Publication visibility of sensitive public health data: When scientists bury their results

What happens when the scientific tradition of openness clashes with potential societal risks? The work of American toxic-exposure epidemiologists can attract media coverage and lead the public to change health practices, initiate lawsuits, or take other steps a study’s authors might consider unwarranted. This paper, reporting data from 61 semi-structured interviews with U.S. toxic-exposure epidemiologists, examines whether such possibilities shaped epidemiologists’ selection of journals for potentially sensitive papers. Respondents manifested strong support for the norm of scientific openness, but a significant minority had or would/might, given the right circumstances, publish sensitive data in less visible journals, so as to prevent unwanted media or public attention. Often, even those advocating such limited “burial” upheld openness, claiming that less visible publication allowed them to avoid totally withholding the data from publication. However, 15% of the sample had or would, for the most sensitive types of data, withhold publication altogether. Rather than respondents explaining their actions in terms of an expected split between “pure science” and “social advocacy” models, even those publishing in the more visible journals often described their actions in terms of their “responsibility”. Several practical limitations (particularly involving broader access to scientific literature via the Internet) of the strategy of burial are discussed, and some recommendations are offered for scientists, the media, and the public.     

Analyzing the Publish-or-Perish Paradigm with Game Theory: The Prisoner’s Dilemma and a Possible Escape

The publish-or-perish paradigm is a prevailing facet of science. We apply game theory to show that, under rather weak assumptions, this publication scenario takes the form of a prisoner’s dilemma, which constitutes a substantial obstacle to beneficial delayed publication of more complete results. One way of avoiding this obstacle while allowing researchers to establish priority of discoveries would be an updated “pli cacheté”, a sealed envelope concept from the 1700s. We describe institutional rules that could additionally favour high-quality work and publications and provide examples of such policies that are already in place. Our analysis should be extended to other publication scenarios and the role of other stakeholders such as scientific journals or sponsors.     

Framing the Lewinsky Affair: Third-Person Judgments by Scandal Frame

Recent studies have documented a “third-person effect” whereby people are found to judge others as more influenced than themselves by the mass media. Meanwhile, contemporary research on issue framing has demonstrated the powerful role of mass media in shaping people's political judgments. But are the perceptual judgments that define third-person effects sensitive to how the media frame an issue? Two studies investigated this question in the context of the Lewinsky-Clinton scandal, one in late August 1998 and the other during spring 1999. Several hundred undergraduates in each study were randomly assigned to one of two media frames. In the 1998 study, the political scandal was depicted as a matter of sexual indiscretion by the president or as legal wrongdoing; in the 1999 study, the recently concluded impeachment process was depicted as the consequence of partisanship or of Clinton's actions. The participants’ judgments of media influence on themselves and on the public were then recorded. The results show that third-person effects were sensitive to issue framing, but change occurred primarily in participants’ judgments about their own vulnerability to media influence.     

The Legacy of the Hwang Case: Research Misconduct in Biosciences

This paper focuses on the infamous case of Hwang Woo Suk, the South-Korean national hero and once celebrated pioneer of stem cell research. After briefly discussing the evolution of his publication and research scandal in Science, I will attempt to outline the main reactions that emerged within scientific and bioethical discourses on the problem of research misconduct in contemporary biosciences. What were the ethical lapses in his research? What kind of research misconduct has been identified? How this kind of misconduct affects scientific integrity? How to avoid it? Focusing on these questions, the paper interprets the Hwang’s case as a case study that might shed light on the worst aspects of highstakes global science. This case presents a group of problems that might endanger scientific integrity and public trust. Regulatory oversight, ethical requirements and institutional safeguards are often viewed by the scientific community as merely decelerating scientific progress and causing delays in the application of treatments. The Hwang’s case represents how unimpeded progress works in contemporary science. Thus, the case might shed light on the often neglected benefits of “the social control of science”.     

When Do Men and Women Make Attributions to Gender Discrimination? The Role of Discrimination Source

Two experiments examined the effects of discrimination source on men’s and women’s willingness to make attributions to a sexist experimenter or sexist rules. Students (161 male; 171 females) at a US university were exposed to a discriminatory person, discriminatory rule, or no discrimination. “Experiment 1” demonstrated individuals were less likely to make attributions to a sexist person than an unfair rule, and women were especially reluctant to indicate a person was responsible for their discrimination even when a person was the source. “Experiment 2” showed participants were less likely to indicate an experimenter, and even a rule, was sexist when there was a cost to the perpetrator (i.e., advisor would be notified of the perpetrator’s actions) for making such attributions.     

