Assessment of Work–Family Conflict Among Women of the Sandwich Generation

The term sandwich generation refers to the middle-aged generation who are responsible for caring elderly parents and dependent children. This situation is worse in case of working women who have job obligations along with family responsibilities. Therefore, this study is aimed to investigate level of the four-dimensional work–family conflict among working women of the sandwich generation. This cross-sectional study was conducted among 90 Malaysian working women using self-reported data. Multiple-stage simple random sampling was used to recruit women from public service departments of Malaysia. Self-administrated questionnaires were used for data collection. Data were analyzed using SPSS version 21. One-third of our respondents (33.3%) are members of sandwich generation who simultaneously provide care to elderly parents and children. However, 66.7% of women in this study are caregivers for either elderly parent or their children. The results of t-test showed that level of time-based FIW was significantly (t?=?? 2.02, p?<?0.05) higher in sandwich generation members (Mean?=?12.33, SD?=?1.95) compared to women caring for either parent or children (Mean?=?11.25, SD?=?2.58). The results of Multiple linear regression indicated that membership in sandwich generation significantly predict (b?=?0.26, p?<?0.05) FIWt after controlling for the effect of socio-demographic variables. Our findings showed that women who simultaneously take care of both elderly parent and children significantly experience higher level of time-based Family Interference into Work (FIWt). In contrast, membership in sandwich generation was not related to higher level of time-based Work Interference into Family (WIFt).     

Views on Aging: How Caring for an Aging Parent Influences Adult Daughters’ Perspectives on Later Life

Approximately 24 million Americans provide informal (unpaid) care to a family member or friend who is disabled or ill. The most common informal caregiving relationship is that of an adult child providing assistance to an elderly parent. Women in midlife represent most of the unpaid caregivers for older adults, yet little is known about how providing care affects women’s beliefs about and desires for their own aging. The purpose of this study was to understand how being a caregiver affected adult daughters’ perspectives on their own late life. In-depth interviews were conducted with a diverse sample of 15 women between the ages of 50 and 65 who were providing care to an ill and disabled parent or parent-in-law. Analysis of the qualitative data revealed that caregivers were affected by the caregiving experience in five ways: gaining awareness, provoking fears, providing a comparison for current functioning, providing firsthand knowledge about aging, and providing an example of how to age. This study offers an alternative perspective on the well-documented negative consequences of caring for an older person, suggesting that caregiving encourages personal growth for adult daughters in midlife.     

Sandwich Generation Caregiving: A Complex and Dynamic Role

The overall purpose of this study was to explore the lived experiences of sandwich generation (SG) women and the influence multigenerational caregiving had on their health behaviors. The specific purpose of this paper was to examine the roles of SG women, whom are individuals providing care to both their aging parents/in-laws and children (Sinha, Spotlight on Canadians: Results from the General Social Survey: Portrait of caregivers, 2012. Statistics Canada catalogue no. 89-652-X – No. 001, Social and Aboriginal Statistics Division, Ottawa, Ontario, 2013). This study was qualitative in nature and utilized the theoretical orientation of phenomenology. Nine SG women completed a background questionnaire and a semi-structured one-on-one interview. After critically analyzing the data, four salient themes emerged, however, this paper only focused on the theme the role of the caregiver. Five subthemes were developed from this theme: (1) Physical care; (2) “Sounding board”: Emotional aspects of caregiving; (3) Never enough time in the day; (4) Am I a caregiver to my children?; and (5) Transitions and variations in caregiving. These findings provide an in-depth understanding of the role of SG women and the complexities that occur when faced with caregiving. This study hopes to provide more knowledge to support government legislation, sandwich generation caregivers, and healthcare providers.     

Stories of family caregivers of people with dementia in Greece: Implications for counselling

A substantial body of literature has identified high rates of burden, psychological morbidity, social isolation, health and financial difficulties among dementia caregivers. The present qualitative study adopted an Interpretive Phenomenological Analysis approach in order to explore the lived experiences of dementia family caregivers within the Greek sociocultural context. The sample was purposive and consisted of 10 women dementia family caregivers from Athens and Thessaloniki. Individual in-depth interviews were conducted and analysed according to IPA. The participants’ personal accounts included themes related to ethical/existential and cultural aspects of family caregiving; changes in family relationships; impact of the caregiving experiences; sources of support and help seeking; positive and meaningful aspects of the care experience. The research findings are discussed in the context of Gilligan’s moral psychological theory, and cultural dimensions of family caregivers. Implications for counselling interventions aiming at supporting caregivers are presented.     

