My Sister’s Keeper: Sibling Social Support and Chronic Illness

Through her stories and mine, my sister and I allow the outside world to see the ways in which we grapple with a critical health incident along her journey of living with lupus. Lupus is a chronic, autoimmune disease that is difficult to recognize and to diagnose. The ambiguous nature of the disease creates considerable confusion for the ill person as well as her support system. Using an illness narrative, I analyze a real life event linked to chronic illness, invisibility, living loss, liminality and family—and more specifically, to social support within the sibling relationship.     

Parental Responses to School-aged Children’s Sibling Conflict

The goals of this study were: (1) to describe and compare parental responses to school-aged siblings’ conflicts; (2) to explore the sibling relationship structural correlates of the parental responses; and (3) to assess the links between type of parental response and sibling relationship quality and children’s psychosocial and physical well being. One parent from eighty-two families (mothers = 68; fathers = 13; 1 missing) of firstborn (Mage = 9.84 years old) and secondborn (Mage = 7.16 years old) children completed an anonymous survey. Parents employed a child-centered strategy most often and sanctioned sibling aggression least often in response to siblings’ conflicts. Closer age spacing among siblings was related to parents’ sanction of physical aggression. Parental response type was associated with sibling relationship quality and children’s psychosocial and physical well being. The differential associations between parental response type, sibling experiences and children’s mental and physical well being are discussed.     

The Impact of a Child’s Cancer on the Father’s Relationship with His Spouse in Korea

A father of a child with cancer experiences psychological stress related to his child’s cancer diagnosis and treatment, which may affect his relationship with his spouse. Nevertheless, little attention has been paid to how having a child with cancer affects the marital relationship from the perspective of the father. We examined the impact of the child’s cancer on the father’s relationship with his spouse in Korea. We conducted in-depth interviews with 20 fathers (mean age?=?41.35 years; SD?=?4.49) of children who were diagnosed with cancer before the age of 19 and were within 5 years of the diagnosis. The mean age of the child with cancer was 9.1 years (SD?=?3.68), and the mean age at diagnosis was 6.4 years (SD?=?4.08). The analysis of the interviews revealed the following four themes (and eight subthemes): conflicts between spouses (lack of father’s participation in caregiving, financial and work-related stress), mental suffering (heartbroken, torn between caregiving and work), change in communication (child-focused communication, avoiding communication), and change in the marital relationship (neglected relationship, new trust built in the relationship). A father’s increased conflict in the marital relationship after his child’s diagnosis of cancer was intensified by his limited involvement in child care and parenting responsibilities. An understanding of the change in the father’s relationship with his spouse can inform the development of a psychosocial intervention that may strengthen a father’s emotional intelligence and resilience, which could improve the marital relationship.     

Dysregulated Motherhood: Exploring the Risk Features in a Mother’s Caregiving Representations

In the case of a mother with dysregulating attachment experiences and current enrolment in a parent-infant psychotherapy process, we explored which insecure, hostile/helpless, and prementalizing risk features were similar in her attachment and caregiving representations; which risk features were specific to her caregiving representations; and how these theory-defined features overlapped in detecting caregiving risks. Risk features in the attachment representations were assessed from the adult attachment interview and risk features in the caregiving representations from written psychotherapy notes. We found similar insecure (preoccupied and disorganized), prementalizing and hostile/helpless instances from both the attachment and the caregiving representations. However, confusion between self and child, greater variance in lapses into prementalizing, and specific and concrete fears and helplessness were unique to the caregiving representations. Hostile/helpless instances were found in tandem with almost all insecure and prementalizing instances, indicating this conceptualization captured risks in the caregiving representations most comprehensively. Fearful and helpless caregiving representations occurred somewhat independently from other risk conceptualizations, suggesting they need to be identified as independent phenomena. The results imply that detecting specific manifestations of intergenerational risks from caregiving representations is possible.     