Why Nudges Coerce: Experimental Evidence on the Architecture of Regulation

Critics frequently argue that nudges are more covert, less transparent, and more difficult to monitor than traditional regulatory tools. Edward Glaeser, for example, argues that “[p]ublic monitoring of soft paternalism is much more difficult than public monitoring of hard paternalism”. As one of the leading proponents of soft paternalism, Cass Sunstein, acknowledges, while “[m]andates and commands are highly visible”, soft paternalism, “and some nudges in particular[,] may be invisible”. In response to this challenge, proponents of nudging argue that invisibility for any given individual in a particular choice environment is compatible with “careful public scrutiny” of the nudge. This paper offers the first of its kind experimental evidence that tests whether nudges are, in fact, compatible with “careful public scrutiny”. Using three sets of experiments, the paper argues that, even when entirely visible, nudges attract less scrutiny than their “hard law” counterparts.     

Honeymoon,medical treatment or big business? An analysis of the meanings of the term “reproductive tourism” in German and Israeli public media discourses

Background/Introduction

Infertile couples that travel to another country for reproductive treatment do not refer to themselves as “reproductive tourists”. They might even be offended by this term. “Tourism” is a metaphor with hidden connotations. We will analyze these connotations in public media discourses on “reproductive tourism” in Israel and Germany. We chose to focus on these two countries since legal, ethical and religious restrictions give couples a similar motivation to travel for reproductive care, while the cultural backgrounds and conceptions of reproduction are different.

Results

Our research shows that the use of the metaphor “reproductive treatment” and its hidden messages depends on the writers’ intention and the target population. Although the phenomenon of patients travelling for reproductive treatment can fit into the definitions of tourism, the term emphasizes aspects that do not reflect patients’ reality. In both the German and the Israeli public media debate the term “reproductive tourism” is either used to criticize the economic aspects of the phenomenon or to attract patients as potential clients.

Conclusions

Ethicists should be cautious when borrowing metaphors like “reproductive tourism” from the public debate. Our findings support Penning’s suggestion to use instead an unloaded term like cross-border reproductive care to describe the phenomenon in a more neutral way and to make it explicit whenever criticism is necessary.

     

A RULES APPROACH TO THE STUDY OF TELEVISION AND SOCIETY

A rule-based theoretical framework is presented as an alternative to scientific laws or purely interpretive approaches for examination of the activities undertaken by television audiences. Communication rules, which explains human actions in terms of its pragmatic and normative rather than causal features, is productively applied to the study of audience activity at two levels—the family and the larger society. Habitual, parametric, and tactical rule types are defined and described in relation to basic mass communication processes. Television-related interpersonal activities in the home are shown to be rule-governed while audience members and sources of media programming at the societal level are revealed to engage in rule-based interaction that perpetuates selected ideologies and their accompanying lifestyle models. Communication rules is proposed as a viable approach for resolving fundamental problems in mass communication theory building, including the “effects” vs. “uses” argument regarding direction of influence, and conceptual and methodological differences that have often polarized media critics and empiricists.     

How Can We Love Our Enemies When We Kill Our Friends? Shifting the Theological Debate Over Violence

Violence is often thought of in terms of intentional, discrete actions, and in the debate between so-called “neo-Anabaptists” and “neo-Augustinians” this has often been the focus, especially around actions like policing and war. However, this idea of violence is insufficient and, intentionally or not, obfuscates forms of violence like the “slow violence” of destructive economic arrangements that harm not only enemies but friends as well. Through an investigation of the apparel industry this article addresses the too-narrow understandings of violence that implicate theologians themselves in the “systemic” and “slow” violence inflicted through exploitative economic arrangements and systematic environmental degradation. The violence of the contemporary political economy compounds exponentially when one considers not only the human costs of global industry but also the toll it takes on the planet, which in turn affects the world’s poorest people no matter their geographic location or type of work. How might various sides of the more traditional argument find common ground for doing justice around these forms of violence in which they already daily participate, rather than giving the majority of attention to actions taking place periodically (or speculating about violence that may not even happen)? In short, violence is not just the realm of militaries, it is the reality of our global political economy, and this must be addressed by theologians of all types and traditions.     

