Serving Families of Children with Developmental Disabilities

Abstract

Increased cultural diversity in the United States and elsewhere in the west requires that the school special services providers be aware of differences among identity groups, and sensitive to how these variations influence parents' perceptions of, and responses to, their child with a developmental disability. Because concern about diversity is relatively recent, the data base for action is virtually nonexistent. Nonetheless, there exists sufficient information to alert the special services provider to such factors as culture, religion, race, and social class in developing service programs. Understanding the values, beliefs, and experiences of families enables one to provide more effective services than does operating with the assumption that everyone views the world through essentially the same lens.     

Fathers as Intervention Agents for Their Children with Developmental Disabilities

ABSTRACT

Parent training aimed at aiding children to overcome social and behavioral problems is an area that has continued to gain attention and support. Very little of the current research has been with developmentally disabled children, the focus of this study. Additionally, for most parent training programs, “parents” actually refers to mothers. In this study three fathers and their developmentally disabled children, who ranged in age from 2 years 10 months to 4 years 5 months, were studied. A multiple baseline across fathers' behaviors was utilized for participants to evaluate effects of parent training on fathers' target behaviors. Child compliance and inappropriate behaviors were also addressed. Parent training resulted in desirable changes on a range of target behaviors. The implications of these findings are discussed.     

Children with Disabilities

Abstract

Children in out-of-home care due to abuse and neglect are at disproportionately high risk for disabling conditions. The reasons for the over-representation of children with disabilities in the child welfare system are reviewed and discussed in this chapter. Factors discussed include impact of abuse and neglect, the impact risk factors such as exposure to community and domestic violence and poverty, risk of abuse or neglect associated with disability, and child welfare system factors. In addition, the need for greater efficacy in identification of disability, identification of service needs, and linkage with and delivery of services to serve the needs of children with disabilities in out-of-home care is addressed. Recommendations for policy review at State and Federal levels are offered along with direction for future research.     

There are Multiple Contributors to the Verbal Short-Term Memory Deficit in Children with Developmental Reading Disabilities

Prior research has put forth at least four possible contributors to the verbal short-term memory (VSTM) deficit in children with developmental reading disabilities (RD): poor phonological awareness that affects phonological coding into VSTM, a less effective phonological store, slow articulation rate, and fewer/poorer quality long-term memory (LTM) representations. This project is among the first to test the four suppositions in one study. Participants included 18 children with RD and 18 controls. VSTM was assessed using Baddeley's model of the phonological loop. Findings suggest all four suppositions are correct, depending upon the type of material utilized. Children with RD performed comparably to controls in VSTM for common words but worse for less frequent words and nonwords. Furthermore, only articulation rate predicted VSTM for common words, whereas Verbal IQ and articulation rate predicted VSTM for less frequent words, and phonological awareness and articulation rate predicted VSTM for nonwords. Overall, findings suggest that the mechanism(s) used to code and store items by their meaning is intact in RD, and the deficit in VSTM for less frequent words may be a result of fewer/poorer quality LTM representations for these words. In contrast, phonological awareness and the phonological store are impaired, affecting VSTM for items that are coded phonetically. Slow articulation rate likely affects VSTM for most material when present. When assessing reading performance, VSTM predicted decoding skill but not word identification after controlling Verbal IQ and phonological awareness. Thus, VSTM likely contributes to reading ability when words are novel and must be decoded.     

学习不良儿童的工作记忆

近年来大量的研究发现：阅读障碍儿童和数学学习不良儿童在言语工作记忆和执行性功能上存在缺陷;数学学习不良儿童在视-空工作记忆上也存在一定的缺陷,但关于阅读障碍儿童是否存在视-空工作记忆缺陷尚存在着争论;关于这种缺陷究竟是一种发展滞后还是发展缺陷尚存在着争论,与所采用的研究方法有一定关系。目前该领域在学习不良与工作记忆的因果关系,工作记忆测量材料的效度及其敏感性,工作记忆与其它认知功能的关系上面临挑战。因此,采用纵向的研究设计、多变量的统计技术,革新工作记忆的评估方法和技术,阐明工作记忆在各学业领域及亚领域中的作用及其内在工作机制是该领域的研究趋势。     

