Quality of Life in Pediatric Cancer Patients: The Relationships Among Parents’ Characteristics,Children’s Characteristics,and Informant Concordance

As advancements in the treatment of childhood cancer have resulted in increasing survival rates, the psychosocial functioning of child patients has become an increasingly important issue. In this pilot study, we investigate the relationships among parents’ characteristics, children’s characteristics, and the quality of life experienced by children who are diagnosed with cancer. Forty-seven mothers, sixteen fathers, and nineteen children completed measures about their own psychological functioning as well as measures about the children’s quality of life. Mothers’ ratings of their children’s quality of life were correlated positively with the ratings provided by both fathers and the children themselves. In addition, significant relationships were found between mothers’ depression and parenting stress and children’s quality of life as well as between mothers’ and fathers’ anxiety and children’s quality of life. Finally, using regression analyses, mothers’, fathers’, and children’s ratings of their own characteristics predicted significantly their ratings of the children’s quality of life. The importance of examining the psychological characteristics of family members when assessing the quality of life of children who are diagnosed with cancer is discussed.     

Caregiving Burden and Parent–Child Quality of Life Outcomes in Neurodevelopmental Conditions: The Mediating Role of Behavioral Disengagement

The aim of this study was to analyze the direct and indirect effects, via parents’ behavioral disengagement coping, of caregiving burden on the quality of life (QL) of parents and their children with neurodevelopmental conditions. Self-completion questionnaires on the target variables were administered to a sample of 156 parents who had a child with a neurodevelopmental condition, namely epilepsy (n = 65) and cerebral palsy (n = 91). Structural equation modeling was used to test a mediation model and ascertain direct and indirect effects among study variables. Significant direct effects of caregiving burden on parents’ and their children’s QL were found. Additionally, caregiving burden had a significant indirect effect on parents’ QL, via behavioral disengagement, but not on their children’s QL. Finally, this model was found to be invariant across conditions and patients’ age groups. Caregiving burden may be elected as a strategic intervention target to improve parent–child QL outcomes in neuropediatric settings. Parents should be encouraged to avoid or reduce behavioral disengagement coping in relation to their caregiving stress, and alternatively adopt active coping strategies that may positively affect their children’s QL and impede or attenuate the deleterious effects of caregiving burden on their own QL.     

Parents’ Experiences of Their Child’s Disclosure of Child Sexual Abuse

A child’s disclosure of sexual victimization is a difficult experience for parents and has been associated with traumatization, disbelief, denial, self-blame, and clinical difficulties. To date, most studies on parents’ responses have been quantitative assessments of the psychological impact of disclosure on parents. A paucity of research has qualitatively explored mothers’ experiences of their child’s disclosure of child sexual abuse (CSA) and fathers’ experiences have been even further neglected. The current study seeks to characterize parents’ experiences of their child’s disclosure of CSA and to uncover the process-oriented nature of parental responses. This qualitative study, using a grounded theory approach to analysis, involved interviews with 10 mothers and four fathers whose children (3–18 years) had experienced sexual abuse. Three themes emerged from the analysis. The first theme—making sense of the abuse in retrospect—captured the process through which parents sought to make sense of their child’s disclosure, focusing on why their child had not disclosed the abuse to them earlier, and how they had noticed something was wrong but misattributed their child’s behavior to other factors. The second theme—negotiating parental identity as protector—reflected how parents’ identity as a protector was challenged, their perception of their world had been forever altered, and they now experienced themselves as hypervigilant and overprotective. The final theme—navigating the services—pertained to parents’ struggle in navigating child protection and police services, and feelings of being isolated and alone. These findings highlight the need for empathy and parental support following child disclosure of sexual victimization.     

Gendered Views of Ability in Parents’ Perceptions of Their Children’s Academic Competencies

The present study was designed to examine whether parents’ views of their child’s academic competencies are structured by gendered conceptions of abilities. In a longitudinal research design, a group of parents (N = 391) were asked to assess their third-grade child’s competence in mathematics and Finnish and to respond to a set of attitude statements; when the child reached the fifth grade, the parents were asked to reassess his/her competencies. It was found that the influence of the gender stereotype was partly domain-specific: The stereotype concerning Finnish organized the parental competence assessments as early as the child’s third grade and also predicted the assessments made about the child over the next two grades, whereas the stereotype concerning mathematics only predicted the assessments made as late as the fifth grade. In the Finnish competence assessments, the gender stereotype moderated the overall gender-of-the-child effect, whereas in the mathematics competence assessments, the gender-of-the-child effect was evinced only by the parent group that endorsed the gender stereotype. Culture-bound gender expectations and attitudes toward the expectations are significant, then, for parents’ assessments of their child’s competencies as early as the elementary school years.     

