Quality of Life: Nomadological Insights—A Nomadic Exploration of Quality of Life in Long-Term Conditions

This is a book review of “Quality of Life: Nomadological Insights—A Nomadic Exploration of Quality of Life in Long-Term Conditions” by Monique Lhussier, published by VDM Verlag Dr. Müller Aktiengesellschaft & Co. KG, 2009.     

Fatigue and Quality of Life in Hepatitis C: Fact or Fiction?

The chronic hepatitis C virus (HCV) has traditionally been impossible to treat. Recently there has been increased attention in the treatment of HCV due to the development of drug treatments (i.e., Interferon and Ribavirin). As clinical attention to the assessment and treatment of HCV has increased, the issue of fatigue has become a central concern. Fatigue is one of the major symptoms reported by those suffering from HCV but it is not clear whether fatigue should be treated as a major symptom that is an important focus on attention or if it is a minor and irrelevant concern. In this paper, we examine the issues of fatigue in HCV in light of the importance of health-related quality of life in HCV. We present evidence to suggest that fatigue is a major issue that warrants clinical attention. We also propose that fatigue be reconceptualized as lassitude and provide an operationalized definition of dysfunctional lassitude, a new clinical construct that may have value as a psychological diagnosis. The purpose of this paper is to provide those interested in psychological issues in HCV, and chronic illnesses for which fatigue is a major symptom, guidelines for future clinical and research efforts.     

Quality of Life and Health State of Long – Term Unemployed in Older Production Age

The aim of the study was to evaluate the changes in the subjective quality of life (QoL) and health state of unemployed people at the age of 45 and older in the city environment. The study also aimed at evaluating some social and demographic factors on the quality of life and health of the unemployed. A group of 454 unemployed people aged 45 and older, registered in labour offices in the city of ?ód?, Poland were included in the study. Two groups were formed: short-term and long-term unemployed. QoL was measured with the WHOQOL-Bref questionnaire. The main problems formulated in the study were: Does QoL and health state decrease during the period of unemployment and in what aspects? What factors can modify the changes of QoL of the unemployed? The findings of the analysis indicate that unemployment entails many negative health consequences and the long-term stress connected with being out of work leads to the decline in the quality of life and worsening of mental state. The multidimensional effects of unemployment depend not only on the economic situation of the particular household, but also on perceived health status, personal relationships and the sense of ability to work.     

Primary and Secondary Caregiver Reports of Quality of Life in Pediatric Asthma: Are they Comparable?

This study aimed to compare primary and secondary caregiver QOL within families of children with asthma and determine the potential importance of including secondary caregiver QOL in clinical and research settings. Participants included 118 families of children with asthma that had primary and secondary caregivers. Families completed measures in a single research session. Caregivers reported on QOL, psychological functioning, and family burden; children completed a measure of QOL. Child lung function was determined from objective spirometry. Adherence to prescribed controller medication was measured for 6 weeks following the research visit. Primary caregiver QOL was significantly lower than secondary caregiver QOL (Mean overall QOL of 5.85 versus 6.17, p < .05). Better medication adherence was associated with higher primary caregiver QOL (ρ = .22, p = .02); secondary caregiver QOL, not primary caregiver QOL, was positively associated with child QOL (ρ = .20, p = .03). Families with discrepant QOL scores between caregivers (difference in scores of at least .50) were characterized by more family burden and primary caregiver psychological symptoms. Differences in QOL scores between caregivers may be a reflection of primary caregivers’ greater investment in daily asthma management. In families reporting low burden and few psychological difficulties in the primary caregiver, QOL assessments from either caregiver may may be informative and representative of how parents are adapting to child asthma. In families experiencing high levels of burden or more primary caregiver psychological difficulties, QOL reports from secondary caregivers may not be as clinically meaningful.     

Is Easy Access Related to Better Life? Walkability and Overlapping of Personal and Communal Identity as Predictors of Quality of Life

Two studies (N?=?190 and N?=?447) were conducted to investigate the link between living in walkable neighborhoods and satisfaction with life in a city. Additionally, we explore possible mediators of this relationship. In both studies walkability was a significant predictor of perceived quality of life in a city, and overlap between personal and communal identity (in Study 1 and Study 2) and city identification (Study 2) were mediators of the walkability—quality of life relation. Implications for research on environmental qualities of neighborhoods and on self-concept and communal identity are discussed.     

Changes in Body Mass Index and Quality of Life—Population-Based Follow-up Study COURAGE and COURAGE-POLFUS,Poland

Applied Research in Quality of Life - The study aimed to verify an association between changes in body mass index (BMI) and quality of life (QoL) in a 4-year follow-up in a population-based study...     