学习困难的ERP研究

事件相关脑电位（Event—related potentials,ERPs）是研究心理学和认知神经科学的重要技术手段,将该技术用于学习困难的脑机制的研究,有助于发现学习困难的神经机制。研究表明,学习困难者的P300波幅较小,潜伏期较长。学习困难者的MMN波幅比控制组小,在信息的自动加工方面存在缺陷。在单词命名任务中,学习困难者的N400较小,而且不同类型学习困难者的波幅和潜伏期存在明显差异。     

Violence Exposure Among Children with Disabilities

The focus of this paper is children with disabilities exposed to a broad range of violence types including child maltreatment, domestic violence, community violence, and war and terrorism. Because disability research must be interpreted on the basis of the definitional paradigm employed, definitions of disability status and current prevalence estimates as a function of a given paradigm are initially considered. These disability paradigms include those used in federal, education, juvenile justice, and health care arenas. Current prevalence estimates of childhood disability in the U.S. are presented within the frameworks of these varying definitions of disability status in childhood. Summaries of research from 2000 to 2008 on the four types of violence victimization addressed among children with disabilities are presented and directions for future research suggested.     

Assessing Preferences Among Behavioral Interventions With Japanese Parents of Children With Developmental Disabilities

As the cultural dynamic continues to become increasingly complex, it is critical to assess cultural factors that influence practice. The present study considers the treatment preferences of Japanese mothers of children with developmental disabilities. After answering demographic questions, each participant was given four scenarios and asked how they would respond by choosing one of four interventions (differential reinforcement, ignoring, reprimanding, and time-out). Overall, we found that parents preferred differential reinforcement strategies the most. Moreover, parents who reported that their children had a history of involvement with applied behavior analysis were especially likely to choose differential reinforcement. Implications for future research and practice are provided.     

数学学习困难与工作记忆关系研究的现状与前瞻

工作记忆是一种对信息进行暂时加工和贮存的能量有限的记忆系统,在许多复杂的认知活动中起重要作用,工作记忆缺陷是造成数学学习困难的根本原因。数学学习困难儿童都存在视觉空间模板、语音回路以及中央执行器功能等方面的缺陷,工作记忆的各成分对数学困难者的影响不同。今后研究将以整体的、发展的视角,不断改进研究方法,将行为研究和神经加工机制研究相结合。     

Teaching Pedestrian Skills to Individuals with Developmental Disabilities

The purpose of the present study was to examine the effectiveness of most to least prompting on teaching pedestrian skills to individuals with developmental disabilities. Five individuals with developmental disabilities were taught three different pedestrian skills, all related to crossing the streets, using simulation activities on a road model in the gym of their school. A multiple probe design across behaviors was used to evaluate the effects of most to least prompting. The results of the study revealed that most to least prompting was effective in teaching pedestrian skills. The subjects learned each of the skills and managed to generalize these skills to the actual city traffic.     

Developmental Patterns and Use of the Wisconsin Card Sorting Test for Children and Adolescents with Learning Disabilities

This study examined the Wisconsin Card Sorting Test (WCST) by testing 129 children and adolescents with learning disabilities (LD) who were between 7 and 13 years of age. Developmental trends were examined across age groups using scores from the WCST. Several scales yielded developmental patterns, supported by statistically significant main effects for age. Additionally, multiple regression analyses were run examining the relationship of the WCST with other measures. The models yielded were in predicted directions. The results of this study support the clinical utility of the WCST in children and adolescents with LD.     

Personal and Environmental Factors Predict Participation of Children With and Without Mild Developmental Disabilities

Enhancing participation in age-related activities is a key goal in the education and rehabilitation of children with diverse disabilities. The aim of this study was to explore a multidimensional and ecological model of participation for young children. Seventy eight children with mild developmental disabilities (MDD, such as motor and visual-motor difficulties), and 110 children without disabilities, between the ages 4 and 6 years old, participated in the study together with their parents. Data were collected using standardized assessments for child capacities and newly developed questionnaires for child participation and for human and physical environmental factors. Associations were found between personal and environmental factors and the participation dimensions amongst young children, thus supporting the validity of the proposed model of participation. Moreover, the study results outline different pathways for the participation of children with and without MDD. Child factors (e.g. process skills) were found to be crucial predictors of participation particularly for children with MDD, whereas human environmental factor (e.g. maternal self-efficacy beliefs) was associated with higher participation scores especially for children without disabilities. These findings may facilitate the development of effective intervention programs which focus on environmental factors as well as on child factors.     