Links Between Parents’ and Children’s Levels of Gratitude, Life Satisfaction, and Hope

Decades of research confirm familial links in mental illness, but little is known about the relationships between parents’ and children’s levels of positive emotions. The current study used a past, present, and future framework of positive emotions to explore parent and child levels of gratitude, life satisfaction, and hope. Correlations between self-reported levels of gratitude, life satisfaction, and hope were analyzed in a sample of 148 fourth and fifth grade students and their biological parents (137 mothers, 109 fathers). Findings include statistically significant relationships between (1) mother and child gratitude (but not father and child gratitude) and (2) child life satisfaction and both mothers’ and fathers’ life satisfaction. No significant relationships emerged between parent hope and child hope, although higher parent life satisfaction was associated with higher child hope. Research is needed to investigate the causes of the links identified in the current study.     

Parents’ Perceptions of Functioning in Families Having a Child with a Genetic Condition

In a study of families having a child with a genetic condition, patterns of family functioning were identified through cluster analysis of families with two spouses. Patterns were based on both parents’ assessments of family satisfaction and hardiness, as measured respectively by the Family APGAR and Family Hardiness Index. The validity and clinical significance of the clusters were supported by demonstrating that cluster membership distinguished between parental reports of their own quality of life and their child’s functional status, as measured by the Quality of Life Index and the Functional Status II, respectively. The clusters were non-categorical in the sense that they did not depend on the type of genetic condition. These findings point to the importance of addressing family functioning as part of genetic counseling.     

Parents’ Grief in the Context of Adult Child Mental Illness: A Qualitative Review

Research indicates that parents and other family members often grieve their child or relative’s mental illness. This grief appears resultant from a profound sense of loss, which has been described as complicated and nonfinite (e.g., Atkinson in Am J Psychiatry 151(8):1137–1139, 1994; Davis and Schultz in Soc Sci Med 46(3):369–379, 1998; Jones in Br J Soc Work 34:961–979, 2004; MacGregor in Soc Work 39(2):160–166, 1994; Osborne and Coyle in Couns Psychol Q 15(4):307–323, 2002; Ozgul in Aust N Z J Fam Ther 25(4):183–187, 2004; Tuck et al. in Arch Psychiatric Nurs 11(3):118–125, 1997). This paper reviews existent research in this emerging field, with a focus on parents’ grief experience in relation to their adult child’s mental disorder. Studies that explore parents’ and family members’ grief, using both qualitative and quantitative methodologies, are considered. Research evidence for the association between parents’ and family members’ grief and other outcomes are discussed. Findings concerning the prediction of grief in parents and family members who have a child or relative with a mental disorder will be reviewed. Finally, this paper considers methodological and theoretical issues associated with existent research and presents options for further study.     

Parents’ Beliefs about Children’s Emotions and Parents’ Emotion-Related Conversations with Their Children

The goals of the current study were to describe parents’ emotion socialization patterns and to assess relations between parents’ emotion-related beliefs and socialization behaviors during conversations with their children. Participants were 125 parents and their 9- and 10-year-old children from three ethnic groups in the southeastern United States. Parents reported beliefs about children’s emotions. Parents and children were videotaped playing a board game to evoke emotion-related conversations, which were then coded for parents’ labeling, teaching, and encouragement of emotion. Parents used less labeling and teaching for positive than negative emotions, and greater encouragement for positive than negative emotions. Parents with stronger beliefs about the value of positive emotions engaged in less labeling of positive emotions, less teaching of all emotions, and less encouragement of negative emotions. Parents with stronger beliefs about the value of negative emotions engaged in more encouragement of negative emotions. Parents with stronger beliefs that all emotions are dangerous engaged in less labeling of negative emotions. The results of this study have potential clinical implications in helping clients to understand the foundational structures of their behaviors and how both beliefs and behaviors are distinct, yet interrelated constructs.     

