共查询到20条相似文献,搜索用时 15 毫秒
1.
One hundred and twenty seven full members of the National Society of Genetic Counselors participated in this study exploring
current spiritual assessment practices of genetic counselors and reactions to a spiritual assessment tool. While 60% of genetic
counselors reported they had performed a spiritual assessment within the past year, fewer than 8.7% of these counselors assessed
spirituality in more than half of their sessions. Counselors reporting high perceived relevance of spiritual assessment performed
an assessment more frequently than those reporting a low perceived relevance. Barriers to spiritual assessment included lack
of time, insufficient skills, and uncertainty regarding the role of spiritual assessment within genetic counseling. Almost
two-thirds of counselors expressed that having a spiritual assessment tool would increase their ability to elicit relevant
information. These data suggest a need for increased training regarding the methods for and relevance of spiritual assessment
in genetic counseling. Recommendations for future directions of research are explored. 相似文献
2.
3.
4.
ELFIE HINTERKOPF 《Counseling and values》1994,38(3):165-175
Although the spiritual dimension is an integral part of psychotherapy, most mental health professionals lack the necessary training for working with spiritual experiences therapeutically. The experiential focusing method developed by Eugene Gendlin (eg., 1969, 1981) offers a key tool for counselors to help clients integrate their spiritual experiences in counseling. In this article, the author offers a definition of the spiritual experience, outlines the focusing method, presents examples of its application, and discusses the implications of using focusing to help clients integrate spirituality in counseling. 相似文献
5.
6.
7.
Richard S. Lafans Patricia McCarthy Veach Bonnie S. LeRoy 《Journal of genetic counseling》2003,12(3):219-242
Limited research exists concerning male partners' participation in prenatal genetic counseling (R. Kenen, A. C. M. Smith, C. Watkins, & C. Zuber-Pitore, J. Genet Corns 9, 33–45, 2000). To further understand paternal participation, we interviewed 17 experienced prenatal genetic counselors to assess their perspectives on this issue. We investigated 6 research questions: 1) How do genetic counselors define paternal involvement, 2) how do they determine and address problematic involvement, 3) what factors influence involvement, 4) was paternal involvement addressed in training, 5) how might training be improved, and 6) how do participant strategies for addressing involvement compare to those of marriage/family therapists? Qualitative analysis revealed that 1) participants regard paternal involvement asimportant; 2) most address problematic involvement with strategies similar to those of marital/family therapists; 3) influential factors include male partner's characteristics, the couple's relationship (including culturalpractices), and pregnancy factors; and 4) participants received little or notraining on paternal involvement and recommended didactic and experientialactivities. Implications and research recommendations are presented. 相似文献
8.
Langfelder-Schwind E Kloza E Sugarman E Pettersen B Brown T Jensen K Marcus S Redman J;National Society of Genetic Counselors Subcommittee on Cystic Fibrosis Carrier Testing 《Journal of genetic counseling》2005,14(1):1-15
For over a decade, prenatal screening for cystic fibrosis (CF) has been considered a model for the integration of genetic testing into routine medical practice. Data from pilot studies and public policy discourse have led to recommendations by some professional organizations that CF screening should be offered or made available to pregnant women and their partners, and to couples planning a pregnancy. It is crucial that genetic counselors gain thorough understanding of the complexities of CF and the implications of positive test results, so that they may serve as a reliable, educated referral base and resource for health care providers and their patients. While not all pregnant women will be referred for genetic counseling prior to CF carrier testing, genetic counselors often will be asked to counsel clients after they have a positive test result, or who are found to be at increased risk. Genetic counselors can play an important role in providing accurate and current information as well as support for patients informed decisions. These recommendations were created by a multicenter working group of genetic counselors with expertise in CF and are based on personal clinical experience, review of pertinent English language medical articles, and reports of expert committees. The recommendations should not be construed as dictating an exclusive course of management, nor does the use of such recommendations guarantee a particular outcome. These recommendations do not displace a health care providers professional judgment based on the clinical circumstances of a particular client. 相似文献
9.
10.
11.
Patient cultural backgrounds strongly influence decision-making processes and outcomes in genetic counseling. The present
study investigated influences of culture and acculturation on prenatal decision making processes of native Palestinians and
Palestinian Americans. Seventeen native Palestinians and 14 first-generation, Palestinian Americans were interviewed and asked
to imagine themselves as patients in hypothetical premarital and prenatal situations. Five major issues were investigated:
1) Influence of family history of an inherited condition on pre-marital decisions; 2) Perceptions of non-directive genetic
counselor statements regarding options; 3) Role of gender in prenatal decisions; 4) Gender differences in emotional expression;
and 5) Role of family and society in prenatal decisions. Several similarities and differences in native Palestinian and Palestinian
American responses were obtained. Similarities appear to be due to common cultural roots, while differences may be due to
acculturation. Practice and research recommendations are provided.
