Parenting a Child with Phenylketonuria (PKU): an Interpretative Phenomenological Analysis (IPA) of the Experience of Parents

Phenylketonuria (PKU) is a rare inherited metabolic disorder which can cause neurological damage if left untreated. PKU is identified through newborn screening in developed countries, and treatment begins immediately to prevent these severe consequences. When a child is diagnosed, parents must assume immediate responsibility for the management of PKU and prevention of neurological damage. Quantitative studies have identified significant psychosocial stressors for parents, but little is known about how the parents experience this process. This study aimed to explore the experiences of parents of children with PKU under the age of two. It is the first study to examine these experiences in this way. Seven parents were interviewed about their experiences, and interpretative phenomenological analysis was used to analyse the data. Three main themes were identified: control, striving for normality and acceptance of PKU as a continuum. Links between the themes and processes underpinning the results were explored with relation to existing literature and theories from a clinical psychology perspective. The role of acceptance of PKU was central to the parent’s experiences. Clinical implications and suggestions for further research are discussed.     

Anxiety in Children and Adolescents Rated by Patients,Parents, and Teachers: Factor Structure and Psychometric Properties of an ICD-10 and DSM-IV-based Rating Scale in a Large Clinical Sample

This study examined the psychometric properties of the German Self-Report and Parent Report Rating Scale for Anxiety Disorders (SRS-AD and PRS-AD), and a shortened teacher version of the PRS-AD (TRS-AD) in a large clinical sample. Data were collected from 585 children, adolescents and young adults with psychiatric disorders (aged 6–21 years), 821 parents and 378 teachers. Factorial validity, reliability and discriminating validity of the scales were examined and the agreement between different informants was assessed. Analyses were performed in the complete sample including a wide range of different psychiatric disorders as well as in a subsample of children, adolescents and young adults with anxiety disorders. Confirmatory factor analyses mostly supported a model with first-order factors according to the subscales and a second-order overall anxiety factor. Only for the SRS-AD analysed in the sample of participants with anxiety disorders, the results did not clearly favour a first-order solution with correlated factors according to the subscales or the second-order solution adopted for the other questionnaires. Internal consistencies for the total scale and subscales were mostly satisfactory. Significant mean differences between anxious and non-anxious participants were found for the mean total scores of the SRS-AD and PRS-AD, but not for the TRS-AD. The informant agreement was low-to-moderate. We concluded that the SRS-AD, PRS-AD and TRS-AD demonstrate satisfactory psychometric properties for use with clinically-referred children and adolescents.     

Unemployment experiences in context: A phenomenological study in two townships in South Africa

This study aimed to explore the unemployment experience of residents of a historically disadvantaged South African neighbourhood. Informants were twelve black community members (females?=?75%; age ranges: 20 to 29?=?58.3%, and 30 to 39?=?33.3%). Individual interviews were conducted with the participants. Thematic analysis of the data revealed that participants valued employment despite their present unemployment. They indicated that being unemployed is a painful experience, but that they also held an optimistic view of a future in which they would have employment. The findings further suggest that diminished social support by the community and public social welfare agencies aggravate negative experiences of unemployment. Employment support programmes are needed to connect the unemployed to job networks; as well as to empower those who are unemployed to fulfil their positive work participation expectations.     

Cities’ Policies: the Work of European Cities to Counter Muslim Radicalisation

Intercultural relations might form the foundation for new developments and can stimulate energy in modern cities, but in some cases, these relations can also become the source of divergence and conflict. In the last decade, several European cities have been confronted with violent incidents related to some form of extremism. Some cities had to cope with violence by Muslim extremists, for instance Amsterdam, which dealt with the murder of Theo van Gogh. Other cities experienced violence from anti-immigrant or extreme-right movements, for instance London, where mosques were attacked. Radicalisation of small groups of immigrants or autochthonous people, who are distressed about intercultural relations, seemed to lie behind these incidents. Pressured by such events, some administrations in Europe developed policies. In this paper, we will discuss a number of examples of such local policies. We will discuss some programmes that we observed in cities that took part in our own fieldwork, the Cities Local Integration Policies (CLIP) project, which took place from 2007 to 2011.. Our results show that both cities that do have de-radicalisation policies and cities that do not actually work on what phase theorists would call the breeding ground for radicalisation and on the final violent stage of terrorist acts. The difference between the two mainly lies in (not) addressing religious conservatism. We conclude the article with some remarks regarding this choice, also reflecting on the impact of the phase model supported at that time.     

Nanoindentation measurements on deformation-induced α’-martensite in a metastable austenitic high-alloy CrMnNi steel

The hardness of deformation-induced α’- martensite and parent austenitic matrix in high-alloy CrMnNi steel was investigated by nanoindentation measurements inside scanning electron microscope using picoindenter. After the indentation, the microstructure was investigated by electron backscattered diffraction measurements. The hardness values for α’-martensite are only 24% higher than those of austenite. Thus, the increase in strength during the formation of deformation-induced α’-martensite is rather caused by the small grain size of α’-nuclei resulting in a dynamic Hall–Petch effect than by its “intrinsic” hardness.     

