People with Disabilities – In Order to Belong,They Need to Be Missed!

People with disabilities are often excluded within our churches: Why is that so? This paper will explore why disabled people are not missed within our churches as a mission group and as a member of the body of Christ. It will also explore why the fact that they are not missed makes them feel like they do not belong in the church. The paper will conclude with what people with disabilities have to offer the church, and what the church can positively do to help them feel like they belong through our mission and inclusion of them into the full ministry of the church.     

Aging family caregivers: policies and practices

This review examines later life family support for adults with developmental disabilities from a life course perspective that takes into account social trends and changes in service patterns and in attitudes of families. Key issues addressed include: (1) trends affecting family caregiving, (2) health and social outcomes of life-long caregiving, (3) support needs of families, (4) family support policies and practices, and (5) recommendations for a research and policy agenda. Research examining outcomes of life-long caregiving has shown that most families adapt well to having a family member with disabilities. However, some families are at risk for poorer physical and mental health outcomes. These include cultural minorities and families of adults with behavioral challenges. Caregiving does seem to have a negative impact on maternal employment and family income as mothers often give up or cut back on employment to care for a child with developmental disabilities, who is more likely to continue living in the family home throughout adulthood than other adult children. Federal and state initiatives are addressing issues of family support through both the developmental disabilities and aging service systems.     

Disability,Performance, and Discrimination in the Service to Humanity

In an age when the church is called upon to be an inclusive community, persons with disabilities in Nigeria are still grappling with exclusion. Disability is associated with multiple challenges. The challenges include degrading treatment, marginalization, and exclusion from recruitment opportunities, as well as discrimination in churches. Some people believe that disability has negative connotations and that persons with disabilities are hopeless, helpless burdens and passive “objects” meant to receive charity as well as physical and spiritual deliverance. Persons with disabilities are stereotypically seen as incapable of being productive. It is assumed that because people live with disabilities, they are not meant to occupy leadership positions or fully partake in church activities. The expectation that persons with disabilities be wholly embraced into the Christian fold is yet to be met. This article shares information on the context in which some of the challenges facing persons with disabilities are rooted. It examines the involvement and experiences of persons with disabilities in the activities of the church, church institutions, and church‐affiliated organizations in Nigeria while acknowledging the church’s mandate of inclusion. It finds that stereotyping and discrimination are challenges for persons with disabilities – individuals who are also made in the image of God. In the future, more research needs to be carried out on issues around the isolation of persons with disabilities in the body of Christ. The findings would help interested groups recognize the predicaments of persons with disabilities and find realistic strategies for a progressive inclusive church community – in this way assisting the efforts of the World Council of Churches’ programme on disability.     

特殊儿童心理弹性的研究：现状及启示

心理弹性研究是心理学研究的热点领域,特殊儿童的心理弹性又是其中的重要部分。本文对学习障碍儿童、身体功能障碍、情绪或行为问题儿童等特殊儿童心理弹性的研究进行梳理．厘清其研究框架及问题范畴,寻找和明确促进儿童弹性发展的保护性因素及危险因素,并据此从家庭教育、学校教育、社会支持等方面入手,提出了促进特殊儿童的弹性发展之策略,以期为特殊儿童的教育实践提供一些有益的探索。     

Quality care in residential placement for children and youth with developmental disabilities

There is a growing concern for quality care in residential placements outside of the natural family for children and youth with developmental disabilities. Ideally, children with developmental disabilities should remain with their natural parent or parents of parents with appropriate supports until the age when children typically leave home. In reality, parents of children and youth with development disabilities are not always able or willing to care for their children at home, and alternate residential placements must be found. This paper will discuss some of the issues surrounding the provision of quality care in out-of-home residential placements for children and youth with developmental disabilities.     

Support Networks of Single Puerto Rican Mothers of Children with Disabilities

The social support networks of 25 Puerto Rican single mothers of young children with disabilities were examined and compared with current models of family support for children with disabilities. This study was designed to assess the support systems of Latino single mothers in light of dominant models of family support. The Family Support Scale, the ECOMAP, and responses to open-ended questions were employed to describe the characteristics of Puerto Rican single mothers’ support systems. Study findings suggest that members of the children’s immediate and extended kinship system, including non-blood relatives (e.g., madrinas), play a strong role in the support network of the mothers interviewed. Implications for early childhood professionals who work with Latino parents of children with disabilities are examined.     

