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1.
Neurofibromatosis type 1(NF1) is a complex and variable inherited disorder. The complexity and variability present particular difficulty for genetic counseling. Thirty-three people with NF1 of reproductive age were interviewed about their experience of genetic counseling, their past reproductive behavior and future intentions. One third reported having had no genetic counseling or not having it until after their first child. In part, this may be due to delay in diagnosis but also indicates poor access to genetic services. Only three people had ever been offered prenatal genetic testing and only one had accepted. Although testing is still technically difficult, the greatest deterrent to uptake of prenatal testing for NF1 is the variability of the disorder. However, six of the 17 people planning future pregnancies would want a test with a view to termination if necessary. Others would welcome testing in order to be prepared but not to terminate. We discuss some of the factors which influence reproductive decision making for people with NF1 and some of the difficulties in genetic counseling in such a variable and complex disorder.  相似文献   

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OUR EDITOR caught up with physicist David Bohm for a few days at Bailey Farm, a “think-tank” for lawyers in New York state. Autumn was crisp in the air with golden leaves and agreeable conversation as they walked together through the local woods. Bohm was in the middle of writing several books simultaneously with a number of his colleagues on the brood implications of his view of quantum physics for current ideas in psychology, sociology, and philosophy. In this wide-ranging interview, Bohm talks for the first time about his early scientific development, his relations with Robert Oppenheimer and Albert Einstein, and his idealistic struggles to actualize heightened states of being within a creative community. He also talks about imagery, stress, and the difficult evolutionary struggle in which we are currently engaged to free our minds from the negative conditioning of the past and the conceptual blind alleys of the present. David Bohm takes us on a journey into the post-modern world, a cultural step beyond relativity and quantum theory.  相似文献   

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This article looks at how hatred affects development: how children may come to hate, the impact of hatred on a child’s development, the evolving awareness of hatred, and how we may try to insulate a child from being the object of hatred and prejudice. What is suggested is that we aid children in developing a “not REALLY me” me; one akin to the “me” that a psychoanalyst develops in response to being the object of transference.  相似文献   

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This article is an autobiographical account of conflicts, both personal and political, that I experienced growing up in South Africa in a context of racism and civil conflict. It speaks to how these conflicts shaped my work as an analyst and as a person. In regard to specific issues that were fore-fronted, these included an interest in the ugly emotions, trauma and dissociation in both victims and perpetrators, the application of psychoanalysis in war zones, the issue of voice, the effects of emigration and the diaspora, the centrality of context, and the dynamics of racism.  相似文献   

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This article portrays the personal strengths of children growing up in same-gendered families from a positive psychological framework. One of the major challenges all children growing up in same-gendered families are faced with is the integration of their family experience with that of the wider society outside the home. A narrative approach was used to explore the experiences of children from their perspectives. Five children from eight families participated in the project. Data were created through interviews and a variety of other supportive qualitative techniques. The data were analyzed using a holistic analysis approach and a narrative was subsequently written to illuminate the uniqueness, the specificity and the individuality of each particular child. This article depicts one of these narratives. From this narrative the following personal strengths emerged: humor, a sense of perceived control, socially intelligent disclosure, agency, okayness and the ability to form positive relationships. I propose that remarkable personal strengths are displayed in the way in which children growing up in same-gendered families engage a heteronormative world.  相似文献   

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Since the advent of social networking site (SNS) technologies, adolescents’ use of these technologies has expanded and is now a primary way of communicating with and acquiring information about others in their social network. Overall, adolescents and young adults’ stated motivations for using SNSs are quite similar to more traditional forms of communication—to stay in touch with friends, make plans, get to know people better, and present oneself to others. We begin with a summary of theories that describe the role of SNSs in adolescents’ interpersonal relationships, as well as common methodologies used in this field of research thus far. Then, with the social changes that occur throughout adolescence as a backdrop, we address the ways in which SNSs intersect with key tasks of adolescent psychosocial development, specifically peer affiliation and friendship quality, as well as identity development. Evidence suggests that SNSs differentially relate to adolescents’ social connectivity and identity development, with sociability, self-esteem, and nature of SNS feedback as important potential moderators. We synthesize current findings, highlight unanswered questions, and recommend both methodological and theoretical directions for future research.  相似文献   

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A study was conducted to understand how bottle bills exert their effect. Legislation does apparently allow for a situation in which behaviors influence attitudes if subjective norms converge with the new position. Students tested longitudinally manifested significant ( p < .1) differences in cross-lagged panel correlations implying that subjective norms lead to bottle bill and ecological attitudes, that behavior and habit lead to bottle returning attitudes, and that ecological attitudes lead to intentions. Students in Oregon were found to have greater pro-ecological attitudes than students in neighboring states. Public policy implications are discussed.  相似文献   

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Parental alcohol dependency negatively influences children, and a number of studies have examined the numerous childhood adversities and negative developmental outcomes among children of alcoholics. However, few studies have explored how children of alcoholics adapt to their own lives while growing up in an alcoholic family. For this reason, we examined the psychosocial adaptation process that Korean adult children of alcoholics (KCOAs) had experienced since they were young, which we in turn used to generate a theory of the adaptation process of KCOAs. Therefore, the purpose of this study was to determine the psychosocial adaptation process of Korean children who grew up with a father with alcohol dependency. A total of 20 volunteer participants were recruited, and either face-to-face or telephone-based semi-structured interviews were conducted based on the participants’ preferences. The interview data were analyzed by using grounded theory methodology. As a result, ‘‘separating my own identity from my father’’ appeared as a core category of KCOAs’ adaptation process. In order to separate themselves from their fathers, they tended to pass through six stages: being trapped, awakening, struggling, blocking, understanding, and separating.  相似文献   