Exploring the Public Understanding of Basic Genetic Concepts

It is predicted that the rapid acquisition of new genetic knowledge and related applications during the next decade will have significant implications for virtually all members of society. Currently, most people get exposed to information about genes and genetics only through stories publicized in the media. We sought to understand how individuals in the general population used and understood the concepts of “genetics” and “genes.” During in-depth one-on-one telephone interviews with adults in the United States, we asked questions exploring their basic understanding of these terms, as well as their belief as to the location of genes in the human body. A wide range of responses was received. Despite conversational familiarity with genetic terminology, many noted frustration or were hesitant when trying to answer these questions. In addition, some responses reflected a lack of understanding about basic genetic science that may have significant implications for broader public education measures in genetic literacy, genetic counseling, public health practices, and even routine health care.     

“The Group Knobe Effect”: evidence that people intuitively attribute agency and responsibility to groups

In the current paper, we present and discuss a series of experiments in which we investigated people’s willingness to ascribe intentions, as well as blame and praise, to groups. The experiments draw upon the so-called “Knobe Effect”. Knobe [2003. “Intentional action and side effects in ordinary language.” Analysis 63: 190–194] found that the positiveness or negativeness of side-effects of actions influences people’s assessment of whether those side-effects were brought about intentionally, and also that people are more willing to assign blame for negative side-effects of actions than they are to assign praise for positive side-effect of actions. Building upon this research, we found evidence that the positiveness or negativeness of side-effects of group actions influences people’s willingness to attribute intentions to groups (Experiment 1a), and that people are more willing to assign blame to groups for negative side-effects of actions than they are to assign praise to groups for positive side-effects of actions (Experiment 1b). We also found evidence (Experiments 2a, 2b, 3 and 4) that the “Group Knobe Effect” persists even when intentions and blame/praise are attributed to groups non-distributively, indicating that people tend not to think of group intentions and group blame/praise in distributive terms. We conclude that the folk are collectivist about group intentions, and also about the blameworthiness and praiseworthiness of groups.     

Perceived lack of training moderates relationship between healthcare providers’ personality and sense of efficacy in trauma-informed care

ABSTRACT

Background and Objectives: Medical patients often have trauma histories that are not routinely assessed, which can adversely affect health outcomes. Despite growing awareness of this issue, there is limited understanding of factors that influence provider competency in trauma-informed care (TIC). The study examined healthcare providers’ personality traits in relation to their sense of TIC efficacy, taking into account perceived barriers to TIC and professional quality of life.

Study Design: The study used cross-sectional survey methods to examine our central hypothesis that provider personality traits and perceived barriers to TIC would be associated with TIC-efficacy, and to explore interactions among study variables.

Methods: Survey data were collected from 172 healthcare providers examining TIC knowledge, TIC-efficacy, perceived barriers to TIC, personality traits, and professional quality of life.

Results: TIC-efficacy was positively correlated with “intellectence/openness” and inversely correlated with “neuroticism” and perceived lack of training as a barrier. “Intellectence/openness” interacted with perceived lack of training to predict TIC-efficacy, suggesting that providers with lower “intellectence/openness” report greater TIC-efficacy when lack of training is not perceived as a barrier.

Conclusions: Provider personality traits and perceived barriers to TIC appear related to providers’ TIC-efficacy. Implications for overcoming barriers to TIC through training and implementation are discussed.     

“For We ascend in holiness and do not descend.” Jewish ultra-Orthodox women’s agency through their discourse about media

ABSTRACT

“Permission” and “prohibition” are key terms in Jewish religious discourse. For generations they have dominated as part of the primarily male, rabbinic discourse in talmudic literature. This paper will show that men no longer hold the monopoly on these terms because contemporary Israeli ultra-Orthodox women include them in their daily conversation in multiple and varied ways. The study examines exposure patterns and perceptions of 42 ultra-Orthodox women toward sectarian and general mass media. In responses to detailed questionnaires, the words “prohibited,” “forbidden” and “a boundary” constantly recur along with a variety of negatives, such as “not permitted,” “not allowed” and “not kosher”.

This paper argues that in describing their uses of and perceptions toward mass media, ultra-Orthodox women have adopted terminology borrowed from what was previously a primarily male-dominated conversation. Some might argue that these women are simply working within the bounds of ultra-Orthodox law which they accept as universally applicable; or perhaps that these women are simply reflecting words used by their husbands or rabbis. However, this study argues that their adoption of these terms indicates they are exercising their own agency. With a combined religious and secular education, and work that is primarily outside the house, many of them are the principal breadwinners in their homes. I suggest that this discourse is a part of their highly intelligent navigation of their simultaneous roles as both gatekeepers and change agents.     

