Correlates of loneliness as perceived by the terminally Ill

The pain of loneliness is a universal social phenomenon, which is intensified by a diagnosis of a terminal illness. The present study investigated the causes of loneliness as perceived by HIV/AIDS patients, those diagnosed with cancer, and the general population. Forty-three HIV/AIDS patients, 38 cancer patients, and 53 participants from the general population answered a 29 item questionnaire. Results indicated that with the exception of social marginality, those afflicted with HIV/AIDS perceived the causes of their loneliness to be significantly different from those of the other two samples. Secondly, cancer patients and subjects from the general population did not differ significantly in the perceived causes of their loneliness. The author thanks Dr. Joe Regan, Fabio Belpulsi, Joann Bennett, Yvone Peterson, and Gina Ramberan for their invaluable assistance.     

Terminal illness and coping with loneliness

Loneliness is a universal phenomenon, and its pain is intensified by a diagnosis of a terminal illness. The present study is an investigation of the coping strategies used by HIV/AIDS patients, by individuals diagnosed with cancer, and by the general population. Forty-three HIV/AIDS patients, 38 cancer patients, and 53 participants from the general population answered a 34-item questionnaire. Results indicated that with the exception of reflection and acceptance and religion and faith, those afflicted with HIV/AIDS cope with loneliness significantly differently from members of the other two groups. The findings of this exploratory study suggest that cancer patients and the general population do not differ in the ways they cope with loneliness.     

Individual attitudes and perceived social norms: Reports on HIV/AIDS‐related stigma among service providers in China

This study examined HIV/AIDS‐related stigma among Chinese service providers by comparing their personal attitudes toward people living with HIV/AIDS with their perception of social norms related to people living with HIV/AIDS. We randomly selected three provincial hospitals, four city/prefecture hospitals, 10 county hospitals, 18 township health clinics, and 54 village clinics from Yunnan, China. Doctors and nurses were randomly sampled proportionally to the doctor–nurse ratio of each hospital or clinic. Lab technicians were over‐sampled in order to include an adequate representation in the analysis. A total of 1,101 service providers participated in a voluntary, anonymous survey where demographic characteristics, individual attitude and perceived social norms toward people living with HIV/AIDS, discrimination intent at work, general prejudicial attitude and knowledge on HIV/AIDS were measured. A majority of the sample demonstrated a similarity between their personal views and what they thought most people in society believe. Multiple logistic regressions revealed that participants who were younger or reported personal contact with people living with HIV/AIDS were significantly more likely to report personal attitudes toward the population that were more liberal than their perceived social norms. Holding a more liberal personal attitude toward people living with HIV/AIDS than perceived social norms was significantly and negatively related to the level of discrimination intent at work, perceived discrimination at interpersonal level and the level of general prejudicial attitude toward people living with HIV/AIDS. Results underscored the importance of understanding social norms and personal attitudes in studying HIV‐related stigma and called for the incorporation of existing human capital into future HIV stigma reduction programs.     

The causes of loneliness in homeless youth

Both homelessness and loneliness are pervasive in North America. In this study, the author compared the causes of the loneliness experienced by young homeless youth (n = 113) with that of counterparts in the general population (n = 211) who answered a 30-item yes-no questionnaire. The results identified 5 causes of loneliness: personal inadequacy, developmental deficits, unfulfilling intimate relationships, relocation or significant separations, and social marginality. The results indicated that the causes of loneliness in young homeless youth are significantly different from those of the general population.     

Criminal offense type and the causes of loneliness

This study is an examination of the influences of incarceration on perceived causes of loneliness. A heterogeneous prison population was divided into five homogeneous subgroups (sex offenders, violent offenders, property offenders, drug-related offenders, and a category that contained all other miscellaneous offenders) whose loneliness experiences were then compared. Three hundred fifty-six incarcerated male offenders and 501 men from the general population were recruited on a voluntary basis. They reported the perceived sources of their loneliness on an 82-item yes/no questionnaire. Results indicated significant differences in perceived causes of loneliness between the criminal and general populations and within the criminal sample when the data were examined according to offense type.     

