Illness Perception and Well-Being Among Persons with Multiple Sclerosis and Their Caregivers

This study jointly examined illness beliefs held by persons with multiple sclerosis (PwMS) and caregivers in relation to well-being. A group of 68 PwMS and their caregivers completed the Revised Illness Perception Questionnaire, Psychological Well-being Scales, Satisfaction with Life Scale and Positive Affect and Negative Affect Schedule. Findings revealed that PwMS’ well-being was primarily predicted by their own illness beliefs, and that also caregivers’ well-being was primarily predicted by their own beliefs. Across the two groups, well-being was positively associated with their belief that they understood the disease, and inversely associated with their representations of negative emotions. In addition, among PwMS, well-being was inversely associated with the number of symptoms they specifically attributed to their illness, while among caregivers, well-being was positively associated with beliefs that treatment could control the disease. Based on the study findings, psychoeducational and cognitive-behavioral strategies are suggested to promote well-being among PwMS and caregivers.     

Caring for the Caregivers: An Investigation of Factors Related to Well-Being Among Parents Caring for a Child with Smith-Magenis Syndrome

Smith-Magenis syndrome (SMS) is a complex disorder characterized by numerous challenges, including intellectual disability, speech delay, decreased pain sensitivity, sleep disturbances, hyperactivity, mood instability, and self-injury. Caregivers must readily adapt to the ever-changing needs of the child. Due to these demands, caregivers may encounter difficulties maintaining their own level of well-being. Thus, a total of 112 primary caregivers (i.e., parents) of individuals diagnosed with SMS responded to online questionnaires to assess demographic and psychosocial factors, such as perceptions of child health vulnerability, benefit finding, sleep behaviors, anxiety and depression symptomatology, and caregiver satisfaction and self-efficacy, which may be related to caregiver well-being. Results show that, among mothers, caregiver well-being was directly related to perceived child health vulnerability, caregiver satisfaction, and benefit finding, and a significant moderating effect was observed for depression/anxiety counseling after beginning the caregiver role on the relationship between anxiety symptomatology and caregiver well-being. Results further suggest that maternal caregivers who report high levels of anxiety but do not seek counseling fair the worst in terms of well-being. Among fathers, lower depression symptoms and greater benefit finding were related to higher levels of caregiver well-being. These data show that many factors play roles in influencing coping and well-being among SMS caregivers. Investigating these variables and relationships may reveal additional resources and interventions to assist primary caregivers.     

Hassles and uplifts of giving care to a family member with dementia

The role of daily caregiving stressors (hassles) and small caregiving satisfactions (uplifts) in the well-being of 60 family caregivers was investigated. Hassles and uplifts in 4 domains of caregiving were examined, and direct effects of hassles, uplifts on caregivers' social and psychological well-being, as well as the interactive and net effects of hassles and uplifts, were assessed. Hassles associated with care recipients' behavior demonstrated strongest associations with well-being. Women and caregivers to socially responsive yet behaviorally inappropriate care recipients reported more behavior and cognitive hassles. Uplifts associated with assistance in activities of daily living and with care recipients' behavior were related to well-being, with more uplifts related to greater, rather than less, depression. More intensely involved caregivers reported more of these uplifts. Net effects in the hypothesized direction were found, but no interactive effects emerged.     

Chronic Sorrow in Caregiving Spouses of Patients with Alzheimer's Disease

The article focuses on the concept of chronic sorrow in a sample of individuals with Alzheimer's disease (AD) and their caregiving spouses. A study was designed to determine the long-term grief or chronic sorrow that develops in caregiving spouses and to increase knowledge of the nature of chronic sorrow. Utilizing the Burke Nursing Consortium for Research on Chronic Sorrow questionnaire and Lindgren's (1996) study as a prototype, the author discovered that repetitive feelings of sorrow and distress appear in caregivers when major disruptive changes occur in their lives due to the persistent demands caused by the illness. Continual coping skills are needed to keep caregivers from being mentally, emotionally, and physically depleted. The findings of this study are consistent with Lindgren's 1996 study of chronic sorrow in persons with Parkinson's disease.     

Building well-being among university teachers: the roles of psychological capital and meaning in life

The present study aims to address the issue of temporal precedence linking psychological capital and meaning in life and, further, to examine the relationship between meaning in life, psychological capital, and well-being among university teachers. Data were collected in three measurement waves; 412 university teachers in China were selected as the final sample, completing the measures of Meaning in Life Questionnaire, Psychological Capital Questionnaire, and Psychological Well-Being Scale at all three time points. The results showed that university teachers’ psychological capital positively predicted their meaning in life over time, but not vice versa; meaning in life and psychological capital positively predicted well-being over time; furthermore, meaning in life partially mediated the effect of psychological capital on well-being among university teachers over time.     

