Acceptance, avoidance, and ambiguity: conflicting social values about childhood disability

Advances in medical technology now permit children who need ventilator assistance to live at home rather than in hospitals or institutions. What does this ventilator-dependent life mean to children and their families? The impetus for this essay comes from a study of the moral experience of 12 Canadian families--parents, ventilator-dependent child, and well siblings. These families express great love for their children, take on enormous responsibilities for care, live with uncertainty, and attempt to create "normal" home environments. Nevertheless, they experience social isolation, sometimes even from their extended families and health care providers. Their lives are constrained in many ways. The challenges faced by parents of technology-dependent children raise questions of justice within society and within families.     

Rawls,Sartre, and the Question of Camaraderie

In his classic text, A Theory of Justice, John Rawls argues that the structural principles of a society are just when they issue from a procedure that is fair. One crucial feature that makes the procedure fair is that the persons who will be subjected to these principles choose them after they have deliberated together in a condition marked by a certain balance of knowledge and ignorance. In particular, these people know enough to consider principles that are workable, yet converse behind a “veil of ignorance,” unable to predict what their place in society will be and hence discouraged from slanting the principles toward any preferential interests. My paper questions whether this attempt to ensure the disinterestedness of the conversation of justice is feasible. I worry that when we approach this question practically, we discover that the education that furnishes us with the knowledge necessary to choose viable principles must at the same time preclude genuine ignorance about our social position and interests. As an alternative, I suggest that we convene the conversation of justice behind a “veil of existence.” In this condition, people possess knowledge about how their society works and even about their places in it; however, this knowledge does not foster preferential interests because all interests are subjected to the question of their existential meaning. As Jean-Paul Sartre explains in his essay, “Existentialism is a Humanism,” for our interests to be truly meaningful, they must be affirmed as free responses to our thrownness into existence. Yet how do we find the wherewithal to make such responsible choices rather than lapse into paralysis before their essentially arbitrary differences? My positive thesis is that we may do so by acknowledging how all of us in this existential predicament critically and mutually provoke each to commit oneself to depart from the others in specific ways. This process of provocation is thus educational. It broaches a conception of non-instrumental, non-mimetic, liberal study, one which I try to enact in a writing that employs direct address, regular returns to questions that put discourse at a loss, and expanding webs of association. In this manner, I hope to demonstrate that liberal study may deepen our appreciation of our communal nature, our camaraderie, and thus motivate us to participate unselfishly in the conversation of justice.     

Shadow People: A Counter Visual of Those Who Use Methamphetamine

This photo essay offers a counter visual to the common images of people who use methamphetamine (meth). Images of meth users found in the media and in anti-meth campaigns typically paint them as one-dimensional actors who have sacrificed their health, families, and lives for their drug of choice. Such depictions contribute to the stigmatization and demonization of users, which can ultimately impede their recovery. Here, we provide photographs of men who previously cooked methamphetamine but who were in treatment at the time the photographs were taken. The photographs are captioned with quotes from the men to show some of the range of attractions for using, the hazards of chronic use, and the struggles to live free from meth. Our hope is that these images and brief quotes will help to show the complexity of these peoples’ lives.     

Surviving the Transformation: Social Quality in Central Asia and the Caucuses

This paper develops a sociologically informed understanding of what influences the lives and life-choices of people living in Kazakhstan and Kyrgyzstan (Central Asian Republics) and Armenia and Georgia (the Caucasus), four of the successor states of the Soviet Union that suffered significant social and economic changes following the collapse of the Union in 1991. The focus is on the nature of these societies for their citizens; ultimately we are concerned to understand what makes a society liveable for all, what type of society enables people to be generally satisfied with their lives. To do this we use the Social Quality model to derive indicators from which to model what makes for a liveable or at least tolerable society. The model is validated by reference to subjective satisfaction—how people feel about life in general—as the ultimate outcome indicator of individual well-being. The data we use were collected as part of a broader study of living conditions, lifestyles and health in eight of the successor states of the Soviet Union, the Confederation of Independent States (CIS).     