School Aged Children’s Experiences 7 and 13 Months Following a Sibling’s Death

This study described 6-year to 12-year-old children’s responses 7 and 13 months after siblings’ NICU/PICU/ED death. Using semi-structured interviews, at 7 months, children were asked about events around their sibling’s death. At both 7 and 13 months, children were asked about their thoughts and feelings about the deceased, concerns or fears, and life changes since the death. Thirty one children (58% female), recruited from four South Florida hospitals and Florida obituaries, participated. Children’s mean age was 8.4 years; 64.5% were Black, 22.5% Hispanic, 13% White. Interviews were analyzed using conventional content analysis. Resulting themes: circumstances of the death, burial events, thinking about and talking to the deceased sibling, fears, and life changes. Most children knew their sibling’s cause of death, attended funeral/memorials, thought about and talked to their deceased sibling, reported changes in family and themselves over the 13 months. Fears (something happening to themselves, parents, other siblings—death, cancer, being snatched away) decreased from 7 to 13 months especially in 7-year to 9-year-olds. Seven-year to 9-year-olds reported the greatest change in themselves from 7 to 13 months. More Black children and girls thought about the deceased and reported more changes in themselves over the 13 months. School aged children thought about and talked with their deceased sibling, reported changes in themselves and their family and their fears decreased over the first 13 months after their sibling’s death     

“Feeling my Sister’s Pain”: Perceived Victim Suffering Moderates the Impact of Sexualized Music Videos on Fijian Women’s Responses to Men’s Intimate Partner Violence against Women

To better understand how sexualized music videos affect women’s responses to intimate partner violence (IPV), we examined the role of individual variability in perceived victim pain and perceived victim culpability in moderating and mediating (respectively) the priming effects of sexual music videos on women. Female Fijian college students (n?=?243) were randomly assigned to one of three viewing conditions: stereotyped sexual music videos, non-stereotyped/non-sexual music videos, or neutral videos. All participants then read a portrayal of a male-toward-female IPV episode and their perceptions of the female victim and male perpetrator were assessed. Only women who minimized the victim’s pain were adversely affected by exposure to the stereotyped sexual videos. Specifically, for women who perceived low victim pain, those in the stereotyped video condition perceived the victim as more culpable and reported greater perpetrator-directed favorable responding than those in the other two conditions. For these women who perceived low victim pain, perceptions of victim culpability mediated the impact of video type on perpetrator-favorable responding. The findings help us better understand susceptibility to the negative impact of stereotypical sexual videos and highlight areas, such as emphasizing the suffering of victims and reducing myths about victim culpability, which may be worthy of particular emphasis in interventions.

     

The Contribution of Social Relationships to Children’s Happiness

The association between happiness and social relationships was examined in 9- to 12-year-old children. Participants included 432 children and their parents. Children’s happiness was assessed using self-rating scales, parent’s ratings, and the Happiness and Satisfaction Subscale from the Piers-Harris Children’s Self-Concept Scale, Second Edition (Piers and Herzberg 2002). Children’s social relations were assessed with items from the Piers-Harris scale and questionnaires given to the children and their parents. These items were grouped into two positive (i.e., family and friends) and two negative categories (i.e., negative relations with peers and behaving badly toward others). Variance in children’s happiness was partially accounted for by positive social interactions involving the family (e.g., children agreeing that they are important members of their family) and friends (e.g., parents reporting that their children visit with friends more frequently). Negative social interactions also explained variance in children’s happiness including negative relations with peers (e.g., children agreeing that they feel left out of things) and behaving badly toward others (e.g., children agreeing that they are often mean to other people, and they cause trouble for their family). Demographic variables related to the family (i.e., number of siblings, age of parents, and marital status of parents) were only weakly, or not at all, associated with children’s happiness. The results parallel findings from the literature involving adults and adolescents; social relationships are significant correlates and predictors of happiness.     

Genderqueer: One Family’s Experience with Gender Variance

Accounts of the experiences of gender variant individuals that have recently received attention in the popular and psychoanalytic literature have led to an increased appreciation for the complex nature of identity; gender development; and the interaction of mind, body, and the social environment. Although there is still a great deal to be learned about the developmental trajectories of transgender identities that fall within what is a more familiar, male/female binary-based landscape, even less is known about developmental pathways for individuals whose gender identities remain neither comfortably male nor female. In this article, we present selected episodes reflecting our experiences as a family, drawn from over a 25-year period in which a gender variant individual, along with the rest of us, grew up. We tell this story—our family’s story—to better understand what we have been through and learned, to help other families going through similar experiences, and as a thought-piece to clinicians and students of gender. The result is both a narrative and a meditation on the nature of gender identity and gender development.     