An erratum to this article can be found at 相似文献
12.
Ginger J. Tsai Carrie A. Cameron Jennifer L. Czerwinski Hector Mendez-Figueroa Susan K. Peterson Sarah Jane Noblin 《Journal of genetic counseling》2017,26(5):1041-1058
Recognizing the heterogeneity of the Asian population with regards to acculturation, education, health awareness, and cultural values is vital for tailoring culturally sensitive and appropriate care. Prior studies show that cultural values influence perceptions of genetics within Asian populations. The reputation of the family unit factors into decisions such as pregnancy termination and disclosure of family medical history, and the nondirective model of American genetic counseling may conflict with the historical Asian model of paternalistic health care. Previous studies also provide conflicting evidence regarding correlations between education, acculturation, age, and awareness and perceptions of genetic testing. The aims of this study were to describe attitudes towards prenatal genetics among Southeast and East Asian women living in the United States for varying amounts of time and to explore sociocultural factors influencing those attitudes. Twenty-three Asian women who were members of Asian cultural organizations in the United States were interviewed via telephone about their attitudes towards prenatal genetic counseling, prenatal genetic testing, and termination of pregnancy. Responses were transcribed and coded for common themes using a thematic analysis approach. Four major themes emerged. In general, participants: (1) had diverse expectations for genetic counselors; (2) tended to weigh risks and benefits with regards to genetic testing decisions; (3) had mixed views on termination for lethal and non-lethal genetic conditions; and (4) identified cultural factors which influenced testing and termination such as lack of available resources, societal shame and stigma, and family pressure. These findings may allow prenatal genetic counselors to gain a richer, more nuanced understanding of their Asian patients and to offer culturally tailored prenatal genetic counseling. 相似文献
13.
Gretchen M. Jacobson Patricia McCarthy Veach Bonnie S. LeRoy 《Journal of genetic counseling》2001,10(1):3-24
Thirty six members of the Prenatal Diagnosis Special Interest Group of the National Society of Genetic Counselors were interviewed about their use of informed consent documents for the genetic counseling component of their prenatal genetic counseling sessions and their perceptions of the utility and feasibility of such documents. Major findings include (1) None of the genetic counselors currently used a consent document describing the genetic counseling component of the session itself; (2) Only three participants stated that they had ever used an informed consent document for this component of the session; (3) They disagreed about the importance and usefulness of such a document; (4) There was variability in their reported likelihood of using a document if one were available; (5) There was a fair amount of agreement about the types of information to include on an informed consent document for genetic counseling; over half of the sample endorsed 8 of 10 topics; and (6) Participants identified 10 obstacles to using such a document. Recommendations for genetic counseling practice, policy, and research are given. 相似文献
14.
The purpose of this study is to explore a theological perspective toward genetic counseling. A survey was sent to 207 ministers within the Evangelical Lutheran Church of America (ELCA), to determine their perspectives toward four different scenarios in a prenatal genetic counseling setting. The four different scenarios included situations involving Huntington disease, Down syndrome, trisomy 18, and anencephaly. Nearly all ELCA Lutheran pastors perceived genetic counseling as beneficial and useful and wanted to be involved in the decision-making process for whether or not to terminate the pregnancy. Their views toward termination of pregnancy varied depending on the severity of the genetic abnormality. Severity in this study was based upon life compatibility. As the severity of the genetic abnormality increased, the percentage of Lutheran pastors who viewed termination as an option increased from 23% (Down syndrome) to 62% (anencephaly). A better understanding of how spiritual leaders view genetic counseling would provide an insight into how genetics and religious beliefs together play a significant role in shaping the decisions of those faced with abnormal pregnancies. 相似文献
15.
Emily Suskin Laura Hercher Kathleen Erskine Aaron Komal Bajaj 《Journal of genetic counseling》2016,25(5):1032-1043
Since its introduction four years ago, noninvasive prenatal screening for fetal aneuploidy (NIPS) has been widely adopted as a screening tool for women at a high risk for fetal aneuploidy. As use expands into the general population, questions arise concerning the integration of NIPS into preexisting screening paradigms. This study aims to examine the use of NIPS in current practice among prenatal counselors, predominantly in the United States, in order to inform strategies for the optimal use of both new and existing screening techniques. We electronically surveyed 208 members of the National Society of Genetic Counselors to ascertain how NIPS is currently being used. Genetic counselors were also queried as to the advantages and disadvantages of offering NIPS to all patients regardless of a priori risk. Results indicate substantial variation in practice regarding which patients are offered NIPS and how counselors have incorporated this technology into existing screening routines. The majority of participants report offering NIPS in conjunction with another method of screening for fetal aneuploidy, indicating that NIPS is being used as an addition rather than as a replacement. These screening methods primarily include nuchal translucency (NT) (45.1 %, n = 78) and first trimester serum screening, with or without an NT (19.7 %, n = 34). Furthermore, the majority report that they would be concerned about losing the clinical value of an NT in a complete transition to NIPS (85.4 %, n = 164). Counselors are evenly split on the merits of expanding the use of NIPS to the general population (con: 55.3 %, n = 105; pro: 44.7 %, n = 85). The lack of consensus suggests that updated practice guidelines might benefit counselors. In addition, respondents emphasized the need to better educate patients and providers about the risks, benefits, and limitations of the test. 相似文献
16.