Self-perception of the antecedents of loneliness among new mothers and pregnant women

This study examined the perceived causes of loneliness of pregnant women and mothers during the first year after childbirth experience. These were compared with the causes of loneliness of women in the general population. 91 pregnant women, 97 women during the first year following childbirth, and 208 women from the general population (M age = 30.4, SD = 10.4) answered a 29-item Loneliness Antecedents Questionnaire. In the questionnaire were 5 dimensions of sources of loneliness, namely, Personal Inadequacies, Developmental Deficits, Unfulfilling Intimate Relationships, Relocation/Significant Separation, and Social Marginality. Sources of loneliness were significantly different amongst the three groups. The differences were confined to the Personal Inadequacies, and the Relocation/Significant Separation subscales. In both, women from the general population had the highest mean subscale scores.     

Exploring Perceived Social Support from Peer Facilitators in an HIV Treatment Adherence Intervention for African American Patients: A Content Analysis of Participant Perspectives

HIV treatment adherence interventions increasingly rely on peer facilitators to promote treatment adherence and improve patient retention, yet little is known about how participants perceive the role performed by peer facilitators. The present study examined participant perceptions in terms of the social support from peer facilitators in a hospital‐based intervention in Chicago. Content analysis was conducted with reference to four types of social support (instrumental, informational, emotional and affiliational) on exit interviews with 11 participants enrolled in the intervention that targeted African‐American patients living with HIV/AIDS. We examined how the type of social support perceived by participants was related to their self‐reported behaviours in three domains: adherence, sexual safety and general coping. Our analysis revealed that most participants perceived informational and emotional support from their peer facilitators, followed by instrumental support. Affiliational support was the least frequently perceived type of social support. We found that perceived informational support from peer facilitators with regard to adherence had greater impact and credibility amongst participants than the same type of support from medical providers. Informational support was cited most frequently with regard to influencing adherence and sexual safety behaviours, whereas perceived emotional support was cited primarily with helping participants cope with HIV. Copyright © 2015 John Wiley & Sons, Ltd.     

HIV/AIDS and health care workers: contact with patients and attitudes towards them

Data on a range of variables associated with contact with patients with HIV/AIDS and attitudes towards them were collected from 174 Scottish health care workers. Measures of attitudes and contact (overall, social and physical) were derived from the scales devised by Pleck et al. (1988). The measure of overall contact was not significantly related to attitudes, but those with predominantly social contact with patients with HIV/AIDS had more positive attitudes towards them. This relationship was moderated by occupational characteristics, concern about working with people of unknown HIV status and neuroticism. With all these variables controlled, including social contact, those who had not received in-service training relating to HIV/AIDS had more negative attitudes. The results are discussed with regard to the measurement of social contact with patients, salient beliefs, the occupational characteristics associated with attitudes, and in-service education.     

童年中期儿童社交地位、社交自我知觉与孤独感的关系研究

以554名3～6年级的小学生为被试,采用量表法、同伴提名法探讨童年中期儿童社交地位、社交自我知觉与孤独感的关系。结果表明:(1)3～6年级小学生的孤独感有显著的性别差异,男生的孤独感显著高于女生。(2)不同社交地位的儿童其孤独感也不同,低接纳组儿童的孤独感显著高于一般接纳组和高接纳组,而一般接纳组与高接纳组儿童的孤独感差异不显著。(3)在高接纳组儿童中,社交自我知觉消极的儿童其孤独感显著高于社交自我知觉一般的儿童,社交自我知觉一般的儿童其孤独感显著高于社交自我知觉积极的儿童;但是在一般接纳组和低接纳组中,社交自我知觉不同的儿童其孤独感并没有显著差异。     

Stigmatizing attitudes of the community towards people living with HIV/AIDS

This research involved an exploratory study in which a questionnaire was used to investigate the personal stigma and perceived community stigma regarding HIV/AIDS in a South African community. Student fieldworkers interviewed a convenient sample of 901 respondents from different races, gender and age groups, and found that respondents tended towards stigmatizing persons with HIV/AIDS. Yet, this degree of stigmatization was significantly less severe than the degree of stigmatization that respondents attributed to the community at large. Altogether 17% of the respondents had high stigmatizing attitudes, while 42% perceived the stigmatization by others in the community to be high. Race group, personal knowledge of someone with HIV, area of residence, gender and age group impacted on the respondents' personal tendency to stigmatize those with HIV/AIDS. The article discusses the difference between the level of personal stigma attached by the respondents and that perceived by them to be attached by the community. Attention is also paid to the possible implications of stigmatizing behaviour patterns and interventions on a community level. Copyright © 2006 John Wiley & Sons, Ltd.     