Coping with Sexual Identity Stigma in the U.S. Military: An Examination of Identity Management Practices Prior to and After the Repeal of “Don’t Ask,Don’t Tell”

This study assesses the identity management strategies employed by gays, lesbians, and bisexuals in the U.S. military prior to and after the repeal of “Don’t Ask, Don’t Tell.” In-depth interviews were conducted with gay, lesbian, and bisexual service members and veterans. Data were analyzed using constant comparative analysis. Findings revealed that these service members made thoughtful and deliberate decisions about whether or not, and to whom, they would reveal their sexual identities. Identity concealment was practiced most often, even after the repeal, which was found to incite feelings of self-reproach, isolation, and stress. However, several new identity management strategies emerged after the repeal of “Don’t Ask, Don’t Tell” (i.e., strategies of openness) that stimulated positive self-feelings. By engaging in some level of openness, participants in this study were able to overcome some of the adverse effects of their minority stress.     

Toward a Multi-Layered Chiasme-Focused Topology: A Reading of Merleau-Ponty’s Later Writings

This paper traces the genealogy of reversibility, chiasma, and chiasme in Merleau-Ponty’s writings and offers a new characterisation of his later ontology in terms of a multi-layered chiasme-focused topology informed by subtle differences and interconnections among these notions. We need to grasp the significance of reversibility not only in terms of constant recoil and impossible overlap but also of its situatedness in the crisscrossing between Dasein and things, and between the inside/invisible and the outside/visible. “Chiasma” was initially introduced as a reference to the intersection of perspectives. Merleau-Ponty deploys it to articulate macroscopic insights concerning the nature of philosophy and the interweaving connections between self, other, and the world. In comparison, “reversibility” is primarily used to describe the microscopic bond between touching-touched and perceiving-perceived. I argue that, as Merleau-Ponty’s ultimate choice of wording, “chiasme” incorporated the significance of both “reversibility” and “chiasma.” A chiasme-focused topology that retains the significance of all three of the terms would serve to better convey the import of Merleau-Ponty’s later ontology, which aims to dissolve and to re-configure our conceptions about being, body, self, and the other from within and from below.     

Damasio’s body-map-based view,Panksepp’s affect-centric view,and the evolutionary advantages of consciousness

Although dualism has the advantage of being intuitively plausible, it is not compatible with a 21^st-century (scientific) world view. Jaak Panksepp and Antonio Damasio are contemporary writers who reject dualism, and whose views take the form of “biological naturalism”. I first discuss how their views compare in five specific respects; and then I look more closely at how the different emphases of the views affect their ability to account for the evolutionary advantages of consciousness, specifically. Both authors agree that “consciousness” provides creatures with a survival advantage in terms of their ability to produce novel and/or flexible responses, their ability to plan ahead, and their motivation to promote their own survival – but the exact means by which they think these advantages are conferred, in each of these respects, differ. One might say that, whereas Damasio thinks the main evolutionary advantages of “consciousness” (the “higher reaches” of which are unique to humans) have to do with enabling creatures to work out what to do to promote their well-being, Panksepp thinks the main advantage of “consciousness” is that being “conscious” of affective feelings urgently motivates creatures to take action when their well-being is threatened. Considering that “working out what do” is only possible for a small selection of cognitively sophisticated organisms, I argue that Panksepp’s account is more plausible than Damasio’s account.     

Going Public: Good Scientific Conduct

The paper addresses issues of scientific conduct regarding relations between science and the media, relations between scientists and journalists, and attitudes towards the public at large. In the large and increasing body of literature on scientific conduct and misconduct, these issues seem underexposed as ethical challenges. Consequently, individual scientists here tend to be left alone with problems and dilemmas, with no guidance for good conduct. Ideas are presented about how to make up for this omission. Using a practical, ethical approach, the paper attempts to identify ways scientists might deal with ethical public relations issues, guided by a norm or maxim of openness. Drawing on and rethinking the CUDOS codification of the scientific ethos, as it was worked out by Robert K. Merton in 1942, we propose that this, which is echoed in current codifications of norms for good scientific conduct, contains a tacit maxim of openness which may naturally be extended to cover the public relations of science. Discussing openness as access, accountability, transparency and receptiveness, the argumentation concentrates on the possible prevention of misconduct with respect to, on the one hand, sins of omission??withholding important information from the public??and, on the other hand, abuses of the authority of science in order to gain publicity. Statements from interviews with scientists are used to illustrate how scientists might view the relevance of the issues raised.