The Emergence of Clinical Research Ethics Consultation: Insights From a National Collaborative

The increasing complexity of human subjects research and its oversight has prompted researchers, as well as institutional review boards (IRBs), to have a forum in which to discuss challenging or novel ethical issues not fully addressed by regulations. Research ethics consultation (REC) services provide such a forum. In this article, we rely on the experiences of a national Research Ethics Consultation Collaborative that collected more than 350 research ethics consultations in a repository and published 18 challenging cases with accompanying ethical commentaries to highlight four contexts in which REC can be a valuable resource. REC assists: 1) investigators before and after the regulatory review; 2) investigators, IRBs, and other research administrators facing challenging and novel ethical issues; 3) IRBs and investigators with the increasing challenges of informed consent and risk/benefit analysis; and 4) in providing flexible and collaborative assistance to overcome study hurdles, mediate conflicts within a team, or directly engage with research participants. Institutions that have established, or plan to establish, REC services should work to raise the visibility of their service and engage in open communication with existing clinical ethics consult services as well as the IRB. While the IRB system remains the foundation for the ethical review of research, REC can be a valuable service for investigators, regulators, and research participants aligned with the goal of supporting ethical research.     

Gliding across the liminal space between counsellor and counselling researcher: Using collective biography practices in the teaching of counselling research methodologies

Aims: Drawing on their engagement in a specific collective biography research project, the co-authors aim to demonstrate how the weaving together of creative story-telling and the theory underlining collective biography practices resulted in an understanding of rhizomatic research methodologies from within the process. This paper aims to demonstrate one way in which research methodologies training can become more firmly embedded within counsellor training courses. Method: A collective of counselling students and a session tutor colleague used collective biography practices to research their memories of traversing the liminal space between ‘counsellor’ and ‘counselling researcher’. Alongside the resulting collective stories, a collaborative review of the research process examined our chosen ways of working within the project. Outcomes: Engaging in collective biography practices resulted in an experiential shift from ‘learning to do counselling research’ to ‘becoming counselling researchers’. Weaving together research processes and researcher reflexivity generated personal and professional learning. Ways in which these research methodologies complement core components of counselling training, within and beyond the teaching of research, were identified. Conclusions: Collective biography practices offer a way of introducing non-arboreal creative research methodologies into counsellor training. Careful consideration of potential challenges surrounding the introduction of these practices is required.     

How do students implement collaborative testing in real-world contexts?

Recent research has explored the effects of collaborative testing, showing costs and benefits during learning and for subsequent memory. However, no prior research is informative about whether and how students use collaborative testing in real-world contexts. Accordingly, the primary purpose of the current research was to explore the extent to which students use collaborative testing during self-regulated learning. We conducted three surveys (n = 692 across three samples) asking students about their use of collaborative testing, with a particular interest in conditions under which students report implementing collaborative testing. Among the key outcomes, a majority of students reported using collaborative testing when studying in a group. Additionally, students reported that key term definitions are the material most often used during collaborative testing. Students are also more motivated to use testing and believe testing is more effective and more fun when implemented in a group versus alone. Outcomes also shed light on metacognitive components of collaborative testing, with the student asking (versus answering) the question making the monitoring judgement whereas both students make the control decision about when to terminate practice. We discuss ways in which the collaborative memory literature can be extended to support more successful student learning.     

The research couple: a psychoanalytic perspective on dilemmas in the qualitative research interview

The relational, collaborative values of the qualitative research paradigm frequently require us to consider sharing the ongoing analysis of data with our research participants for comment and feedback. However, qualitative researchers may experience some tension between balancing participants' narrative accounts with their own analytic perspective and use of psychological theory. In using a psychoanalytic framework to explore this predicament, this paper adopts the notion of the ‘research couple', analogous to the psychotherapeutic ‘analytic couple', to consider possible oedipal dynamics within the qualitative research interview. The paper explores some of the emotional and ethical tensions in analysing and presenting research results and briefly discusses some implications for research training.     