Spirituality as a coping mechanism for family caregivers of persons with aphasia

This study sought to describe spirituality resourcing of family caregivers for people with aphasia (PWA). A purposive sample of 14 female family caregivers of PWA from a historically disadvantaged South African community were participants (married = 42%; age range 21 to 65 years). They completed interviews regarding the spiritual support that they received when caring for their family member with aphasia. Thematic analysis of the data yielded findings to suggest spiritual interpretation of their experiences, importance of prayer as a source of hope and healing, and significance of social support from church fellowship. Spirituality is a resource for coping with the carer-role among community women with responsibility over family members with aphasia.     

Adult Children’s Caregiver Burden and Depression: The Moderating Roles of Parent–Child Relationship Satisfaction and Feedback from Others

The issue of elderly care has generated great interest because today, most of us live in an aging society. It has been found that caring for one’s elderly parents is a stressful experience that is related to negative outcomes. In addition, accompanied with the decline in fertility may make adult children feel heavier caregiver’s burden. Therefore, the current study investigates moderators that may help reduce the caregiver burden. Following the conservation of resources theory (COR), we hypothesized that feedback from others and a good parent–child relationship serve as resources that may help the individual manage the stress associated with caring for his or her elderly parents. To examine our hypotheses, we collected data from 502 adult children who were primary caregivers for their elderly parents. All participants completed the Burden Assessment Scale (BAS), the Center for Epidemiological Studies Depression Scale (CES-D), the Feedback from Others Scale, and the Parent–Child Relationship Satisfaction Scale. Supporting our prediction, we found a positive correlation between the caregiver’s burden and the caregiver’s levels of depression. Furthermore, both moderation effects were significant. Consistent with our hypotheses, the relationship between caregiver burden and his or her level of depression was weaker when participants had high feedback from others or had a better parent–child relationship. Our findings highlight the view that possessing more resources may help the individual manage the stress associated with caring for elderly parents. Implications for issues related to elderly care are discussed.     

Experiences of Adults Who Identify as Primary Caregivers

The role of primary caregiver is unique. Understanding the role of the primary caregiver will better inform those in the counseling profession. The purpose of this qualitative research study was to gain a clearer perspective of the lived experiences of adults who identify as primary caregivers. The authors conducted semistructured interviews with 6 Caucasian female participants and analyzed the data using interpretative phenomenological analysis. The findings include personal perceptions and caregiver experiences pertaining to the caregiver role, caregiver mentality, professional identity, social and emotional responses, and self‐care among caregivers throughout the caregiving process. Implications for counselors and future research are presented.     

‘Where are you from?’ Identity as a key to parenting by 1.5 generation Korean-New Zealand migrants and implications for counselling

In a qualitative study of the experiences of 1.5 generation Korean New Zealanders as parents, a notable finding was the significant part the participants’ identity-related experiences as migrants played in shaping their parenting practices. Interviews were conducted with 18 Korean “Kiwis” (New Zealanders), colloquially referred to as “Kowis,” who had arrived in New Zealand before 2002 as children or adolescents with their parents and were now married with children. Reflecting on the challenges of their migration and identity journeys enabled them to recognise their vulnerabilities and their advantages, and the multiple ways in which identity-related cultural conflicts and confusion influenced their parenting of their children. The implications are identified for further research and for counselling practice.     

Knowledge and causal attributions for mental disorders in HIV-positive children and adolescents: results from rural and urban Uganda

Increasing availability of antiretroviral treatment (ART) has led HIV to be considered a chronic disease, shifting attention to focus on quality of life including mental wellbeing. We investigated knowledge and causal attributions for mental disorders in HIV-positive children and adolescents in rural and urban Uganda. This qualitative study was nested in an epidemiological mental health study among HIV-positive children and adolescents aged 5–17 years in rural and urban Uganda. In-depth interviews were conducted with caregivers of HIV-positive children (5–11 years) and adolescents (12–17 years) in HIV care. Interviews were audio recorded with permission from participants and written consent and assent sought before study procedures. Thirty eight participants (19 caregivers, 19 children/adolescents) were interviewed. Age range of caregivers was 28–69 years; majority were female (17). Caregivers had little knowledge on mental disorders ;only 3 related the vignette to a mental problem and attributed it to: improper upbringing, violence, poverty and bereavement. Five adolescents identified vignettes as portraying mental disorders caused by: ill-health of parents, bereavement, child abuse, discrimination, HIV and poverty. Caregivers are not knowledgeable about behavioural and emotional challenges in HIV-positive children/adolescents. Mental health literacy programmes at HIV care clinics are essential to enhance treatment-seeking for mental health.     