Speech treatment and support group experiences of people who participate in the National Stuttering Association

Support groups are rapidly becoming an important part of the recovery process for many people who stutter, and a growing number of speech-language pathologists (SLPs) are encouraging their clients to participate in support groups. At present, however, little is known about the individuals who join stuttering support groups and the benefits they derive from their participation. This study surveyed members of the National Stuttering Association (NSA) to learn about their experiences in support groups, as well as their experiences in speech therapy. Respondents were 71 people who attended the 1999 NSA conference in Tacoma, WA. The majority of respondents had participated in treatment several times during their lives, using a variety of techniques. Respondents who had participated in fluency-shaping treatments were more likely to report that they had experienced a relapse than those who had participated in stuttering modification or combined treatments. Also, there was a strong positive correlation between respondents' satisfaction with treatment and their judgments of clinicians' competence, suggesting that improved training for SLPs should lead to improved treatment for people who stutter. Results will be used to provide a foundation for further evaluations of the benefits of support group participation for people who stutter. EDUCATIONAL OBJECTIVES: The reader will learn (a) that many people who participate in the NSA have had numerous and varied experiences with speech treatment throughout their lives, (b) which aspects of treatment and support group participation are seen as most beneficial for people who participate in the NSA.     

Pine ridge places—Feral,liminal, sacred

Animal dreams can bring us into deeper relationship with our own instinctual nature. They seem to communicate something from the ancient vestiges of our functioning on earth—all the head knowledge in the world cannot match the sheer vibrancy and power of our own animal. In an age characterized by alienation from the rhythms of natural life, animal dreams can remind us that we still retain access to the deepest layers of instinctual wisdom. This is particularly relevant for women, as they tend to suffer the consequences of an overly technological society most keenly. Women's lives are anchored in natural rhythms, and the impact of living in a culture that ignores and denigrates nature is therefore especially wounding. This essay explores the ways in which dreams of animals can help guide women back toward a relationship with their embodied nature. The author researches and explores several examples of animals in women's dreams and the ways in which these dreams can support a return to what is most vital and “natural” in their lives.     

Confucianism, Democracy, and the Virtue of Deference

Some democratic theorists have argued that contemporary people should practice only a civility that recognizes others as equal persons, and eschew any form of deference to authority as a feudalistic cultural holdover that ought to be abandoned in the modern era. Against such views, this essay engages early Confucian views of ethics and society, including their analyses of different sorts of authority and status, in order to argue that, properly understood, deference is indeed a virtue of considerable importance for contemporary democratic societies and the citizens who constitute them.     

Satisfaction with Spirituality, Satisfaction with Religion and Personal Well-Being among Spanish Adolescents and Young University Students

Young people in Catalonia are studied in order to better understand differences between satisfaction with spirituality and satisfaction with religion. Results suggest a reactive position on the part of most Spanish youngsters towards traditional religion; they consider it not very important either for their well-being or to give a sense of meaning to their own lives. While the importance given to spirituality is clearly higher, the concept seems to have several very different interpretations among young people. The discussion underlines the importance of discovering young people’s own points of view in order to understand the meaning they give to religion and spirituality in the context of an ever more rapidly changing society. The implications for future research and practice are discussed.     

Emotion Beliefs,Emotion Regulation,and Emotional Experiences in Daily Life

One potential factor that could influence how individuals with at least moderate symptoms of depression cope with upsetting events in their daily lives is the beliefs that these individuals hold about whether emotions are malleable or fixed. The current study adopted an experience sampling approach to examine how the beliefs about emotion’s malleability related to daily positive and negative affect and daily emotion regulation efforts among individuals with at least moderate symptoms of depression (N = 84). Results demonstrated that individuals having at least moderate symptoms of depression who held more malleable beliefs about emotions reported decreased negative affect both overall during the day and specifically in response to daily upsetting events. Additionally, these individuals who held more malleable beliefs about their emotions also reported more daily use of cognitive reappraisal to regulate their emotions in response to upsetting daily events. Results from the current study extend previous work examining the relationship between emotion malleability beliefs, emotional experiences, and emotion regulation to examine these relationships in people who are moderately depressed as they navigate the emotional landscape of their daily lives.     