On Community Leadership: Stories About Collaboration in Action Research

This article provides an account of a 10-year collaborative documentation of community leadership in an African American community on the South side of Chicago. The stories are oriented to several critical incidents in the life course of the collaboration. They are told from the perspectives of one university professor, four graduate students, and one community leader. Together they provide an account of how this research was shaped by the interactions of the research team with members of the community, how research questions emerged, methodologies were developed, ways of gathering data were tried and tested, and interpretations of data unfolded. Special attention is given to the ways in which the process and products of this research contributed to the community's own process of leadership development. The stories also discuss the various roles participants in this collaboration played both in the academic arena and in the community, and how they experienced gender, race, nationality, and social status.     

With a Spirit that Understands: Reflections on a Long‐term Community Science Initiative to End Suicide in Alaska

This retrospective analysis of a long‐term community‐based participatory research (CBPR) process spans over two decades of work with Alaska Native communities. A call to action from Alaska Native leadership to create more effective strategies to prevent and treat youth suicide and alcohol misuse risk initiated a response from university researchers. This CBPR process transformed into a collaborative effort to indigenously drive and develop solutions through research. The People Awakening project started our team on this translational and transformational pathway through community intervention science in the Central Yup'ik region of Alaska. We examine more deeply the major episodes and their successes and struggles in maintaining a long‐term research relationship between university researchers and members of Yup'ik Alaska Native communities. We explore ways that our CBPR relationship has involved negotiation and engagement with power and praxis, to deepen and focus attention to knowledge systems and relational elements. This paper examines these deeper, transformative elements of our CBPR relationship that spans histories, cultures, and systems. Our discussion shares vignettes from academic and community perspectives to describe process in a unique collaboration, reaching to sometimes touch upon rare ground in emotions, tensions, and triumphs over the course of a dozen grants and twice as many years. We conclude by noting how there are points where, in a long‐term CBPR relationship, transition out of emergence into coalescing and transformation can occur.     

Trying on and Trying Out: Participatory Action Research as a Tool for Literacy and Identity Work in Middle Grades Classrooms

This article explores the role of collaborative, ethnographic, participatory action research (PAR) with eighth grade students as a set of possible literacy practices for involving students with issues connected to their lives, resources, language(s), and communities. Findings are based on a year of fieldwork conducted as part of shared inquiry into one public school community’s experiences with gentrification and meeting the complex needs of diverse learners. Findings bring to life the ways in which PAR facilitates the redefining of reading, writing, and research; the reconsideration of languages; the rethinking of literacy practices; and the repositioning of participants within and beyond given research endeavors.     

A pluralistic framework for counselling and psychotherapy: Implications for research

Historically, training, research and practice in counselling and psychotherapy have been dominated by unitary theoretical models. Although integrative and eclectic positions have been developed as alternatives, these have not been successful in generating research and have resulted in a further proliferation of competing models. In this paper we introduce a ‘pluralistic’ framework for counselling and psychotherapy and discuss the implications of this framework for research. The basic principle of this pluralistic framework is that psychological difficulties may have multiple causes and that there is unlikely to be one, ‘right’ therapeutic method that will be appropriate in all situations—different people are helped by different processes at different times. This pluralistic framework operates as a meta‐theory within which it is possible to utilise concepts, strategies and specific interventions from a range of therapeutic orientations. The framework is structured around three domains—goals, task and methods—by which therapeutic processes can be conceptualised, critically examined and empirically investigated. These domains, and the relationships between them, are outlined and the collaborative relationship at the heart of the pluralistic framework is discussed. The pluralistic framework provides a means for empirical research directly to inform practice and potential lines of empirical inquiry are outlined, along with findings from a recent study of counselling in schools.     