Reporting spiritual needs of older adults living in Bavarian residential and nursing homes

We intended to study unaddressed psychosocial and spiritual needs among older people (of at least 65 years of age) living in nine residential/nursing homes in Bavaria in Southern Germany. We conducted an anonymous cross-sectional study with standardised questionnaires (i.e., Spiritual Needs Questionnaire, Brief Multidimensional Life Satisfaction Scale, Schedule for Meaning in Life Evaluation, etc.). Religious needs were predicted best by residents’ religious trust. Existential needs and inner peace needs correlated moderately with grief, and were predicted best by family/social support needs. All members of an interdisciplinary team should be trained in the specific competence of recognising older people's unmet spiritual needs. When these needs are recognised, caregivers and relatives have the chance to react.     

Exasperations as Blessings: Meaning-Making and the Caregiving Experience

This study examines the process of how caregivers can shape the frustrations and exasperations of caring for a family member with Alzheimer's disease into blessings. Heidegger's hermeneutic phenomenological perspective is used to interpret a caregiver's narrative, in which she describes caring for her husband with Alzheimer's disease. The interpretive analysis focuses specifically on how the caregiver finds meaning in the caregiving process. The analysis reveals that the caregiver constructs meaning by emphasizing particular aspects of her experiences, including cherished memories, creating a happy life by living life intensely, and counting her blessings. While some caregivers naturally find such meaning, this study suggests that reading the narratives of others as well as writing about one's own thoughts and feelings can facilitate this meaning-making process. Structured written emotional expression, in particular, fosters meaning-making, diminishes psychological distress, improves immune function, and promotes health and well-being.     

On the Measurement of Meaning: Logotherapy's Empirical Contributions to Humanistic Psychology

Meaningful living is a central focus of several humanistic theories and therapies. Measurement of life meaning meets many obstacles, including pragmatic concerns, such as measuring subjective experiences, and theoretical objections often offered by humanistic psychologists. The purpose of this article is to summarize empirical efforts related to logotherapy, a humanistic–existential paradigm, to illustrate the utility of assessment within the larger context of humanistic psychology. An overview of five logotherapeutic measures of meaning is provided. These measures include the Purpose in Life test (PIL), the Life Purpose Questionnaire (LPQ), the Seeking of Noetic Goals test (SONG), the Meaning in Suffering Test (MIST), and the Life Attitude Profile Revised (LAP–R). Directions for use of such measures in future research are also offered.     

The onset of dementia caregiving and its longitudinal implications

This study examined patterns of entry into the caregiving role and how onset influences outcomes pertinent to the caregiving process. Using 3-year longitudinal data, the present analysis classified dementia caregivers into 1 of 4 onset sequences: those whose entry into caregiving was defined by diagnosis, those who first recognized symptoms and then obtained a diagnosis, those caregivers who first recognized symptoms and then provided care, and those who provided care prior to diagnosis or recognition. Analyses revealed that respondents who experienced a less abrupt entry into caregiving were less likely to institutionalize their relatives and reported greater decreases in well-being. The findings point to the dynamic process that defines entry into caregiving and emphasize that how individuals assume caregiving roles have implications long after onset.     

Caregivers’ beliefs about dementia: findings from the IDEAL study

Abstract

Objective: Informal caregivers of people with dementia develop their own beliefs about the condition, referred to as Dementia Representations (DRs), as they try to make sense of the changes they are observing. The first aim of this study was to provide a profile of the types of DRs held by caregivers. The second aim was to examine the impact of caregivers’ DRs on their well-being, satisfaction with life (SwL) and caregiving stress.

Methods: Participants were 1264 informal caregivers of people in the mild-to-moderate stages of dementia from time-point 1 of the IDEAL cohort study.

Measures: DRs were measured using questionnaire items covering: Identity, Cause, Control, and Timeline.

Results: Almost half (49.2%) of caregivers used a diagnostic term to describe the person’s condition, although 93.4% of caregivers stated they were aware of the diagnosis. Higher well-being, SwL, and lower caregiving stress were associated with the use of an identity term relating to specific symptoms of dementia, attributing the cause to ageing or not knowing the cause, and believing the condition would stay the same. Lower well-being, SwL, and higher caregiving stress were associated with believing there was little that could be done to control the effects of the condition.

Conclusion: Healthcare professionals should assess and gain an understanding of caregivers’ DRs in order to provide more tailored information and support.     