Perceptions of Stress,Coping, and Intervention Preferences among Caregivers of Disadvantaged Children with Asthma

Asthma remains the most prevalent chronic illness among children. Despite the substantial body of literature examining children with asthma, few studies have examined parents’ perspectives of the condition and experiences of caregiver stress. Parents of children with chronic illnesses experience elevated stress and may have limited opportunities to cope with complex emotions while caring for children with asthma. Drawing from focus groups and interviews with African American and Hispanic parents of children with asthma, this qualitative study was conducted as part of a patient-centered engagement process to inform the refinement of an intervention aimed at reducing stress among parents of children with asthma. All data were transcribed and underwent three waves of inductive analysis. The content analysis indicated that the unpredictable nature of asthma and the caregiving burden associated with managing children’s asthma contributed to parents’ stress, and external contexts compounded the impact of these stressors. Parents also reported having difficulty identifying how they coped with stress and employed approaches to coping with stress that they applied intermittently but encountered several barriers to enacting known or available coping strategies. Analyses also revealed that parents desired a multimodal stress reduction intervention that emphasized building relationships, allowed for flexibility, and encouraged staff-parent communication. Whereas African American and Hispanic parents’ experiences of stress and coping strategies were similar, their preferences differed in regards to incorporating technology into the intervention, the credentials of facilitators, and the salience of language preferences. Understanding the complexities of stressors facing caregivers is important for developing interventions to support parents and children coping with asthma, and in particular when working with families from diverse backgrounds.     

“Weathering the storm:” Mothers’ and fathers’ experiences of parenting a preterm infant

Parenting preterm infants is a unique experience distinct from parenting full-term infants, characterized by a delayed transition to parenthood and limited caregiving opportunities. This study explored mothers’ and fathers’ lived experiences of parenting during infancy in the context of preterm birth. Semistructured qualitative interviews were conducted with 13 parents (6 fathers, 7 mothers) of preterm infants. Data were analyzed using interpretative phenomenological analysis. Four superordinate themes emerged: (a) An unnatural disaster: The traumatic nature of preterm birth, (b) The immediate aftermath: Disconnected and displaced, (c) Breaking the ice: Moving from frozen to melted, and (d) Aftershocks: Transitioning home. Both parents experienced preterm birth as traumatic. Similarities and differences in mothers’ and fathers’ experiences were identified. Preterm birth posed challenges for nurturant and social caregiving and resulted in anxiety, hypervigilance, and overprotective parenting behavior. The results highlight the need for trauma-informed care and further research developing and testing empirically based interventions.     

An Exploration of Parents’ Experiences and Empowerment in the Care for Preterm Born Children

Because of improved survival rates and medical prospects, the emphasis in care for preterm infants has shifted in recent years to a focus on support for the wellbeing of children and their families. For the healthcare professionals the parents of these children are the main partners for improving the care of their children. In this context, referring to “patient empowerment” implies not only the infant but also the parents, in other words “parent empowerment”. We aimed to explore parents’ experiences with hospital and aftercare for their preterm children, and the implications for parent empowerment, by organizing face-to-face (n = 4 and n = 7) and online (n = 14) focus group interviews with parents of preterm children. These focus group interviews showed that these parents indicated a lack of support and recognition of parental worries in the care for their infant during two important periods: (1) the transfer to another hospital and (2) after discharge home. These group interviews showed that parents greatly value initiatives that support and empower them in their role as parents and that strengthens their involvement in the care for their children. Requirements for enhancing parent empowerment are proposed.     

Youth Mental Illness and the Family: Parents’ Loss and Grief

Parents and family members whose adult child or relative has a mental illness endure significant losses, to which they respond with grief. Such grief may negatively affect family members’ physical and psychological health and also the relationship with their relative. Yet, research in this field is sparse. Very few studies have examined parents’ loss and grief in the context of the patient being a child or teen. It is not clear the extent to which parents’ loss and grief in response to their child or adolescent’s mental illness is similar or different to the accounts of older parents and family members caring for an adult relative with major psychopathology (e.g., Schizophrenia, Bipolar disorder). Parental loss and grief is not often addressed in child and adolescent mental health services’ provision of care; alarmingly, little is known about how best to support parents who access these services. The present study aimed to bridge this knowledge gap and identify the therapeutic needs of this younger parent population. Comprehensive interviews were conducted with 14 parents and one custodial grandparent of a youth aged 18 years or younger who was currently attending a child and adolescent mental health service. An inductive thematic analysis identified six themes; parents’ narrative of finding out, profound and pervasive loss, complex grief, waning support, the challenges of caregiving and a call for assistance. It can be inferred from these results that youth mental illness can constitute a source of loss and grief for parents. Participants’ loss and grief was largely consistent with the experience of families caring for an adult relative with major psychopathology. Opportunities for mental health practitioners to support families’ loss and grief were identified. Further studies are needed to enhance understanding of this complex and, to a large extent, ignored familial experience. Results do underscore the importance of clinicians acknowledging parents’ loss and grief and working directly with this experience over the course of youths’ treatment, perhaps in conjunction with family psychoeducation approaches.     

