The Impact of Child Symptom Severity on Stress Among Parents of Children with ASD: The Moderating Role of Coping Styles

We examined the impact of autism severity and parental coping strategies on stress in parents of children with ASD. Children’s autism symptoms and parental coping strategies (task-oriented, emotion-oriented, social diversion, and distraction) were evaluated as predictors of four types of parental stress (parent and family problems, pessimism, child characteristics, and physical incapacity). In order to examine potential buffering effects of coping strategies on stress associated with the child’s symptom severity, the interactive effects of autism symptoms with coping strategies were also examined. Participants included 77 primary caregivers of a child with ASD. Using multiple regression analyses, emotion-oriented coping scores were associated with more parent and family problems, and task-oriented coping was associated with lower physical incapacity scores. The child’s autism severity was the strongest and most consistent predictor of stress. Further, emotion-oriented coping moderated the relationship between pessimism stress and autism symptomatology, and distraction coping was a moderator between parent and family stress and autism symptoms. Results indicate that increasing our knowledge of the coping strategies that are more or less effective and under what conditions some coping strategies may be either beneficial or harmful for this population of parents has direct implications for treatment and parent education efforts.     

Examining the Efficacy of Parent–Child Interaction Therapy with Children on the Autism Spectrum

Externalizing behaviors are a common component of the clinical presentation of autism spectrum disorders. Although traditionally used with typically-developing children, parent–child interaction therapy (PCIT) is one behaviorally-based parent training program that has demonstrated success in increasing child compliance, reducing problem behavior, and improving parent–child communication. The study examined the efficacy of PCIT as a treatment for children with autism spectrum disorders by employing a single subject, non-concurrent multiple baseline design across three subjects. Primary findings revealed increases in child compliance, reductions in child disruptive behavior, and improved parenting skills across participants. In addition, each caregiver reported high levels of satisfaction with the intervention. Results suggested that PCIT may be a treatment option for children on the autism spectrum with co-occurring behavioral difficulties. Although the non-concurrent nature of the multiple baseline design is a limitation, this study replicates and extends previous research investigating the efficacy of PCIT with children with autism and their parents.     

Psychological Adjustment,Social Responsiveness and Parental Distress in an Italian Sample of Siblings of Children with High-Functioning Autism Spectrum Disorder

The psychosocial adjustment of siblings of children with autism spectrum disorder (ASD) is a relatively recent field of study, but results in literature are often inconsistent, and studies specifically focused on samples of siblings of children with high-functioning ASD are very few. This paper analyzes the level of social impairment (index of broader autism phenotype), the risk of internalizing and externalizing problems (index of psychological adjustment) and the parenting distress in an Italian sample of siblings of children with high-functioning ASD (n = 26). The presence of risk factors (birth order, sex and number of siblings in the family) and the role of the siblings’ age are also explored. The data were collected through self-report instruments administered to parents. The results do not show higher average risk levels for psychosocial adjustment problems, even though a minority of the cases is at risk for social impairments (7.7 %), internalizing (23.1 %), externalizing (3.8 %) and total difficulties (11.5 %) and for distress in the parent–child system (15 %). Distress in the parent-sibling system seems to be modulated by the sibling’s features and to be higher when the sibling is older than the child with ASD. Additionally, a link between difficulties in psychological adjustment and broader autism phenotype is suggested.     

Reconstructing Indian feminine self: A case study of Devaki

This essay addresses the applicability of life history as a genre and method to explore culture and self. It looks at how various aspects of culture and society contribute actively to emergence of cultural self, social self and psychological self. The psychological biography of child widow, Devaki from Banaras explores these concerns. A Hindu widow is known for the traumatic rites of passage she goes through from marriage to widowhood. In the case of child widow her adolescence gets enmeshed, with that of the rites of widowhood. She experiences embodiment of shame and ritual pollution along with economic hardships and social marginality. Devaki’s efforts are steered in the direction of releasing herself from the shame that, envelopes her being, and then her emergence as an independent self. The essay also explores possibility of multiple selves.     

Evaluating Open-Ended Parent Reports and Direct Preference Assessments to Identify Reinforcers for Young Children With Autism

Little research has evaluated open-ended parent reports to identify reinforcers for children with autism. This study evaluated open-ended parent reports and direct preference assessments for six young children with autism in home-based therapy. Results indicated little correspondence between parent reports and direct assessment assessments for all but one child. However, a follow-up reinforcer assessment with two children showed that the top ranked stimulus from both assessments functioned as reinforcers, with one child demonstrating higher levels of responding for the top ranked stimulus from the parent report. Results tentatively support open-ended parent reports to identify reinforcers for young children with autism.     