CHRISTOPHER A. SINK RICHARD CLEVELAND JULIAN STERN 《Journal of Research on Christian Education》2013,22(1):35-63
This article makes the case that Christian school counselors should be more directly engaged in student spiritual formation. To accomplish this aim, the historical context for the discussion is first explored, followed by a review of contemporary medical and psychological research associating a positive spirituality with healthy functioning across a variety of developmental domains. The argument is then situated within developmental theory and systems thinking as well as the Christian theological—philosophical writings of John Macmurray. Recommendations for improving Christian school counseling practice as they relate to student spiritual formation are included. 相似文献
17.
Women are commonly offered testing in pregnancy to determine the health of their baby. An important component of informed
decision-making about prenatal testing is provision of relevant, accurate, meaningful information concerning the conditions
that are being tested for—many of which, such as Down syndrome, are associated with a varying degree of physical and intellectual
disability. A range of health professionals, including genetic counselors, may provide information and support throughout
the testing process, but available data suggest that discussion of disability is frequently absent or limited. To investigate
genetic counselors’ perceptions of this situation and identify potential barriers to discussion we facilitated interactive
workshops at the 2007 National Society of Genetic Counselors Annual Education Conference (NSGC) and the 2008 European Meeting
on Psychosocial Aspects of Genetics (EMPAG). Working groups identified relevant psychosocial issues and impediments to discussion
(NSGC) or used a two-part scenario to promote discussion (EMPAG) and reported findings in notes and a closing plenary discussion.
Inductive content analysis revealed that participants considered informed decision making to be a major reason for presenting
information about disabilities in prenatal genetic counseling and endorsed the value of including information about daily
life with Down syndrome and other disabilities. However, they identified three broad types of impediments to such discussion:
counseling issues concerning the most appropriate manner to discuss disability under the complex circumstances of prenatal
genetic counseling, less than optimal training and experience in addressing these issues, and perceived limitations in the
participants’ knowledge and understanding of life with disability. Our analysis of the responses from the workshop participants
and additional thoughts on these issues have led us to develop recommendations for further research, training and clinical
practice. 相似文献
18.
Hodgson and Weil (Journal of Genetic Counseling,
2011) reports on two interactive workshops in which genetic counselors identified a broad set of counseling issues that may be
impediments to promoting an adequate discussion of disability in prenatal genetic counseling. The present commentary discusses
two factors that we infer underlie these counseling issues. First, countertransference concerning disability, which is normal
and expected, may influence genetic counselors’ decisions about raising and exploring the complex topic of disability in prenatal
genetic counseling. Second, the limited involvement of the profession of genetic counseling in the complex social and ethical
issues of disability provide little guidance to the individual genetic counselor with respect to discussing disability in
prenatal diagnosis counseling. We suggest both factors must be acknowledged and addressed in order to adequately implement
the recommendations presented in Hodgson and Weil (Journal of Genetic Counseling,
2011) as well as other efforts to increase discussion of disability in prenatal diagnosis counseling in the service of informed
decision making. 相似文献
19.
Given the widely expanding professional and empirical support for integrating spirituality into counseling, the authors present a practical discussion for raising counselors' general awareness and skill in the critical area of spiritual assessment. A discussion of rationale, measurement, and clinical practice is provided along with case examples. D. R. Hodge's (2001) spiritual life map is highlighted as an assessment tool. The authors also discuss the influence of counselor–client values and beliefs in therapy and the need to incorporate developmental and cultural influences in spiritual assessment. 相似文献
20.
THOMAS J. RUSSO 《Counseling and values》1984,29(1):42-48
The hesitancy on the part of counselors and psychotherapists to approach the spiritual concerns of clients has been widely discussed in the literature. Among the various reasons given for the reluctance of counselors and other therapists regarding spiritual matters is that such issues have not been a part of traditional training models. A counseling and psychotherapy training model is proposed here that is both continuous and developmental in nature. The model contains discrete yet continuous levels of learning; Learning Level III is concerned with emergent spiritual issues. The holistic epistemology of Gregory Bateson is used to derive guiding theoretical principles for the training model. 相似文献