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Newborn screening for cystic fibrosis: Educational implications
Authors:John Rae  Michael W. Partington
Affiliation:(1) Regional Medical Genetics Unit, P.O. Box 84, 2298 Waratah, NSW, Australia;(2) Tamworth Health Service, 180 Peel St., 2340 Tamworth, NSW, Australia
Abstract:We examined the educational implications of newborn screening for cystic fibrosis (CF) as performed by combining the measurement of immunoreactive trypsin with analysis for the most common CF mutation, DeltaF508. Four out of 77 (5%) of maternity staff from 11 hospitals in rural New South Wales, Australia had learned about the salient features of the screening protocol from a pamphlet distributed from a central laboratory. In comparison, a didactic lesson resulted in a significantly greater (p<0.00006) number of maternity staff learning about the salient features of the screening protocol. Most maternity staff expanded their explanation to parents of newborn babies because of the didactic lesson.
Keywords:cystic fibrosis  newborn screening  educational implications  parental anxiety
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