‚Mirroring‘ the Ethics of Biobanking: What Analysis of Consent Documents Can Tell Us?

Biobanks have been recognized as a key research infrastructure and how to approach ethical questions has been a topic of discussion for at least a decade by now. This article explores the characteristics of donors’ participation in European biobanks as reflected in the consent documents of a selection of different biobanks from various European countries. The primary aim of this study is to understand how donors are informed about their participation in biobanking. Also the paper discusses what the most important thematic issues of information are to be given to the biobank participants and how this information should be presented in the consent documents. For these purposes, we analyse consent documents from 14 biobanks in 11 countries for six ethically relevant issues: (1) model of consent, (2) scope of future research, (3) access to medical data, (4) feedback to the participants, (5) consent withdrawal, and (6) role of research ethics committee. In order to compare different trends of informing donors of human biological material and medical data, we interpret the six analysed issues in the context of respect to donor’s autonomy paradigm. Although the results of the paper reflect the heterogeneity of biobank consent document policies applied in different European countries, we uncovered some trends and suggested several examples of good practices to balance the interests of the donors with those of the researchers and future patients.     

Evolutionary Ethics: What Can We Learn From from the Past?

In this paper I look at the question of the derivation of ethics from evolutionary biology, and I do so by considering both historical attempts to make such a derivation and contemporary work.     

Speaking of One’s Life: What Can We Learn from Transcultural Studies?

The work by Demuth et al. (Integrative Psychological and Bahavioral Science 45:1–20, 2011) is very important in the scenario of transcultural research, as it goes beyond the specific contexts of India and Germany. They successfully explored the dialogic relation between remembered autobiography, the self and the culture from a trans-generational development perspective, managing to identify common and unique processes of each culture. I, however, using a dynamical systems approach, present a supplementary way to the one chosen in the study, with the goal of analyzing how these new perspectives might contribute to the understanding of this phenomenon. The dynamical systems is a perspective sensitive to non-linearity of phenomena and interested in understanding how processes emerge, as it may be useful to analyze the family as a dynamical system under constant interaction with other systems, which makes the emergence of the self, possible. Besides, it would enable the identification of trajectories that individuals build over time, the moments of change and variability, as well as identifying different types of patterns in the process of construction of the self.     

What Can We Learn from Many Labs Replications?

Several hundred research groups attempted replications of published effects in so-called Many Labs studies involving thousands of research participants. Given this enormous investment, it seems timely to assess what has been learned and what can be learned from this type of project. My evaluation addresses four questions: First, do these replication studies inform us about the replicability of social psychological research? Second, can replications detect fraud? Third, does the failure to replicate a finding indicate that the original result was wrong? Finally, do these replications help to support or disprove any social psychological theories? Although evidence of replication failures resulted in important methodological changes, the 2015 Open Science Collaboration findings sufficed to make the point. To assess the state of social psychology, we have to evaluate theories rather than randomly selected research findings.     

Linguistic Privilege and Justice: What Can We Learn from STEM?

Abstract

The linguistic privilege of native speakers in scientific communication, both oral and written, has been widely reported to influence researchers’ publications and careers in and beyond academia. I examine social structure and communication in the Science, Technology, Engineering and Mathematics (STEM) fields through the example of big science and attempt to answer the question of why language injustice has a less significant effect on non-native scientists and engineers than on philosophy scholars. I do so by scrutinizing the role of signs and nonlinguistic boundary objects in STEM practice and written communication. I also argue that although high-energy physics is relatively linguistically inclusive, it is marked by linguistic privilege of certain groups that bears a structural character which is not common in STEM and is predominant mainly in megascience. I finally suggest that insofar as rhetoric in STEM is generally modest, its practices can serve as an example for analytic philosophy, which also aims at minimizing rhetoric.     

What can the Philosophy of Mathematics Learn from the History of Mathematics?

This article canvasses five senses in which one might introduce an historical element into the philosophy of mathematics: 1. The temporal dimension of logic; 2. Explanatory Appeal to Context rather than to General Principles; 3. Heraclitean Flux; 4. All history is the History of Thought; and 5. History is Non-Judgmental. It concludes by adapting Bernard Williams’ distinction between ‘history of philosophy’ and ‘history of ideas’ to argue that the philosophy of mathematics is unavoidably historical, but need not and must not merge with historiography.

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What Can We Learn from the Study of Mexican‐Origin Families in the United States?

