Vulnerability to loneliness among fathers of children with autism spectrum disorder: The role of interpersonal and familial resources

Fathers of children with autism spectrum disorder (ASD) might be at increased risk of becoming lonely. In the current study, we explored the differences in loneliness between fathers of children with and without ASD and identified interpersonal and familial resources (social support, family cohesion, and family adaptability) that might be related to levels of loneliness. Using a cross-sectional design, 348 fathers (of 114 children with ASD and 234 without) completed a series of questionnaires. Fathers of children with ASD reported higher levels of loneliness and lower levels of social support and family cohesion. A moderated mediation model indicated that the interaction between social support and family cohesion mediated the association between ASD group (i.e., ASD vs. non-ASD) and fathers' loneliness. Findings suggest the importance of interpersonal and familial resources (e.g., perceived social support and family cohesion) for family members at risk of loneliness.     

Fathers' views of the effects on their families of children with Down syndrome

This study examined fathers' views about the effects of children with Down syndrome on themselves and their families. Taped interviews were obtained from 90 fathers of children aged from 7 to 14 years. Qualitative analysis of the interview data revealed 28 categories of comments made by fathers. The most frequent comment, made by 46% of fathers, was about the cheerful personality of their child with Down syndrome. About 42% of fathers talked about the initial trauma they experienced following the diagnosis; 43% of them bemoaned the restrictions imposed on the family, and 30% commented that the child had minimal effects on family life. The greatest concern expressed by fathers was the long-term provision for their children. More fathers commented on the positive effects on their marriage than on negative effects. The results of this study provide a somewhat different view of fathers' experiences to that found in the existing literature.     

Parents of children with Down Syndrome: Do resilience and social support matter to their experience of carer stress?

The study investigated personal resilience influences on the relationship between social support and parenting-stress among parents of children with Down syndrome (DS) in a Nigerian sample. One hundred and ninety three parent-carers of children with DS participated in the study (mothers?=?59%; mean age?=?46.47, age range?=?21 to 67, SD?=?10.42). The parent-carers responded to the measures of parenting-stress, perceived social support, and resilience. The result of the moderated multiple linear regression showed that parents with high social support and resilience have lower level of parenting-stress. Higher personal resilience significantly moderated the relationship between social support and parenting-stress so that parent-carers with low level of social support and higher personal resilience had lower level of parenting-stress. Resilience and social support oriented therapy appears to have efficacy for helping parent-carers of children with DS to manage their stress arising from raising such children.     

The development of responses to people and a toy in infants with down syndrome

The behavior of eight infants with Down syndrome was observed biweekly from 8 to 24 weeks and monthly up to 48 weeks. At each visit the infants were presented with their mother, a female stranger, and a rattle puppet that were alternately active and passive. Each condition lasted 60 s. The results showed that by 4 months of age the infants began to differentiate, in the proportion of time they looked, smiled, and vocalized, between people and the toy. They did not discriminate, however, between mother and female stranger and between the active and passive adults until the second half of the first year. In particular, whereas normal infants usually show distress toward passive or “still-face” adults, the infants in this study continued to vocalize, at times even with smiling faces. The implications of these atypical aspects of the social development of infants with Down syndrome for their subsequent nonverbal communicative development are discussed.     

The parental support networks of mothers and fathers: A multidimensional approach

This paper argues for a multidimensional approach to the study of the social support networks of mothers and fathers of young children. Network structure (e. g. size, density, member characteristics), support content (e. g. emotional, informational, economic and child care) and support quality (e. g. helpfulness, satisfaction with support, conflict associated with support and willingness to access support in future need) are distinguished. The goals of the study were: (1) to empirically test the multidimensionality of parental support networks; (2) to assess the relations among these three dimensions for mothers and for fathers; and (3) to examine how couples' support networks are interrelated. Individual at-home interviews were conducted with 100 parents to derive measures of parental support structure, content and quality. Fathers (N = 31) were compared to their spouses (N = 31) and to a comparison group of demographically similar married mothers (N = 38). For all three groups, the same three predicted dimensions emerged in the factor structure of their networks; in general, few gender differences were found. However, relations among structure, content and quality differed by gender, with network structure predicting support content and quality only for mothers. The network structure of couples was positively correlated, and overlap in network members was related to own and spouse's network helpfulness, satisfaction and child care support.     