From Theory to Practice: One Agency’s Experience with Implementing an Evidence-Based Model

As evidence-based practice is becoming integrated into children’s mental health services as a means of improving outcomes for children and youth with severe behavioral and emotional problems, therapeutic foster care (TFC; a specialized treatment approach for such youth) is one of few community-based programs considered to be evidence-based. “Together Facing the Challenge” (TFTC) which was tested in a randomized trial of TFC has been identified as an evidence-based model. We describe the experiences reported by one of the agencies that participated in our study and how they have incorporated TFTC into their on-going practice. We highlight key implementation strategies, challenges faced, and lessons learned as the agency moved forward towards full implementation of TFTC.     

ʿAbdolkarim Soroush’s Approach to ‘Experience’ as a Basis for His Reform Project

During the past few decades, many Muslim scholars and reformers have established new principles of reform through various hermeneutical approaches towards primary sources of Islam. Thus, Islamic thought, like any other religious tradition, has undergone a process of development in the modern period and will surely continue to do so in the future. ?Abdolkarim Soroush (b. 1945) is undoubtedly one of the most influential religious reformers in contemporary Iran and he has gained an international reputation. One of the central ideas that consistently appear throughout Soroush’s writings is that religion can be linked to a type of human ‘experience’, a theme that has long been the concern of Western scholars of religion. This article argues that the theme of experience became the fundamental element in two aspects of Soroush’s reform project, namely his approach to qur’anic rulings and his philosophy of religious pluralism. Indeed, the article shows that Soroush’s conception of revelation as a religious experience of the Prophet Muhammad is not only confined to a theological depiction of God’s relation to humanity, but also has legal and social implications for approaching Islam in the context of the present time.     

The Impact of ‘the Dream’ on Women's Experience of the Midlife Transition

Daniel Levinson's claim for the universality of age-linked periods is considered highly controversial considering that his theory evolved from a study consisting of males only. Theories relating to women's development, particularly at midlife, are somewhat scarce and restricted. Using Levinson's theory of adult development as a framework, the present study retrospectively examined the Dream and its impact on women's psychological health and adjustment to the Midlife Transition. Three hundred midlife women completed a questionnaire examining Dream Status, Dream Content, Dream Success, and the psychological health variables, depression, anxiety, self-esteem, and life satisfaction. Dream Success was significantly related to psychological health on dimensions of well-being and composure, and interesting changes were observed in Dream Content across the early and current Dream. Our findings revealed that, despite the overall greater complexity of women's Dreams, Levinson's theory is largely applicable to women's development.     

Relationships of parents’ and child’s general attributional styles to academic performance

This study examined the relationships among student academic performance and child’s and parents’ attributional styles. One hundred seventy-nine students (87 boys and 92 girls) who were enrolled in primary public schools in New South Wales, Australia, and their parents volunteered to participate in the study. Only English-speaking, two-parent families were included. Participants completed age-appropriate attributional style questionnaires. Academic performance was obtained from student records of course grades. The results indicated that both mothers’ and fathers’ attributions for their own positive and negative life events were related to their children’s attributions for their academic performance. We present implications of these results for research on attributions and academic performance.     

Climbing the Ladder: Experience with Developing a Large Group Genetic Counselor Career Ladder at Children’s National Health System

Children’s National Health System (CNHS) is a not-for-profit pediatric hospital that employs around twenty genetic counselors in a range of specialties, including clinical pediatric, neurology, fetal medicine, research, and laboratory. CNHS lacked a structured system of advancement for their genetic counselors; therefore, a formal career ladder was proposed by the genetic counselors based on years of experience, responsibility, and job performance. This career ladder utilized monetary, academic, and seniority incentives to encourage advancement and continue employment at CNHS. The creation and ultimate approval of the career ladder required direct input from genetic counselors, Department Chairs, and Human Resource personnel. The establishment of a genetic counselor career ladder at CNHS will hopefully benefit the profession of genetic counselors as a whole and allow other facilities to create and maintain their own career ladder to meet the needs of the growing, competitive, field of genetic counseling.     

