Service Needs of Foster Families with Children who have Disabilities

We examined the service needs of foster families with children who have disabilities. Foster parents in a large Canadian city were asked “What services or supports would be helpful to you?” The responses to this question were edited for clarity and to eliminate redundancies, and sorted into piles of like statements by a group of 15 foster care professionals. Two types of statistical analysis were applied to the sorting of the statements to describe the relationship between statements and their groupings. The major concepts were identified according to the contents of the cluster and a map was constructed to provide a graphic representation of the conceptualization process. The major services and supports identified in this study were: support in the community, financial support, accommodating school system, good relationships with social workers, responsive professionals, information, comprehensive medical care, services for aboriginal children and families, transitional services, and respite.     

Voluntary parents to multiple children with special needs: A profile

A sample of 18 women and men who accompanied their foster or adopted children with severe developmental disabilities to a medical appointment at Henry Ford's Multidisciplinary Care Clinic during the one-year period and who reported during that appointment that they currently had residing with them at least three foster or adopted children with special needs are described in the context of their parental role vis-a-vis these children. Results of the study are presented through use of a six-part organizational scheme: demographic and social traits of the parents and their focal children (the children being seen at the Clinic that day), the focal children in family context, life satisfactions of the parents, foster or adoption motives (whichever applied), foster or adoption satisfactions, and parental sentiments regarding the children as a group.     

残疾儿童家长亲职压力的特点及其与生活质量的关系:社会支持的中介作用

本研究旨在考查残疾儿童家长亲职压力的特点, 并探讨亲职压力、社会支持对生活质量的影响。使用《亲职压力指标简表》、《社会支持评定量表》和《世界卫生组织生活质量测定简表》(中文版)对孤独症、智力残疾、听力残疾、视力残疾以及脑瘫5种残疾类型儿童的369名家长进行问卷调查。结果发现:(1)残疾儿童家长亲职压力及其各维度在不同残疾儿童类型中差异显著, 孤独症儿童家长在总分及各维度中均最高, 听力残疾儿童家长均最低;(2)亲职压力各维度与社会支持各维度以及生活质量各维度均呈显著负相关, 社会支持各维度与生活质量各维度之间均呈显著正相关;(3)亲职压力与生活质量的典型相关分析表明两者的整体相关显著;(4)社会支持在亲职压力和生活质量间起部分中介作用。     

Increasing pretend toy play of toddlers with disabilities in an inclusive setting

We evaluated a program for increasing pretend toy play of 2-year-old children with disabilities in an inclusive classroom. Classroom personnel implemented the program, which involved choices of classroom centers containing toys that tend to occasion pretend play in toddlers without disabilities, along with prompting and praise. Increases occurred in independent pretend-play rates among all 5 participating toddlers. Results are discussed regarding the importance of promoting toy play of very young children with disabilities that is similar to the type of play of their nondisabled peers, and the need to identify critical program components that are applicable in inclusive settings. DESCRIPTORS: pretend play, young children with disabilities     

A pilot study exploring the use of a telephone-assisted planning intervention to promote parental support for physical activity among children and youth with disabilities

Parent support is an important contributor to physical activity (PA) among children and youth with disabilities (CYD). Although many parents of CYD are motivated to provide parent PA support, CYD remain insufficiently active. The multi-process action control model has been applied to understand parent PA support and highlights behavioral regulation strategies such as action and coping planning as critical for translating intentions into behavior. Parents may struggle to create and carryout planning without support. There is no known research examining telephone support as a tool to promote planning and subsequent parent PA support behavior.MethodParents (43 mothers and 6 fathers) of CYD (child M_age = 12.53 years ± 5.53; 75% male; 38.6% developmental disability) completed a baseline questionnaire and were subsequently randomized to a telephone-assisted planning experimental group twice over four weeks (n = 23) or a control group who had access to planning tools but no telephone assistance (n = 26).ResultsNo significant main or interaction effects emerged for parent PA support behavior. However, a significant time × condition interaction was found for behavioral regulation strategies (i.e., action and coping planning and self-monitoring; F(1,44) = 5.05, p = 0.03) indicating a significant increase in the use of behavioral regulation strategies for parent PA support from baseline, for parents assigned to the telephone-assisted intervention.ConclusionThese findings suggest potential for planning support as a tool to enhance behavioral regulation strategies related to parent PA support among parents of CYD.     

A multisource exploration of the friendship patterns of children with and without learning disabilities

Friendship patterns of 117 children with learning disabilities (LD) and 115 children without LD in Grades 4–8 were examined. In comparison with children without LD, boys with LD had fewer mutual friends, children with LD had more friends with learning problems and more younger friends, and children with LD in Grades 4–6 had less stable relationships. With regard to friendship quality, children with LD reported higher levels of conflict, lower levels of validation, and more problems with relationship repair than did children without LD. The findings were discussed in terms of factors that have been found to enhance friendship such as proximity and similarity, and the social skills difficulties that have been associated with learning disabilities.     