Mexican‐origin families are a large and rapidly increasing subgroup of the U.S. population, but they remain underrepresented in family scholarship. This paper introduces a special section of four papers on Mexican‐origin families designed to contribute to the advancement of research on how cultural, family, and gender socialization processes unfold across key developmental periods and life transitions in this cultural context. Two longitudinal studies of Mexican‐origin families provided the data for these four papers: (a) The Juntos Project, an 8‐year longitudinal study of mothers, fathers, and adolescent sibling pairs in 246 Mexican‐origin families; and (b) The Supporting MAMI Project, a study following 204 adolescent mothers and their mother figures from the third trimester of pregnancy through their young children's 5th birthdays. In this introductory paper, we highlight four themes, including (a) differential acculturation and reciprocal socialization, (b) interdependence in families, (c) the intersection of culture and gender, and (d) methodological issues. We end with suggestions for future research.     

What Kinds of People Should We Create?

The advent of genetic engineering will give people the power to design the members of the succeeding generation, and thus will render practical the issue how such a power ought to be exercised. Here I address that issue in a general way. I point out that the aim of making future people better adapted to the modern social environment is implicitly circular, since the natures of the people themselves will determine the nature of the social environment. I claimthat the human property the enhancement of which would do most to enrich experience is intelligence; accordingly increased intelligence should be a primary aim of genetic designers. The tendency to feel pain should be attenuated, as positive motivation is substituted for negative (to some extent). People should be designed so as to be motivated more by reason than by any non-rational drives (though rational motivation may still involve pleasure andpain). The sex drive, having outlived its usefulness, will probably be replaced by some other source of pleasure. As a side effect of these changes in people, the arts and social sociences will be transformed beyond recognition. [1]     

Should We Take Up the Slack?: Reflections on Non-ideal Theory in Ethics

Philosophia - This article asks whether (and how) our moral duties are created by others’ non-compliance and whether we should fulfill them or not. For example, do we need to donate more of...     

What Can We Learn From Longitudinal Studies of Adult Development?

This article distinguishes between normal and pathological aging, provides an interdisciplinary context, and then considers a sample case of cognitive aging. Developmental influences on cognition include the physiological infrastructure, genetic predispositions, and environmental influences. Different types of longitudinal studies are distinguished, and contrasting findings of cross-sectional and longitudinal studies are examined in the sample case of the Seattle Longitudinal Study. Also considered is the longitudinal context for intervention studies and the role of longitudinal family studies in assessing rate of aging and generational differences in rates of aging. Finally, attention is given to the role of longitudinal studies in the early detection of risk for dementia in advanced age.     

Aesthetic Testimony: What Can We Learn from Others about Beauty and Art?1

The thesis that aesthetic testimony cannot provide aesthetic justification or knowledge is widely accepted–even by realists about aesthetic properties and values. This Kantian position is mistaken. Some testimony about beauty and artistic value can provide a degree of aesthetic justification and, perhaps, even knowledge. That is, there are cases in which one can be justified in making an aesthetic judgment purely on the basis of someone else's testimony. But widespread aesthetic unreliability creates a problem for much aesthetic testimony. Hence, most testimony about art does not have much epistemic value. The situation is somewhat different with respect to aesthetic testimony about nature, proofs, and theories. And yet he realizes clearly that other people's approval in no way provides him with a valid proof by which to judge beauty; even though others may perhaps see and observe for him, and even though what many have seen the same way may serve him, who believes he saw it differently, as a sufficient basis of proof for a theoretical and hence logical judgment, yet the fact that others have liked something can never serve him as a basis for an aesthetic judgment. Immanuel Kant, Critique of Judgment     

What Can We Learn From Longitudinal Studies of Adult Development?

This article distinguishes between normal and pathological aging, provides an interdisciplinary context, and then considers a sample case of cognitive aging. Developmental influences on cognition include the physiological infrastructure, genetic predispositions, and environmental influences. Different types of longitudinal studies are distinguished, and contrasting findings of cross-sectional and longitudinal are examined in the sample case of the Seattle Longitudinal Study. Also considered is the longitudinal context for intervention studies and the role of longitudinal family studies in assessing rate of aging and generational differences in rates of aging. Finally, attention is given to the role of longitudinal studies in the early detection of risk for dementia in advanced age.     

How Shall We Read the History of Ethics?

This response suggests that in writing the history of ethics, it is important to take seriously what the principals wrote and believed, distinguishing it carefully from our own responses to their writings, or from subsequent uses to which their writings may have been put. For example, when reading Thomas Aquinas and Francisco de Vitoria on just war against non‐Christian peoples, forcible conversion and conquest are clearly condemned. Whatever the attitudes of their contemporaries, not to mention later thinkers up to the present, there is no foundation in Aquinas and Vitoria for holy war or “exceptionalism,” American or otherwise.