Ambiguous Loss in Transnational Families’ Adolescents: An Exploratory Study in Ecuador

In psychosocial migration literature, the perspective of ambiguous loss has been relevant to articulate personal and relational experiences in the context of transnational families and ongoing separation. Most studies have focused on adult members’ experiences of transnational families, but research exploring ambiguous loss in adolescents whose parents have migrated is still lacking. The present study aimed to explore adolescents’ lived experiences of parental migration. In a pilot explorative study, 14 adolescents with at least one parent who migrated were interviewed about their lived experiences of transnational parent-child relationships and ongoing parent-child separation. Data analysis identified four themes in participants’ accounts: practices of separation creating confusion; current relationship with migrant parents permeated by ambiguity; distrustful representations of migrant parents; and family and social dynamics reactivating the pain of loss. The findings reveal how in the context of parental migration, patterns of separation and ongoing relational processes, compounded by the uncertainty of reunification and an exclusionary social fabric, constitute core elements that shape adolescents’ lived experiences of parent-child relationships characterized by ambiguity.     

The psychosocial impact of caregiving in dementia and quality of life: a systematic review and meta-synthesis of qualitative research

ABSTRACT

Objective: A systematic meta-synthesis of qualitative studies was conducted to interpret and synthesise findings from studies investigating the experiences, quality of life, and psychosocial impact of caregiving on adult informal caregivers of people with dementia.

Design: The meta-synthesis was conducted according to the principles of meta-ethnography.

Results: Fourteen studies describing the experiences of 265 informal caregivers were reviewed. The meta-synthesis elicited the following themes: (1) understanding and making sense of the dementia diagnosis, changing symptoms, and the caregiver role; (2) coping strategies, psychological facilitators and rewards of caregiver role; (3) challenges of caring for a person with dementia and their behaviour; (4) caregivers' relationships with care-recipient and other informal caregivers; and (5) caregivers’ experiences of formal support services and material resources.

Conclusion: Our findings highlight the need for a person-centred approach to care planning that also accounts for the needs of the informal caregiver to promote better caregiver well-being and quality of life. Caregivers’ emotional support, coping, resilience, need for information and respite care and adjustment to caregiver identity should be reviewed as part of the care package for the person with dementia.     

What do bilingual infants actually hear? Evaluating measures of language input to bilingual‐learning 10‐month‐olds

Examining how bilingual infants experience their dual language input is important for understanding bilingual language acquisition. To assess these language experiences, researchers typically conduct language interviews with caregivers. However, little is known about the reliability of these parent reports in describing how bilingual children actually experience dual language input. Here, we explored the quantitative nature of dual language input to bilingual infants. Furthermore, we described some of the heterogeneity of bilingual exposure in a sample of French–English bilingual families. Participants were 21 families with a 10‐month‐old infant residing in Montréal, Canada. First, we conducted language interviews with the caregivers. Then, each family completed three full‐day recordings at home using the Language Environment Analysis recording system. Results showed that children’s proportion exposure to each language was consistent across the two measurement approaches, indicating that parent reports are reliable for assessing a bilingual child’s language experiences. Further exploratory analyses revealed three unique findings: (a) there can be considerable variability in the absolute amount of input among infants hearing the same proportion of input, (b) infants can hear different proportions of language input when considering infant‐directed versus overheard speech, (c) proportion of language input can vary by day, depending on who is caring for the infant. We conclude that collecting naturalistic recordings is complementary to parent‐report measures for assessing infant’s language experiences and for establishing bilingual profiles.     

Explorer l’expérience subjective du confinement lié à l’épidémie de la Covid-19 par les familles : une analyse interprétative et phénoménologique (IPA) du discours de parents

IntroductionThe COVID-19 containment measures had many effects on parents and children (stress, concerns), and the functioning of the whole family has been disrupted (lifestyle, habits, relationships).ObjectiveThe objective of this work is to highlight the idiosyncratic nature of the experience of confinement, its psychological consequences, and the changes it has induced within families.MethodInterested in the experiences of parents who had been confined within their families, we conducted interviews with parents and analyzed their discourse using the IPA method. We interviewed five parents (38–44 years old) with at least two children each (3–13 years old). Three of the interviewees were women.ResultsWe have identified seven major axes that illustrate the confinement experience of these families: accompanied by extracts from participants’ interviews (verbatims). The subjects lived this experience in confinement as a unique opportunity to spend time with their family and recalibrate what matters to them fundamentally in life.ConclusionThe experience of confinement has brought changes in the daily lives of these parents as well as in their way of understanding their existence. A form of positive revaluation emanates from their discourse.