Psychological distress and quality of life of people living with HIV/AIDS in a Nigerian teaching hospital

Presence of psychological distress and poor quality of life (QoL) may affect the outcome of HIV/AIDS. One hundred and seventeen consecutive and consenting participants were interviewed using a Socio-demographic questionnaire, Kessler Psychological Distress Scale (K10) and World Health Organization Quality of Life-HIV Bref. Fifty-six (47.9%) participants scored 20 and above on K10 Scale. QoL was significantly higher in married participants, those who perceived their state of health as being good, asymptomatic participants and those who scored well–mild on K10. The older age group scored higher on QoL Scale than the younger age group in the physical health domain while the married participants scored higher in the domains of physical health, psychological health, environment and spiritual/religion. The participants who perceived their state of health as being good scored higher than those who perceived their health as poor in all domains. There is a high level of psychological distress and poor QoL in people living with HIV/AIDS.     

General and relationship-based perceptions of social support: are two constructs better than one?

Two hypotheses derived from a theory of perceived social support were investigated: (a) relationship-based perceptions of social support are distinct from general perceptions of support, and (b) measures of each construct contribute uniquely to the prediction of loneliness. Ninety-four male and 116 female undergraduates completed measures of loneliness and general perceived social support and the Quality of Relationships Inventory, a new instrument to assess relationship-based perceptions of social support, conflict, and depth in specific relationships. General and relationship-based perceptions of social support were found to be related, but empirically distinct, constructs. Relationship-based perceptions of support and conflict from mothers and friends each added to the prediction of loneliness after considering the contribution of general perceived social support. Implications of these findings for understanding the perceived social support construct are discussed.     

Psychometric properties of the Death Anxiety Scale (DAS) among HIV/AIDS patients

AIDS patients and HIV carriers who are aware of their condition are under multiple kinds of stress with adverse effects on their emotional state and personal and social activity. This paper reports the psychometric properties of the DAS (Death Anxiety Scale) using the Spanish version in the clinical setting. The sample is made up of 148 HIV/AIDS patients (109 men and 39 women). The internal consistency of the scale was .72 and its test-retest reliability was .70. Principal components analysis extracted five factors that jointly accounted for 56.5% of the total variance. As, on the whole, these results are very similar to those reported by other authors, it is concluded that the Spanish DAS is a valid instrument for the assessment of death anxiety in Spanish HIV/AIDS patients.     

Quality-of-life assessment in HIV-infected psychiatric outpatients: Perceived health,functional status,symptoms, and preferences for cardiopulmonary resuscitation

Abstract

The current study had two purposes: (1) to describe the reliability and validity of a measure of quality of life (QOL) in HIV-infected psychiatric outpatients, and (2) to predict cardiopulmonary resuscitation (CPR) preferences from disease stage, depression, and other QOL factors. We studied 63 patients, who were seen in one year at an HIV/AIDS psychiatry clinic. The results provide evidence for the validity of our instrument as a measure of health status in an HIV-infected psychiatric population. Overall symptoms were the strongest associates of functional limitations. disability, and perceived health, but depression was also significantly associated with all measures of QOL. Twenty-two patients (35.5%) would not have wanted to be revived if their heart stopped beating the day of the study. Disease stage and poor mental health were independent predictors of this preference, but severity of depression, social support, fatigue, perceived health, functional limitations, and life satisfaction were not.     

Stigma and social participation in Southern India: differences and commonalities among persons affected by leprosy and persons living with HIV/AIDS

Stigma is a common phenomenon worldwide and infectious diseases like HIV/AIDS and leprosy are often associated with high levels of stigma. Several studies have been conducted concerning the effects of stigma and the impact on social participation, but comparative studies are rare. The objective of this study was to identify differences and similarities between HIV/AIDS and leprosy-related stigma. From April till July 2009, 190 questionnaire-based interviews were conducted to assess the levels of internalized stigma (Internalized Stigma of Mental Illness scale), perceived stigma (Explanatory Model Interview Catalogue stigma scale) and social participation (Participation scale) in a cross-sectional sample of people affected by leprosy (PL) and people living with HIV/AIDS (PLHA). Respondents were selected from several hospitals, charity projects and during home visits in Vellore district, Tamil Nadu. Our results showed that both PLHA (n?=?95) and leprosy-affected respondents (n?=?95) faced a substantial burden of internalized and perceived stigma, with the former reporting a significantly higher level of stigma. As a result, PLHA faced more frequent and also more severe participation restrictions than PL. Especially, restrictions in work-related areas were reported by the majority of the respondents. In conclusion, PLHA faced a significantly higher level of stigma and participation restriction than PL. However, the latter also reported a substantial burden of stigma and participation restrictions. The study suggests that it may be possible to develop joint interventions based on the commonalities found. More research is needed to define these more precisely and to test the effectiveness of such joint interventions in reducing stigma and improving social participation.     