Need,Paradox, and Surrender: Commentary on Paper by Adam Phillips

Despite its centrality in the lives of many people, psychoanalysis, with its traditional emphasis on psychosexuality and rationalism, has generally undervalued the importance of love and romance. This essay explores this devaluation within psychoanalytic theorizing and the parallel widespread degradation of love in everyday life. Whereas common wisdom claims that familiarity extinguishes love, I argue that the illusory security that familiarity often masks is endangered by genuine love, with all its accompanying risks.     

Michael Tooley and the Jolly Nasty Conclusion

Abstract Some recent powerful and persuasive arguments seem to imply that a world of people with lives that are barely worth living is preferable to a world which contains fewer people all of whom have extremely satisfying lives. This ‘repugnant conclusion’ is clearly to be rejected if possible—but is it possible? Many attempts to reject or avoid it have failed. One of the latest, by Michael Tooley, looked promising but the present essay argues that this attempt has also failed.     

Most People are Pretty Happy,but There is Cultural Variation: The Inughuit,The Amish,and The Maasai

Diener and Diener (1996; Psychological Science 7: 181–185) suggested that most people are happy, and offered support for this claim from surveys in industrialized societies. We extend their findings to include people who lead materially simple lives and live in cultures far removed from those of typical survey respondents. We found that the Kenyan Maasai, the United States Amish, and the Greenlandic Inughuit, all reported positive levels of life satisfaction, domain satisfaction, and affect balance (more frequent positive emotions than negative ones). Across satisfaction and affect measures, including methods in addition to global self-reports, our 358 respondents from these cultures were one average, positive on all 54 scales, and significantly above neutral on 53 of them. Across all measures and samples 84% of participants scored above neutral. However, nobody was perfectly happy and satisfied, and the groups reported unique configurations of satisfaction and affect. Although all three groups were high in satisfaction with so cial domains, the Amish reported lower satisfaction with self-related domains, and the Maasai and Inughuit were relatively lower in satisfaction with material domains. All three groups reported frequent positive emotions, but only the Maasai reported frequent feelings of pride. Thus, the fact that most people tend to be moderately happy does not mean that they are ecstatic, or that there is no variation across cultures in happiness.     

Social Critique and Transformation in Stout and Butler

If social critique is to play a role in broad social transformation, then it must be able to engage with the terms that people use to understand their lives. This essay argues that we can find an important model for performing social critique in the quite different work of Jeffrey Stout and Judith Butler. For both, social critique must be immanent and it must make explicit the character of the norms by which people currently live. This model is especially important in a situation where various moral and cultural traditions are confronting one another, and where it is necessary to work towards shared social and political goals. Stout and Butler present a method for achieving one's political goals by engaging with others on terms that they would recognize and seeking to transform the political structures they inhabit. Furthermore, their approaches provide helpful insights for further reflection on the critical possibilities in current ethnographic work.     

Imitation,Impersonation, and Transformation: Using Male Role Models in Films to Promote Maturity

Becoming a man is developmental. Boys model after men in their lives as well as figures they see in the media. When role models are positive, appropriate, and present, boys grow into constructive adults who contribute to society. This article examines how counselors can intentionally help young men mature into well‐grounded and prosocial individuals through the use of models in films. It provides a list of some movies that counselors can use in the process.     

