Quality of Life and Optimism in Patients with Morphea

Despite extensive knowledge about quality of life of people suffering from dermatological diseases, data on patients with morphea are scarce. The aim of our study was to compare the quality of life of healthy controls and morphea patients, as well as to determine the correlation of this variable with the level of dispositional optimism. The study included 47 patients with morphea and 47 healthy controls, matched for gender and age. Cantril’s Ladder and Life Orientation Test-Revised were used to assess the levels of life satisfaction and dispositional optimism, respectively. LoSSI was used for the objective assessment. The anticipated level of life quality and the level of dispositional optimism were statistically significantly lower in morphea patients (p?=?0.032 and p?=?0.014, respectively) when compared to controls. There were no differences in the assessment of current (p?=?0.168) and past (p?=?0.318) levels of life quality. Also, we proved that type of morphea did not differentiate the current (p?=?0.175), past (p?=?0.620) and future (p?=?0.356) assessment of the quality of life. In the group of morphea patients there was a statistically significant correlation between the level of dispositional optimism and current (p?=?0.002, r?=?0.43), as well as anticipated (p?r?=?0.57) levels of life quality. Current level of life quality of healthy controls and morphea patients is comparable, whereas the latter anticipate their future life situation to be significantly worse than the former. Higher level of life satisfaction correlates with higher level of optimism.     

Hope as a Psychological Factor Affecting Quality of Life in Patients With Psoriasis

Clinical observations and medical reports indicate that psoriasis has a tremendous impact on patients’ lives, lowering their quality in many important areas. However, the vast majority of research deals only with health-related issues. This study aimed to compare the general quality of life of psoriasis patients and healthy volunteers by examining psychological variables thought to modify the quality of life. 42 patients with psoriasis and 42 healthy volunteers matched for gender, age and education level were tested. Flanagan Quality of Life Scale was used to evaluate general quality of life. Basic hope level was assessed with Basic Hope Inventory. Trait hope was estimated using Trait Hope Scale. Psoriasis Area Severity Index was used to assess the severity of the disease. Psoriasis patients have a significantly lower overall quality of life (p?=?0.05), modified by Physical and Material Well-being (p?=?0.01), Personal Development and Fulfillment (p?=?0.03), and Recreation (p?=?0.04). They also have lower levels of trait hope (p?=?0.04) and its agency component (p?=?0.01). There were moderate, negative significant correlations with basic hope and such components of quality of life as Physical and Material Well-being (p?=?0.03, r?=?? 0.34) and Relations with other People (p?=?0.02, r?=?? 0.35). These results support the hypothesis of a reduced general quality of life and trait hope in psoriatics. Thus, psychological help for people suffering from dermatological disorders might be as important as medical intervention. Basic hope can be treated as a resource in coping with these disorders and trait hope as a resource conducive to well-being.     

Examining the within-person effect of affect on daily satisfaction

Assessments of global life satisfaction capture beliefs about overall well-being; state satisfaction assessments focus on short-term or “in-the-moment” appraisals of current life circumstances. Prior research has examined how trait measures of life satisfaction and affect are related at between-person and within-person levels of analysis. At the state level, however, a lack of clarity exists about the nature and magnitude of the association between satisfaction and affect. In a diary study involving assessments of both affect and satisfaction at the daily level (N = 350 with 6024 assessments), we found a consequential effect of affect on state satisfaction due to greater within-person variance over time.     

How do Relationship Stability and Quality Affect Wellbeing?: Romantic Relationship Trajectories,Depressive Symptoms,and Life Satisfaction across 30 Years

Lifecourse theory scholars focus on how individuals traverse social roles, such as marriage, parenthood, and employment, in similar and different ways across their lives. This study examined one specific role trajectory: romantic relationships. This study examined men’s and women’s (N?=?3617) relationship status and quality across approximately 30 years. Using second-order latent class analysis, results showed four predominant relationship role trajectories: (a) Multiple Transitions, (b) Stable Marriage with High Conflict, (c) Stable Marriage with High Satisfaction, and (d) Marriage to Divorce/cohabitation. These relationship role trajectories differed on two aspects of quality of life: life satisfaction and depressive symptoms. Individuals in the Multiple Transitions trajectory consistently reported poorest quality of life; however, those in the Multiple Transitions and Stable Marriage with High Conflict trajectories were the only that reported decreases in depressive symptoms over 30 years. Relationship satisfaction poorly differentiated the trajectories compared to relationship conflict and stability.     