Teacher Perspectives on Grief Among Children with Intellectual Disabilities

The death of a parent can have a profound impact on a child. However, little is known about how children with intellectual disabilities demonstrate grief or how teachers respond to student grief. Constructivist grounded theory methods were used to analyze data collected from five special education teachers of elementary students with intellectual disabilities. Categories related to grieving, loss, support, coping, and emotion were found. Teachers reported a range of grieving behaviors displayed by children with intellectual disabilities in the classroom and used various strategies to provide support. Grief in surviving caregivers and assistance from other school personnel were also described. The need for additional training of teachers and counselors about grief in children with intellectual disabilities is highlighted.     

Voluntary parents to multiple children with special needs: A profile

A sample of 18 women and men who accompanied their foster or adopted children with severe developmental disabilities to a medical appointment at Henry Ford's Multidisciplinary Care Clinic during the one-year period and who reported during that appointment that they currently had residing with them at least three foster or adopted children with special needs are described in the context of their parental role vis-a-vis these children. Results of the study are presented through use of a six-part organizational scheme: demographic and social traits of the parents and their focal children (the children being seen at the Clinic that day), the focal children in family context, life satisfactions of the parents, foster or adoption motives (whichever applied), foster or adoption satisfactions, and parental sentiments regarding the children as a group.     

Connections between Family Centered Care and Medical Homes of Children with Neurodevelopmental Disabilities: Experiences of Diverse Families

Cultural issues tied to race/ethnicity are important aspects in delivering medical home services to children with neurodevelopmental disabilities and their families. To better understand family satisfaction with family centered care (FCC) in medical homes of children with disabilities, this study investigated whether family race/ethnicity, in addition to parent and child characteristics, significantly influenced family perceptions of FCC in three areas: family-provider partnership, care setting practices and policies, and community coordination and follow-up. Based on the life course theory for optimizing children's developmental trajectories, examining connections between family race/ethnicity and satisfaction with health care allows for identification of strengths and weaknesses in medical home services delivery, and offers opportunities for family support and improvement in outcomes for children with disabilities. This study developed an original empirical survey using a structured questionnaire developed by Family Voices, a national advocacy organization dedicated to promoting the well-being of children with disabilities and their families. The study collected data for 122 families in a large urban area in the northeastern United States. Multivariate analyses revealed that family race/ethnicity significantly contributed to the prediction of parental satisfaction with medical homes of children with disabilities, and to families' perceptions of FCC in care setting practices and policies, and community coordination and followup, but not to family provider partnership. Non-White families reported significantly lower satisfaction. Discussion emphasizes that health care providers need to become more vigilant in providing culturally sensitive care. To enhance FCC practices and policies, the study advances a checklist of ten essential areas that promote culturally sensitive interactions between families of children with disabilities and their medical and non-medical health care providers.     

Implementation of the Consultative Approach in the Classroom in Support of Related Services

The consultative approach is described as a means for special services providers to facilitate incorporation of related service objectives and interventions for children with disabilities into their daily classroom routines. The approach involves collaboration between the special services consultant and classroom teacher in specifying the child's related service needs and then in designing, implementing, and evaluating classroom based related services interventions targeted to educational goals rather than medical/therapeutic criteria. Benefits to this kind of approach are discussed within the context of full inclusion of children with disabilities. Relatedly, barriers to implementation that are likely to be present when using the consultative approach are considered.     