Parents’ View of Child Care Quality: Values, Evaluations, and Satisfaction

Parents’ view of the quality of early childhood education and care services has mostly been addressed from the perspective of customer satisfaction. This study investigated parents’ view within a more comprehensive framework in which parents’ values of child care, their evaluations of their child’s experience at the service and overall satisfaction with the service were considered. In particular, the study explored how values and evaluations are related and how they affect overall satisfaction. A questionnaire including a total of 96 items was filled in by 2,936 parents of children attending infant-toddler day-care centres in Rome, Italy. Parents were asked to express their values regarding child care quality and evaluate specific aspects of their experience. Parents’ perspectives of both their child’s and their own experience of childcare services were addressed separately. Two principal component analyses were performed in order to identify latent dimensions underlying parents’ values about child care quality and their evaluations of the service attended by their child. The relationships between the different dimensions of value, evaluation, and overall satisfaction with their child’s and their own experience were explained through two path models, in which values predict evaluations and these, in turn, predict overall satisfaction. Results showed that parents have a multi-faceted view of child care quality and confirm the relevance of taking into account their point of view in an analysis of the quality of early childhood education services.     

Anomalies in Measuring Health-Related Quality of Life: Using the PedsQL 4.0™ with Children Who Have Peanut Allergy and Their Parents

The purpose of this study was to examine the relationship between health-related quality of life, using the PedsQL? 4.0, and peanut allergy in children. As part of a larger study, 51 parents completed a demographics questionnaire, a Pediatric Quality of Life Inventory? (PedsQL 4.0), and a series of questions regarding their child’s peanut allergy. 48 child participants, ages 6 to 12, completed a PedsQL? 4.0, and some specific questions regarding their peanut allergy. Parents of children with peanut allergy reported higher scores for their children for physical functioning (t (50)?=?3.6, p?<?.001) and lower scores for emotional functioning (t (50)?=??4.88, p?<?.001) compared to published norms for healthy controls. Further analysis, as explored in this paper, showed differences in functioning based on school placement. Children who were homeschooled reported lower physical functioning scores. These reports appear anomalous given that peanut allergy should not affect physical strength or stamina and may be tapping into another reason that these children are homeschooled. The anomalous results of the current study, in the area of physical functioning for children with peanut allergy, support the current trend of more disease-specific health-related quality of life measures for children.     

Parent’s Perception of Their First Encounter with Child and Adolescent Psychiatry

Parents who came with their child to Child and Adolescent Psychiatry (CAP) for the first time were interviewed 1–2 weeks afterwards in the presence of the child and the therapists. In a grounded theory analysis they revealed uncertainty about their role in the first meeting as well as of future planning. What had been important to them were aspects like communication, sharing perspectives, and the reformulation of problems.     

Adolescents’ Attachment to Parents and Peers: Links to Young Adulthood Friendship Quality

Few studies have been carried out on emerging adults’ friendships and on their developmental roots. Research suggests that in adolescence, both attachment to parents and attachment to peers play a role in future socio-emotional development. The aim of the present study was to compare attachment in these two types of relationships in adolescence according to gender and test whether they respectively predicted the perception of best friendship in early adulthood. A sample of 83 participants (49 girls) was seen in early adolescence (M?=?13.66 years, SD?=?0.64) and 7 years later (mean age?=?21.15 years, SD?=?0.83). At T1, participants completed the Inventory of Parent and Peer Attachment, which measures attachment using three subscales (communication, alienation and trust) and one global security score. At T2, they completed the McGill Friendship Questionnaire. Results show that in adolescence, boys report higher security with parents compared to peers (mainly due to better communication), unlike girls who obtain higher scores with peers. Longitudinal findings reveal that alienation in the relation with parents is what best predicts friendship quality in early adulthood. These findings underline the specific internal working models at play in socio-emotional development and the way gender differences evolve from adolescence to early adulthood.

     

Patients’ and Parents’ Perceptions of Appearance in Scoliosis Treated with a Brace: A Cross-Sectional Analysis