Is Life’s Meaning Ultimately Unthinkable?: Guy Bennett-Hunter on the Ineffable

In this critical notice of Guy Bennett-Hunter’s Ineffability and Religious Experience, I focus on claims he makes about what makes a life meaningful. According to Bennett-Hunter, for human life to be meaningful it must obtain its meaning from what is beyond the human and is ineffable, which constitutes an ultimate kind of meaning. I spell out Bennett-Hunter’s rationale for making this claim, raise some objections to it, and in their wake articulate an alternative conception of ultimate meaning.     

Influence of Religiosity on the Quality of Life and on Pain Intensity in Chronic Pancreatitis Patients After Neurolytic Celiac Plexus Block: Case-Controlled Study

The quality of life in patients with chronic pancreatitis (CP) is reduced due to their suffering of high levels of pain. It has been presented that quality of life can also be linked to religiosity and/or spirituality. The aim of this study is to assess the influence of religious practices on the quality of life and on the subjective level of pain in CP patients. Ninety-two patients (37 women and 55 men) with chronic pancreatitis were treated invasively for pain with neurolytic celiac plexus block (NCPB). The religiosity of the patients was recorded and served as a dichotomizer. Group 1 was for patients who claimed to have no contact with the church or to have very sporadic contact (N = 35 patients). Group 2 was for patients who claimed to have deep faith and were regular participants at church activities (N = 57 patients). Visual analogue scale was used to assess pain, while the quality of life was measured by using QLQ C-30 questionnaire adapted for chronic pancreatitis patients in Polish population. The patients were assessed prior to the pain-relieving intervention and subsequently 2 and 8 weeks after it. The intensity of pain was reduced in both groups significantly after performing the NCPB. Patients who declared a deep faith reported higher level of pain on the VAS scale prior to intervention than non-religious patients. Quality of life in both groups of patients significantly improved after NCPB. Following NCPB, global quality of life in patients who declared higher religiosity/church attendance was significantly higher (79.88) than for those patients who have no contact or sporadic contact with the church (44.21, P < 0.05). NCPB resulted in significant reduction of pain and increase in quality of life in both groups of patients with CP. Nevertheless, in the group declaring higher religiosity/church attendance, reported pain was higher, but, despite that, quality of life better. It may be concluded that religious practices might serve as an additional factor improving quality of life and coping in patients suffering from chronic pancreatitis.     

Dynamic balance assessment during gait in children with Down and Prader-Willi syndromes using inertial sensors

Down (DS) and Prader-Willi (PWS) syndromes are chromosomal disorders both characterized by obesity, ligament laxity, and hypotonia, the latter associated with gait instability. Although these shared features may justify a common rehabilitation approach, evidence exists that adults with DS and PWS adopt different postural and walking strategies. The development of an instrumented protocol able to describe these strategies and quantify patients’ gait stability in the current clinical routine would be of great benefit for health professionals, allowing them to design personalized rehabilitation programs. This is particularly true for children with DS and PWS, where motor development is dramatically constrained by severe hypotonia and muscle weakness. The aim of this study was, thus, to propose an instrumented protocol, integrated with the clinical routine and based on the use of wearable inertial sensors, to assess gait stability in DS and PWS children.Fifteen children with DS, 11 children with PWS, and 12 typically developing children (CG) were involved in the study. Participants performed a 10-meter walking test while wearing four inertial sensors located at pelvis, sternum, and both distal tibiae levels. Spatiotemporal parameters (walking speed, stride frequency, and stride length) and a set of indices related to gait symmetry and upper-body stability (Root Mean Square, Attenuation Coefficient and Improved Harmonic Ratio) were estimated from pelvis and sternum accelerations. The Gross Motor Functional Measures (GMFM-88) and Intelligence Quotient (IQ Wechsler) were also assessed for each patient. A correlation analysis among the GMFM-88 and IQ scales and the estimated parameters was then performed.Children with DS and PWS exhibit reduced gait symmetry and higher accelerations at pelvis level than CG. While these accelerations are attenuated by about 40% at sternum level in CG and DS, PWS children display significant smaller attenuations, thus reporting reduced gait stability, most likely due to their typical “Trendelenburg gait”. Significant correlations were found between the estimated parameters and the GMFM-88 scale when considering the whole PWS and DS group and the PWS group alone.These results promote the adoption of wearable technology in clinical routines to monitor gait patterns in children with DS and PWS: the proposed protocol allows to markedly characterize patient-specific motor limitations even when clinical assessment scores provide similar results in terms of pathology severity. This protocol could be adopted to support health professionals in designing personalized treatments that, in turn, could help improving patients’ quality of life in terms of both physical and social perspectives.     