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Relationships between young people with anxiety and their non-affected siblings are important for both individuals in the dyad, and for family dynamics throughout the lifespan; however, these relationships are not well understood. This study examined the experience of growing up with an anxious sibling from the sibling without anxiety’s point of view. We measured psychosocial factors associated with sibling relationship quality in 64 young adults with an anxious sibling. Overall, participants with anxious siblings were resilient, reporting comparable sibling relationship quality, anxiety symptoms, and psychological functioning relative to peers without anxious siblings. The contributions of caregiver burden and attributions about the causes of the sibling’s anxiety-related behavior accounted for significant variance in both sibling relationship warmth/closeness and conflict, with responsibility attributions emerging as an individual predictor of conflict. Clinical and research implications for understanding sibling relationships in the context of anxiety, and for the role of attributions in family relationships are considered.  相似文献   

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Among a subgroup of adolescents with chronic pain syndromes, anxiety about “growing up” appears common and may be exacerbated by developmental transitions. Using the bat mitzvah ceremony as one example of a developmental rite of passage, we present two cases in which adolescent girls facing this transition developed new chronic musculoskeletal pain syndromes or experienced recurrences of pain symptoms. In both cases, the transition to adulthood, symbolized by the bat mitzvah, was associated with anxiety in adolescents who were unusually focused on the negative aspects of becoming independent adults. The aims of this case report are (1) to highlight the role of developmental transitions as a possible factor in the biopsychosocial model of pediatric pain; (2) to illustrate how to address emotional and cognitive responses to these transitions in the context of cognitive-behavioral treatment for pain; and (3) to suggest systematic approaches to investigating this clinically-observed phenomenon in future research.  相似文献   

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Rapid developments in genetics suggest that more and more people will be identified ‘at risk’ for common illnesses. Genetic discoveries have the potential to improve disease outcomes, but they also highlight gaps in our knowledge about patient-level factors such as how individuals respond to a genetic threat to their health and how they cope with that threat. There have been few empirical applications of psychological theories to understand genetic testing decisions and outcomes, although there have been calls for this approach. Drawing upon interviews with individuals at risk for (or with) Huntington disease (HD), this study adopts a stress and coping framework to explore how people cope with genetic illness in the family. Qualitative data analyses revealed that coping strategies were dynamic and varied but could be classified as 1) primary control coping, 2) secondary control coping and 3) social comparison strategies. Important distinctions were observed in coping strategies among those who had undergone genetic testing and received a test result, those who remained at risk, and those affected with HD, along with their caregivers. Implications for clinical practice and genetics health services are discussed.  相似文献   

13.
The legitimacy of adult's accounts of child sexual abuse depends on the consistency of the story they tell about this experience. But there are a variety of influences that conspire to create dynamic variation in retrospective accounts of child sexual abuse. In a study of an experimental New Zealand commune called Centrepoint, participants showed considerable variation in accounting for the child sexual abuse that was known to have occurred there. We used a narrative methodology to show the variation between stories that highlighted abuse and suffering and others that represented an idyllic childhood within which sex between children and adults was normalised. There was also considerable variation within individual participant's accounts. The variation within and between accounts was shaped by features such exposure to contradictory experiences, different social positioning in relation to child sexual abuse, shifts in memory and interpretation over time, differences between insider and outsider perspectives on child sexual activity at the commune and alternative perspectives on victimhood. This research challenges the mythology that accounts of child sexual abuse should be expected to be clear and consistent. Instead, variation should be treated the rule rather than the exception in these accounts. Copyright © 2012 John Wiley & Sons, Ltd.  相似文献   

14.
This study tried to identify the psychosocial dispositions and environment conducive to the development of a creative musician. A sample of 14 established musicians (vocalists and instrumentalists) belonging to Hindustani music tradition was selected from three major cities of Uttar Pradesh and were interviewed in-depth. They were interviewed about their early childhood, training in music and growing up as a musician. A thematic analysis yielded three major psychosocial themes pertaining to nurturance of creativity—developmental dispositions, preferred settings for music practice (Riāz) and performance, and relationship with Guru. Many participants showed proclivity to be creative musician, but all needed to have intrinsic motivation, nurturing social environment, and proper setting for riāz. They also reported that learning under a worthy guru was important for their creativity to blossom. Implications of these findings for training of the music students in an institutional set up were discussed.  相似文献   

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Among emerging adults who are career indecisive, perfectionism and problematic Internet use (PIU) are underdeveloped areas of inquiry. The authors examined the relationship between perfectionism and PIU to measure their contributions to career indecision. The full model was significant, yielding an R2 of .46 (p < .0001). PIU accounted for the majority of variance in career indecision (adjusted R2 = .32). Career indecision was also related to maladaptive but not adaptive perfectionism. Counseling implications are discussed.  相似文献   

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