Why Do Parents Want to Know their Child’s Carrier Status? A Qualitative Study

When a child is identified with a genetic condition, some parents want to know the carrier status of their other children. There has been little exploration of why parents want this information. To address this question, semi-structured interviews were conducted with parents of 32 children with cystic fibrosis, haemophilia, and Duchenne muscular dystrophy who wanted to know the carrier status of their other children. Data was analyzed using inductive content analysis. Parents expressed a range of reasons for desiring their child’s carrier status, which fell into two broad categories: 1) benefit for the parents and 2) perceived benefit to the child. Parents discussed the desire for certainty and peace of mind derived from having knowledge of their child’s status. The most commonly expressed reason for wanting to know their child’s carrier status was in order to communicate the information to their child to provide them with the ability to make informed reproductive decisions. These reasons suggest parents are seeking their children’s carrier information both as a coping strategy and to communicate carrier information as part of their role as a parent. This has important implications for genetic counseling practice, especially as international guidelines generally recommend against carrier testing in children.     

Know how to be Gettiered?

Jason Stanley and Timothy Williamson’s influential article “Knowing How” argues that knowledge‐how is a species of knowledge‐that. One objection to their view is that knowledge‐how is significantly different than knowledge‐that because Gettier cases afflict the latter but not the former. Stanley and Williamson argue that this objection fails. Their response, however, is not adequate. Moreover, I sketch a plausible argument that knowledge‐how is not susceptible to Gettier cases. This suggests a significant distinction between knowledge‐that and knowledge‐how.     

Know How to Transmit Knowledge?

Intellectualism about knowledge‐how is the view that practical knowledge is a species of propositional knowledge. I argue that this view is undermined by a difference in properties between knowledge‐how and both knowledge‐that and knowledge‐wh. More specifically, I argue that both knowledge‐that and knowledge‐wh are easily transmitted via testimony while knowledge‐how is not easily transmitted by testimony. This points to a crucial difference in states of knowledge. I also consider Jason Stanley's attempt to subsume knowledge‐how under an account of de se knowledge. I argue that there are crucial differences between de se knowledge and knowledge‐how. Thus, this paper advances both the discussion of intellectualism and the literature on the nature of de se knowledge.     

Disclosing Fathers’ HIV Infection to their Sons in Togo

This study examined the views of parents living with HIV/AIDS (PLWHA) and healthcare providers in Togo, on the appropriateness of HIV-infected fathers disclosing their serostatus to their sons. In early 2016, 177 PLWHA (95 mothers and 82 fathers) and 123 healthcare providers (20 physicians, 24 nurses, 41 nurse’s aides, 13 health counsellors, and 25 psychologists) judged the appropriateness of disclosure in 48 scenarios. These scenarios were composed by systematically varying the levels of four factors derived from previous studies on disclosure of bad news: the visibility of symptoms, the son’s level of psychological robustness, the son’s age, and whether the mother was involved in the decision. Seven qualitatively different positions were found: Depends on Son’s Maturity (20%), Depends on Mother’s Involvement in the Decision and Son’s Maturity (19%), Always Quite Appropriate (16%), Depends on Visibility of Symptoms and Son’s Maturity (15%), Depends on Mother’s Involvement in the Decision (14%), Depends on Son’s Age (9%), and Don’t Tell to Adult Son (7%). Healthcare providers (59% of nurses and 25% of physicians) were more likely than PLWHA (10%) to endorse the view that disclosure is Always Quite Appropriate. These findings suggest that interventions to encourage and support parental HIV disclosure in Togo, and possibly in other sub-Saharan African countries, must not be “one size fits all”, but must be tailored in design and implementation to address parents’ differing views, fears, and needs.     

Preschoolers’ autobiographical memory specificity relates to their emotional adjustment

Reduced autobiographical memory specificity (AMS) has robust associations with psychopathology. As such, understanding the development of AMS (or its inverse, overgeneral autobiographical memory) and how it may be unique from other aspects of memory performance is important. In particular, it is unclear whether child AMS is distinct from autobiographical memory performance in other contexts, such as during mother–child reminiscing, and whether reduced AMS during early childhood is associated with emotional adjustment as found later in development. In this study, associations between children’s AMS and memory performance during mother–child reminiscing were evaluated. Moreover, the contributions of each type of child memory performance to child internalizing and externalizing symptoms were examined. Participants included 95 mother–child dyads drawn from a diverse, low-income community. Children’s ages ranged from 3.5 years to 6 years. Dyads participated in a joint reminiscing task about 4 past events, children participated in assessments of AMS, and mothers rated children’s emotional adjustment. Path analysis results indicated that children’s AMS was not significantly related to children’s unique memory contributions during reminiscing. Child AMS was negatively associated with emotional symptoms, whereas child memory during reminiscing was not.     