Parent‐implemented treatment for automatically maintained stereotypy

Automatically maintained stereotypy is common among children with autism spectrum disorder. The purpose of this study was to evaluate the effect of a multicomponent parent‐implemented intervention on the reduction of motor stereotypy for a child with autism. A 2‐year‐old child and her father participated in this study. The effect of a parent‐implemented intervention was evaluated using an alternating treatment design. The results indicated that the parent‐implemented treatment package including differential reinforcement, response blocking, and a competing stimulus decreased automatically maintained motor stereotypy.     

In Sync and in Control: A Meta‐Analysis of Parent–Child Positive Behavioral Synchrony and Youth Self‐Regulation

A growing body of research has highlighted the connection between parent–child positive behavioral synchrony and youth self‐regulation; however, this association has yet to be the focus of a meta‐analytic review. Therefore, the present meta‐analysis aimed to estimate the magnitude of the relation between parent–child positive behavioral synchrony and youth self‐regulation and to identify moderator variables that can explain the variability in the degree of this association across the extant literature. A thorough literature search of two major databases, in addition to scanning the reference sections of relevant articles, yielded a total of 10 peer‐reviewed articles (24 effect sizes, 658 children) that were eligible for inclusion in the current meta‐analysis. Results from the overall mean effect size calculation using a random‐effects model indicated that parent–child positive behavioral synchrony was significantly, positively correlated with youth self‐regulation and the effect size was medium. Children's ages at the time of synchrony and self‐regulation measurements, as well as parent gender, served as significant moderator variables. Findings from the present meta‐analysis can help to refine existing theoretical models on the role of the parent–child relationship in youth adjustment. Prevention and intervention efforts may benefit from an increased emphasis on building parent–child positive behavioral synchrony to promote youth self‐regulation and thus children's overall well‐being.     

The impact of child problem behaviors of children with ASD on parent mental health: the mediating role of acceptance and empowerment

Raising a child with an autism spectrum disorder (ASD) has often been associated with higher levels of parenting stress and psychological distress, and a number of studies have examined the role of psychological processes as mediators of the impact of child problem behavior on parent mental health. The current study examined the relations among child problem behavior, parent mental health, psychological acceptance, and parent empowerment. Participants included 228 parents of children diagnosed with ASD, 6-21 years of age. As expected, psychological acceptance and empowerment were negatively related to the severity of parent mental health problems. When acceptance and empowerment were compared with each other through a test of multiple mediation, only psychological acceptance emerged as a significant partial mediator of the path between child problem behavior and parent mental health problems. As child problem behavior increased, parent psychological acceptance decreased, resulting in an increase in parent mental health problems. These findings suggest that for problems that are chronic and difficult to address, psychological acceptance may be an important factor in coping for parents of young people with ASD, in line with the growing literature on positive coping as compared with problem-focused coping.     

Attachment and Autism: Parental Attachment Representations and Relational Behaviors in the Parent-Child Dyad

While attachment research has demonstrated that parents’ internal working models of attachment relationships tend to be transmitted to their children, affecting children’s developmental trajectories, this study specifically examines associations between adult attachment status and observable parent, child, and dyadic behaviors among children with autism and associated neurodevelopmental disorders of relating and communicating. The Adult Attachment Interview (AAI) was employed to derive parental working models of attachment relationships. The Functional Emotional Assessment Scale (FEAS) was used to determine the quality of relational and functional behaviors in parents and their children. The sample included parents and their 4- to 16-year-old children with autism and associated neurodevelopmental disorders. Hypothesized relationships between AAI classifications and FEAS scores were supported. Significant correlations were found between AAI classification and FEAS scores, indicating that children with autism spectrum disorders whose parents demonstrated secure attachment representations were better able to initiate and respond in two-way pre-symbolic gestural communication; organize two-way social problem-solving communication; and engage in imaginative thinking, symbolic play, and verbal communication. These findings lend support to the relevance of the parent’s state of mind pertaining to attachment status to child and parent relational behavior in cases wherein the child has been diagnosed with autism or an associated neurodevelopmental disorder of relating and communicating. A model emerges from these findings of conceptualizing relationships between parental internal models of attachment relationships and parent-child relational and functional levels that may aid in differentiating interventions.     

Social stories, written text cues, and video feedback: effects on social communication of children with autism.

This study investigated the effects of written text and pictorial cuing with supplemental video feedback on the social communication of 5 students with autism and social deficits. Two peers without disabilities participated as social partners with each child with autism to form five triads. Treatment was implemented twice per week and consisted of 10 min of systematic instruction using visual stimuli, 10 min of social interaction, and 10 min of self‐evaluation using video feedback. Results showed increases in targeted social communication skills when the treatment was implemented. Some generalized treatment effects were observed across untrained social behaviors, and 1 participant generalized improvements within the classroom. In addition, naive judges reported perceived improvements in the quality of reciprocal interactions. These findings support recommendations for using visually cued instruction to guide the social language development of young children with autism as they interact with peers without disabilities.     