The effect of manual movements on stuttering in individuals with down syndrome

PurposeStuttering may disrupt the speech of individuals with Down syndrome (DS), but standard stuttering therapies may be less adapted to these clients’ needs. This study examined if their strength in gesture use can lead to the development of a new stuttering therapy.MethodEighteen individuals with DS who stutter participated in an experimental task. During this task, they produced sentences in three different conditions: once without the ability to use gestures, once while moving the mouth of a hand puppet synchronous with their speech, and once while making beat gestures along their speech. Stuttering frequency was measured and compared between conditions while controlling for the effect of articulation rate.ResultsThe experimental hand puppet and beat condition did not affect the stuttering frequency, but the covariate articulation rate did. An exploratory posthoc analysis showed that the articulation rate decreased during the experimental hand puppet and beat condition. Manual movements in the present task might only induce fluency through articulation rate reduction. However, analyses at individual level show significant interindividual variability.ConclusionIndividual analyses show that effect on stuttering frequency cannot be attributed entirely to articulation rate reduction and that beat gestures might still play a role. However, at this point, there is not enough direct evidence to implement beat gestures in current stuttering therapy.     

老年人配偶支持的特点及其与夫妻依恋、婚姻满意度的关系

分别从实际和期望支持、情感和物质支持两个维度考察了老年人配偶支持的特点,并且采用结构方程模型来检验配偶支持、夫妻依恋和婚姻满意度三者之间的关系.289位有配偶的城市社区老年人参加了本次问卷调查,年龄范围为60～88岁.重要他人问卷、老年人夫妻依恋问卷及Locke-Wallace婚姻调适测定问卷分别用来测量老年人的配偶支持、夫妻依恋和婚姻满意度情况.结果表明:(1)性别、年龄及受教育水平不同的老年人在配偶支持上存在显著差异;(2)老年人的配偶支持与夫妻依恋和婚姻满意度三者两两相关,配偶支持以夫妻依恋为中介影响婚姻满意度.     

Infertility and Adjustment in Women: The Effects of Attachment Style and Social Support

The moderating effects of two psychological resources—attachment style and perceived social support—on adjustment were studied in 109 infertile women, examining the effects of duration of infertility and of primary (the woman has no child of her own) versus secondary (the woman already has a child of her own) infertility. Subjects were administered questionnaires measuring marital adjustment, psychological distress, and well-being. A model viewing attachment style and social support as moderators between stress psychological well-being was explored. The results showed that among the objective characteristics, only duration of infertility had any impact on the psychological measures. Furthermore, the psychological resources were highly associated with the adjustment scores in general. A hierarchical regression analysis showed that attachment style and social support both were related to marital quality and to psychological well-being and that these two resources function as stress moderators. It was concluded that attachment style and social support are important resources for individuals in times of stress, as exemplified in the infertility situation.     

Conflict Buffers and Marital Satisfaction: On the Effects of Different Forms of Social Support

This paper deals with the deterioration in the subjective quality of life of women as a result of marital conflict. Whereas primary and secondary prevention are generally targeted at maintaining or increasing the current level of marital happiness this paper focuses on the possibilities for buffering the negative impact of conflict on women’s quality of life. In particular, this paper is interested in the conflict buffering effects of various forms of social support such as home visiting by professional social workers or informal contacts with peers. In order to assess and compare the effectiveness of these forms of tertiary prevention, data from interviews with young mothers in the city of Zurich (Switzerland) will be reanalyzed. The data confirm the phenomenon of stress buffering from social support and reveal variation with regard to the effectiveness of different stress buffers. Female peer support e.g. seems to be at least as successful as home visiting by professional nurses and social workers.     

People and objects affect the quality of vocalizations in infants with down syndrome

The vocalizations of eight infants with Down syndrome were recorded longitudinally in relation to different social and non-social contexts. The infants were observed biweekly from 8 to 24 weeks and monthly up to 40 weeks. At each visit the infants were presented with their mother, a female stranger, and a rattle puppet, each alternately active and passive. Each condition lasted 60 sec. The results showed that by 4 months of age, the infants produced different types of vocal sounds in relation to environmental contexts. They produced significantly more melodic (speechlike) sounds, vocalic (non-speechlike) sounds, and emotional (crying, laughing and fussing) sounds when facing people than objects. By 6 months of age, these utterances began to be distinguished between mother and female stranger and active and passive adults. However, within the communicative context the overall amount of vocalic (non-speechlike) sounds produced was larger than the amount of melodic (speechlike) sounds. It is suggested that this low output of melodic sounds in the overall vocal production of these infants may adversely affect the development of more appropriate vocal behaviour.     