Motives for Fostering Children with Alcohol-Related Disabilities

A sample of 63 licensed foster parents was asked, “What motivates you to foster a child who has a fetal alcohol spectrum disorder?” The responses to this question were grouped together by licensed foster parents. The grouped data were subjected to multidimensional scaling and cluster analysis. Results indicated that foster parents were motivated to care for children with alcohol-related disabilities by witnessing positive changes in the children in their care, helping children focus on their strengths, using their own parenting experience, earning an income, assisting children who have disabilities, and helping children stay connected to their families and communities. Foster parents who foster children with alcohol-related disabilities foster for similar reasons to those who foster children with special needs in general. Differences between the literature on foster parent motives and study results were described. Foster parents who are caring for children with alcohol-related disabilities see their care as specialized, see their roles as long-term helpers facilitators to children, their birth families and home communities, and emphasize positive experiences of fostering.     

Sustainable Family Care for Children with Disabilities

The majority of parents want to continue caring for their sons and daughters with disabilities at home, and they are expected and actively encouraged to do so. Notwithstanding, and for reasons that are not well understood, a substantial number of parents seek to place their disabled son or daughter out-of-home. The aim of this study was to investigate the attitudes of parent-carers in Alberta, Canada, toward out-of-home placement. The primary objective was to identify factors that may explain why some families, and not others, seriously consider out-of-home placement as an option for their child. This knowledge is vital for developing social care policies and programs that support parents and promote sustainable family care for children with disabilities. A stratified (by child age group) random sample of 538 families raising children with disabilities in Alberta, Canada took part. Participants completed the family life survey, which incorporated measures of child and family characteristics, sustainability of the daily routine, and out-of-home placement propensity. Results suggest that family placement propensity is inversely associated with the sustainability of the daily routine. Sustainability of the daily routine is, in turn, more strongly associated with social-ecological resources, including parental control-over-work and the adequacy of child care options, than with child characteristics, including activity limitations and behaviour problems. If families have the social-ecological resources they need to create and maintain a daily routine that is congruent with their values and goals, and with the needs, interests and competences of family members, then they are unlikely to give out-of-home placement any serious consideration.     

Promoting Functional Ambulation with People with Blindness and Multiple Disabilities

An intervention package comprising auditory cues, physical prompts preceded by vibratory (anticipatory) stimuli, and reinforcement was used to promote ambulation to target places with 2 men with total blindness, profound intellectual disability, and behavioural problems. Data showed that both men acquired successful ambulation to the target places, becoming almost totally independent of the physical prompts. Implications of the findings are discussed.     

阅读理解困难儿童的理解监控能力研究

在理解监控水平研究的基础上,引入阅读目的因素,综合考察阅读理解困难儿童的理解监控能力.结果发现:(1)理解困难儿童的阅读目的和正常儿童一样,倾向于从文本信息中获取意义,但这种阅读目的的强度要落后于正常儿童;(2)理解困难儿童对阅读的理解监控水平落后于正常儿童,这是由于阅读目的的影响,他们的理解监控能力与正常儿童相当.     

Promoting Mild Physical Exercise in a Person with Profound Multiple Disabilities

Prompt/orientation cues delivered through an automatic system were combined with one or two reinforcement events in order to promote mild physical exercise independent of staff in a man with profound multiple disabilities. The exercise sessions were gradually extended to 60 minutes. Data indicated that the man achieved high levels of exercise engagement. There were minimal differences in terms of engagement between sessions with one reinforcement event and those with two reinforcement events. Yet, in the latter sessions, the man had higher levels of positive mood. Implications of the findings are discussed.