Pilot randomised controlled trial of counselling in a community mental health setting: Pitfalls and learnings

The establishment of counselling and psychotherapy as “evidence‐based” interventions is contingent on the effective implementation of randomised controlled trials (RCTs) in real‐world clinical settings. This paper identifies some of the pitfalls that led to the termination of a practical RCT in a community mental health setting. It reflects upon the significance of the lessons learned by drawing on similar challenges that are documented in the wider literature. Issues surrounding staff turnover, counsellor engagement and procedural clarity are discussed, as is the conflict between the time required for research procedures and counsellors’ clinical time constraints. In our recommendations, we recognise the decisive role of collaboration and counsellor motivation in research partnerships, and the significance of clinical relevance, communication, training and research co‐production in achieving them. Time commitment is identified as the pivotal challenge in the formation and maintenance of collaborative research, but one that also must be overcome for the advancement of the counselling and psychotherapy field.     

Writing therapy in brief workplace counselling: Collaborative writing as inquiry

The purpose of this collaborative research was to reflect on one client's experience of using writing therapy during brief workplace counselling. The client/co‐researcher used expressive and creative writing between counselling sessions, the benefits of which are reported. A brief review of the literature on writing therapy is provided. The focus of the study is on investigating the process of writing therapy from the client's point of view. The epistemological assumptions and research methods are influenced by narrative inquiry. Feminist values inform both the therapeutic practice and research.     

Madness strikes back

This commentary is concerned with the involvement of mental health service users in research. It will argue that research carried out by service users is one way of giving voice to a previously silenced group—the mad. It is one way in which ‘Madness Strikes Back’. The main theoretical model to be used is that of the early Foucault. I will not be concerned with what has become known as ‘Foucauldian discourse analysis’ since nowhere in Foucault's writing is there reference to conversation or talk. I will, however, be concerned with power as mental health service users are amongst the most disempowered of groups in all societies. I will also be concerned with Foucault's claim that, since the Enlightenment, madness has been positioned as the antithesis of reason, as ‘unreason’. This distinction can be argued to persist in the field of research. Copyright © 2008 John Wiley & Sons, Ltd.     

Action Research on Meaning-Making at Residents' Meetings for Local Disability Policy1

This is the third in a series on residents' meetings (RMs) for municipal disability policymaking in Japan; members included people with disabilities (PWDs). I focused on members' meaning-making process for three community organizational goals: task, process, and relationship. Action research was employed in all three studies during my participation in RMs, which began in 2002. The present study is a follow-up on the meetings' development and covers 2013 to 2019. Meetings were divided into three phases: (a) use of the annual symposium to inform a broader audience about disability policies; (b) appreciation that PWDs can play active roles as supporters of others, especially other PWDs; and (c) recognition that contradiction and dilemma are present in attempts to provide “universal” social equipment for social minorities. The three goals were interrelated through uncertainty and vagueness of RMs; however, it enabled the members to interpret their multifaceted disability-related experiences. PWDs realized their power to help others and developed disability identities through intensive discussions, while they realized the difficulty of social acceptance of their power and the limited solidarity among PWDs.     

Collectivizing Rescue Obligations in Bioethics

Bioethicists invoke a duty to rescue in a wide range of cases. Indeed, arguably, there exists an entire medical paradigm whereby vast numbers of medical encounters are treated as rescue cases. The intuitive power of the rescue paradigm is considerable, but much of this power stems from the problematic way that rescue cases are conceptualized—namely, as random, unanticipated, unavoidable, interpersonal events for which context is irrelevant and beneficence is the paramount value. In this article, I critique the basic assumptions of the rescue paradigm, reframe the ethical landscape in which rescue obligations are understood, and defend the necessity and value of a wider social and institutional view. Along the way, I move back and forth between ethical theory and a concrete case where the duty to rescue has been problematically applied: the purported duty to regularly return incidental findings and individual research results in genomic and genetic research.     

Constructing a Tree for Community Leaders: Contexts and Processes in Collaborative Inquiry

This paper presents collaborative research between a university-based team and a grass roots community organization on the south side of Chicago. The purpose of the work is to document the nature of community leadership as expressed by members of the host organization. Using a semistructured interview, 77 community members nominated by the host organization were asked about various aspects of their community work. Qualitative analyses of interview text generated a set of 56 codes concerning different aspects of community leadership as reported by grassroots leaders. These codes were subsequently grouped together into five conceptually linked dimensions of community leadership. A leadership tree that simultaneously analyzes and visually displays each of these five dimensions of community leadership was created. Implications of the methodology used to create the leadership tree are discussed for the salience of qualitative methods in community research.     