Well-Being, Quality of Life, and the Naïve Pursuit of Happiness

The pursuit of happiness is a long-enshrined tradition that has recently become the cornerstone of the American Positive Psychology movement. However, “happiness” is an over-worked and ambiguous word, which, it is argued, should be restricted and only used as the label for a brief emotional state that typically lasts a few seconds or minutes. The corollary proposal for positive psychology is that optimism is a preferable stance over pessimism or realism. Examples are presented both from psychology and economics that illustrate the dangers of optimism, and in which better outcomes can occur with a pessimistic stance. A more sophisticated approach is then presented in which, in relation to well-being and quality of life, neither optimism nor pessimism is seen as inherently better than the other, but, rather, in which psychological flexibility may contribute optimally to health and well-being.     

Does Economic Inequality Affect the Quality of Life of Older People in Rural Vietnam?

By combining data from the 2011 Vietnam National Aging Survey and the 2011 Rural, Agricultural and Fishery Census, this study examined whether expenditure inequality has any effect on the quality of life (life satisfaction or happiness) among the elderly in rural Vietnam. It was confirmed from our regression analysis that individuals who live in the communes with high inequality tend to self-report as being less happy, even after controlling for various individual and household attributes. The findings are robust to the choice of inequality measures and the specification of econometric models. We also find that older rural people who are farmers or poor are more sensitive to inequality. Given that these people tend to be less happy than others, the result shows the risk that inequality further lowers their subjective well-being. This finding, in part, supports the view that rural Vietnam is not a mobile society.     

Caregiving Burden and Parent–Child Quality of Life Outcomes in Neurodevelopmental Conditions: The Mediating Role of Behavioral Disengagement

The aim of this study was to analyze the direct and indirect effects, via parents’ behavioral disengagement coping, of caregiving burden on the quality of life (QL) of parents and their children with neurodevelopmental conditions. Self-completion questionnaires on the target variables were administered to a sample of 156 parents who had a child with a neurodevelopmental condition, namely epilepsy (n = 65) and cerebral palsy (n = 91). Structural equation modeling was used to test a mediation model and ascertain direct and indirect effects among study variables. Significant direct effects of caregiving burden on parents’ and their children’s QL were found. Additionally, caregiving burden had a significant indirect effect on parents’ QL, via behavioral disengagement, but not on their children’s QL. Finally, this model was found to be invariant across conditions and patients’ age groups. Caregiving burden may be elected as a strategic intervention target to improve parent–child QL outcomes in neuropediatric settings. Parents should be encouraged to avoid or reduce behavioral disengagement coping in relation to their caregiving stress, and alternatively adopt active coping strategies that may positively affect their children’s QL and impede or attenuate the deleterious effects of caregiving burden on their own QL.     

Effects of an Online Acceptance and Commitment Therapy Intervention on Children’s Quality of Life

Journal of Child and Family Studies - The present study examined if an Acceptance and Commitment Therapy (ACT)–based online intervention for parents had indirect effects on their...     

Edited by Daniel T. L. Shek and Robert M. Hollister: Book Review of “University Social Responsibility and Quality of Life: A Global Survey of Concepts and Experiences”. Quality of Life in Asia Series,Volume 8

Applied Research in Quality of Life -     

Coronary Intervention Improves Disease Specific Health-Related Quality of Life but Not Individualised Quality of Life: A Potential Response Shift Effect?

To explore potential response shift effects with different quality of life (QoL) instruments in cardiac patients undergoing coronary intervention. Study Design and Setting: Recalibration was assessed with the disease specific health-related quality of life (HRQL) instrument MacNew in combination with a then-test approach. Reconceptualisation and reprioritisation were assessed with the individualised QoL instrument SEIQoL-DW. Significant treatment effects were seen on the MacNew (global Δ: 0.6 ± 1.1, p = 0.004) but not on the SEIQoL-DW (Δ: 3.3 ± 16, p = 0.37) 6 months after coronary intervention. No recalibration effect was found on the MacNew then-test, while with the SEIQOL-DW potential response shift effects of reconceptualisation and reprioritisation were seen. For the first time response shift effects were explored in cardiac patients undergoing coronary intervention. This study confirmed that there is a clinically significant improvement in disease specific HRQL over time following successful coronary interventions. However, no treatment effect was seen for individualised QoL with the SEIQoL-DW. This might be due to reconceptualisation and reprioritisation response effects. Future studies need to focus on exploring response shift effects, and the interrelationship between its different components, captured by different patient reported outcome instruments in larger patient groups undergoing coronary interventions.     