Well-Being Indicators and Convergence Across Italian Regions

This article studies convergence across Italian regions by means of two composite indicators of socio-economic progress reflecting the multidimensional nature of human well-being. The first composite indicator includes, other than household disposable income in Italy, two sub-indicators regarding health and education; the second composite indicator considers, in addition to those considered by the former, three further sub-indicators relating to the quality of the socio-institutional context, age and gender disparities in the labor market and regional competitiveness. The data base of the 17 variables or indexes used to construct the six abovementioned sub-indicators cover the period from 1998 to 2008. We assess the existence of both σ and γ- convergence; the latter computed by means of Kendall′s index. Consistent with the findings in other European countries that also use composite economic and quality of life indicators we find evidence of regional σ-convergence in well-being, but do not observe significant processes of intra-distributional mobility. In other words, while dispersion across Italian regions in terms of well-being levels declined in the period, the regional ranking remained substantially unchanged.     

‘An elephant cannot fail to carry its own ivory’: Transgenerational ambivalence,infrastructure and sibling support practices in urban Uganda

This article examines how urban Ugandans navigate family support systems through a focus on the under-researched area of sibling care practices. We conceptualise such systems as transgenerational infrastructure to capture the complex flows, negotiations and dilemmas of both inter- and intra-generational relationships, orderings and power, situating family support practices within their spatial, structural and social contexts. Drawing on grounded narratives of lived experience collected in Jinja, Uganda, the article offers an alternative interpretation to what is commonly portrayed as a weakening of family support systems in sub-Saharan Africa. We develop a transgenerational ambivalence perspective which allows for a deeper understanding of the heterogeneity and fluidity of family support as an ethical practice replete with complex emotions and dilemmas shaped in the junctures between social norms, agency, resources and material conditions. Through focusing on working-age Ugandans, we demonstrate the potential for a transgenerational ambivalence approach to make visible contradictions at structural and subjective levels and focus greater attention on the importance of sibling relationships and birth order than is evident in the existing intergenerational literature. This can help researchers in the task of linking family dynamics to the growing precarity and uncertainties of life in the marginal socio-economic contexts of urban sub-Saharan Africa.     

The effects of attentional focus and partner arousal on sexual responding in functional and dysfunctional men

The effects of attentional-focus instructions (self vs partner focus) and level of partner arousal (high, low and ambiguous) on sexual responding, both objectively and subjectively measured, were examined with sexually-functional (N = 8) and sexually-dysfunctional (N = 8) men. These instructional sets were delivered just before the subjects viewed an erotic film depicting a heterosexual couple in which they identified with the male. When both groups were focusing on themselves rather than their partner, higher tumescence was observed when their partner was displaying low arousal. When the partner's level of arousal was ambiguous, highest tumescence was achieved during partner attentional focus. When the partner was displaying high sexual arousal, functional subjects reached highest levels of tumescence during partner focus, while dysfunctional subjects reached highest levels of tumescence during self focus. In fact, high partner arousal seemed to inhibit dysfunctional subjects' tumescence under partner focus. Examination of self-report of arousal data as measured by a subjective lever revealed interesting group differences. Results are discussed in light of possible maintaining factors in sexual dysfunction and their treatment implications.     

Perceived quality of life in Taiwan and Hong Kong: an intra-culture comparison

Cross-society comparisons have become increasingly important to the study of the perceived quality of life. A major critique of these studies, however, is the lack of attention to intra-culture variation. This paper examines how subjective quality of life differs, at both societal and individual levels, between Taiwan and Hong Kong, two Chinese societies that share their cultural heritage but vary in their social and political systems. We draw upon data from synchronic surveys conducted in November 2000 in Taiwan (n=1222) and Hong Kong (n=1044). Ordinal regression analyses confirm that, for both societies, reported satisfaction at the societal level contributes to the variance in individuals quality of life. Moreover, the perceived fairness with regard to personal effort within the opportunity structure provided by the society also significantly affects an individuals quality of life. Different factors accounting for quality of life variation in Taiwan and in Hong Kong are discussed. This paper suggests that for the intra-cultural, cross-society comparisons on quality of life, inclusion of various societal level indicators is not only important, but the subjective perception of the fairness that society also contributes a significant effect.     

Maintaining Successful Aging: The Role of Coping Patterns and Resources

One of the main challenges of aging societies is maintaining quality of life despite inevitable changes that occur in the lives of elderly people. This study examined the contribution of coping resources and coping patterns to successful aging among elderly persons following a decline in health and function. Data were collected from 262 elderly Israelis during two home interviews carried out at an interval of 12 months. Successful aging was assessed using a number of measures of subjective well-being. Predictive variables included change in health/functioning, coping resources, and coping patterns (proactive and reactive). Hierarchical regression analyses showed that the coping resources self-efficacy and social support and the proactive coping pattern of concrete planning positively predicted successful aging, while the proactive coping pattern deciding on preferences had a negative influence. These results indicate that elderly people have the ability to shape their quality of life in the presence of decline in health and functioning by using appropriate coping resources and coping patterns. Controlled interventions are recommended to help older people acquire and maintain effective resources and coping skills, thus further promoting their successful aging process.     