Australian parents’ willingness to use a rideshare vehicle to transport their unaccompanied children

This study aimed to identify the key factors associated with Australian parents' willingness to use a rideshare vehicle to transport their unaccompanied child(ren). Six hundred and thirty-one participants completed an online survey (M = 39.2 years, SD = 10.5, Range = 18.0–70.0 years; Female: 63.4%). Most participants (62.1%) reported that they would 'never' use a rideshare vehicle to transport their unaccompanied child(ren). The results of a logistic regression model showed that participants': previous use of a rideshare vehicle with their child, annual mileage, propensity for technology adoption, aberrant driving behaviours, as well their requirements for vehicle features were significantly associated with their willingness to use a rideshare vehicle to transport their unaccompanied child, χ2(7) = 159.59, p < 0.001. Overall, the findings suggest that Australian parents are mostly ‘unwilling’ to use a rideshare vehicle to transport their unaccompanied children. Understanding the views of parents towards emerging transportation modes for their children is crucial for urban planning, traffic engineering, economic and social mobility and ultimately, on supporting safe modes of transportation.     

How are children’s perceptions of the malleability of their academic competencies related to their teachers’ and parents’ views?

The study examined children’s and their parents’ and teachers’ perceptions of the malleability of the child’s academic competencies. A total of 103 third- and sixth-graders and their parents and teachers were asked to rate how much the child could improve her/his competencies in mathematics and Finnish. The participants were asked to use intrapersonal and interpersonal criteria in their ratings, i.e., to rate the child’s potential for improvement in comparison with his/her own current competencies and in relation to her/his peers’ competencies. The results showed a tendency that older children’s perceptions were closer to their parents’ and teachers’ views than those of younger children. Children of academically educated parents showed a stronger correlation with their teachers’ and parents’ intrapersonal perceptions than children of vocationally educated parents. The results also suggested that the teachers and parents trusted in boys’ intrapersonal potential in Finnish more than in girls’ but there were no gender-differences in their perceptions concerning mathematics. In all, the children’s intrapersonal perceptions of their improvement potential were the most optimistic, followed by their parents’ and lastly by their teachers’ perceptions.     

What You Don’t Know Won’t Hurt You,Unless You Don’t Know You’re Wrong

The purpose of this investigation was to determine the impact of students’ background knowledge and how they utilized “don’t know” affordances to comprehend and learn from text. In two studies, over 8,000 middle and high school students interacted with a content-area learning environment in which they answered a series of background knowledge questions before they completed a unit on the same topic. Students were given the opportunity to indicate they “did not know” the answers to the knowledge questions. Higher knowledge was related to higher understanding, and the use of the “don’t know” option further explained variability in students’ understanding of the sources beyond background knowledge. When responding to knowledge questions, students who selected incorrect options before the task understood less and were less likely to learn content when given the opportunity compared to students who indicated they did not know. Thus, low knowledge students were still able to comprehend and learn as long as they acknowledged they lacked background knowledge. One’s comprehension and learning can be facilitated or impaired, depending upon the veracity of their knowledge, and whether students choose to acknowledge their lack of background knowledge. Implications of this work are discussed in terms of learning and instruction.     

Analysis of Multiple Partially Ordered Responses to Belief Items with Don’t Know Option

Understanding beliefs, values, and preferences of patients is a tenet of contemporary health sciences. This application was motivated by the analysis of multiple partially ordered set (poset) responses from an inventory on layman beliefs about diabetes. The partially ordered set arises because of two features in the data—first, the response options contain a Don’t Know (DK) option, and second, there were two consecutive occasions of measurement. As predicted by the common sense model of illness, beliefs about diabetes were not necessarily stable across the two measurement occasions. Instead of analyzing the two occasions separately, we studied the joint responses across the occasions as a poset response. Few analytic methods exist for data structures other than ordered or nominal categories. Poset responses are routinely collapsed and then analyzed as either rank ordered or nominal data, leading to the loss of nuanced information that might be present within poset categories. In this paper we developed a general class of item response models for analyzing the poset data collected from the Common Sense Model of Diabetes Inventory. The inferential object of interest is the latent trait that indicates congruence of belief with the biomedical model. To apply an item response model to the poset diabetes inventory, we proved that a simple coding algorithm circumvents the requirement of writing new codes such that standard IRT software could be directly used for the purpose of item estimation and individual scoring. Simulation experiments were used to examine parameter recovery for the proposed poset model.     