Relationship between Disabilities and Adoption Outcomes in African American Children

Although many children adopted from the public child welfare system have special needs, little is known about the experiences of African American adopted children with disabilities and their families. The purpose of this study is to explore different categories of disabilities, including chronic health issues; emotional, mental, or behavioral (EMB) disorders; and intellectual or developmental disabilities (IDDs) on adoption outcomes in a sample of African American children. Data were from the Post-Permanency Round II Survey collected in 2008. A random sample of 412 adoptive parents or legal guardians self-reported their children’s disability diagnoses and family caregiving experiences. Hierarchical regression modelling was used to investigate the relationship between child disability and child and parental outcomes. Results indicated that chronic health issues (β?=?.10, p?<?.05), EMB disorders (β?=?.16, p?<?.01), and IDDs (β?=?.12, p?<?.05) were positively associated with parental burden. In addition, asthma (β?=?.10, p?<?.05), from the larger physical health issue category, was also associated with parental burden. However, none of the disability categories was significantly related with caregiver commitment or adoption dissolution. Future research should disentangle the definitions of special needs or disabilities.     

The support gap for dual clergy couples

Within this study six levels of support for dual clergy couples with and without children were investigated. Seven dual clergy couples of several synods of the Lutheran Church in two western Canadian provinces were asked open-ended questions about the support they had received in several employment and family related areas. While findings in each of the areas varied, overall, most individuals received the most support from their spouse and little from close friends and relatives often due to physical distance. Support provided by other clergy and church administrators was mixed. Only one major difference was found between couples with and without children. The group without children were more optimistic about the support that would be provided by family and friends in the area of child care while couples with children failed to mention support from friends and family.     

Motives for Fostering Children with Alcohol-Related Disabilities

A sample of 63 licensed foster parents was asked, “What motivates you to foster a child who has a fetal alcohol spectrum disorder?” The responses to this question were grouped together by licensed foster parents. The grouped data were subjected to multidimensional scaling and cluster analysis. Results indicated that foster parents were motivated to care for children with alcohol-related disabilities by witnessing positive changes in the children in their care, helping children focus on their strengths, using their own parenting experience, earning an income, assisting children who have disabilities, and helping children stay connected to their families and communities. Foster parents who foster children with alcohol-related disabilities foster for similar reasons to those who foster children with special needs in general. Differences between the literature on foster parent motives and study results were described. Foster parents who are caring for children with alcohol-related disabilities see their care as specialized, see their roles as long-term helpers facilitators to children, their birth families and home communities, and emphasize positive experiences of fostering.     

Sustainable Family Care for Children with Disabilities

The majority of parents want to continue caring for their sons and daughters with disabilities at home, and they are expected and actively encouraged to do so. Notwithstanding, and for reasons that are not well understood, a substantial number of parents seek to place their disabled son or daughter out-of-home. The aim of this study was to investigate the attitudes of parent-carers in Alberta, Canada, toward out-of-home placement. The primary objective was to identify factors that may explain why some families, and not others, seriously consider out-of-home placement as an option for their child. This knowledge is vital for developing social care policies and programs that support parents and promote sustainable family care for children with disabilities. A stratified (by child age group) random sample of 538 families raising children with disabilities in Alberta, Canada took part. Participants completed the family life survey, which incorporated measures of child and family characteristics, sustainability of the daily routine, and out-of-home placement propensity. Results suggest that family placement propensity is inversely associated with the sustainability of the daily routine. Sustainability of the daily routine is, in turn, more strongly associated with social-ecological resources, including parental control-over-work and the adequacy of child care options, than with child characteristics, including activity limitations and behaviour problems. If families have the social-ecological resources they need to create and maintain a daily routine that is congruent with their values and goals, and with the needs, interests and competences of family members, then they are unlikely to give out-of-home placement any serious consideration.     

Families of persons with Down syndrome: new perspectives, findings, and research and service needs

To understand the families of offspring with Down syndrome, this article begins by describing the change in orientation--from "negative" to "stress-and-coping" perspectives--in studies of families of offspring with disabilities. In reviewing the existing studies, mothers, fathers, and siblings cope slightly better than family members of persons with other disabilities, a phenomenon called the "Down syndrome advantage." Beyond this more general finding, however, much remains unknown. Most studies examine only parental or sibling levels of stress or coping, leaving unknown the marital, occupational, health, educational, and other "real-world" outcomes for these family members. Increased research attention is needed to understand the life-span needs of families of persons with Down syndrome and the impact of cultural and sociocultural diversity on family outcomes. It will also be important to relate family outcomes to differences in the offspring's behaviors, development, relationships, medical conditions, psychopathology, and the presence (and effectiveness) of needed support services. Although these families have received some research attention over the past several decades, we now need to make family research in Down syndrome more concrete, more life-span, and more tied to characteristics of the individual with the syndrome and the family's surrounding support system.     