Social support,psychological vulnerability,and HIV risk among African American men who have sex with men

Previous research has suggested a need to understand the social-psychological factors contributing to HIV risk among African American men who have sex with men (MSM). We conducted individual in-depth interviews with 34 adult African American MSM to examine their personal experiences about: (i) sources of social support, (ii) psychological responses to the presence or absence of social support and (iii) influences of social support on sexual behaviours. The majority of participants described limited positive encouragement and lack of emotional support from family, as well as few meaningful personal relationships. Feelings of isolation and mistrust about personal relationships led many participants to avoid emotional intimacy and seek physical intimacy through sexual encounters. Findings highlight a need for multilevel interventions that enhance social support networks and address the social-psychological, emotional and interpersonal factors that contribute to HIV risk among African American MSM.     

二胎家庭的父母养育

随着我国全面二胎政策的实施,关于二胎家庭父母养育的问题越来越受到社会的广泛关注。但是,在我国这方面的研究极度稀缺。本文就二胎家庭父母养育的表现形式、影响因素及作用机制进行论述。二胎家庭父母养育的表现形式包括父母差别对待、协调同胞关系等。二胎家庭父母养育的影响因素包括父母养育第一胎的经验、婚姻质量、协同养育、儿童特点等。二胎父母养育的作用机制包括父母差别对待造成的儿童心理发展问题,以及父母在协调同胞关系中的作用。此外,本文结合已有文献,提出了一个"二胎家庭父母养育的过程机制"模型,揭示在二胎家庭情境下,各种因素是如何影响父母的养育模式,又通过哪些作用机制对家中的两个孩子产生影响。最后,强调未来我国的研究者应该重视本土化,关注社会变迁中二胎父母养育的特点。     

Social support networks, stress, sense of coherence and academic success of university students with learning disabilities

The current study evaluated the extent to which 191 university students with learning disabilities (LD) differed from 190 students without disabilities in terms of their perceived social support, stress and sense of coherence. The study also investigated students’ perceptions of their academic success at university as compared with their rating of their struggles and failures. Findings indicated that students with LD perceived themselves as having less social support than did students without LD. Students without LD were more likely than students with LD to attribute their academic success to study skills and to their academic characteristics, while students with LD were more likely to attribute their academic success or lack of success to external factors. Although overall the levels of stress reported by the entire sample were relatively low, students with LD tended to experience slightly higher academic stress than students without LD.     

Psychotherapy with children in refugee families who have survived torture: Containment and understanding of repetitive behaviour and play

Children of refugee families who have survived torture often have emotional, psychosomatic and behavioural problems as well as problems with learning. In order to understand the difficulties of these children, we have to recognize the complicated interaction of cumulative traumatic strain and recurring exposure to shocking violence. The traumatic experiences of the child in the country of origin take place in the broader context of chronic danger and persecution, often to be followed in the country of exile both by recurrent family strain and social estrangement. In the transference this complicated mixture of repeated trauma and chronic strain may show as a pervasive tendency to retreat to defensive survival strategies combined with continual repetition of more specific traces of the impact of the trauma on the individual. This paper focuses on how the enacted survival strategies can be contained and understood in the transference. In due course the compulsive repetition can be given meaning as a precondition for better integration through symbolic thought and self-understanding.     

Functional reading for students with developmental disabilities who are linguistically diverse

Students with moderate and severe disabilities often have language deficits that make the acquisition of reading challenging. Sight word instruction of daily living skills is one method of intervention that benefits students with severe disabilities who have not achieved literacy. When students with developmental disabilities are also linguistically diverse, acquisition of reading skills becomes more complex. Sight words must be chosen that are relevant to the students own community. A critical decision in planning sight word instruction is whether to provide instruction in the student's primary language or in English. These issues are discussed and an illustration is given of the heterogeneity among students with developmental disabilities who are linguistically diverse.     

Stress in Mothers with Intellectual Disabilities

Both low parental IQ and stress have been shown to be associated with parenting difficulties and adverse child outcomes. We examined stress in parents with low IQ as a potential contributor to their documented parenting problems. Eighty-two mothers with intellectual disabilities (IQ < 80; labelled as having mental retardation) were given the Parenting Stress Index and they were found to be enduring very high levels of overall stress (95th percentile), stress related to child characteristics (95th percentile), and stress related to other life experiences (90th percentile) as compared to the normative test group. We divided the 82 mothers with intellectual disabilities into three groups depending on the age of their children. The mothers with school-age children reported significantly higher stress than parents of infant/toddler and preschool children. A hierarchical regression analysis revealed that child age and living in a crowded environment were significant predictors of parenting stress. The results confirm that mothers with intellectual disabilities experience extreme stress that, together with other factors, may hinder adequate parenting.     