Group belongingness and procedural justice: social inclusion and exclusion by peers affects the psychology of voice

The authors focus on the relation between group membership and procedural justice. They argue that whether people are socially included or excluded by their peers influences their reactions to unrelated experiences of procedural justice. Findings from 2 experiments corroborate the prediction that reactions to voice as opposed to no-voice procedures are affected more strongly when people are included in a group than when they are excluded from a group. These findings are extended with a 3rd experiment that shows that people who generally experience higher levels of inclusion in their lives respond more strongly to voice as opposed to no-voice procedures. It is concluded that people's reactions to procedural justice are moderated by people's level of inclusion in social groups.     

Toward a feminist theory of disability

We need a feminist theory of disability, both because 16 percent of women are disabled, and because the oppression of disabled people is closely linked to the cultural oppression of the body. Disability is not a biological given; like gender, it is socially constructed from biological reality. Our culture idealizes the body and demands that we control it. Thus, although most people will be disabled at some time in their lives, the disabled are made "the other," who symbolize failure of control and the threat of pain, limitation, dependency, and death. If disabled people and their knowledge were fully integrated into society, everyone's relation to her/his real body would be liberated.     

Meaning in Life Moderates the Relationship Between Sacred Loss/Desecration and Health

According to sanctification theory, religious people tend to imbue certain aspects of their lives with spiritual character and significance. Moreover, they take active steps to preserve and protect sacred aspects of their lives that might be threatened. If they are successful, they derive a deep sense of satisfaction and well‐being. However, when stressful events arise, some individuals are not able to preserve and protect the facets of their lives that they have come to view as sacred. The resulting sacred loss/desecration can be associated with physical and mental health problems. The purpose of the current study is to see if a sense of meaning in life buffers (i.e., moderates) the relationship between sacred loss/desecration and four measures of health: physical functioning, the number of chronic conditions, symptoms of physical illness, and self‐rated health. Data from a recent nationwide survey (N = 2,104–2,107) suggest that the negative relationship between sacred loss/desecration and each health outcome is lower for people who have a stronger sense of meaning in life.     

Spinning the stories of our lives

The way people talk about past events can affect the way they remember them (Tversky & Marsh, 2000). The current research explores how people naturally talk about events from their own lives. Participants recorded what, when, and how they told others about events from their lives. In general, participants talked about recent emotional events, and told them primarily to peers in order to convey facts and/or to entertain. Not all distorted retellings were regarded as ‘inaccurate.’ Participants labeled 61% of their retellings as distorted (containing exaggerations, omissions, minimizations, or additions) but only 42% of their retellings as inaccurate. Social context shaped the stories people told: they changed stories for different audiences; they exaggerated to entertain and simplified to inform. People construct stories as they retrieve and use memories in a social context. Copyright © 2004 John Wiley & Sons, Ltd.     

An Exploration of the Dynamics of the Overlapping Worlds of Work and Family

The relationship between the working lives and family lives of people in our society is a concern to both families and corporations. This article describes a research project that yielded theoretical statements about the interactions between organization life and family life for members of large corporations; grounded theory methodology and a systems theory approach were used. Data were obtained in a large multinational corporation from managers and their families who were undergoing three different kinds of organizational stress: international transfer, extensive travel, and job change to facilitator of personal and organizational change. The findings give reason for viewing organization and family as interacting systems and for considering the uniqueness of each individual's response to stressful events. They also indicate that an individual's feeling of influence over stressful events at the organization-family boundaries are significant for both organizational and family effectiveness.     

The Atheist Surge: Faith in Science,Secularism, and Atheism

This essay examines the recent publication of seven books that attack faith, belief, and religion and affirm atheism; inquires why they are appearing now; explores the meaning of atheism; and examines the history of atheism in the Western tradition. It is suggested that all people have worldviews (whether they are aware of them or not), including the atheists, and that cases can be made for most worldviews, but that no worldview can be proven to anyone who does not already affirm it. Therefore atheists are in the same situation as believers in other worldviews.