The perspective of trunk deformity is a matter of special concern for adolescent idiopathic scoliosis (AIS) patients. No research group has ever reported interviewing patients and their parents regarding differences in perception of body appearance in the course of Cheneau brace treatment. We aimed to investigate the level of agreement in the field of concerns and perceptions of spinal appearance in relation to brace- and scoliosis-related data between parents and female patients with AIS, treated with a Cheneau brace, by means of the Spinal Appearance Questionnaire-pl (SAQ-pl). In this cross-sectional study forty-one pairs of parents and female patients with AIS were asked to separately complete the Polish versions of the Spinal Appearance Questionnaire-pl patient form (SAQ-pl patient form) and the SAQ-pl parent form. Age of patients was 13.60 years SD 1.60 (range 10–17). Patients scored 2.70 (SD 0.60) and parents scored 2.70 SD 0.60 in the total score of the SAQ-pl. The study groups do not differ significantly in regards to the SAQ-pl results. The percentage of consistent answers on SAQ-pl items ranges from 34.10 % (item 20) to 78 % (item 8). Height, age and brace-wearing time per day, were significantly related to the differences in the patient-parent General perception of body shape (r _s  = ?0.51, r _s  = ?0.34, r _s  = 0.36, respectively). Parents and female patients with AIS have similar concerns and perceptions of spinal appearance. The discrepancies in General perception of spinal appearance between parents and AIS females decrease with age of patient. Parental emotional support may contribute to minimizing the risk factors of psychological impairment, especially in late adolescents with AIS.     

Intergenerational Transfers: Associations with Adult Children’s Emotional Support of Their Parents

This study investigates how different factors in regard to intergenerational relationships are associated with emotional support given by adults to their parents. The analysis focuses on adult children and their parents in a representative German sample. Data were obtained from the second wave of the German Family Panel (pairfam) consisting of 2064 women and 1841 men. Results show that transfer of emotional support by the adult children was especially associated not only with received emotional support from parents, but also with affection, conflicts, and expectations concerning parents. A moderator analysis focuses on gender and showed differences for the association between given support by adults and conflicts between mothers and fathers. For the offspring, no gender effects were found.     

Latinx Parents’ Perception of Discrimination and Ethnic/Racial Socialization Predict Their Elementary School Children’s Perceptions of Discrimination

Journal of Child and Family Studies - The present study examined whether Latinx parents’ perceptions of personal discrimination and perception of biases against Latinx people in the United...     

Women’s Regrets About Their Lives: Cohort Differences in Correlates and Contents

In this paper we test hypotheses about the importance of life stage in moderating the relationship between acknowledging regrets and concurrent well-being, as well as how changes in women’s social roles during the post-war period affected the content of the regrets they develop. We examine the relationship between women’s life regrets and life satisfaction, and the content of life regrets, using data from 313 predominately white, college-educated women who graduated from the same university in the United States in 1951/2 (age 66), 1972 (age 46) and 1992 (age 26). Analyses revealed that the more types of regrets middle-aged and older women reported (the 1972 and 1951/2 cohorts respectively), the lower their life satisfaction; this pattern did not hold for the youngest women. In terms of the specific content of regrets, exact logistic regressions showed that women in the oldest cohort reported more regrets about prioritizing family over career compared with the later cohorts. Overall, few women reported regrets about prioritizing their careers over families; however, women in the middle cohort were most likely to report these regrets. Results are discussed in terms of both developmental and socio-historical frameworks.     

Character Strengths and Social Support as Protective Factors between Grandparents’ Caregiving and Health-Related Quality of Life

Journal of Child and Family Studies - The number of grandparents providing supplementary care for their grandchildren has increased in the past decades. When analyzing the relationship between the...     

Primary and Secondary Caregiver Reports of Quality of Life in Pediatric Asthma: Are they Comparable?

This study aimed to compare primary and secondary caregiver QOL within families of children with asthma and determine the potential importance of including secondary caregiver QOL in clinical and research settings. Participants included 118 families of children with asthma that had primary and secondary caregivers. Families completed measures in a single research session. Caregivers reported on QOL, psychological functioning, and family burden; children completed a measure of QOL. Child lung function was determined from objective spirometry. Adherence to prescribed controller medication was measured for 6 weeks following the research visit. Primary caregiver QOL was significantly lower than secondary caregiver QOL (Mean overall QOL of 5.85 versus 6.17, p < .05). Better medication adherence was associated with higher primary caregiver QOL (ρ = .22, p = .02); secondary caregiver QOL, not primary caregiver QOL, was positively associated with child QOL (ρ = .20, p = .03). Families with discrepant QOL scores between caregivers (difference in scores of at least .50) were characterized by more family burden and primary caregiver psychological symptoms. Differences in QOL scores between caregivers may be a reflection of primary caregivers’ greater investment in daily asthma management. In families reporting low burden and few psychological difficulties in the primary caregiver, QOL assessments from either caregiver may may be informative and representative of how parents are adapting to child asthma. In families experiencing high levels of burden or more primary caregiver psychological difficulties, QOL reports from secondary caregivers may not be as clinically meaningful.