Caregiver‐mediated joint attention intervention

Joint attention is a pivotal social communication skill often absent or impaired in young children with autism spectrum disorder. Joint attention is the shared and alternating attention of two individuals on an object or event, and has implications for later communication and social communication skills. This study used a concurrent multiple‐baseline design across 3 caregiver–child dyads to train caregivers to teach response to joint attention behaviors to their 3–6 years old children with moderate to severe autism spectrum disorder. Caregivers were trained on strategies including prompting, time delay, and elements of naturalistic teaching and implemented the intervention in brief 10‐min sessions 2–3 times per week. Results indicate parent mastery of intervention and substantial increase in child response to joint attention behaviors both prompted and independent. Implications for practice and areas for future research are discussed.     

Parental Perceived Control and Social Support: Linkages to Change in Parenting Behaviors During Early Adolescence

Prior studies have found that parents’ perceptions of control over their lives and their social support may both be important for parenting behaviors. Yet, few studies have examined their unique and interacting influence on parenting behaviors during early adolescence. This longitudinal study of rural parents in two‐parent families (N = 636) investigated (a) whether perceived control and social support when their youth were in sixth grade were independently or interactively associated with changes in parenting behaviors (discipline, standard setting) and parent–child warmth and hostility 6 months later and (b) if these linkages differed by parent gender. We also investigated the interactive links between perceived control, social support, and parenting. Specifically, we tested if parents’ perceived control moderated the linkages between social support and parenting and if these linkages differed by parent gender. Greater perceived control predicted more increases in parents’ consistent discipline and standard setting, whereas greater social support predicted increases in parent–child warmth and decreases in parent–child hostility. Parental perceived control moderated the effect of social support on parental warmth: For mothers only, social support was significantly linked to parent–child warmth only when mothers had low (but not high) perceived self‐control. The discussion focuses on reasons why perceived control and social support may have associations with different aspects of parenting and why these might differ for mothers and fathers.     

‘An Association for All’—Notions of the Meaning of Autistic Self‐Advocacy Politics within a Parent‐Dominated Autistic Movement

In this paper, we seek to explore the tensions between advocacy and self advocacy autistic movements in a Swedish context with a special focus on the meanings that enable the production of particular understandings of autism and the autistic subject. Drawing on articles written for the Swedish advocacy magazine Empowerment written for and by people with autism, the discourse analysis explores two competing discourses: a reformist and a radical. The reformist discourse underlines a goal of (political) representation expressed in Empowerment. It may be understood as an important part of producing a legitimate autistic political subject–positioned as a full member, with a full membership–within a parent‐dominated autistic advocacy movement. The reformist discourse can be viewed as a result of a negotiation, where full membership is conditioned on the parents' terms and granted on specific terms. These include working together (neuro‐inclusively), advocacy based on interest rather than identity/position as a specific target/member group, agreement upon a definition of autism as a disability (a deficit) a person has rather than an identity. In relation to this, an alternative legitimate autistic subject is produced through invoking the counter‐hegemonic radical discourse. Such a narrative produces the ‘Asperger’ or ‘Aspie’. Here, the ‘full membership’ refers to a sense of identification with sense of belonging to and being at home with other people with autism. It contains a certain amount of autistic solidarity within the group of adults with autism. Copyright © 2014 John Wiley & Sons, Ltd.     

Parental marital conflict and divorce,parent–child relationships,and social support among Latino‐American young adults

Based on research documenting the harmful consequences of parental conflict and divorce, this self‐report study examined parental conflict, divorce, and social outcomes of Latino‐American young adults. Undergraduate students (N = 431) from divorced and intact families completed measures of parental conflict, quality of parent–adult child relationships, and perceptions of social support. As hypothesized, conflict was associated with poorer parent–adult child relationships, divorce was associated with poorer father–adult child relationships and higher quality mother–adult child relationships, and quality of relationships with parents was positively related to perceived social support. Contrary to expectations, perceptions of social support were not related to parental conflict. Results are discussed in terms of features of Latino families, including extended family networks as important sources of social support.     