Forming State Collaborations to Diversify the Nation’s Health Workforce: The Experience of the Sullivan Alliance to Transform the Health Professions

Diversifying the nation’s health professions is essential in order to maintain a vigorous health workforce, able to respond to the needs of all Americans. The inability of the health workforce to keep pace with the changing demographics of the nation is a major cause of the persistent inequities in access to quality health care for ethnic and racial minorities in the U.S. Ethnic and racial minorities have been underrepresented in the genetic counseling profession since its inception, despite vigorous professional initiatives to remedy this situation. Mittman and Downs published a critical review of these initiatives detailing recommendations for change in this journal in 2008. One of their major recommendations was the need to learn from, and join, efforts with other health professions in seeking to increase professional diversity in genetic counseling. This paper reviews new findings on issues impacting health workforce diversity in the nation, presents a case study of a national best practice to diversify the health workforce and illuminates actions that can be taken by the genetic counseling profession. The Sullivan Alliance to Diversify the Health Professions is a culmination of two historic initiatives for addressing the dearth of minority health professionals and is a national catalyst for increasing diversity within the health professions by forging state collaborations among institutions of higher education, health professions schools and other key stakeholders.     

Young Women’s Accounts of Caregiving,Family Relationships,and Personal Growth When Mother Has Mental Illness

Family members often serve as the primary source of care and support for loved ones living with mental illness. Although existing research has examined the role of parents and well siblings in providing care to adult children with mental illness, relatively little is known about the caregiving experiences of adult children with a parent with a psychiatric disability. Guided by a life course perspective, the present qualitative study examined first-person accounts of 10 young women attending college (ages 18–22) who were raised by a mother living with mental illness (depression, bipolar, or schizophrenia). Participants completed individual semi-structured interviews in which they described their experiences of caregiving, role reversal, and felt obligation towards mother, their ties to father and siblings, and their views of the impact of maternal mental illness on their lives. Overall, young adults’ accounts of their relationship with mother could be characterized as either predominately positive or predominately negative. In general, participants’ accounts of their caregiving experiences, views of felt obligation, and supportiveness of family ties differed depending on their reports of the overall quality of the mother–daughter relationship. Adult daughters described positive impacts of maternal mental illness on their own lives, regardless of their accounts of relationship quality with their mothers.     

The Church’s Response to Sexual Reproductive Health Issues Among Youths: Jamaica’s Experience

This study evaluated the response of religious denominations to sexual reproductive health issues among youths using a close-ended, structured, 32-item questionnaire and an interview. The majority (71% men, 71% women) of the respondents attended church regularly; were unmarried (92% men, 83% women); were sexually active (71% men, 45% women); used drugs (65% men, 62% women). The majority of the respondents (46% men, 63% women) were reprimanded and/or ostracized by the Church. The findings suggest that issues encompassing sexuality and drugs among youth do not resonate well with the conventional religious practice of the Church, hence a significant incidence of ostracism and the likelihood of premarital sex and drug use.     

Children’s Elementary School Social Experience and Executive Functions Development: Introduction to a Special Section

Children’s executive functions, encompassing inhibitory control, working memory and attention are vital for their self-regulation. With the transition to formal schooling, children need to learn to manage their emotions and behavior in a new and complex social environment that with age increases in the intensity of social interactions with peers and teachers. Stronger executive functions skills facilitate children’s social development. In addition, new experiences in the social environments of school also may influence executive function development. The focus of this special section is on this potential impact of elementary school social experiences with peers and teacher on the development of children’s executive functions. The collection of papers encompass various aspects of peer and teacher social environments, and cover broad as well as specific facets and measures of executive functions including neural responses. The collection of papers sample developmental periods that span preschool through mid-adolescence. In this introduction, we summarize and highlight the main findings of each of the papers, organized around social interactions with peers and interactions with teachers. We conclude our synopsis with implications for future research, and a specific focus on prevention and intervention.