Marital satisfaction of Chinese under stress: Moderating effects of personal control and social support

Stressful life events, personal control, and social support were examined relative to marital satisfaction among 1749 participants in seven Chinese cities. Stressful life events were categorized as life crises and life transitions. Life crises, rather than transitions, negatively predicted the marital satisfaction of Chinese. The moderating effects of personal control were found among women, but not men, and occurred only in the relationship between marital satisfaction and life crises, not life transitions. Social support buffers the negative effects of life crises on marital satisfaction. The results extend family stress‐coping theory in specifying two coping resources for Chinese marriages under stress.     

The relationship of marital satisfaction and social support to depressive symptomatology

The relationship between depressive symptomatology, as measured by the short-form Beck Depression Inventory (BDI), and two social support variables was assessed. Based on a sample of 131 married men and 136 married women, the results indicated that the quality of the marital relationship and the frequency of positive social contact with adults other than the spouse were significantly related to depressive symptomatology for both men and women. These two variables accounted for 16% of the variance in BDI scores. Further, analyses of risk for high BDI scores showed that individuals having the least support were 13 times more likely to be in the high-BDI group than individuals with the highest levels of social support. These results suggest that social isolation and marital discord are related to high BDI scores among married adults.     

Dynamic balance assessment during gait in children with Down and Prader-Willi syndromes using inertial sensors

Down (DS) and Prader-Willi (PWS) syndromes are chromosomal disorders both characterized by obesity, ligament laxity, and hypotonia, the latter associated with gait instability. Although these shared features may justify a common rehabilitation approach, evidence exists that adults with DS and PWS adopt different postural and walking strategies. The development of an instrumented protocol able to describe these strategies and quantify patients’ gait stability in the current clinical routine would be of great benefit for health professionals, allowing them to design personalized rehabilitation programs. This is particularly true for children with DS and PWS, where motor development is dramatically constrained by severe hypotonia and muscle weakness. The aim of this study was, thus, to propose an instrumented protocol, integrated with the clinical routine and based on the use of wearable inertial sensors, to assess gait stability in DS and PWS children.Fifteen children with DS, 11 children with PWS, and 12 typically developing children (CG) were involved in the study. Participants performed a 10-meter walking test while wearing four inertial sensors located at pelvis, sternum, and both distal tibiae levels. Spatiotemporal parameters (walking speed, stride frequency, and stride length) and a set of indices related to gait symmetry and upper-body stability (Root Mean Square, Attenuation Coefficient and Improved Harmonic Ratio) were estimated from pelvis and sternum accelerations. The Gross Motor Functional Measures (GMFM-88) and Intelligence Quotient (IQ Wechsler) were also assessed for each patient. A correlation analysis among the GMFM-88 and IQ scales and the estimated parameters was then performed.Children with DS and PWS exhibit reduced gait symmetry and higher accelerations at pelvis level than CG. While these accelerations are attenuated by about 40% at sternum level in CG and DS, PWS children display significant smaller attenuations, thus reporting reduced gait stability, most likely due to their typical “Trendelenburg gait”. Significant correlations were found between the estimated parameters and the GMFM-88 scale when considering the whole PWS and DS group and the PWS group alone.These results promote the adoption of wearable technology in clinical routines to monitor gait patterns in children with DS and PWS: the proposed protocol allows to markedly characterize patient-specific motor limitations even when clinical assessment scores provide similar results in terms of pathology severity. This protocol could be adopted to support health professionals in designing personalized treatments that, in turn, could help improving patients’ quality of life in terms of both physical and social perspectives.     

Receptive vocabulary and semantic knowledge in children with SLI and children with Down syndrome

Receptive vocabulary and associated semantic knowledge were compared within and between groups of children with specific language impairment (SLI), children with Down syndrome (DS), and typically developing children. To overcome the potential confounding effects of speech or language difficulties on verbal tests of semantic knowledge, a novel task was devised based on picture-based semantic association tests used to assess adult patients with semantic dementia. Receptive vocabulary, measured by word-picture matching, of children with SLI was weak relative to chronological age and to nonverbal mental age but their semantic knowledge, probed across the same lexical items, did not differ significantly from that of vocabulary-matched typically developing children. By contrast, although receptive vocabulary of children with DS was a relative strength compared to nonverbal cognitive abilities (p < .0001), DS was associated with a significant deficit in semantic knowledge (p < .0001) indicative of dissociation between word-picture matching vocabulary and depth of semantic knowledge. Overall, these data challenge the integrity of semantic-conceptual development in DS and imply that contemporary theories of semantic cognition should also seek to incorporate evidence from atypical conceptual development.     

