Defining the Nature and Impact of Goals in Children and Adolescents with a Chronic Health Condition: A Review of Research and a Theoretical Framework |
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| Authors: | Lisa Schwartz Dennis Drotar |
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| Affiliation: | (1) Department of Psychology, CHOP North, The Children’s Hospital of Philadelphia, 34th St. and Civic Center Blvd., Philadelphia, PA 19104-4399, USA;(2) Division of Behavioral Pediatrics and Psychology, Case Western Reserve University School of Medicine and Rainbow Babies & Children’s Hospital, Cleveland, OH, USA |
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| Abstract: | This paper presents a review of research related to goals in youth with a chronic health condition (CHC) and a related framework to inform theory and research. Performed literature review using PsychINFO and Medline with a combination of many key words related to health, goals, and youth. Sixteen studies related to goals in youth with a CHC were identified. An integrative framework to inform research on goals in pediatric CHCs was presented based on studies reviewed. The impact of a CHC on goals and related behaviors, impact of goal conflict and collaboration, interventions with goal-setting components, and impact of developmental, disease, socioeconomic, and cultural factors were described. Recommendations for future research were discussed. The application of theory related to the nature and impact of goals in youth with a CHC will advance the field from a research and clinical standpoint. |
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| Keywords: | Goals Pediatric chronic health condition Disease management Quality of life Theory Framework |
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