The Longitudinal Relationship Between Satisfaction with Transitional Care and Social and Emotional Quality of Life Among Chronically Ill Adolescents

This study aimed to identify the relationship between satisfaction with transitional care and quality of life of chronically ill adolescents over time. This longitudinal study included adolescents with type I diabetes, juvenile idiopathic arthritis (JIA), and neuromuscular disorders (NMD). At baseline 138 respondents (response rate 31 %) filled in a questionnaire and 188 about 1 year later (response rate 43 %). Analysis of variance showed that adolescents with diabetes reported the highest physical quality of life, followed in order by those with NMD and JIA (p?≤?0.01). Adolescents with diabetes reported the highest social quality of life, followed in order by those with JIA and NMD (both at p?≤?0.001). Univariate analyses showed that satisfaction with transitional care at T0 was significantly related to emotional and physical quality of life at T1 (both at p?≤?0.05). At T1, satisfaction with transitional care was significantly related to the emotional, physical, and social domains of quality of life (all at p?≤?0.001). Multiple regression analyses revealed that satisfaction with transitional care at T1 was related to emotional (β -0.20; p?≤?0.05) and social (β -0.35; p?≤?0.01) quality of life domains over time. This indicates that lower gap scores, which measured differences between ‘best care’ and ‘current care,’ are associated with better social and emotional quality of life in this sample of adolescents. Satisfaction with transitional care and social and emotional quality of life are related over time.     

Searching for an optimal balance: Dual career experiences of Swedish adolescent athletes

ObjectivesThe paper presents a national level Swedish project aimed at examining adolescent student-athletes' dual career experiences (including sport, studies, and private life) during their first year at national elite sport schools (Swedish abbreviation RIGs will be used) with a particular focus on development of their athletic and student identities. The developmental model of transitions faced by athletes (Wylleman & Lavallee, 2004) and the athletic career transition model (Stambulova, 2003) served as underlying frameworks.DesignA longitudinal mixed-method research design was used with autumn-to-spring quantitative and qualitative parts.MethodSixteen year old student-athletes, representing 27 sports and 33 RIGs (n = 261 in the first and n = 250 in the second measurement), completed three quantitative instruments. Additionally, in-depth interviews were conducted with 10 participants.ResultsResults revealed (a) significant changes in the participants' transition/adaptation variables from the first to the second measurement accompanied by rather high perceived quality of adjustment at RIG both at the beginning and at the end of the educational year; (b) significant contributions of the transition variables to the perceived quality of adjustment with personal resources as a key predictor; (c) significantly higher athletic than student identity in both quantitative measurements, but with inter- and intra-individual differences with regard to balancing the two shown by the qualitative data.ConclusionsThe study contributes to deeper understanding of dual career experiences of Swedish adolescent athletes; the authors provide recommendations for psychological dual career support services at RIGs and outline future research in the Swedish dual career model.     

Municipalities and Regions as Good Places to Live: Index of Quality of Life in the Czech Republic

Quality of life is associated with the term good life; when we evaluate the quality of life, we evaluate how good it is. The central element of the objective (spatial) dimension of quality of life is the phenomenon of a good place as a place in which there is lived a good life to a varying degree. The paper aims to calculate the index of quality of life at the micro-level of all 6251 municipalities in the Czech Republic based on the indicators of a gold standard and derived indices of higher hierarchical levels of districts and regions and expression of their spatial differentiation. The calculation of the index of quality of life implies that the quality of life in villages is generally higher than in the cities; however, the highest is in large cities with a population of over 100,000 and in small towns with a population of 5000 to 10,000. Quality of life in the Czech Republic is substantially spatially differentiated at all hierarchical levels.     

Dispositional gratitude mediates the relationship between a past-positive temporal frame and well-being

Both past-positive temporal frame, which involves dwelling on positive memories of the past, and dispositional gratitude are associated with positive life outcomes, including greater life satisfaction. A past-positive temporal frame may provide a foundation for the development of dispositional gratitude. The present study examined a model positing that gratitude mediates the relationship between past-positive temporal frame and well-being. Two hundred and thirty-three participants (mean age = 34.10 years; SD = 14.21) completed measures of characteristic past-positive temporal frame, dispositional gratitude, and several indices of well-being. Higher levels of a past positive temporal frame were associated with greater gratitude and indices of well-being. Higher levels of gratitude were associated with indices of well-being. Gratitude mediated the relationship between past-positive temporal frame and well-being. These results provide information regarding a possible process through which past-positive temporal frames have beneficial effects.