Mihajlo D. Mesarović: a Pioneer in Systems Research,the Environment,and Quality of Life

Applied Research in Quality of Life -     

What is the Strength of the Link Between Objective and Subjective Indicators of Urban Quality of Life?

Urban quality of life is usually measured by either subjective indicators using surveys of residents' perceptions, evaluations and satisfaction with urban living or by objective indicators using secondary data and relative weights for objective indicators of the urban environment. However, rarely are subjective and objective indicators of urban quality of life related to each other. In this paper, these two types of indicators were linked using Geographical Information Systems (GIS) to both locate respondents to the “2003 Survey of Quality of Life in South East Queensland” and also to gather objective indicators about their urban environment within the region with regard to services, facilities and overcrowding. Using Structural Equation Modelling (SEM), the strength of the relationships between these objective indicators and subjective indicators was examined. The results show that relationships between objective and subjective indicators of urban QOL can be weak, and suggests care should be taken when making inferences about improvements in subjective urban QOL based on improvements in objective urban QOL. However, further research is needed into the links between objective and subjective indicators of urban QOL including examining other aspects of the urban environment, non-linear relationships, and moderating effects for individual differences.     

Are People Mindful in Different Ways? Disentangling the Quantity and Quality of Mindfulness in Latent Profiles and Exploring their Links to Mental Health and Life Effectiveness

We sought to disambiguate the quantitative and qualitative components of mindfulness profiles, examine whether including ‘nonattachment’ as a subcomponent of mindfulness alters the profiles, and evaluate the extent to which the person‐centred approach to understanding mindfulness adds predictive power beyond a more parsimonious variable‐centred approach. Using data from a nationally representative sample of Americans (N = 7884; 52% female; Age: M = 47.9, SD = 16), we utilized bifactor exploratory structural equation modelling and latent profile analysis to separate the level and shape of previously identified profiles of mindfulness (Pearson, Lawless, Brown, & Bravo, 2015 ). Consistent with past research, we identified a judgmentally observing profile and a non‐judgmentally aware group, but inconsistent with past research, we did not find profiles that showed high or low levels on all specific aspects of mindfulness. Adding nonattachment did not alter the shape of the profiles. Profile membership was meaningfully related to demographic variables. In models testing the distinctive predictive utility of the profiles, the judgmentally observing profile, compared to the other profiles, showed the highest levels of mental ill‐health, but also the highest levels of life satisfaction and effectiveness. We discuss the implications of our study for clinical interventions and understanding the varieties of mindfulness. Copyright © 2017 European Association of Personality Psychology     

Character Strengths and Social Support as Protective Factors between Grandparents’ Caregiving and Health-Related Quality of Life

Journal of Child and Family Studies - The number of grandparents providing supplementary care for their grandchildren has increased in the past decades. When analyzing the relationship between the...     

A Descriptive Study of Pain and Quality of Life following Guillain-Barré Syndrome: One Year Later

Guillain-Barré syndrome (GBS) is a debilitating immunopathy that afflicts approximately 5,000 patients annually in the United States, a number that represents roughly half of the incidence of spinal cord injuries (J. M., Meythaler, 1997). Of these 5,000 new cases per year, 4–15% will die, 20% will possess deficits in ambulation or require ventilator assistance more than one year later, and more than two-thirds will have persistent fatigue (J. M., Meythaler, 1997; Hughes et al., 2003). These figures suggest that GBS is currently a legitimate cause of long-term disability.Many secondary complications may follow GBS that include dysautonomia, deep vein thrombosis, anemia, immobilization, and pain and sensory involvement (J. M., Meythaler, 1997; J. M. Meythaler, M. J. De Vivo, and W. C. Braswell, 1997). These medical complications have not been studied systematically, and the psychosocial complication of pain following GBS has certainly been overlooked in the literature. The present paper utilized a limited sample of 18 patients (N = 18) with persistent motor deficits at least one year after onset of GBS. We examined their pain and perceived quality of life as part of an ongoing federally funded study which will ultimately attempt to determine if 4-aminopyridine (4-AP) significantly improves motor function in patients with residual weakness from GBS. Findings suggest that while most persons do not rate themselves as depressed one year after GBS onset, 22% of respondents did exceed the cutoff for clinical depression on the CES-D. Age and gender do not appear to be related to any component of pain in GBS; however, self-ratings of physical and mental health do appear to be significantly related to pain experience. The nature of this relationship was not determined, and merits further investigation in future studies.