Painting the vortex: The existential structure of the experience of parenting a child with autism

The experience of parenting a child with autism is one of change to the parent's self. The associated triad of impairment in autism of impaired communication, social skills and a repetitive way of being permeates into the self of the parent through the medium of the social parent child relationship. This is a progressive process likened to the parent being pulled into a vortex. The existential mechanisms through which this may plausibly occur are considered.     

父母养育目标的文化差异

父母养育目标存在着普遍的文化差异。在理论上,对养育目标文化差异的解释呈现出从群体水平到个体水平、从单维到双维的发展趋势。在研究上,除了对文化差异理论的检验之外,养育目标对于各文化群体的养育方式、养育策略,以及子代发展的影响也是研究关注的重点问题。结构化问卷法和开放式列举法是养育目标文化差异研究最常用的两种测量方法,各有其优缺点和适用范围。现有研究存在着过度概括、忽略子女一方的角色和作用等问题,需要将来的研究加以改进和解决     

Understanding and Improving the Validity of Self-Report of Parenting

Although researchers using parental self-report data have questioned its validity (Holden, 2001) and called for more work in this area (Krevans & Gibbs, 1996; Locke & Prinz, 2002), methodological concerns regarding self-report about parenting practices have not been addressed adequately. The susceptibility of parental report to systematic distortions suggests a need for research on ways to improve self-report. This paper attempts to synthesize research findings from other fields (e.g., survey methodology) about ways to improve the validity of self-report, and to discuss the implications for self-report of parenting behaviors. Methods for improving self-report are presented for each of the 5 major tasks in responding to a question: (1) understanding the question, (2) recalling relevant behavior, (3) inference and estimation, (4) mapping the answer onto the response format, and (5) “editing” the answer for reasons of social desirability. Self-administered interviewing, audio-computer-assisted interviewing, pretesting, conversational interviewing, and the decompositional item may be among the best candidates for use in parental self-report. Recommendations are offered with respect to strategies that might prove useful in improving parental assessment of parenting, and to research efforts to evaluate the utility and potential costs of these strategies.     

Self-Determination and Empowerment: A Feminist Standpoint Analysis of Talk about Disability

In this paper we offer a feminist analysis of talk about self-determination and empowerment in the context of disability, focusing on the case of developmental disabilities. We find strains of the same patterns feminist epistemologists have argued shape the organization of formal knowledge from the standpoint of the privileged. At the extreme, people with developmental disabilities appear as objects without selves, outside of the context of interpersonal and social structural relationships that constrain who they can be by defining them as other, often in multiple and interacting ways. Empowerment, from the dominant standpoint, becomes an abstract attribute or condition; something a person has or does not have. Taking the standpoint of women and other marginalized people offers a view of self-determination as a person's development of his or her self. Empowerment becomes a potential characteristic of a social relationship, one that facilitates the development of someone's self. The most empowering relationships are mutual, recognizing and building on the diverse contributions and needs of participants in ways that seek to minimize inequalities over time. The reason some of us are self-determining is that we are in interpersonal and social structural relationships that empower us. To construct interpersonal and social structural relationships that empower people with developmental disabilities requires challenging the way dominant conceptualizations of independence and productivity also express the standpoint of the privileged. The standpoint of women allows all of us to talk more of how we connect with and facilitate one another's developing selves within communities.     

未婚精神分裂症住院患者父母控制感的质性研究

子女罹患精神分裂症对父母是巨大的冲击,本研究采用解释现象学研究方法,对武汉市某精神卫生中心病房住院治疗的6例未婚精神分裂症患者的父母进行深入访谈、现场录音和笔录,并分析资料。结果显示未婚精神分裂症患者住院期间控制感是父母的核心情绪体验,当失去控制感时,家属会体验到恐惧、焦虑、愤怒、自责,乃至抑郁,而当具有控制感时,家属则会体验到放松。提示专业人员在临床工作中需要考虑增强患者家属的控制感,这样可以促进家属的参与性,乃至增加患者的依从性。     

Learning Under Conditions of Action Information Feedback

Methodological and empirical issues in research on action information feedback (AIF) are discussed, with particular reference to the procedures and results of Annett (1970). Positioning responses practiced under conditions of AIF training are learned, though generally less well than under terminal IF conditions. Effects obtained as a result of AIF training may be subject to variations in movement extent required, gain and other transformations, frequency, temporal locus, and mode of augmentation, many aspects of which remain to be systematically studied.     

父母积极教养课程及其在中国的社会和文化适应

基于社会学习理论的父母教养课程被普遍视为预防儿童青少年行为问题以及促进儿童身心健康的“黄金标准”。父母积极教养课程（Triple P – Positive Parenting Program）是其中的主要代表。本文详尽介绍了Triple P的理论基础、干预体系、课程内容以及实证研究结果,分析了该课程存在的优势以及缺陷。此外,本文结合中国家庭的特点和需求,探讨了该课程运用于中国家庭时可能会遇到的挑战,同时提出了改良的方向,为家庭干预实践工作者和研究人员提供了新的视角。     

The identification of four characteristics of children’s spirituality in Australian Catholic primary schools

In taking its theoretical impetus from hermeneutic phenomenology, the qualitative research reported in this paper aimed to identify characteristics of children’s spirituality in Australian Catholic primary schools. The videotaped life expressions of two groups of six children in each of three Australian Catholic primary schools formed the texts of this study. A reflection upon the texts, guided by van Manen’s lifeworld existentials, resulted in the identification of four characteristics of these children’s spirituality – the felt sense, integrating awareness, weaving the threads of meaning, and spiritual questing. In the light of these findings, some pedagogical implications for nurturing spirituality through the primary religious education curriculum in Catholic schools are proposed.