Stigma of mental and physical illness and the use of mobile technology

Research has shown the stigma attached to mental disabilities, yet little research has directly compared the experiences of people with physical disabilities and those with mental disabilities. Not only are both conditions likely perceived as stigmatizing, but the pervasive use of mobile technology may be one means by which people with disabilities can manage and understand their disability. Four hundred and eighty-seven individuals with physical and/or psychological disabilities completed a survey examining whether they would be willing to use mobile technology to manage their disability and how stigmatizing they perceived their disability to be. Willingness to use mobile technology was related to the age of the sample as well as the type of disability. Individuals with psychological disabilities were more likely to use certain forms of mobile technology relative to those with physical disabilities. Observed differences between physical and psychological disabilities are discussed in terms of the symbolic interaction stigma model.     

Factors Influencing the Inflation of Task Performance Ratings for Workers With Disabilities and Contextual Performance Ratings for Their Coworkers

Contrary to many myths regarding their potential performance, workers with disabilities generally receive performance ratings similar to their nondisabled coworkers. However, their ratings possibly may be inflated above their actual performance levels. In a laboratory experiment, we constrained the performance of a worker with a disability to an extremely low level and assessed the effects of helping behavior, presence and type of disability in the worker, and the perceived attributions of controllability of the disability on task performance ratings for the workers with disabilities and on contextual performance ratings for their coworkers. We found that the perception that a worker is not responsible for the onset of a disability and that having any disability, regardless of type, artificially inflates task performance ratings. We also found inflated contextual performance ratings for coworkers who work with persons who are perceived as being responsible for the onset of their own disability.     

Disability and disasters: the role of self-efficacy in emergency preparedness

Although individuals with physical disabilities have special needs regarding preparedness for a natural or human-made disaster, little is known about the factors involved in motivating members of this population to engage in behaviors which reduce the probability of negative health outcomes. This study proposes and empirically tests an integrated theory-based model for individuals with physical disabilities in which perceived self-efficacy for emergency preparedness moderates the relationship between perceived threat and emergency preparedness behaviors. A nationwide convenience cross-sectional sample of 294 adults self-identifying as having a physical disability completed an online survey. The general linear model was used to assess the effects on preparedness of perceived threat, perceived self-efficacy, and their interaction. In addition to the hypothesized moderating effect of self-efficacy, it was found that minimal (if any) relationship exists between perceived threat and preparedness among those who reported low levels of self-efficacy. Results suggest that self-efficacy and perceived threat operate jointly to motivate individuals with physical disabilities to take precautionary steps to reduce the consequential adverse health effects of natural and human-made disasters. These findings have important implications for the design of effective interventions for individuals with disabilities.     

The next exclusion debate: assessing technology, ethics, and intellectual disability after the Human Genome Project

Recent scientific discoveries have made it much easier to test prenatally for various genetic disabilities, such as Down syndrome. However, while many observers have heralded such "advances" for their effectiveness in detecting certain conditions, others have argued that they perpetuate discrimination by preventing the birth of children with disabilities. This article examines the ethical and social implications of the Human Genome Project for individuals with intellectual disabilities and their families. It details the critique of prenatal testing articulated by many disability rights activists as well as scholarly and professional responses to that critique. A review of the pertinent research literature includes perspectives of genetic professionals, ethicists, disability studies scholars, parents of children with disabilities, and disabled individuals themselves. Finally, the article explores how future research endeavors, policies, and practices may more effectively integrate and respect the positions of these various stakeholders.     

stigma management strategies among women with physical disabilities: contrasting approaches of downplaying or claiming a disability status

The lived experiences of women with physical disabilities have received little research attention. To investigate a variety of social and interpersonal issues, in-depth tape-recorded interviews were conducted with 24 female students with physical disabilities. Findings concerning their experiences as students indicate that these women need to negotiate their disability status with able-bodied others. Respondents employ contrasting stigma management strategies of deflection, normalization, disidentifiers, and advocacy with students, faculty, and campus personnel. Women with physical disabilities either downplay or claim their disability status depending on the type of stigma (discredited or discreditable), the nature of the relationship with the audience (personal or formal), and the perceived reaction of the audience (accepting or questioning the legitimacy of the disability). Implications regarding conflicting presentations of self, divergence of strategies from normative expectations, and lack of group consciousness are discussed.     

Disability and rehabilitation research. Opportunities for participation,collaboration, and extramural funding for psychologists

The National Institute on Disability and Rehabilitation Research (NIDRR) funds research and related activities that promote new knowledge that helps individuals with disabilities to perform regular activities in the community and increases the capacity of society to provide full opportunities and supports for individuals with disabilities. NIDRR achieves this goal by promoting interdisciplinary research and related activities. Psychologists play a key role in many of these activities and assist with improving understanding of disability and rehabilitation by participating in peer review of research proposals or by reviewing NIDRR's proposed research priorities. Psychologists also contribute by taking advantage of training and the many other opportunities for support outlined in this article.     