Maternal sensitivity and overt aggression in young children with Down syndrome

Children with genetic syndromes offer a unique opportunity to combine genetic and environmental approaches to the study of aggression. Children with genetic syndromes associated with developmental delay are at increased risk for behavior problems, but little is known about risk and resilience factors. In this study, we examined maternal sensitivity of mothers of children with Down syndrome using home observations when their children were 2, 3, and 5 years old, and relations with maternal reports and observations of overt aggression at school at age 5. Maternal sensitivity at ages 2 and 3 years did not significantly predict child aggression at age 5, but low maternal sensitivity at age 5 was significantly related to overt aggression at both home and school. By replicating and extending earlier work, this study informs developmental theory and identifies an important maternal variable related to aggression in children with Down syndrome.     

Effects of Three Sources of Social Support on Survivors' Posttraumatic Stress After the Wenchuan Earthquake

This study investigated the relationship between social support and symptoms of posttraumatic stress among adolescents who were exposed to the 2008 Wenchuan earthquake in China. The results showed that three sources of social support—support from family, support from friends, and support from significant others—have significant main effects on posttraumatic stress disorder (PTSD). Buffering effects of social support were not supported. Gender and residency were also associated with PTSD, with female adolescents and adolescents from rural areas demonstrating higher levels of PTSD than their male counterparts and adolescents from urban and township areas.     

Parents attributions of blame for the birth of a child with down syndrome: A pilot study

Abstract

Attributing blame to others for negative events is consistently associated with poor adjustment. We report here a study assessing whether failure to detect a problem on screening, in this case Down syndrome not detected during prenatal screening, is associated with blame and poor adjustment in parents. Twenty eight mothers and 23 fathers of children with Down syndrome were interviewed. Although no parent blamed themselves or their partner, eight fathers and five mothers blamed health professionals or the health care system in general for not preventing the birth of their children with Down syndrome prenatally. None of the parents who declined testing were blaming. Six of the 11 parents who received a negative test and seven of the 34 not offered a test blamed others. Both mothers and fathers who blamed others reported significantly higher parenting stress. Mothers, but not fathers, who blamed others were significantly more angry and depressed than those who did not.     

Parental stress, coping styles, and social supports in chinese families with hepatitis-b-carrying children

The purpose of the study was to examine the hypothesis that parents’ psychological well-being can be affected by a child’s illness and their social situations. In this study, we discuss the roles of coping, social support and situational context related to stress. These factors cannot only affect stress levels but can also influence whether the individual adopts a certain type of coping style for stressful events. Parental stress, coping styles and social support were compared between groups of parents of Hepatitis B virus (HBV) carrier children or healthy children. Results showed that parents of affected children were significantly more stressed and psychologically at risk, and tended to mobilize personal resources and to rely more on themselves to solve stressful life events. They also sought help from social resources more often than did parents of healthy children. Parents of healthy children had a higher number of close friends and relatives available to them. Ninety Chinese parents and their HBV or healthy children participated in this study. These families were all living in the city of Guangzhou, China.     

Parental stress, coping styles, and social supports in chinese families with hepatitis-b-carrying children

The purpose of the study was to examine the hypothesis that parents’ psychological well-being can be affected by a child’s illness and their social situations. In this study, we discuss the roles of coping, social support and situational context related to stress. These factors cannot only affect stress levels but can also influence whether the individual adopts a certain type of coping style for stressful events. Parental stress, coping styles and social support were compared between groups of parents of Hepatitis B virus (HBV) carrier children or healthy children. Results showed that parents of affected children were significantly more stressed and psychologically at risk, and tended to mobilize personal resources and to rely more on themselves to solve stressful life events. They also sought help from social resources more often than did parents of healthy children. Parents of healthy children had a higher number of close friends and relatives available to them. Ninety Chinese parents and their HBV or healthy children participated in this study. These families were all living in the city of Guangzhou, China.