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Strømsvik N Nordin K Berglund G Engebretsen LF Hansson MG Gjengedal E 《Journal of genetic counseling》2007,16(1):105-117
This qualitative study explores how 29 Swedish patients with Multiple Endocrine Neoplasia type 1 (MEN1) experience living
with the condition, appraisal of the clinical follow-up program, and surveys their future expectations. The aim of this study
is to build knowledge about this patient group in order to provide optimal care. The participants describe physical, psychological,
and social limitations in their daily activities and how these limitations influence quality of life. Our findings indicate
that a majority of patients have adjusted to their situation, describing themselves as being healthy despite physical symptoms
and treatment. The participants received decent care in the clinical follow-up program, - however, greater effort should be
put into patient information. These patients might benefit from genetic counseling. Health professionals involved should recognize
their potential impact and influence on a patient’s ability to adjust to these circumstances. Antonovsky`s Sense of Coherence
theory is used to discuss these findings. 相似文献
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Siglen E Bjorvatn C Engebretsen LF Berglund G Natvig GK 《Journal of genetic counseling》2007,16(5):607-615
This study examines the association between Sense of Coherence and anxiety and depression amongst patients at risk of hereditary
cancer receiving genetic counseling. When writing this article, 144 patients referred for genetic counseling due to a suspicion
of hereditary cancer in the family were recruited for this multicentered longitudinal study on the psychosocial aspects of
genetic counseling in Norway. A total of 96 (66%) patients responded to the follow-up survey distributed 6 months after genetic
counseling. This survey included the Sense of Coherence-29 Scale, Impact of Event Scale, and Hospital Anxiety and Depression
Scale. Multiple regression analyses were applied. Our results show association between cancer-related distress and symptoms
of anxiety and depression. Sense of Coherence is significantly associated with both anxiety and depression. The hypothesis
of Sense of Coherence buffering cancer-related distress and the possible impact of these findings for genetic counseling are
discussed. 相似文献
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Carlsson AH Bjorvatn C Engebretsen LF Berglund G Natvig GK 《Journal of genetic counseling》2004,13(5):425-445
The aim of this multicenter study was to explore associations between psychosocial factors (general self-efficacy, perceived availability of social support, cancer-related distress) and health-related quality of life, among individuals at risk for hereditary cancer. One-hundred and twenty one participants with a family history of breast-cancer or colorectal cancer answered a questionnaire 2-4 weeks prior to genetic counseling. The two dimensions of the health-related quality of life measure, mental and physical health were both used as outcome variables. Multiple regression (linear) analyses revealed that increasing degrees of cancer-related distress was related to decreasing degrees of mental health whereas increasing degrees of self-efficacy and social support were related to increasing degrees of this outcome variable. Self-efficacy, self-esteem support and tangible aid seemed to moderate the relationship between cancer-related distress and mental health. These results suggest that self-efficacy and certain resources of social support buffer the negative association between cancer-related distress and mental health, and might be suitable for interventional efforts. Implications for genetic counseling practice are discussed. 相似文献
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Nina Strømsvik Målfrid Råheim Nina Øyen Lars Fredrik Engebretsen Eva Gjengedal 《Journal of genetic counseling》2010,19(4):360-370
In families with hereditary breast and ovarian cancer, there is limited knowledge about the reactions of BRCA1/2 mutation
positive males. In the present qualitative study, fifteen BRCA1/2 mutation positive men in Norway participated in two successive,
in-depth interviews. Seven female partners participated in the second interview. The men reported strong emotional reactions
to their positive test results, and they expressed a desire to keep the genetic information private. They considered discussing
their test results or health related information with other males as difficult, and they perceived females as their sources
of social and emotional support. Interestingly, the second interview revealed important information not communicated during
the first interview. The findings of this study contribute to the discussion of whether men who test positive for a BRCA1/2
mutation should receive tailored genetic counseling sessions. Health care providers should be aware of psychological vulnerability
in these men, likely stemming from fewer emotional supports in their social networks. 相似文献
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