Siblings of Children with disabilities: Psychological and behavioural characteristics

The purpose of the current study was to assess the behavioural and psychological characteristics of siblings of children with disabilities and the perceptions of parents and children regarding sibling relationships. Participants included 32 children between 6 and 13 years of age, one-half with a younger sibling with a disability and one-half with a younger sibling without a disability. Analyses revealed a difference in children's perceptions of maternal partiality, with siblings of children with disabilities perceiving their mothers to be more partial to their siblings than did siblings of children without disabilities. Further, parents of children with disabilities indicated a greater difference in status/power between their child and his/her younger sibling than did parents of children without disabilities. No significant differences were found between groups on measures of behaviour problems, social competence, or self-esteem, supporting other research that has failed to find negative outcomes for siblings of children with disabilities. The implications of these results for parents and professionals are discussed.     

What policymakers need and must demand from research regarding the employment rate of persons with disabilities

Enabling persons with disabilities to prepare for and engage in gainful employment has become a priority concern in U.S. society. As a result, federal and state policymakers are adopting employment-related initiatives designed to enhance the employment rate of persons with disabilities. Policymakers need credible evidence in order to assess and reform these initiatives. This recognized need, however, begs the question of what constitutes 'credible evidence.' Of particular concern in the disability policy arena is the debate over the types of conclusion about employment rates that can and cannot be drawn from analyses of national survey data sets. This article connects standard research methodology concepts with the complexities of evaluating disability policy to help stakeholders appreciate the issues involved in this debate. This appreciation can help policymakers (1) recognize unwarranted cause-and-effect conclusions based solely on existing national survey data and (2) demand better data and stronger research designs to complement the potential over-reliance on correlational studies using problematic survey data to estimate policy impacts. To this end, the article concludes with a practical framework with a checklist for assessing the adequacy of research regarding the employment rate of persons with disabilities.     

Comparing Education,Employment, Social Support and Well-being among Youth with Disabilities and Their Peers in South Africa

Youth with disabilities face many challenges in life which are thought to have a negative impact on their well-being. Evidence, however, suggests that individuals differ in their resilience to deal with adverse life-events and protect their well-being. These differences may be explained by an individual’s resources such as education, employment, and social support. Studies on how youth with disabilities perceive their well-being and resources important to their well-being are, however, lacking. In this study we therefore compared education, employment, social support, and well-being between youth with disabilities (n?=?120) and their peers (n?=?117) in South Africa. In addition, we investigated the relationship between background characteristics, having a disability, access to resources, and well-being. The unemployment rate among youth with disabilities is higher, they are less educated, receive less social support and report poorer states of well-being. Our study showed that having a disability, social support, and employment were associated with the well-being of youth in South Africa. While having a disability predicted well-being in youth, the effect was mediated by employment and social support, indicating that those two resources influence wellbeing through both a direct and buffer effect. Therefore, employment and social support may mitigate the negative consequences of a disability and have a substantial role in improving or maintaining well-being.     

Minority Minds: Mental Disability and the Presumption of Value Neutrality

Elizabeth Barnes has recently developed an account of disability that is sensitive to the role of self-evaluation. To have a physical disability is, according to Barnes, to have a body that is merely different from the norm. Yet, as Barnes notes, some disabilities will genuinely frustrate some life plans. It may be the case, therefore, that a disability is instrumentally bad for a person and that acquiring one may be a genuine loss. Equally, however, a person may genuinely value a disability such that it is instrumentally good for them and that they experience the acquiring of it as a gain. Notably, Barnes explicitly restricts this analysis to physical disabilities, leaving open the status of mental disabilities. Nevertheless, Barnes does not rule out the extension of her model to this category, and she expresses a desire to see future work on other disabilities built upon it. This article takes up this challenge, making the case that to possess a mental disability is merely to possess a minority mind.     