African parents’ estimates of their own and their children’s multiple intelligences

A total of 421 parents from four Southern African countries (Nambia, South Africa, Zambia, and Zimbabwe) estimated their own and their children’s multiple intelligences. There were consistent country and sex differences in self-estimates. Nambians tended to give lowest self-estimates and Zambians highest self-estimates. Contrary to previous findings from other continents females gave higher self-estimates than males on all seven multiple intelligences. These results were mirrored in the estimation of children: females gave higher scores than males and Zambians gave highest estimates and Nambians lowest. Reasons for these findings are discussed.     

How schoolchildren’s acceptance of self and others relate to their attitudes to victims of bullying

Previous research has indicated that harm to the mental health of children who are repeatedly victimised by their peers at school can be ameliorated through social or emotional support provided by other students. In this study we examined whether student provictim attitudes are related to more basic attitudes to self and attitudes to others. Measures of these attitudes were developed for use with children, and shown to be internally consistent and possess concurrent validity. Relations between these variables were then examined with a sample of Australian school children ( $N = 212$ ) aged between 9 and 14 years. Provictim attitudes correlated significantly ( $r = .55$ ) with acceptance of others, but not with acceptance of self ( $r = -.04$ ). Controlling for age and gender, multiple regression analyses confirmed these findings. Attitudes to victims were less positive for older students ( $r = -.22$ ). Gender differences, however, were not significant. These findings suggest that among schoolchildren self-acceptance is unrelated to positive attitudes towards victims, whereas acceptance of others has a moderately strong relation with provictim attitude. Implications for improving attitudes to victims among school children were examined.     

Siblings’ Understanding of Teaching in Early and Middle Childhood:‘Watch Me and You’ll Know How to Do It’

This study examined siblings’ knowledge about the teaching concept during naturalistic teaching contexts, wherein children’s communicative interactions were used as a gateway to their social understanding (Turnbull, Carpendale, & Racine, 2009). Participants included 39 sibling dyads (older age group, M_age = 6;4; younger age group, M_age = 4;5) observed for six 90-min sessions at home. Teaching episodes were identified and coded for: a) initiation of teaching (i.e., assumes role or learner requests teaching), b) knowledge states (i.e., knowledge, lack of knowledge, questioning knowledge), c) transfer of knowledge (i.e., learning), and d) teaching strategies (e.g., direct instruction). Children who assumed the teaching role referenced knowledge and questioning knowledge, whereas learners requested teaching by referencing a lack of knowledge. Firstborn learners were more likely to reference knowledge versus second-born learners who referenced a lack of knowledge. Transfer of knowledge occurred when teachers referenced knowledge. When learners referenced knowledge states, teachers were more likely to use direct instruction, demonstration, and negative feedback. Results underscore the developmental significance of sibling teaching and demonstrate a novel approach to studying children’s social understanding in the teaching context (Turnbull et al., 2009).     

Patients’ Initial Doubts, Reservations and Objections to the ABC’s of REBT and their Application

This exploratory research set out to develop an initial framework and categorization scheme for understanding patients’ initial doubts, reservations and objections to the ABC’s of REBT and their application. 60 patients were asked to write down their doubts following a pre-therapy “Introduction to REBT” session. Subsequently, an emergent content analysis was carried out to identify main themes. The content analysis revealed five general categories, of which the two largest ones concerned theoretical doubts about the ABC model, and doubts about putting the ABC model into practice. Further sub-categorization revealed a variety of concerns that related to these categories. For example, a large proportion of doubts about putting the ABC model into practice were sub-categorized as concerning the perceived difficulty of doing so. In turn, this sub-category contained further sub-categories of difficulty-related beliefs.

Influence of African American elders’ age stereotypes on their cardiovascular response to stress

Abstract

Although it has been shown that White elders are vulnerable to the influence of age stereotypes, it was not known whether this effect applied to African American elders. In the present study, African American elders were randomly assigned to negative or positive implicit-age-stereotype groups. Compared to participants in the positive age-stereotype group, those in the negative age-stereotype group demonstrated significantly more elevated cardiovascular response to stress, as measured by blood pressure and heart rate following mental challenges. These results suggest that negative age stereotypes generate a susceptibility to stress among African American elders, whereas positive age may provide them with a defense against this stress.     