Community-Based Participatory Research for Improved Mental Health

Community-based participatory research (CBPR) focuses on specific community needs, and produces results that directly address those needs. Although conducting ethical CBPR is critical to its success, few academic programs include this training in their curricula. This article describes the development and evaluation of an online training course designed to increase the use of CBPR in mental health disciplines. Developed using a participatory approach involving a community of experts, this course challenges traditional research by introducing a collaborative process meant to encourage increased participation by special populations and narrow the parity gap in effective mental health treatment and services delivery.     

权力操作范式的分析与比较

从认知的视角研究权力已是目前权力研究的主流,但权力的认知研究结果和外部效度均受制于其实验操作范式.对国外现有权力操作范式进行分析,可在促进其完善的同时,更对建构适合中国背景下的权力操作方式有一定的借鉴意义.从对现有主流权力操作范式,即奖惩法、回忆法、信息控制法、具体数值法、BATNA法、语义唤起等方法介绍,以及对其实证应用与检验结果中,可以明显对比出各种范式的优势与不足.现有学者较少意识到该点,使用各范式时不加区分,这引起了各范式在适用研究、多等级操作、相关概念操作等方面的混乱.未来研究仍需从角色分配、区分自我权力与他人权力操作、操作检验等角度,改进现有权力操作范式.     

Research Quality: Critique of Quantitative Articles in the Journal of Counseling & Development

The purpose of this study was to examine the quality of quantitative articles published in the Journal of Counseling & Development. Quality concerns arose in regard to omissions of psychometric information of instruments, effect sizes, and statistical power. Type VI and II errors were found. Strengths included stated research questions and appropriateness of analyses. Implications of these results are provided.     

Minimizing Bias and Maximizing the Potential Strengths of Autoethnography as a Narrative Research

Up to the current time, psychology has provided very limited space for qualitative research to contribute to the discipline, even though psychology has a lot to do with subjectivity and intersubjectivity in its work. This article discusses autoethnography, which by some qualitative researchers is still being debated. The author argues that autoethnography contains strong narrative components or analysis with potential contribution to provide new understanding and to build knowledge. The article discusses criticisms against autoethnography, followed by its distinctive characteristics, which at the same time bring significant potential power. Clear guidelines and steps are needed to minimize biases and to bring about the potential power of autoethnography, and this article aims to address the issues through discussions on intersubjectivity, reflexivity, and ethics. At the end, it might be concluded that autoethnography is a method to investigate not merely the researchers, but to reveal certain phenomena and issues. Autoethnography is one good alternative among other methods that can contribute to developing understanding and knowledge through the construction of substantive theories about a particular issue.     

Community Mobilization and Community-Based Participatory Research to Prevent Youth Violence Among Asian and Immigrant Populations

Many community mobilization activities for youth violence prevention involve the researchers assisting communities in identifying, adapting, and/or tailoring evidence-based programs to fit the community needs, population, and cultural and social contexts. This article describes a slightly different framework in which the collaborative research/evaluation project emerged from the community mobilization activities. As will be discussed, this collaborative, sustained partnership was possible in the context of the Center on Culture, Immigration and Youth Violence Prevention's (UC Berkeley ACE) community mobilization activities that brought the issue of youth violence, particularly among immigrant and minority populations, to the forefront of many of the community partners' agendas. The East Bay Asian Youth Center (EBAYC) was one of the partners that came to the table, which facilitated the community-based engagement/mobilization. UC Berkeley ACE collaborated with EBAYC to evaluate an after-school program and an alternative probation program serving a diverse youth and immigrant population, including African Americans, Asians, and Hispanics. This article describes UC Berkeley ACE's community mobilization activity and the collaborative partnership with EBAYC, discusses how the evaluations incorporated community-based principles in design and practice, and presents some findings from the evaluations.