脑钠肽和内皮素在慢性阻塞性肺疾病的应用研究

探讨脑钠肽、内皮素测定在慢性阻塞性肺疾病(COPD)患者肺动脉高压、病情严重程度及近期预后评估的意义.观察60例COPD急性加重期患者,60例经治疗转为稳定期的患者,以30例健康者作对照.COPD急性加重期患者根据肺动脉压力分为肺动脉高压组(A组)30例、肺动脉压力正常组(B组)30例,根据病情分为轻度组21例、中度组23例、重度组16例.用免疫分析法测定血浆脑钠肽、内皮素浓度.结果COPD急性加重期组脑钠肽、内皮素浓度明显升高,稳定期组明显下降(P＜0.001),但仍高于健康对照组(P＜0.001);A组明显高于B组(P＜0.05);重度组高于中度组(P＜0.05),中度组高于轻度组(P＜0.05).说明脑钠肽、内皮素浓度可反映COPD患者肺动脉压力情况及病情严重程度,有利于其疗效及近期预后评估.     

Psychometric properties of the German version of the Barratt Impulsiveness Scale, Version 11 (BIS-11) for adolescents

Impulsiveness is increasingly gaining attention as a potential risk factor for various mental disorders. Until now, there have been German instruments that allowed for assessing adolescents' self-reported impulsiveness multi-dimensionally. The present study examined the German version of the Barratt Impulsiveness Scale-11 (BIS-11) for adolescents. The instrument was completed by 659 adolescents ages 10 to 20 years; 98 were retested after 6 months. Items showed adequate psychometric properties. An exploratory factor analysis identified three factors that showed slightdifferences from the initial questionnaire proposed by Barratt. The factors showed low to moderate intercorrelations, satisfactory internal consistency (dependent on factor), and were stable over time. Convergent validity was ascertained, and the item pool showed sufficient power to discriminate adolescents with symptoms of attention deficit hyperactivity disorder and those with loss of eating control from healthy adolescents. Findings suggest that the German BIS-11 is appropriate for reliable investigation of impulsiveness in adolescents. Future research should examine sensitivity as a screening tool, as well as sensitivity to change.     

CHRM2, parental monitoring, and adolescent externalizing behavior: evidence for gene-environment interaction

Psychologists, with their long-standing tradition of studying mechanistic processes, can make important contributions to further characterizing the risk associated with genes identified as influencing risk for psychiatric disorders. We report one such effort with respect to CHRM2, which codes for the cholinergic muscarinic 2 receptor and was of interest originally for its association with alcohol dependence. We tested for association between CHRM2 and prospectively measured externalizing behavior in a longitudinal, community-based sample of adolescents, as well as for moderation of this association by parental monitoring. We found evidence for an interaction in which the association between the genotype and externalizing behavior was stronger in environments with lower parental monitoring. There was also suggestion of a crossover effect, in which the genotype associated with the highest levels of externalizing behavior under low parental monitoring had the lowest levels of externalizing behavior at the extreme high end of parental monitoring. The difficulties involved in distinguishing mechanisms of gene-environment interaction are discussed.     

Similarity and difference in the processing of same- and other-race faces as revealed by eye tracking in 4- to 9-month-olds

Fixation duration for same-race (i.e., Asian) and other-race (i.e., Caucasian) female faces by Asian infant participants between 4 and 9 months of age was investigated with an eye-tracking procedure. The age range tested corresponded with prior reports of processing differences between same- and other-race faces observed in behavioral looking time studies, with preference for same-race faces apparent at 3 months of age and recognition memory differences in favor of same-race faces emerging between 3 and 9 months of age. The eye-tracking results revealed both similarity and difference in infants’ processing of own- and other-race faces. There was no overall fixation time difference between same race and other race for the whole face stimuli. In addition, although fixation time was greater for the upper half of the face than for the lower half of the face and trended higher on the right side of the face than on the left side of the face, face race did not impact these effects. However, over the age range tested, there was a gradual decrement in fixation time on the internal features of other-race faces and a maintenance of fixation time on the internal features of same-race faces. Moreover, the decrement in fixation time for the internal features of other-race faces was most prominent on the nose. The findings suggest that (a) same-race preferences may be more readily evidenced in paired comparison testing formats, (b) the behavioral decline in recognition memory for other-race faces corresponds in timing with a decline in fixation on the internal features of other-race faces, and (c) the center of the face (i.e., the nose) is a differential region for processing same- versus other-race faces by Asian infants.     

自我解释的研究现状与展望

自我解释(self-explanation)是指学习者在学习过程中通过自己向自己解释学习内容而获得知识的过程。文章主要阐述了自我解释的含义、分类、三种自我解释效果的认知机制,并且提出自我解释研究中尚待解决的问题及对其进行展望。