regard to integrating sciences and disciplines across scales and levels of interaction in a bioecological systems framework. Central concepts of resilience, including pathways and cascades, are described in light of this approach, and advances that link system levels are highlighted. Given significant progress toward a more dynamic, integrated, multisystem approach, developmental resilience science stands at new frontier of possibilities that promises to inform science, practice, and policy focused on building human capacity for surviving and thriving in times of turbulence and change.