Using the Double ABCX Model to Integrate Services for Families of Children with ASD

This conceptual paper reviews the need for a family-focused service delivery model within the autism spectrum disorder (ASD) field and suggests that the Double ABCX Model of Stress and Adaptation is a way to address this need. Within the ASD field, there is an absence of service delivery models that are able to address the needs of the family as a unit, rather than the individual child with ASD. This gap is striking given the reciprocal relationship between parent and child outcomes within the ASD field. To support our argument that the Double ABCX model could be used to integrate parent and child-focused interventions within the ASD field, this paper starts by reviewing the mental health outcomes often associated with having a child with ASD. We next provide a historical overview of the Double ABCX model and review a body of ASD intervention literature within the context of the Double ABCX model framework. Doing so shows that a number of child and parent focused interventions within the ASD field can be fit within the Double ABCX framework. However, a handful of methodological and sampling limitations prevent the Double ABCX model from being fully supported as a model that could be applied in a variety of settings. Taken together, this review highlights that the Double ABCX model is a promising strategy to integrate child and parent-focused interventions within the ASD field, but highlights that specific areas of future research are needed in order to build continued support for this argument.     

DEPLOYMENT STATUS: A DIRECT OR INDIRECT EFFECT ON MOTHER–CHILD ATTACHMENT WITHIN A CANADIAN MILITARY CONTEXT?

Research has suggested that military spouses experience increased depressive symptoms and parenting stress during a military member's deployment. A relationship between maternal depressive symptoms, parenting stress, and child attachment security has been found in the general population, as has an indication that social support may provide a buffering effect. While there appears to be an association between the emotional well‐being of military spouses and child emotional well‐being during deployment, data are limited regarding the association between maternal emotional well‐being and child attachment security. The current study explores the association between deployment status and child attachment to the nonmilitary parent (i.e., the mother in this study) in a sample of 68 Canadian military families. Results revealed a significant impact of deployment status on maternal depressive symptoms and on quality of child attachment. The impact of deployment status on attachment was not mediated through the maternal variables, and despite a main effect of social support on the maternal variables, there was no moderating effect. Thus, our results suggest that deployment may affect child attachment independently of maternal well‐being.     

Self‐management of varied responding in three students with autism

One of the aspects of autism that is often held up as a hallmark of the disorder is a desire for sameness. Students with autism often show a marked lack of variability in language and play skills. The same behavioral patterns are repeated perseveratively, rather than attempting new patterns. In the current study, students diagnosed with autism were taught to self‐manage varied responding. Using a multiple baseline design, three children with autism were taught to self‐monitor and then to self‐manage in order to increase variability in play and social language. All three students demonstrated marked increases in variability during self‐management phases. These gains were maintained at one month follow‐up. Copyright © 2000 John Wiley & Sons, Ltd.     

Parents,Siblings, or Friends? Exploring Life Satisfaction among Early Adolescents

This study analyzes 2,617 10–15 year olds surveyed in wave 1 of the United Kingdom Household Longitudinal Study (UKHLS). Specifically, it tests the associations of three variables with life satisfaction among early adolescents: parent–child relationship quality, being a perpetrator or victim of sibling bullying, and being a perpetrator or victim of friend bullying. The results suggest that all of these social relationships have significant associations with life satisfaction, both individually and in combination. Of the three, parent–child relationship quality explained the most variance in predicting life satisfaction. This is followed by friend victimization (i.e., being bullied by friends), whereas the influence of sibling victimization is significant but not as strong. This study also tests the interaction effects between parent–child relationship quality, sibling bullying, and friend bullying. The association of parent–child relationship quality with life satisfaction is found to be stronger among adolescents who were either victims of sibling bullying or of friend bullying, highlighting the protective importance of parent–child relationship quality. Lastly, when testing whether the influences of sibling bullying, friend bullying, and parent–child relationship quality vary between male and female adolescents, this study finds some significant gender differences. Specifically, the positive associations of lower friend victimization and better parent–child relationship quality with life satisfaction are found to be stronger among female adolescents.     

Pathways Between Social Support,Family Well Being,Quality of Parenting,and Child Resilience: What We Know

We contribute to the theoretical and research knowledge base regarding the pathways between parental social support, family well being, quality of parenting, and the development of child resilience in families with a child with serious emotional problems. Little conceptual development has been done that provides a theoretical framework for studying the relationships among these variables. We identify key findings from social support theory and research, including the impact of social support on family well being and the parents’ capacity to parent, and the experience of parental social support in families with a child with a disability. We review the constructs of family well being, quality of parenting, and child resilience. Further, we explain the pathways between parental social support, family well being, quality of parenting, and child resilience in families with a child with serious emotional problems. Key variables of the model and the nature of their inter-relationships are described. Social support is constructed as a protective mechanism with main and buffering effects that can impact family well being, quality of parenting, and child resilience at a number of junctures. The conceptual model’s implications for future theory development and research are discussed.