Church service roles and anticipated support among older Mexican Americans

The purpose of this study is to see how feelings of anticipated support arise in church. Anticipated support refers to the belief that coreligionists will provide assistance in the future if the need arises. This model contains the following hypothesis: (1) people who affiliate with conservative Protestant congregations will be more deeply committed to their faith, (2) individuals who are more committed to their faith will attend church more frequently, (3) people who go to church more often will be more likely to occupy church service roles, (4) those who occupy church service roles will feel more highly valued by their coreligionists, (5) individuals who feel they are valued highly by fellow church members will receive more emotional support from them, and (6) people who receive more emotional support at church will have stronger anticipated support beliefs. Data from a nationwide survey of older Mexican Americans support these hypotheses.     

“Why My Child?”: Parental Attributions for Children's Special Needs1

Although research exists on how attributions for traumatic life events are related to adjustment, little has focused on parents’ attributions for their children's special needs. Parents were interviewed twice over 1 year about their attributions for their children's special needs. We used parents’ open-ended responses during the initial interview to construct a ratings survey for the second interview. Parents of children with Down's syndrome made attributions to genetic fluke, age, and fate/God's will; parents of autistic children made attributions to heredity and environment; parents of developmentally delayed children made attributions to medical problems and stress during pregnancy. Self-blame attributions and attributions to the environment were related to worse adjustment, whereas attributions to fate/God's will were related to better adjustment. Implications for family interventions and physicians are discussed.     

The Ministry of the Church to People with Disability

Jesus’ ministry on earth is meant to be a model of the ministry of the church. It affected all types of people regardless of their socio‐economic and religious status. Jesus regarded all to be made in the image of God and did everything possible to minister to everyone. He particularly went out of his way to reach those whom society marginalized, neglected, rejected, and deemed worthless. This study aims at generally critically evaluating the ministry of the church today. It specifically attempts to examine the ministry of the church to people with disabilities. While the study largely depends on existing literature, it also refers to observation of the status of people with disabilities in the church today, which on its own may not provide adequate information for solid, conclusive findings. In the church’s ministry to people with disabilities, dealing with barriers to their inclusion is core. The article not only examines the challenges faced by the church in addressing issues of inclusion, but identifies specific areas of improvement in the status of people with disabilities.     

Psychologists' role in family-centered approach to practice, training, and research with young children

Family-centered, community-based, coordinated care for children with special needs is presented as the best practice model for providing services to children and families. Psychologists must learn to play an active role in this frame-work that both integrates psychology with other health and education disciplines and uses the broad spectrum of psychological knowledge about families, development, community organization, and intervention strategies. Key principles of family-centered child psychology affect practice research and training. The psychologist becomes part of a team created to support families as the primary care-givers of their children. Training programs must reorganize the types of experiences both in the classroom and the field to train new psychologists within this model. As mandates for family-centered care affect policies at the state and federal levels, research will remain a critical factor in understanding the effects of these policy shifts on child and family functioning and the delivery of services.     

Paul’s “Thorn in the Flesh” and Christian Mission to People with Disabilities

This article attempts a holistic theological analysis of what the mission of the church to people living with disabilities (PLWDs) should be. The article pays attention to Paul’s reference to a “thorn in his flesh” using the theory of complex embodiment. It counters the emphasis in some churches on healing as the proper response to the needs of PLWDs. Rather, the article seek to present a theology that gives PLWDs greater knowledge of and control over their bodies to live meaningful lives even with their disabilities. The article argues that Paul lived with a disability and that although he sought to have it healed, he later accepted it and lived fully and meaningfully with it. It concludes that, from the example of Paul, the church’s mission to PLWDs should not necessarily be the healing of disabilities but their empowerment and integration in our societies.