Pilot test of a measure to assess clients’ perceptions of their home visitors

Home visiting services for caregivers of infants and young children have been found to be an effective method for promoting child development. Unfortunately, such services suffer from high rates of attrition, suggesting the need to identify factors related to client retention in services. Research has indicated that the client-provider relationship is an important predictor of client retention in home visiting services; however, measures to assess this relationship are limited. This study reports on a pilot test of the Client Perceptions of Home Visitors Questionnaire, developed to assess home visiting clients’ perceptions of their relationship with their home visitor. The measure was completed by 39 diverse home visiting clients during pregnancy in a midwestern town in the United States. The scale was found to have good internal consistency. Validity analyses found that the scale was positively associated with client satisfaction with services and perceived provider cultural sensitivity. The scale was also positively associated with retention in services at an 8-month follow-up. Additional research should examine the measure's psychometrics with larger samples.     

Key factors associated with Australian parents’ willingness to use an automated vehicle to transport their unaccompanied children

This study aimed to identify the key factors associated with Australian parents' willingness to use an automated vehicle to transport their unaccompanied child(ren). Seven hundred and seventy-five participants completed the online survey (M = 40.7 years, SD = 8.9 years, Range = 18.0–65.0 years; Female: 56.4%). Most participants reported that they would 'never' use an automated vehicle to transport their unaccompanied child(ren) (43.5%). The results of a logistic regression model showed that participants' age, gender, level of education, propensity for technology adoption, aberrant driving behaviours, awareness of advanced driver assistance safety (ADAS) technologies, perceived knowledge regarding automated vehicles, as well their requirements for assurance-related vehicle features were significantly associated with their willingness to use an automated vehicle to transport their unaccompanied child(ren), χ2(12) = 137.41, p < 0.001). Overall, the findings suggest that Australian parents are mostly unwilling to use an automated vehicle to transport their unaccompanied child(ren) unless various reassurance features and technologies (i.e., microphones, camera, ability to summon assistance if the vehicle breaks down) are embedded in the vehicle. Therefore, automated vehicle manufacturers are encouraged to consider these requirements when prototyping their designs so that all user groups, including child occupants, can benefit from the impending arrival of automated technologies.     

Humans’ folk physics is not enough to explain variations in their tool-using behavior

Two experiments examined adult humans’ folk physics (i.e., their naturally occurring and spontaneous understanding of the physical world) using variations of trap-table problems used to study chimpanzees’ folk physics. When presented with these problems, people unnecessarily avoided retrieving a reward by pulling a rake on the side of a table with a trapping hole—even though it was highly unlikely that the hole would trap the reward. However, when the distance between the reward and the trap was sufficiently large and the distance that the reward had to travel to be retrieved was sufficiently short, people preferred to retrieve a reward by pulling the rake on the side of the table with the trap. These results underscore that behavior during tool-use tasks has many possible causes, only one of which might be a subject’s folk physics.     

Better the Devil You Know? High-Risk Individuals’ Anticipated Psychological Responses to Genetic Testing for Melanoma Susceptibility

Purpose: The psychological consequences of genetic testing for mutations among individuals at increased risk of developing melanoma remain unexamined. The present study aimed to explore anticipated emotional, behavioral, cognitive, and familial responses to hypothetical genetic testing for melanoma susceptibility. Methods: Forty semi-structured interviews were undertaken with affected (n=20) and unaffected (n=20) individuals at either high or average risk of developing melanoma due to family history. Results: In-depth thematic analysis revealed that, in response to being identified as a mutation carrier, most participants with a family history anticipated calmly accepting their increased risk; either increasing precaution adoption or maintaining already vigilant behavioral practices; perceiving such information as important and valuable; and communicating genetic test results to family members, despite the acknowledgement of potential difficulties. In response to being identified as a non-carrier, the majority of participants expected to feel relieved; to maintain current precautionary health practices; to still perceive themselves at some risk of developing melanoma; and to be wary of the potential negative behavioral consequences of disclosing such information to family members. Women appeared more likely than men to acknowledge the potential for depression and worry following genetic testing. In contrast, more males than females expected to carry a gene mutation, and viewed their current preventive practices as optimum. Conclusion: Genetic testing for melanoma risk is likely to elicit a complex array of emotional, behavioral, cognitive, and familial responses for both testees and their family members, and these responses are likely to bear subtle differences for males and females.