Disability, race/ethnicity and gender: themes of cultural oppression, acts of individual resistance

Community psychologists have called for research on human diversity and interactions between individuals and society with a focus on oppression. This study examines learning disabilities as they co-occur with other sociopolitical minority statuses. We examined dominant cultural narratives of and individual responses to learning disability, race/ethnicity and gender identified by low-income men and women of color with learning disabilities. Our qualitative analysis identified cultural narratives that suggest that: (1a) individuals with learning disabilities are perceived as having an illegitimate impairment and being of lower intellectual ability and unworthy; (1b) having an invisible disability facilitates passing as nondisabled, thereby lessening disability discrimination from within racial/ethnic groups; (1c) having a learning disability detracts from positive gender expectations and exacerbates negative ones; and (1d) gender and racial/ethnic narratives are relevant for individuals with learning disabilities. Our analysis also identified two overarching individual acts of resistance used to thwart internalization of oppressive cultural narratives: (2a) removing self from oppressive environments and (2b) reframing dominant cultural narratives (including discounting the validity of negative messages, using negative narratives for motivation, and engaging in positive self-talk). We discuss findings in relation to extant research and theory and consider implications for research, theory, and practice.     

Transport and mobility decisions of consumers with disabilities

People with disabilities are the world's largest minority stakeholder group, and they continue to face significant challenges in every aspect of their lives. This study explored the transport and mobility decisions of consumers with disabilities (CWDs) in the context of Nigeria, one of the world's largest developing countries, using the conservation of resources theory and the intersection of travel decisions, disability and country context regarding consumer behaviour. A total of 32 individuals with varying disabilities were interviewed. A thematic analysis of qualitative data revealed that CWDs make travel decisions based on their ability, as well as the availability, accessibility, affordability and reliability of different modes of transport. This study presents a conceptual framework illustrating the transport and mobility decisions of CWDs and highlights practical implications for various stakeholders.     

Reconsidering the Social Location of the Medical Model: An Examination of Disability in Parenting Literature

This paper challenges the view that there is one medical model of disability monolithically and oppressively imposed on disabled people. Because the presence of disability may be ambiguous in any given case, multiple actors, lay and professional, may invoke particular medical models of disability and advance competing claims about an individual's disabilities and related needs. The literature for parents of disabled children is seen as a resource on which parents can draw in making claims about their children's disabilities and disability-related needs. Particular attention is given to the assumptions that this literature makes about the identity, resources and dispositions of the audience. Ultimately, these assumptions favor disability claims made by white, highly educated, upper-income parents.     

Emerging policy challenges in intellectual disabilities

The forces shaping intellectual disability policy-making are diverse; while many of the policy issues reviewed in this issue are specific to intellectual disabilities, there are others that transcend disability-specific concerns. Our review is organized around six emerging demographic and socio-cultural trends that may directly and profoundly impact the intellectual disability field: aging, changing labor markets, immigration, families, federalism, and culture. Each of these trends is discussed in terms of their relevance and potential impact on disability policy.     

Stigma by Association: Perceptions of the Dating Partners of College Students With Physical Disabilities

In an investigation of stigma by association, 179 nondisabled students gave free-response and adjective checklist responses in one of four experimental conditions: stimulus person as dating partner of a disabled male, of a disabled female, of a nondisabled male, or of a nondisabled female college student. Adjective checklist results indicated that, as compared with the partners of nondisabled individuals, the partners of disabled individuals were perceived as significantly more trustworthy and nurturant. Content analysis of the free-response item showed that the partners of disabled individuals were more likely to be described as having nurturant qualities than the partners of nondisabled individuals and were less likely to be described as intelligent, sociable, or athletic. Discussion focuses on the significance of these results for understanding disability stigma by association and on the implications of these findings for interaction between individuals with and without disabilities.     

Renegotiating Sexuality Following an Acquired Disability: Best Practices for Counselors

Acquired physical disabilities are a critical issue that confronts many adults today, and they are projected to continue to increase over the next several years. For many individuals with acquired physical disabilities, the disabilities affect sexuality, thus requiring a renegotiation of disability and sexuality. This article reviews the extant literature on physical disabilities and sexuality and provides best practices for counselors to effectively address the needs of this growing population.     

A Qualitative Investigation of Somali Immigrant Perceptions of Disability: Implications for Genetic Counseling

This study examined the potential utility of genetic counseling services for Somali immigrants by investigating their perceptions of disability. Five Somali women participated in structured interviews that assessed their perceptions of the nature, causes, and impact of disability, and care for persons with disabilities. Using a Heideggerian Hermeneutics qualitative method of analysis, six major themes emerged: (1) disability refers to both physical and mental conditions, with mental disability generally thought of first and as more severe; (2) in Somalia, the family cares for disabled family members, treating them as if they were normal (3) there are major cultural differences between Somalia and the United States in how persons with disabilities are treated; (4) caring for a person with a disability is stressful for the family; (5) Allah determines whether or not a child will be disabled, and this cannot be predicted or altered; and (6) family is the primary life focus, and therefore, risk of disability does not affect reproductive decisions. These themes suggest that traditional genetic counseling may have limited utility for Somali immigrants. We recommend several modifications to traditional genetic counseling for Somali patients that also may be useful for populations that have similar beliefs.