Working memory in children with reading disabilities

This study investigated associations between working memory (measured by complex memory tasks) and both reading and mathematics abilities, as well as the possible mediating factors of fluid intelligence, verbal abilities, short-term memory (STM), and phonological awareness, in a sample of 46 6- to 11-year-olds with reading disabilities. As a whole, the sample was characterized by deficits in complex memory and visuospatial STM and by low IQ scores; language, phonological STM, and phonological awareness abilities fell in the low average range. Severity of reading difficulties within the sample was significantly associated with complex memory, language, and phonological awareness abilities, whereas poor mathematics abilities were linked with complex memory, phonological STM, and phonological awareness scores. These findings suggest that working memory skills indexed by complex memory tasks represent an important constraint on the acquisition of skill and knowledge in reading and mathematics. Possible mechanisms for the contribution of working memory to learning, and the implications for educational practice, are considered.     

Participation in school environment of children and youth with disabilities: a person-oriented approach

This study investigated patterns of interrelated positive subject and environmental factors related to participation in school activities of pupils with different kinds of disabilities. Questionnaires concerning participation were collected from 472 pupils with disabilities and their teachers, parents and special education consultants. A person-oriented approach with the aim to identify patterns of variables related to a high degree of participation of pupils with disabilities was used. Cluster-groups were formed based on scores for individual subjects on factors identified as important for participation. Groups with a high degree of participation were characterized by high scores in autonomy and perceived interaction with peers and teachers and an internal locus of control. Type and degree of disability did not predict cluster group membership. A conclusion is that the outcome participation is better predicted by patterns of interrelated positive subject and environmental factors than by type of disability or any other single factor.     

Developing empowering research practices with people who have learning disabilities

In this paper we report an exploratory attempt to design a practice that facilitates the extent to which ‘researched-upon’ and ‘researcher-on’ can be cooperatively involved in the planning, data collection and interpretation of research in the field of learning disability and community living. The informants were four people with learning disabilities who had been residents of long-stay mental hospitals but, at the time of the study, had all been living in the community for at least 1 year. After an extended period of informal familiarization, the research had three main phases. The first phase consisted of five individual, non-directive, depth interviews over a 2-month period. The second phase consisted of a meeting in which each participant became a paid co-researcher involved in the design and planning of the next phase of the research. The third phase consisted of three 1-hour guided neighbourhood tours led by the participants who had become co-researchers. Over the course of the three phases, the role of the researcher gradually became more a ‘newcomer-learner’ as he adopted the role of co-researcher and the role of participants with learning disabilities gradually became more ‘expert-teachers’ as they adopted the role of co-researchers. As the research progressed, the balance of power shifted, although modestly, in favour of those with learning disabilities. This led to an improvement in the quality and effectiveness of communication and understanding and an increase in the satisfaction with and enjoyment of the research process for all those involved. © 1998 John Wiley & Sons, Ltd.     

The Effectiveness of Audiovisual Self-Instructional Materials in Teaching Child-Care Skills to Parents with Intellectual Disabilities

Children of parents with intellectual disabilities are at risk for neglectful care due to parenting skill deficiencies. Previous studies have shown that parents with intellectual disabilities can improve child-care skills with intensive behavioral training, but self-instruction has not been explored. We evaluated the efficacy of self-instructional pictorial child-care manuals with and without accompanying audiotaped instruction using a multielement design with 13 parents with intellectual disabilities. The self-instructional materials were effective in teaching 22 of 26 skills to levels seen in parents without intellectual disabilities. Eighty-one percent of the skills maintained over a 1-15 month follow-up period and self-learning effects were replicated when the parents received self-instructional materials for the original no-training control skill. Despite the low literacy skills of the parents, for most of them no advantage was found in adding the audiotape to the illustrations. Three parents only reached criterion after an audiotape was added to the manual alone skill. Consumer satisfaction ratings were uniformly high and those parents who stated a preference, preferred the pictorial manuals without, as opposed to with, the audiotape. These findings suggest that a majority of parents with intellectual disabilities may improve their parenting skills with low cost, low tech, self-instructional materials.     

PYRAMIDAL PARENT TRAINING BY PEERS

This study replicated a pyramidal model of parent training by peers and compared its effects with training by a professional with 26 parents of children with disabilities. A multiple probe design across 3 tiers of parents showed that both types of training produced acquisition, maintenance, and to varying extents, generalization of parents' teaching skills, with concomitant increases in the children's performance in most cases. Improvements were comparable for parents trained by a professional or by peers, and for parents who did and did not serve as peer trainers.