Predictors of HIV-related stigma among young people living with HIV.

Enacted and perceived HIV stigma was examined among substance-using young people living with HIV (YPLH) in Los Angeles, San Francisco, and New York City (N = 147). Almost all YPLH (89%) reported perceived stigma, and 31% reported enacted experiences in the past 3 months; 64% reported experiences during their lifetime. The HIV stigma questions were characterized by factors of avoidance, social rejection, abuse, and shame. In multivariate models, enacted stigma was associated with gay or bisexual identity, symptomatic HIV or AIDS, and bartering sex. Perceived stigma was associated with female gender, symptomatic HIV or AIDS, bartering sex, lower injection drug use, and fewer friends and family knowing serostatus. Gay or bisexual YPLH who were also HIV symptomatic or AIDS diagnosed experienced more HIV stigma than their heterosexual peers.     

Knowledge and Concern about STIs/HIV and Sociodemographic Variables Associated with Getting Tested for HIV Among the General Population in Spain

HIV testing is important in terms of prevention and treatment. However, HIV testing rates in the Spanish general population remains low. Therefore, HIV testing promotion constitutes a key issue. A high level of knowledge about HIV/AIDS is associated with having been tested for HIV. The general aim of this study was to determine the prevalence of people who had ever been tested for HIV in Spain. The sample consisted of 1,106 participants from the general population — 60.0% females and 40.0% males — aged between 17 and 55 years old. The assessment instruments were a questionnaire on sociodemographic data and HIV testing, a scale of knowledge about STIs and HIV/AIDS, and a scale of concern about STIs/HIV. Results showed that greater knowledge about STIs and HIV was associated with a greater likelihood of being tested for HIV (OR = .77; 95.0% CI = .73–.82; p < .05). In addition, higher concern about HIV/AIDS decreased the likelihood of not having been tested for HIV (OR = .87; 95.0% CI = .83–.92; p < .05). In fact, the higher participants concern about STIs was, the lower their likelihood of not having been tested for HIV was (OR = .87; 95.0% CI = .83–.91; p < .05). It is necessary to promote HIV testing in the general population as well as to consider their socio-demographic and psychological characteristics.     

HIV/AIDS prevention support resourcing with family and peers: University student perspectives

This study explored how students construct family and peers as resources for their HIV prevention. The participants were 20 education students from a South African technology education university (female = 60%, black = 85%; age range = 18 to 24). They completed a semi-structured interview on their access to family and peers talking about HIV/AIDS prevention in the context of perceived cultural influences. The data was thematically analysed using open-coding. Findings suggest that students shared information about HIV/AIDS prevention with peers, and less so with family. They perceived cultural taboos around sex talk to be a barrier to open discussion of HIV/ADS. Students may need to acquire strategies to negotiate HIV/AIDS prevention approaches with family in the context of culture.     

Health Beliefs and Attitudes Toward People Living With HIV/AIDS

The present study was concerned with the relationship between health beliefs and attitudes toward people living with HIV/AIDS. Measures of attitudes toward people with HIV/AIDS, beliefs about the transmission of HIV, and health locus of control beliefs were completed by 128 undergraduate students. In general, subjects who believed that HIV was transmitted through normal social contact wanted to avoid contact with people with HIV/AIDS, and showed other negative attitudes, such as lack of sympathy and blame. They also believed that their health was influenced by powerful others and chance. The findings are discussed in terms of fear of contracting HIV and the tendency to blame the victim.     

The association between body image and smoking cessation among individuals living with HIV/AIDS

Lower smoking cessation rates are associated with body image concerns in the general population. This relationship is particularly important to study in individuals living with HIV/AIDS due to alarmingly high smoking rates and considerable bodily changes experienced with HIV disease progression and treatment. The association between body image and smoking cessation rates was examined among individuals living with HIV/AIDS participating in a smoking cessation intervention. Body image concerns were significantly associated with depression, anxiety, stress, and social support, all variables known to affect cessation rates. However, reduced quit rates were found among individuals reporting elevated and low levels of body image concerns at the end of treatment. These findings suggest a unique relationship between smoking and body image among individuals living with HIV/AIDS. Further research is needed to examine these effects and whether moderate levels of body image concerns in this population reflect realistic body perceptions associated with positive mental health.