Do Existential Variables Mediate Between Religious-Spiritual Facets of Functionality and Psychological Wellbeing

Religiosity has been related to psychological wellbeing outcomes. Although this relationship is primarily based on studies of church attendance or prayer and wellbeing, more recent work has focused on the potential mechanisms that may mediate the religion-wellbeing findings. One of the major function of religion is finding of meaning of life and improving hope. Recent studies have indicated that hope and meaning of life are the potential variables mediate between religion and wellbeing. It was hypothesized that one pathway through which religiosity may exert its positive influence on psychological wellbeing is through finding meaning of life and improving hope. One study was conducted examining the relationships among spiritual experiences, hope, meaning of life and psychological wellbeing operationalized as satisfaction with life, positive affect and negative affect. The following research tools were used: Daily Spiritual Experiences Scale, Purpose in Life Test, Hearth Hope Index, Cantril Ladder, Positive and Negative Affect Schedule. Meaning of life and hope were noticed to mediate between spiritual experiences and satisfaction with life as well as between spiritual experiences and positive affect. Spiritual experiences were not related to negative affect. Both meaning of life and hope predicted negative affect. This study found meaning of life and hope to be an important factors in the religion-wellbeing relationship and related to positive psychological outcomes, including improved satisfaction with life and positive affect as well as reduced negative affect.     

Predicting General Well-Being From Emotional Intelligence and Three Broad Personality Traits

This paper examined the joint predictive effects of trait emotional intelligence (trait-EI), Extraversion, Conscientiousness, and Neuroticism on 2 facets of general well-being and job satisfaction. An employed community sample of 123 individuals from the Indian subcontinent participated in the study, and completed measures of the five-factor model of personality, trait-EI, job satisfaction, and general well-being facets worn-out and up-tight . Trait-EI was related but distinct from the 3 personality variables. Trait-EI demonstrated the strongest correlation with job satisfaction, but predicted general well-being no better than Neuroticism. In regression analyses, trait-EI predicted between 6% and 9% additional variance in the well-being criteria, beyond the 3 personality traits. It was concluded that trait-EI may be useful in examining dispositional influences on psychological well-being.     

Stress Reduction for Family Caregivers in Chronic Mental Illness: Implications of a Work Stress Management Perspective

In several studies involving a total of 291 family caregivers for schizophrenia sufferers, the stressors that arise from caregiving were identified. Also identified were the outcomes for caregivers, which often include psychological distress. Caregivers develop various stress-reduction techniques, but this article explores the utility of applying the principles of work stress management to caregiver well-being. An organizational psychology perspective suggests that a comprehensive focus must include not only how individuals can learn to manage the emotional demands of their work, but also how the work of caregiving can be made less stressful for them. Suggestions from a work stress management perspective highlight the possible contributions of worker participation in policy formulation and a collaborative relationship between family and professional caregivers. Potentially fruitful research directions are noted.     

Is Searching for Meaning in Life Associated With Reduced Subjective Well-Being? Confirmation and Possible Moderators

Meaning in life has been identified as an important element of well-being. Recently attention has been directed to examining the differences between having meaning in life and searching for meaning in life. Theory has speculated that if an individual is searching for meaning in life, he/she may be distressed. Researchers of late have begun to focus on the process of searching for meaning in life to gain a better understanding of the individual differences which may exist. Interest has also been directed towards exploring whether any moderators of the possible negative effects of the searching process may exist. This research investigated the hypothesised negative link between high levels of searching for meaning in life and subjective well-being and the positive moderating effects of presence of meaning in life while also exploring the influence of the demographic variables which were treated as control variables. From an exploratory stance further analysis examined the hypothesised positive moderating effects of self-actualisation, self-efficacy and achievement motives on the relationship between searching for meaning and subjective well-being. One study (n?=?500) was conducted to assess the hypothesized relationships. The study confirmed the negative relationship between high levels of searching for meaning in life and subjective well-being and positive moderating effects that presence of meaning in life and self-actualisation have on happiness scores when individuals are searching for meaning in life. Self-efficacy and achievement motives were shown to have no significant moderating effects on searching for meaning in life and subjective wellbeing. Overall the results suggest that individuals who record high levels of searching for meaning in life are protected from the negative outcomes of this process by holding high levels of presence of meaning in life and self-actualisation.     

