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21.
Janet L. Williams Alanna Kulchak Rahm Doris T. Zallen Heather Stuckey Kara Fultz Audrey L. Fan Michele Bonhag Lynn Feldman Michael M. Segal Marc S. Williams 《Journal of genetic counseling》2018,27(2):358-369
“The objective of this study was to” test the effectiveness of an enhanced genomic report on patient-centered outcome domains including communication, engagement and satisfaction. “Study design utilized” a prospective, randomized, mixed-methods desctiptive study of a whole genome sequencing results report, GenomeCOMPASS?, that was accessed by providers through the electronic health record and by patients through the associated patient portal. “The study was set in” an integrated healthcare delivery system in central Pennsylvania. “Eighty-four” parents of 46 children with undiagnosed Intellectual Disability, Autism Spectrum Disorder and/or multiple congenital anomalies who had participated in a previous study offering whole genome sequencing for their affected child were invited to enroll. Fifty-two parents enrolled. Following a traditional genetics results informing visit, the study coordinator stratified families by diagnostic result and uninformative result and then randomized families within each group to an intervention arm to receive the GenomeCOMPASS? report or to the usual care arm to receive a summary letter from the medical geneticist. A letter inviting enrollment included a baseline survey, which once returned, constituted enrollment. Surveys were administered at 3 months post-genetics visit. At 6 months, the usual care arm crossed over to receive the intervention and were administered an additional survey at 3 months. Qualitative interviews were conducted following survey completion to augment the survey data regarding the patient centered outcomes of interest. Patient reported outcomes including communication, engagement, empowerment and satisfaction. In the intervention arm, GenomeCOMPASS? reports were released to 14 families (N?=?28 parents) and of those 21 (75%) returned 3 month surveys. In the usual care arm, 12 families (N?=?24 parents) received usual care summary letters and of those 20 (83%) returned 3 month surveys. At crossover, GenomeCOMPASS? reports were released to 20 individuals and 15 (75%) returned 3 month surveys. Qualitative interviews were conducted with 5 individuals. Use of the GenomeCOMPASS? report was reported by this small group of parents to improve communication with providers and non-health professionals such as educators and therapists and led to increased engagement and high satisfaction. Providers and others involved in the children’s care also endorsed the report’s effectiveness. Reports that addressed negative findings, i.e. uninformative results, were not found to be useful. Although the number of users was small, this study supports that customizable template reports may provide a useful and durable source of information that can support and enhance the information provided by genetics professionals in traditional face-to-face encounters. Trial registration: Clinicaltrials.gov (Record 2013–0594). 相似文献
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This research manipulated the portion of a category distribution that is misclassified by the optimal classifier and investigated the impact on assessments of category attributes. Three separate studies manipulated the direction of overlap, the extent of overlap, and the relative base rate of the comparison category. All 3 studies produced large between-categories contrast and within-category assimilation. As expected, these effects were enhanced in conditions in which the optimal classifier misclassified a larger portion of the target category. Study 4 demonstrated that intercategory overlap in the absence of overt classification does not produce contrast and assimilation. Ironically, optimizing categorization accuracy can produce highly inaccurate beliefs about category attributes. 相似文献
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The present study sought to ascertain a contextualized perspective of established practitioners’ subjective reasoning underpinning their practices. An interpretive phenomenological analysis (Smith, 1996) was adopted as an in-depth qualitative approach to explore 9 UK-based applied sport psychologists’ perceptions and experiences. Three superordinate themes emerged: literature underpinning professional practice, the importance of the sport setting and context, and the need for professional judgment. The study provides a valuable insight into the influences on sport psychologists’ behavior, the role this plays when advising elite performers on allocation of their thought processes, and how such advice is operationalized and applied. 相似文献
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Weiping Hu Baojun Wu Xiaojuan Jia Xinfa Yi Chunyan Duan Winter Meyer James C. Kaufman 《创造性行为杂志》2013,47(1):3-21
The “Learn to Think” (LTT) Intervention Program was developed for raising thinking abilities of primary and secondary school students. It has been implemented in more than 300 schools, and more than 200,000 students took part in the experiment over a 10‐year span. Several longitudinal intervention studies showed that LTT could promote the development of students' thinking ability, learning motivation, and learning strategy as well as raise academic performance in primary schools. This article describes a study of the influence and the delayed effects of LTT on the scientific creativity of secondary school students. One hundred and seven students were selected from a secondary school, 54 of them participated in the LTT every 2 weeks and the rest had not. The intervention lasted 2 years, and the delayed effect was explored half a year after terminating the intervention. The Scientific Creativity Test for Secondary School Students was used four times from pre‐test to delayed post‐test. The results indicated that the LTT did promote the development of scientific creativity of secondary school students, and the effects on the scientific creativity were not necessarily immediate, but tended to be long‐lasting. 相似文献
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Transferring cases from one therapist to another is a common occurrence, particularly in agency settings where therapists do training. Despite its prevalence, there is relatively little literature on the topic. The literature that does exist suggests that transferring cases can present challenges to both clients and therapists. In addition to reviewing existing literature, the article examines the transfer process from the perspective of the client, the departing therapist, and the incoming therapist. The article explores the needs that each member of the transfer triad may have, as well as strategies for meeting those needs. 相似文献
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Stephanie Goins David Winter Josefin Sundin Sarah Patient Esther Aslan 《Journal of constructivist psychology》2013,26(4):275-301
This article presents a repertory grid study of young people who had experienced civil war in Sierra Leone, some as child soldiers and others as noncombatants. Unexpected findings included that the former combatants viewed themselves more favorably than did noncombatants. The findings are discussed in terms of individual and social construing processes, drawing on narratives and interview and focus group responses obtained from the participants in the larger investigation of which this study was part. Particular consideration is given to the role of forgiveness. 相似文献
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David A. Winter 《Journal of constructivist psychology》2013,26(1):81-99
Abstract Personal construct psychotherapy has rarely been applied to sexual disorders. In this paper a constructivist approach is contrasted with alternative methods of treating such problems on three related dimensions concerning whether it (1) is introspective or extraspective, (2) views the complaint as representing a personal construction or faulty mechanism, or (3) aims toward personal or normative goals. It will be illustrated by reports of the treatment of two men presenting with sexual complaints, and its technical eclecticism will be compared with integrative trends in sex therapy. 相似文献
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Right-Wing Authoritarianism, Party Identification, and Attitudes Toward Feminism in Student Evaluations of the Clinton-Lewinsky Story 总被引:1,自引:0,他引:1
This study explored the relationship among undergraduates' right-wing authoritarianism (as measured by the RWA scale), attitudes toward feminism, party identification, gender, and attitudes about the Clinton-Lewinsky relationship. Factor analysis yielded three subscales, reflecting participants' evaluations of Clinton's morality, the affair, and Kenneth Starr (the independent counsel). Republican identification was related to each subscale and also mediated the relationship between RWA and two subscales, which illustrates how party identification channels the expression of personality variables in partisan contexts. In addition, RWA—especially those items tapping aggression—was directly related to negative evaluations of Clinton, which suggests a punitiveness going beyond the mere channeling of opinions by party identification. Attitudes toward feminism were unrelated to the subscales, possibly because feminism supporters viewed Clinton's policies positively but his behavior negatively. However, females did give significantly lower evaluations of Clinton and the affair. 相似文献