The Sources of Meaning and Meaning in Life Questionnaire (SoMe): Relations to demographics and well-being

Shortfalls of widely used measures of meaning in life are described. Their use results in biased correlations and restriction of the complexity inherent in experiences of meaning. To qualify results, the Sources of Meaning and Meaning in Life Questionnaire (SoMe) is employed. It offers separate scales to measure a positive and a negative dimension of meaning: meaningfulness–a fundamental sense of meaning and belonging, and crisis of meaning–the evaluation of life as frustratingly empty and lacking meaning. Both intercorrelate moderately (?.38/?.35). Additionally, the SoMe assesses 26 sources of meaning. Based on a representative sample, relationships between meaningfulness, crisis of meaning, and sources of meaning with demographics are reported (Study 1). In Study 2, SoMe scales are correlated with positive (mood, satisfaction with life) and negative (neuroticism, anxiety, depression) indicators of well-being. SEM reveals that meaningfulness predicts positive well-being, but is not predictive of negative well-being. Crisis of meaning is a strong predictor for both positive and negative well-being.     

Positive aspects of caregiving as a moderator of treatment outcome over 12 months

The authors examined the influence of positive aspects of caregiving (PAC) as a moderator of treatment outcome across 12 months in 1 of the original sites of the Resources for Enhancing Alzheimer's Caregiver Health I project. They used multilevel random coefficients regression analysis to predict time-varying PAC, depression, behavioral bother, and daily care burden in Alzheimer's caregivers (N = 243; mean age = 60.89, SD = 14.19). They found that time-varying PAC was predicted by time-varying daily care burden. They also found significant effects of time-varying PAC for depression, behavioral bother, and daily care burden. Notably, a PAC x Phase x Treatment effect was found for daily care burden, such that individuals who endorsed less PAC benefited most from the intervention across 12 months. The tendency to positively appraise the caregiving experience (i.e., PAC) in response to chronic stressors such as Alzheimer's caregiving may affect individuals' responsiveness to, and benefit from, interventions, whereas only daily care burden affected the tendency to find enjoyment in caregiving across 12 months. Future intervention research should assess individual PAC in order to better tailor interventions to caregiving needs.     

Changes in social support as mediators of the impact of a psychosocial intervention for spouse caregivers of persons with Alzheimer's disease

The spouse caregivers of 406 patients with Alzheimer's disease were randomly assigned to an enhanced counseling and support intervention or to a usual care control condition. Structured interviews were conducted to assess changes in social support and psychosocial outcomes for the 312 caregivers who provided care in the home for at least 1 year. The number of support persons, satisfaction with the support network, and support persons' assistance with caregiving all increased significantly as a function of the intervention. Structural equation models indicated increased satisfaction with the social support network mediated a significant proportion of the intervention's impact on caregiver depression. A portion of this mediated effect was further mediated by changes in caregiver stress appraisals. Implications for strengthening intervention programs for spouse caregivers of individuals with Alzheimer's disease are discussed.     

生命意义的内涵、测量及功能

研究者通常用目的和含义来定义生命意义,或者把它定义为多维度的结构。认知、动机和情感是被提及最多的生命意义的组成维度。动机和认知维度得到了较多研究者的认可,而情感维度存在较大争议。生命意义是幸福不可或缺的元素,它能够影响许多与幸福有关的变量。目前的研究对生命意义的动机维度(生命意义寻求)及如何获得和提高生命意义研究较少,今后的研究可针对这两方面开展。     

Predictors of Appraisal and Psychological Well-Being in Alzheimer's Disease Family Caregivers

The objective of this study was to test a model of stress, appraisal, and adaptation in 114 family caregivers of patients diagnosed with dementia of the Alzheimer's type (white non-Hispanic, N = 64; Hispanic-American, N = 50). Results of structural equation analysis show that appraised caregiver burden played a central role in determining the psychological well-being of family caregivers. The findings indicate that this mediating variable, negative caregiver appraisal, was predicted by increased functional limitations and behavioral disturbances in the patient, poorer perceived physical health, and lower levels of perceived emotional support. Contrary to a priori hypotheses, functional limitations in the patient also exhibited a direct association with caregiver depression. Further, patient cognitive impairment and caregiver ethnicity were not related to caregiver appraisal. Overall, these results support the role of appraised burden in mediating the relationships between caregiving factors and the adaptational outcome of depression. The implications of these findings, limitations of the study, and future directions are discussed.     

Existential Humanistic Therapy with Couples and its Effect on Meaning of Life and Love Attitudes

Abstract

The study aims to explain Existential Humanistic Therapy with Iranian Couples and its Effect on Meaning of Life and Love Attitudes. The population consists of all married couples who have referred to counseling centers, whom 20 couples have been sampled randomly. The sample received psychotherapy training in thirteen sessions. After collecting questionnaires, the results were analyzed by MANOVA multi-variance analysis. The results demonstrate the effectiveness of existential psychotherapy on the participants’ attitude toward meaning in life. The results show that the couples who received existential therapies search more efficiently for meaning in life and try to improve their love attitudes.